This also happened to me out of the blue and I lost 14 pounds in weight. I am not one to take medication for anything so investigated what I could do naturally. Firstly, the colon needs a rest. I ate 2 scrambled eggs for breakfast without any bread and drank hot water and lemon with it. After 3 hours I ate a piece of fruit, usually a banana with hot water and lemon. After 3 hours I had a bowl of homemade carrot soup with a slice of sourdough and butter followed by hot water with a slice of lemon. After 3 hours I had a raw carrot or celery with a tablespoon of peanut butter without palm oil. After 3 hours I had 4 ounces of meat with a salad and or vegetables with hot water and lemon. I followed this pattern, varying the food just slightly with an avocado or a tomato sandwich. Each day I also ate a ramekin sized dish of sauerkraut and also a remekin sized dish of authentic greek yogurt, not greek style. After 4 days things began to settle down and I gradually incorporated other foods but no junk food or sweet food. About a month ago it recurred for one day so I returned to the diet described and it promptly fixed it. I am not a doctor but I think once you have this, even when it subsides, you are still prone to a recurrence if you are not careful with your diet. It's a darned nuisance and is frightening at the beginning when you don't know what it is. Good luck to everyone out there who is suffering. My weight is back on which is a shame because it was nice getting into clothes I had not worn for a while.

same here. diagnosed after colonoscopy. put on budesonide for 8 weeks. it worked wonders as i felt great again with no symptoms. after 2 weeks off the drug symptoms returned. it has now been 2 years with dietary changes and some weeks good some bad. about 2 months ago my symptoms suddenly started to improve dramatically. some things i stopped eating like dairy products i have started to eat again with no ill effects. keeping the fingers crossed as time goes by.

Nice of you to post a video.. l have had it for 2 years .. absolutely horrible can’t seem to get better.. have average days and bad..and suffer from fatigue .. can’t even work at the moment.. biggest problem is people don’t understand what you go through... Love to hear from u.. Cheers from down under..

Dave Shaw I had diarrhea three years misdiagnosed with SIBO. Dr told me I would figure it out before he did, so found another Dr and diagnosed with MC. I took the Budesonide regiment and have been ok for about six months. I understand what you are going through. I am a Christian and my wife and I pray every night. We will be praying that If you don’t know Jesus you will. Please check out In Touch Ministries with Charles Stanley on you tube. It will bless you! I have neaver reached out like this before but my heart said do it. We will be praying for your healing. All of us !

I have microscopic collagenous colitis. Budesonide works while I'm on it but immediately after I'm off my symptoms return within a week or two. I've found that eating dairy free and limiting my caffeine and alcohol intake have really helped (which is a little sad but we all have our burdens I guess). I tried cutting out other things like gluten and soy. I found the things that work for me. I relate to a lot of the issues you say you've had in the video though. I was diagnosed the first time at 20 years old. I am 23 now and after 3 years of constant changing and questioning, I was able to find something that kept me good I would say 1/2 to 3/4 of the time. I still have my bad days. Just letting you know you aren't the only one and heres to hoping you find something that works for you!!

I sure hope they can find ways to help you!! Thanks for sharing!!

Diagnosed with this in 2011, went on Budesonide and it worked well, but found out that I needed to take it all the time, finally able to get to where 1 capsule a day. 11 years late had a Gastro MD who was concerned how long I had been taking Budesonide, wanted to switch to something else, she put me on Cholestyramine packets, I take one a day in applesauce, and it has worked wonders, I can go out without worry, and have normal looking stools, so just another idea to try it long term steroid use is a concern for you

Thanks for this. It’s good to know we’re not alone. I was diagnosed a year ago after a number of years not being taken seriously. Moving to a new Dr was the key. Budesinide worked initially, but isn’t now. I haven’t found any food triggers. Has anyone else?

Thank you for your video Victoria. I was diagnosed with Collagenous Colitis two years ago, and responded super well to Budesonide. But, like other subscribers here, weaning myself off the steroid would allow a short period of remission before it all started again. In the last 3 months I feel it’s spiralling out of control, and the Budesonide doesn’t appear to be working any more! I have only seen a Gastroenterologist once - and that was after months of writing letters of complaint to the hospital. I think that Covid put so much stress on the NHS that they were just not able to see me! Fortunately, I do have an appointment for next week and it will be good to have some expert advice. I love your positive attitude and really want to be like you. At the moment, I am tired, skin and bone and looking horrendously old!! I hope I get some answers next week. In the meantime, I’ve got myself a Low FODMAP recipe book, and will make notes from Clara Austen’s post, below. It’s good to discover that I’m not alone.

I’ve had MC for 5-6 years. I don’t own underwear anymore but I am in heavy diapers 24/7. I spend roughly $500 every 3 months. I still have accidents. Many many accidents. I’ve just finished my second colonoscopy. Same MC diagnosis. I had a stroke three years that I’ve pretty much recovered from except for the ability to walk. I use a mobility scooter to get around. I’ve been on Bud for 4 years but it doesn’t do much. The NP that ordered my last Colonoscopy put me on Loperamide and Bud. It worked well. Still had accidents but not as many. When I went to get a refill, that NP had left the practice so I’m waiting for my regular doctor to see me in about a month. Ann, I hope your doing well. I wouldn’t wish this on my worst enemy. It STINKS!

It's sad that there's no help for people with colitis in the UK. I feel sick every day, I have diarrhoea frequently, and when I get a flare up, I experience uncontrollable bloody diahrea constantly and it's one of the most painful things iv ever experienced. I can only manage to work part time, and I don't work enough hours get sick pay, so when I get a flare up, I'm on no income. Universal credit said I'm not entitled to anything, and PIP scored me all 0s and accused me of lying (Iv asked for a mandatory reassessment but they've not responded). Feels like I'm doomed to live in poverty for the rest of my life.

I just relapsed sfter 5 years since I took Budesonide so it does work! Hoping to get another perscription this week.

Do any diet restrictions help for you.

Hello , I long to find answers .However ..in truth..Mine began after One last go of Radiation 7 years ago.It was literally as if my body said ..Nope ..Cant do it anymore.I had horrible diarrhea. At first no idea why..But gastro dr..colonscopy,swallowing a blinking pill,i lost so much weight..It got to be that I never knew when it would hit me . I failed all oral medications. Then got exceptionally weak. I had something called a picc line put in.I only get saline .My dr said I could not be treated with biologics due to high risk of secondary cancers. Im also highly allergic to steroids. I have pain siniliar to period pain type cramping I developed ,a body that I look like I have a eating disorder.But its been 7 years. I do try to be careful But somedays I simply cant eat And I just drink What I can.I battle nasea frequently. Praying for all of you

Did you get tested for celiac disease cause that can cause microscopic colitis. I have both I just got diagnosed.

Still struggling w diagnoses Latest colonoscopy not showing results. One year

Diagnosed a week ago after 9 years because no one took a biopsy until 2 weeks ago. Day 2 on the steroids. Please tell me this gets better.

I have indeterminate Microscopic Colitis. I was told i had ibs first and just sort of left to suffer. Then my symptoms got worse and i was sent for a colonoscopy where it came back with the colitis. I went on pernisolone at first but now im just on pentasa. I still have bad days. Anything can set it off. Mostly stress. When i first got the diagnosis i lost over 2 stone trying to sort out my diet. Was scary. ❤

I just learned the hard way that microscopic colitis does NOT appear in a normal colonoscopy. You MUST request biopsies to be studied in the lab (that's why it's called "microscopic" colitis).