Vitamins and Epilepsy: What You Need to Know

Рет қаралды 12,688

Күн бұрын

Welcome to our Living with Epilepsy Series as our founder Natalie Boehm discusses what vitamins are, their benefits, what vitamins can benefit people with epilepsy, what vitamins should be avoid if you have epilepsy, and should vitamins be a part of someone's care plan.
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Пікірлер: 40

@kathyhhb Ай бұрын

Manganese and Dimethylglycine, never heard of that, great another supplement. 😅🙄

@babakgholian3467 5 ай бұрын

B6 and b12 help with epilepsy .

@sekeriyasharif6593 Ай бұрын

I started having symptoms of temporal lobe epilepsy like phantom smells and extreme Deja vu. But my EEG and mri came back normal. So I’m really confused as to whether I have epilepsy or not

@DefeatingEpilepsyFoundation Ай бұрын

Doctors diagnose individuals with epilepsy when they have had at least two unprovoked seizures. I have had epilepsy for 43 years now and there have been times when my EEG was normal. The extreme deja vu and phantom smells are auras. When my seizures were not controlled I would feel very frightened and then lose consciousness. Here is the link for our temporal lobe epilepsy video. Please let me know if you have any questions kzfaq.info/get/bejne/n5xyq9OU0NzDlGg.htmlsi=T-Wd_3C_F9hRDC44

@bluedemon218 Ай бұрын

Well luckily I get Vitamins B3 B6 B12 from what I drink. Then I take Fish Oil/Omega-3, Vitamin E, and Magnesium multi-Vitamins w/ Zinc. Plus I eat more Fish nowadays rather than any other meat.

@anamariafernandezpabon822 8 ай бұрын

Excellent video! I have epilepsy and taking Lamotrigine. Can I take NAC? Thanks!

@DefeatingEpilepsyFoundation 8 ай бұрын

Thank you so much! I would check with your doctor to see if it would be good. I am not a physician, I have epilepsy as well. I am on lamotrigine as well and I have not had any complications with my supplements. Glad that you liked the video!

@anamariafernandezpabon822 8 ай бұрын

@@DefeatingEpilepsyFoundation Thanks!!!

@neebinmakwah349 Жыл бұрын

Just an old and handicapped guy who started having seizures, every 8 to 15 weeks? Thanks for your information

@DefeatingEpilepsyFoundation 11 ай бұрын

I would seek a appointment with an epileptologist (neurologist that specializes in epilepsy) and request a EEG and MRI. The EEG is used to find any abnormal brain activity and the MRI can see if there is any brain trauma. I would keep a journal and write down any symptoms you are having. I apologize that it took me so long to respond. I normally receive an email when someone comments and I didn't receive this one for some reason. I just came by it now when answering another comment. If you need any information, please let me know. I am happy to help.

@tekendrabhattarai2898 10 ай бұрын

GOOD ENOUGH FOR ALL THE PATIENT,DEAR MADAM 🎓🇳🇵

@DefeatingEpilepsyFoundation 9 ай бұрын

@@tekendrabhattarai2898 I would always talk to your physician before making any changes. I take supplements to help with my side effects, but my doctor is aware of everything I take and it is in my records. Vitamin D3 has helped greatly with reducing my depression, calcium to make sure my bone density is good, and magnesium for my headaches. Make sure it is ok with your doctor before making any changes.

@jewellevy 9 ай бұрын

😊

@Sydopath 9 ай бұрын

@@DefeatingEpilepsyFoundationI don’t know where you are, but here in the UK doctors are only interested in avoiding litigation, and making £commission from prescribing controlled meds. They will ALWAYS steer you away from OTC supplements, coz they don’t make ££ from it. I asked my GP about CBD, Gaba and Vitamins for my absence seizures and he scoffed and tried to make me feel stupid.

@mohamedmosilhy6929 Жыл бұрын

also vitamin d is essential for epilepsy patients

@DefeatingEpilepsyFoundation Жыл бұрын

That is so true! When I put this presentation together, I was following what Harvard Health suggested, and looking at the research I reviewed, I'm surprised that they didn't list Vitamin D or Vitamin D3. I found an article that stated in the beginning that there is not much data on the benefits of Vitamin D3 and epilepsy, but they are working to establish it. Here is the link for the article if you are interested: doi.org/10.3389%2Ffneur.2016.00218. Thank you so much for your comment!

@mohamedmosilhy6929 Жыл бұрын

@@DefeatingEpilepsyFoundation thank alot for your work

@rameshnarayanan2276 Ай бұрын

What is the link between AED and lower levels of vitamin D3. My son 17 years old is having 8.5ng/ml of D3 when expected levels are between 30 to 100ng/ml

@lachellewade5330 Жыл бұрын

My name is lachelle have a seizure epilepsy

@DefeatingEpilepsyFoundation Жыл бұрын

Very nice to meet you Lachelle. I have had epilepsy for 42 years now.

@maureenflovers1331 8 ай бұрын

There is so many types of magnesium which one is suitable to aid with seizures

@DefeatingEpilepsyFoundation 8 ай бұрын

I would check with your neurologist/epileptologist to see. Depending on the seizures that you have and the medication you are on, they may suggest something specific. I take magnesium because I get migraines at times. My doctor said that magnesium helps to block signals in the brain that can cause migraines. I get them when the barometric pressure changes and I found since adding magnesium to my care plan, I have fewer migraines and when I do have them, they are not as intense.

@sanmarzano 7 ай бұрын

Magnesium threonate is the only version that can pass thru the blood-brain barrier.

@maureenflovers1331 7 ай бұрын

@@sanmarzano yes l came across that info a while ago and are it at times.l read some other viewer says she use magnesium chloride whenever she feels a seizure coming and apparently it prevents her getting the seizure...Thanks for the feedback

@DefeatingEpilepsyFoundation 7 ай бұрын

@@sanmarzano thank you for this information. I'm going to see what information I can find about it.

@brianschroeter2105 Жыл бұрын

Why do seizures leave me with no taste on my tongue? And i spit alot

@DefeatingEpilepsyFoundation Жыл бұрын

I'm not a physician so I cannot diagnose. I found an article in Science Direct that explains the changes in the brain resulting in loss of taste. Here is the link: www.sciencedirect.com/science/article/pii/S1059131119307034. When it comes to spitting, I found a brief description in Neurology. They state ictal spitting can last 10-25 seconds and is an automatic behavior such as lip smacking. Both symptoms are tied to temporal lobe epilepsy. The one with spitting is connected to the mesial temporal lobe. Here is the link for you: n.neurology.org/epearls/20160119. We created a new temporal lobe epilepsy video this year and it explains in detail the substructures of the temporal lobe. Watching that may be beneficial for you so you can get more of an idea of the function and complexity of the temporal lobe. If you have any other questions, please let me know, I'm happy to help.

@cyndiealbert435 5 ай бұрын

The link doesn’t work. My daughter will spit I’m very curious on this read. Tia

@user-in5fr4cr1v 10 ай бұрын

Vitamin K2 and Vitamin D3

@DefeatingEpilepsyFoundation 9 ай бұрын

Both are great vitamins! I take calcium and Vitamin D3 to help keep up my bone density and vitamin D3 for reducing depression. Another great way to get Vitamin D is to go outside and enjoy the sun. I go out and do yoga and it has helped my mental health so much.

@user-in5fr4cr1v 9 ай бұрын

Take K2 with your Vit D@@DefeatingEpilepsyFoundation

@skhalorowers2614 Ай бұрын

How can I reduce my epilepsy

@DefeatingEpilepsyFoundation Ай бұрын

It is best to speak with your doctor regarding controlling seizures because epilepsy is treated on an individual basis. One thing I have done to keep my seizures under control is to eat well by avoiding processed foods, get a good night's sleep, exercise, and do what I can to reduce stress.

@rameshnarayanan2276 Ай бұрын

Try non invasive alternate therapy like Sujok, accupuncture, ayurveda head massage, breathing exercises to help remove brain fog. Do this in conjunction with your neurologist or epileptologist prescribed AEDs please.

@DefeatingEpilepsyFoundation 28 күн бұрын

@@rameshnarayanan2276 thank you for sharing this information and you are right, always talk to your doctor before doing anything. I have had headache therapy massage to alleviate my headaches as well as meditation and yoga. They have helped reduce my brain fog a lot. It is so important to find what works best for you for you to have a good quality of life.

@shirleyqueen2332 11 ай бұрын

What type of magnesium to take for seizures.🙏🇺🇸🦅🇲🇺🦤

@DefeatingEpilepsyFoundation 11 ай бұрын

I would ask your doctor if there is a specific amount they would like you to take. I take 200mg daily (2 100mg capsules) and I buy them through Amazon. Magnesium is good because it reduces headaches.

@sanmarzano 7 ай бұрын

Magnesium Threonate is the only version that is capable of passing thru the blood-brain barrier.

@rick3747 4 ай бұрын

@@sanmarzano True but Magnesium Glycinate is by far the most absorbed type of magnesium. Our family physican and Epileptologist prefer Magnesium Glycinate as well.