So happy you are home! I am just starting my EDS journey. I was diagnosed a few weeks ago with EDS, after ten years of trying to overpower a chiari malformation. I've delayed surgery on my neck bc I'm so scared, but seeing you gives me courage. I'm going through the rounds of specialists now (cardio echo tomorrow), and I'm guessing I'll end up having chiari and fusion surgery next year. As far as I know, I will go back to Cleveland clinic bc I have a retroflexed odontoid, which makes ordinary zipper surgery not an option. It all gets so complicated and scary. Also, I really wish I had your mom. She's amazing! ETA: I forgot to say I found your vlog by searching for EDS braces. I'm anxious to find devices that let me walk without falling, sleep without wrenching my neck, etc. I'm so grateful you've shared your experiences, and in a way that I don't have to read tons of material. My brain stops processing after a few long paragraphs, so videos are a blessing lol! Thank you for making me feel a little less like 1 in 5,000!

Christina, it’s so good to have you back! I know you will get a much needed proper sleep now that your back in your own bed. I honestly don’t remember the very first vlog I watched of yours, but I know this vlog for me is the best ever! The reason, we’ll...this trip to the hospital had me pretty scared, and I hope I don’t ever have to worry like that about you again! This stay really had me worried..I prayed so much, Shed a tear or two, so very afraid. Christina I hate that you struggle so, things not doing what they are saposta do or breaking or coming out of place etc etc. I just wish there was a magic word or something, click your heals twice then poof....your all better! Your a pretty special person Christina, to many people, including complete strangers. You just have that something special to where the world just falls in love with you as a person. You could be having a totally miserable day, but you somehow find the strength to make someone else smile, or give someone the hope they were looking for. This world would never be the same if you were not in it....so just saying, you better plan on sticking around for a very VERY long time! Wow, I do have a tendency go on and on so I better stop. Again, welcome 🏡 You sure have plenty of fun things to keep you busy :) Have a great week ahead, and same to your mom..welcome home! Peace~

My dear, the fact that you have even posted any videos this past month when you have been so sick and in the hospital is amazing. I don't care if they're late, and I would completely understand if you didn't post at all. Give yourself some credit because you did amazingly well.

Christina!!!! Put the brakes on girl! You just got out of a lengthy DIFFICULT stay in the hospital! Multiple surgeries, on and on and on.... You said you are weak too. You seriously need to get your strength back and take care of yourself for a while so you can start functioning.

That first breath of fresh air leaving the hospital is always amazing, so glad to see that you finally got to go home :) I found your videos about a year ago sitting in bed with my own chronic illness...they’ve been inspiration and comfort to me that I can keep going and also that rest is okay. Love the painting!

I've been watching for a year maybe. I found you when I was researching EDS. I think the first video I watched was you video on your diagnosis journey. It actually have me courage to approach doctors with what I thought was going on, and find specialists who could help me... so thank you!! I've since been diagnosed with hEDS, POTS, MCAD and MALS. After 37 years of random health problems, it is such a relief to.know what's going on! Thank you for sharing your journey with us. I'm so glad you're home and doing better and that you got to see your show. Musical theatre is LIFE!!

I don’t even remember what video was the first one that I saw of yours. I think that it might have been where you talked about your braces or your feeding tube. It just popped up on the side and I watched it and subscribed. It’s good to see you back at home again. Take care of yourself and have a good week.

The first ever video I watched of yours was one of your living with EDS series. It was the importance of a diagnosis & early intervention. I found it on May 2017, when I was first diagnosed, and have been watching you ever since. You are the highlight of my week. Be gentle with yourself, Christina. All my healing wishes from all the surgeries...

So glad you are home! Honestly, walking around in stocking feet to feel the ground is really good for your brain and walking! Smell the things, look far distances, all the good stuff. Your eyes are probably tired from staring at the close walls of the hospital room. So glad you love rosemary, I love it too!

Please be kind to your self and Lt your body rest. So many operations in such a short time is a big stress on your body. Give it time. And please don't stress about the vlogs, I happily watch what ever you post when ever you post it. I have watched your videos since before you started blogging every week. You are in my thoughts, wishing you well my friend. Glad to have seen more of your loving mother these past weeks but I have missed Luren, your dad and your cute dog (whos name I can't spell). Please rest and be well and I will see you when I see you (no stress). Much love and healing thoughts ❤❤❤❤❤

I can’t believe that it’s been 100 weeks. You give me strength through the videos, your smile is contagious and your outlook is amazing. I have been watching ever since the What is ehlers danlos syndrome video. It’s been a happy, emotional and exciting journey with you. I’m so happy that you are willing to share your journey with us.

My first video was your rehab story! Your videos are so uplifting to me, and you are such a lovely person to "spend time with" through these vlogs. Chronic illness is hard, but having people like you and The Frey Life bringing light to it, being honest about it, and just living life, is so valuable. Watching your videos is healing for many people, I think. Much love!

Hi Christina, so glad to see you finally out of the hospital! I'm a fellow spoonie - I suffer from severe Myalgic Encephalomyelitis and am usually bedbound due to the vertigo, nausea and fatigue from walking and standing. I started watching you videos maybe 6 months ago - I found the EDS video and then went back at started the vlogs from the beginning! I think I finally caught up around week 80. You also introduced me to The Frey Life and I'm now addicted to Mary, Peter and Ollie! Thanks to yourself, The Frey Life and Jessica Kellgren-Fozard (another KZfaqr with a disability), I finally got the confidence to request a wheelchair when I went to IKEA yesterday and I was blown away by how kind the staff were! I was super anxious they'd tell me no or make me explain my illnesses (don't invisible illnesses suck!) but the whole experience was really validating. My partner and I had the best time - I actually got to feel human again without having to worry about my energy levels or collapsing as soon as I got to the car, and he didn't have to wait while I walked super slow or had to take rests every thirty seconds. I never would have had the confidence to consider a wheelchair without having seen your blogs and all the hard work you put into advocating for people with disabilities and invisible illnesses. A massive thank you for all that you do, my world is a brighter place for having you in it :)

Living with EDS: all about my feeding tube FQA was the first video of yours that I watched and I've been following your journey since. I don't have EDS or a chronic Illness but you inspire me to live life to the fullest and to not let anything get in your way. I'm so happy that your now home and that your now on vlog no 100!!! Here's to the next 100 weeks :) With love from Eleanor (Glasgow-Scotland)

I started watching your vlogs with the EDS diagnosis journey. Then I binge-watched about a year's worth. Ive been caught up and have been watching as you've uploaded for about 5 months. Your vlogs have been very informative. Thank you for supporting the EDS community the way you do.

My daughter Grace and I love watching your videos. I found you by searching for videos about EDS to show her in hopes of helping her understand what her diagnosis was. I started from the beginning and then started watching some with her that I felt would help her. Thank you for being real and perfectly you.

It's so nice to see you back at home and comfortable. Even though you had a smile on your face at the hospital it still wasn't as bright as it is when you are back home. I believe one of my first views of your vlog was just about a year ago when I first had the pleasure of meeting you, or shortly thereafter. 😘💓💓💓

Yeah, home sweet home. The vlog that brought me here was "Living with EDS: The Importance of Diagnosis and Early Intervention". It helped me a lot to explain to other people why I needed to visit many doctors, instead of trying to keep swimming, when I was already drowning. Thank you!

So happy your going home! Yah to week 100!

Thank you so much for captioning your videos❤❤❤

Yay!! So glad to see you back. Been praying!

The first video of yours that I found was in August called "Living with EDS: Mast Cell Activation Syndrome / Vogmask Giveaway." I came down with adult onset of Cutaneous Mastocytosis (CM) in 2006 but was just given a proper diagnosis in Feb 2018 so I have been researching anything and everything that I can get my hands on about mast cells and came across your videos. I just adore and admire your uplifting spirit! Your vlogs remind me that there are a lot of people out there living day by day with incurable diseases, but can live with smiles on our faces. I will be praying for you and your family! I also wanted to thank you for being so articulate when sharing your health information. Getting & giving proper information, absorbing & sharing oodles of knowledge and maintaining a strong self advocating mindset leads to healthier living, keep up the good work! God speed in your recovery!

So glad you are at home.

I think all of us with chronic pain/illness are super excited when we find things that might make our lives better - and elated when something actually does! I'm so happy the brace attachment relieves some pain ☺

So happy you are home! Please, please, please be kind to yourself. We love seeing you but don’t ever feel obligated to ever have a deadline. We ourselves know some of what you endure and would never want you to overdo yourself for vlogging. Sending love and continued prayers as you bounce back to the norm. I am thankful to have found you while searching for EDS Cervical Instability and have learned so much from you. My little guy and I were diagnosed in 2016 with HEDS. I also carry an Aortic Rupture risk due to a defective MYLK gene (oddly unrelated to VEDS). Since being diagnosed and having an insurance chance due to disability finally being approved, I am finally heading in the hands of doctors familiar with EDS. Sadly, much damage has been done in my neck. They’re trying to exhaust all non-surgical options but I know by how I feel and the issues I’m having when my neck decides it’s not behaving that I will be looking at surgery at some point. My guess is sooner than later. I am currently undergoing testing/treatment for cervical instability and Chiari and trying to get on better meds for my POTS and OH. Testing for MCAD is in December. Even though I’m almost 39 and went through so much hassle for a diagnosis I feel I’m finally heading in the right direction. I am glad to see you up and moving after being in bed so much this past month. I spent a week bed bound laying flat at the end of August due to a CSF leak and am still not back to myself. Slow and steady wins the race so make sure you take extra good care of yourself and don’t put that progress on a deadline. 💜

Congrats on week 100! I have loved watching your vlog series. KZfaq recommended one of your videos to me. I think the first one I watched was your What is EDS video

So glad you're home now 😊😊😊

It’s been about two years ago when I first found you I believe the video was Living with EDS: what is Ehlers-Danlos syndrome. Way back. We made to week 100! Yay!! ❤️

Congratulations on 100! 🎉💜🎉 Thats so so exciting that you’re home and also that you got to see Jekyll and Hyde and go backstage! Your first video I watched was the living with EDS video about POTS and dysautonomia. I found your channel around 2 years ago when I was diagnosed with POTS and EDS- I’ve been watching ever since

I am so incredibly glad you are home! You seem MUCH happier. I remember I started watching your videos around week 32 or 33 so its amazing that you've hit 100 weeks! Keep up the great work, much love from Michigan

So proud of you Christina! My first video I watched was one of your xolair injections. Sending gentle hugs and positive vibes your way ♥️

I absolutely love your videos! Thank you for sharing your life with us and for all the hard work you do in editing/uploading your content. Enjoy being home!! ❤🤗🤗

I love your vlogs! You are such an amazing, positive and inspiring person! Thank you for making my days better!

Hey Christina congrats on getting to go home! I don't comment much, but you have such an amazing community here and the few times that I have commented I've been met with nothing but kindness. I remember asking for tips on getting a nerve conduction (EMG) last year on one of your videos and I got great responses so I wasn't scared to get it done. The first video I watched of yours was the vlog from when you got your jugular stent surgery and I've been following you since! It's crazy how time flies.

The videos you make are awesome. The first video I saw was your living with EDS video and all of your braces video. Thanks so much!

I love your videos. I’m not sure which one was my first but you somehow popped up in my feed. I’ve been watching you for a while and you truly inspire me! Praying for you and your family and the journey y’all are on together.

It’s nice to see you heading home. I have learned so much as I have watched your videos and mostly gain reassurance that I am not imagining things that have been going on with me for as long as I can remember.

Back on schedule! We are all proud of you too. So exited for you getting a backstage theater tour. It’s things like that which make hard times a little easier to bare. You are loved!

Welcome home! 😍 I love your videos! Keep fighting! I can’t wait to continue to follow your journey.

I’ve been watching your videos for so long I can’t even remember which one was my first lol! I’m so glad you got to go to your show, I definitely know what it’s like to be stuck in the hospital and know that you have something you HAVE to do coming up!!!

The video that I seen on your channel was the one when you had your emergency jugular stent placed! Since then I have watched every video of yours, and every week I look forward to watching what you have been up to. I also feel like you are the realist you tuber when it comes to chronic illness, you are not afraid to show the good, bad, & the ugly! Thank you Christina!x

Ive super enjoyed watching your videos the last couple of months or so, and im going back and watching all your vlogs (something i like doing when im new to channels who vlog) Im glad youre feeling better and out of the hospital!x

I started with week 68 and got hooked and now I've watched almost all of them. I'm was a nurse and never heard of EDS and was so interested with all aspects of this disease. I've also had cervical and lumbar fusions and going back in for another cervical fusion next month. So I'm just so inspired by your positive attitude through everything that you have to endure. GOD bless you and your family.

I want to say that you're so incredibly strong! Please take your time. You've been through so much last months. I love watching your blog, but your health is more important then everything else. Love seeing you home and going to the theater. I love to go to musicals also. I've found you in youtube searching for more about EDS. I've watched you from vlog 75 OR so and never stopped. You're the only person, where I watch long vlogs and they still seem short. Thank you and please take your time to heal.

The first video that i saw and discovered your channel, was the day in my life video, which was quite nice to see, because sometimes i feel like i havent done anything on a certain day and you brought me some perspective!

I’m glad you are home! I hope you get some good sleep and that your health stabilizes in a good place. You have been through more than most of us will ever face. You deserve a break!

Hi Christina! I've been watching you for well over a year, I cannot remember the first video I watched of yours, but I remember I was looking for videos on Chronic Illness Warriors and overcoming chronic illness because I am on that journey. You channel was recommended by KZfaq! I am so glad that you recommended it! I'm so very happy that you are home, and especially happy for your wonderful night at the Theater! You overcame so much to be able to do that! Congratulations and I am keeping you in my prayers!

I believe I found you when you were rehabbing from your back fusion , watching you learning to walk again !So excited for you Christina , congratulations 🎉🎈🎊 on 100 and going home 🏠!

I started watching you for your informational videos and fell in love with your attitude and style!

I first found your channel by viewing your video about the 2016 eds society conference. Love your channel!

Wonderful you’re home! My first video I watched was your rehab story I think and it was so relatable to my experiences I was hooked. Since then I’ve gone backwards and watched bits of your journey and keep up with the new. Congratulations on 100🎊

I’m so happy to see you’re home. Your first vlog was what brought me to your channel.

Day in the life with EDS. So glad you are home.

I was just diagnosed with EDS in April and found you shortly thereafter. I have gone back to the beginning and watched nearly all of your videos. Thank you for sharing with us!

Welcome home from another Massachusetts family!

My first video of yours was your first one! It was recommended to me . Love you ever since!! 💜💜💜

So happy you're home and got to go to the theater. :) I love your painting and the verse you chose. How I found your vlog was after having cranial-cervical fusion surgery (a year ago), I was searching for information on the neck brace we share in common. (I have broken 2 and am on brace #3.) You are such a blessing. Thank you for sharing your life experiences and helping others.

So proud of you and you are doing awesome through so many surgeries and multiple health issues. You’re doing awesome!

I believe it was week 55 I started watching. I found your videos under suggested videos on KZfaq since I also have POTS and most likely EDS (hard to get that officially diagnosed though). I loved how genuine you were and how sweet and caring your are to everyone! ❤️

So glad your back home! I found your videos searching EDS. Your kind face and good vibes had me hooked! I’ve learned a lot from you thank you for putting the time into this channel💗 love and light

The first video I ever saw was your Living With EDS: A Day in Your Life. It was surprisingly encouraging after I had just been diagnosed with hEDS and was soon going to be tested for POTS. Thank you for being so positive and giving me such inspiration to keep going and to educate others on EDS, POTS, Gastroparesis, and MCAS.

I first came across your videos when looking into EDS, so much before you started blogging but I am so happy you have been vlogging and sharing your story with everyone who needs, so thank you!

I can't remember which one was my first video but it was when I was trying to find out more bout Eds after my diagnosis...so thank you! Xoxo ❤ You are so special and I am glad you are home and still sharing your life with us. I am grateful to you!

I'm so happy that you're home and feeling better with your CSF issues. The first video of yours I watched was the one where you explain what EDS is and some of the various slang related to it and that video helped me understand so much.

I've been watching since May 2016, the first video was "Living with EDS: Journey to a diagnosis", and have been along for the ride ever since. My husband even watches now. I knew I had EDS since 2012. I was diagnosed with hEDS in 2014, but unfortunately I live in East coast Canada and there's little to no help available to people like us at the moment (we're about 10 years behind). I've had Drs tell me that I'm "outta their pay grade" or "just too complicated". At this point I've been bed ridden for 3+ years. I also currently have no health insurance.... it's been rough. I have an amazing family that I love very much and they do their best to support me anyway they can. But your videos have brough a different kind of support and have ment the world to me. Through think and thin you always manage to smile and look at the bright side of life. You are a pioneer for us suffering through the battlefield that is EDS, and you give me hope that someday the techniques you've had access to and in some cases even help develop, will become available to me. (Drs around here havnt even heard of saline therapy for goodness sakes!) It's been a long road and will continue to be. Your fight helps give me the desire to keep fighting; to keep advocating for myself and Educate those who wish to learn. Thank you for all that you are and all that you do💞

Hi! So happy you’re back home! I don’t really remember which video I saw first but once I’d seen one I went back and watched all of the other ones and haven’t stopped watching since then

So happy to see you home! I hope you’re feeling a bit better by now x I don’t actually remember what video brought me to your channel since it’s been well over a year now, but I think it might have been your EDS diagnosis story! Thank you for hosting this amazing giveaway x

Happy 100th video! I feel like a dinosaur, been watching since before the vlogs had numbers... I was going through a strangely stressful time in my 2nd year of uni and I stumbled upon your... feeding tube video Q&A, I think? I found your voice incredibly soothing, and here we are, two years and 100 vlogs later! x

The first video I saw was the one going over what EDS is as I had been researching it as a possibility for myself. It lead me to your other videos and I stayed ever since.

I think the first video I ever watched was the one where you were explaining EDS and what it is. I was newly diagnosed and just searching for information! It was so great to find your channel!

I found your channel in October when I started my journey to getting diagnosed with EDS. We’re pretty sure I have hEDS, and I was told to do research, so I watched your day in the life video as part of that, and I’ve watched every week since. Glad you’re back home with your family and that you got to see Jekyll & Hyde! ❤️

Congrats on 100 weeks of vlogs!! So glad that you are finally home and can recover from a place of peace! I hope that you can spend some much needed time in your garden! I have been watching you since your How to dress like your favourite Broadway​ character!!

So happy you're home! Take care of yourself and don't be harsh on yourself if you're behind schedule. We will always understand!! I've been watching since around week 50 (although I've seen every vlog)! Ive learned so much about EDS from you, and by watching your videos I finally found a doctor to diagnose me with EDS as well. I'm eternally grateful to you!

I don't remember which of your videos was my first. I remember it was a year ago, watched 10 minutes, paused and started watching all of them in order and have watched each one since then. :) I am so so glad you are home!

Congrats on finally being home! I don't honestly remember which video of yours I watched first, but I remember finding you on IG through the MyEDSDiagnosis hashtag :)

I love your videos, Christina. I think the first video I watched was your EDS journey as I have EDS, as well. Knowing that others go through some of the same things as I do is quite bittersweet. Thank you for sharing your journey

Good to see you home and feeling better! ❤ The first video I saw was after my girls and I were diagnosed with ehlers danlos the video was on abbreviations and buzz words. It taught me a lot about what kinds of things to look for and to understand that there were diagnoses for the way myself and children have been feeling. Your videos have helped me advocate for my girls and myself with doctors and family members. Thank you for your vlogs.🙂

I can't believe this is week 100! I somehow found you on week 1. You have inspired me every week since!!

Yayyy! Going back home from the hospital is always a great feeling! I found you just by browsing and ever since I wish you the very best!

Congrats on 100! My daughter, who has EDS, told me about you quite awhile ago. I started right at the beginning with you first video where you were painting. Now you can go to PT again! Yay!

The first video of yours that I watched was your a life in the day of having EDS. I was awaiting my own diagnosis and doing as much research as i could. After seeing that video your channel was the one i would always go to if i had any EDS related questions. I've been watching for about a year now and I have loved following your journey with you. You are a genuinely kind and caring person and you have such a beautiful soul

Your Living with EDS: What is Ehlers-Danlos Syndrome video is the one that bought me to your channel. I was so confused about my symptoms, I thought I was lazy and whiny and maybe everyone felt like I did but just got on with it. You showed me that my feeling were valid and I was able to get a remarkably quick diagnoses. Without you I would still be struggling. So a great big thank you!

I’m so glad you made it home!!! I just wanted you to know I think you are awesome! I’ve learned so much about EDS and POTS from your channel. I am newly diagnosed with EDS and POTS and I also have been having seizures. You’re channel has helps me feel that I’m not alone. God bless you and your family!

Your video was recommended to me by KZfaq. I think it was from watching Clair’s videos. Although I do not have EDS I do have fibromyalgia, rheumatoid arthritis and various other autoimmune problems. Watching you be so strong and gracious reminds me that although chronic pain sucks it can be handled. Your an amazing young lady. Thank you for sharing your life.

my first video of yours that i ever watched was the week 79 vlog! i found your insta through the mightys post about eds awareness month and then followed you and started watching your vlogs. thank you so much for what you do - you are such a beam of light in the chronic illness community.

I found this channel a while ago when you posted a video showing how your feeding tube works. Im not a spoonie, but I have watched all your videos since. Im so glad to see you at home again, I hope your recovery keeps going smoothly!

Living with EDS: Spinal Instability is my Christina first! I watched that playlist first for educational purposes but then connected on a deeper level of understanding and care for what you are going through and that none of us are alone in this. I am slowly getting through your Vlogging videos in order and just watched your 1 year (with the exception of watching your recent few weeks as they’ve come out of concern for you). I’m sure you hear it a lot but you are pretty darn amazing for what you do for out community Christina!

🏆🏅🎖🎉👏🏼💯 Congratulations Christina! Can’t wait for the next 100 videos. You are so awesome!

You are my favorite vlogger!! You are so amazing and I love watching your vlogs. You blow me away with all that you do and I think you are so beautiful and talented. You mom is truly amazing also. I can't wait til the next video.

So thrilled that you are finally home! I believe that your POTS video was the first one that I watched since I also have dysautonomia. Your videos on your port surgery were also super helpful when I had mine placed this past June. Thanks for being such a great resource!

Congrats on video 100! I think you caught my eye with video 68 that was suggested on my feed for some reason and as I had spinal surgery in college it caught my attention. You were sweet and a fighter with a chronic illness I never knew existed but I could tell right away we were kindred spirits of different generations. I’ve since gone back and watched every one of your videos and enjoyed them all. I love crafting, music, theater and art and your talents and interests in these areas are a large part of why I enjoy your content. Praying always for your health and comfort, also for your sister, and parents. Take care!

I am glad you are more comfortable with the new neck brace. It looks like a great problem solver for the pressure on the metal. I first found you from your "Whats in my bag spoonie edition" video. It was the first time I found someone do a relatable whats in my bag and have been here since.

Congratulations on 100 vlogs, on getting home and for being a WEGO finalist, my you tube channel was a nominee I felt so proud as I’m sure you do too. I’m so glad you got to go to your play and you looked so beautiful, keep resting and healing we don’t mind waiting for videos so don’t worry xxxxxx

I seen your week 68 video in recommended. Thank goodness it was there, because you have honestly helped me become a better person. Thank you.

Christina, I'm so happy that you are home and feeling better! You are my favorite KZfaqr and helped me so much to live with Eds etc. The first video from you I watched was the braces and splints one . Hope you are feeling better soon!

I found you about 1 year ago with your video on braces and splints. I was doing research into getting my own ring splints after starting my EDS journey last year. Congrats on getting home and thank you for continually giving us hope!!!

I am so happy you're home! I've been following you for a while, on insta before here, and the first video I watched of yours was the one on spinal instability as my spinal hypermobility and pain is what led to my diagnosis in 2015.

Oh wow, I barely remember what I ate today, let alone what video was my first! I remember watching your Living with EDS videos before I started watching the vlogs. Maybe it was about your diagnosis journey? Unsure. It's crazy how it's already been 100 weeks! Congratulations! Thank you for being so informative and positive. The zebra life is hard, but you handle it with grace and inspiration ❤️

I am so happy you are on the other side of the shunt saga. 💜 The first video of yours that I saw was when you got a stent in your jugular! I was amazed by your cool demeanor and your sense of humor. I appreciate your videos so much! As a newly dx’d EDS-er your videos have given me so much info and so much hope.

I'm a new subscriber, I found you through your video about MCAS shortly after I was diagnosed! You helped me learn so much when I was new to the MCAS world, and your smile is just so contagious. :)