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WEEK IN OUR LIFE | SPECIAL NEEDS FAMILY VLOG PART 1 - G Tube Feeding/Autism/Cerebral Palsy/Dystonia

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Mummy & Avery

Mummy & Avery

Күн бұрын

Welcome to a week in our life. Tag along with us and see what we get up to as a special needs family. I am a busy Mom of three children aged 9,6 and 1. Two of my three children have additional needs, my eldest son, Zachary has Autism and my daughter, Avery has Cerebral Palsy and Dystonia, secondary to a Hypoxic Brain Injury. She is also G tube fed. My younger son, Eli is the hyperactive one of the bunch.
ALL ABOUT AVERY
• RAISING A BABY WITH CE...
Aside from this we are a 'normal' family, I like to think we have a typical family life, just adapted to suit our medically complex children's needs. It's my mission as a Mom to make sure each of my children have happy lives and experiences, despite their additional needs and the challenges they may face.
This vlog may not have all the aesthetically pleasing shots, I may look like an absolute mess half of the time, but I'm only human and we're real. I don't like to dress my videos up and make our life seem like something that it's not and I really hope that shows through in this vlog.
I really hope you will SUBSCRIBE and follow along on our journey, creating an amazing life while adapting to additional and complex medical needs.
PRODUCTS I COULDN'T DO WITHOUT (UK only sorry!)
(Affiliate links, I may make a small commission from your purchase, however these are products I use and love!!)
Avery's Car Tablet Holder - amzn.to/3Ozf8Se
Avery's Baby Carrier - amzn.to/3nqFR7j
Avery's Bedroom Camera - amzn.to/3bB7iIS
Avery's Car Mirror - amzn.to/3yrup1x
COME SAY HI
WEBSITE - mummyandavery.com
INSTAGRAM - / mummyandavery
DISCLAIMER
I am not a medical professional, nor am I professionally trained in any of the equipment shown in my videos.
I am simply sharing my own experiences and opinions.
Please don't mistake what I say for medical advice or training.
If you have any medical or developmental concerns, please see a Doctor :)

Пікірлер: 93
@michelezink8677
@michelezink8677 2 жыл бұрын
Ive worked with kids for many years and I think you are spot on with her cognitive ability. She is completely aware and responding to you as you engage with her and she is a typical child in looking at the camera, etc. Her focus is spot on. Sitting through the movies, etc., that's a prime example. I think you are definitely on the right track and she is so young that I think her future may be better than anticipated due to how young she is and the progress of medicine, etc. She is no where near being able to show what her full potential is. Slow and steady wins the race. Something tells me she's going to surprise everyone in the end.
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you so much. I really hope you’re right ❤️ xx
@Heavyisthecrown
@Heavyisthecrown 10 ай бұрын
Wow Avery is STUNNING. So beautiful! ❤❤❤ you are a super mom!
@mummyandavery
@mummyandavery 10 ай бұрын
Thank you so much 🥰
@ahoward3819
@ahoward3819 2 жыл бұрын
You are an amazing mom, like so many others have said. It is wonderful to see you giving yourself (and Avery) some grace on the days things are not going according to plan. Blessings from the US.
@mummyandavery
@mummyandavery 2 жыл бұрын
There definitely is a necessary balance with whole therapist/patient dynamic. Sometimes I just want to be Mummy and sometimes that’s exactly what’s best for Avery and my boys. I appreciate your kind words they mean a lot and how you defended me in the comments of my other video ❤️
@ahoward3819
@ahoward3819 2 жыл бұрын
@@mummyandavery I don’t need to defend you, as you have shown you are extremely capable. But I also believe it takes a team effort to quash negativity in this world. What you don’t speak against you are allowing, as my niece told me the other day. Being a mother these days is incredibly difficult when you consider all the things you have to consider and all the things ‘working against you’ so to speak. Add in the difficulties of having children with special needs. They are certainly a blessing in some ways, and challenges in others. Please do not take my words in any negative sense, as they are not meant that way. I would love to give you hugs on your most difficult days and just cheer you on all the good days. Just watching you smile your way through a day that is anything but typical inspire me to do the same. Cheers!!
@aliciakillen1940
@aliciakillen1940 2 жыл бұрын
You’re organizing skills are impressive! Adorable kids and wonderful family! Best of luck to you from Colorado, USA
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you I pride myself in being organised 😂 ❤️❤️
@beccasbanquet4965
@beccasbanquet4965 2 жыл бұрын
I'm impressed! Only 7 videos and you are already rocking it! Thank you for sharing your journey with us! You are an amazing (and busy) mom!
@mummyandavery
@mummyandavery 2 жыл бұрын
I’m impressed too 😂 very happy and overwhelmed with the response we’ve had so far. Thank you so much ❤️
@ElectricSizzler
@ElectricSizzler 2 жыл бұрын
Just subscribed to your channel your a amazing mom with a beautiful family. Thank you for sharing this beauty with us all💖
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you so much it means a lot ❤️
@shajahanabubaker3696
@shajahanabubaker3696 2 жыл бұрын
Such a wonderful mom...she will talk one day...God bless you.....avery
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you, praying she will ❤️
@brandispry576
@brandispry576 2 жыл бұрын
I love the relationship your boys have with their little sister. You can tell they love her so much💕 I also love how in-tuned you are with Avery and her needs.
@mummyandavery
@mummyandavery 2 жыл бұрын
We’ve gotten to learn signs to tell us somewhat how she’s feeling, we’re getting there. Oh the boys absolutely adore her ❤️❤️
@preynoldsja
@preynoldsja 2 жыл бұрын
Your daughter is beautiful. I'm sure you must have good days and bad days....this is a lot but your love for your daughter keeps you going. I pray for your strength to keep going even when it's hard. Thanks for sharing your story with us.
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you so much ❤️ there are definitely good and bad days xx
@sadieandbean
@sadieandbean 2 жыл бұрын
Oh my goodness your kids are so cute. Thank you for sharing Avery with all of us!
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you 😊❤️
@milindushehan
@milindushehan 2 жыл бұрын
She will definitely talk one day! Lv u Avery ❤
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you ❤️
@terissalynnvaughnwatkins3736
@terissalynnvaughnwatkins3736 2 жыл бұрын
🙏❤GOD Bless this beautiful wonderful family Prayers things will get better 🙏❤
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you ❤️❤️
@kimtongo3533
@kimtongo3533 2 жыл бұрын
You are wonderful mother!!!! I totally agree with you in terms of baby Avery when she needs a break!!!! I hope you and your family have a wonderful week!!!!🙏✨🔆🙏✨🔆🙏✨🔆🙏
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you, I hope you have a wonderful week also ❤️
@SarahSmith-ne1kf
@SarahSmith-ne1kf 2 жыл бұрын
Hi im a new subscriber what a lovely family you have avery is beautiful looking forward to lots more vlogs 😊xx
@mummyandavery
@mummyandavery 2 жыл бұрын
Welcome 😃 thank you so much ❤️
@robyngreliche7603
@robyngreliche7603 2 жыл бұрын
You are an amazing mum you work so hard and so wonderful with your boys and Avery and she is adorable watching your videos I would love to be able to help you out but unfortunately we live a world apart keep up the wonderful work you are doing with your family and the videos love to watch them and you will be fine catch you next time Love from a Gold Coast Aussie xo
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you so much ❤️ that’s so sweet of you to say. Wow what a beautiful place to live xx
@pinacoloda226
@pinacoloda226 2 жыл бұрын
Amazing family,makes me smile❤️Your children are adorable,wishing you all the best🙏🏻🙏🏻🙏🏻
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you so much ❤️
@terissalynnvaughnwatkins3736
@terissalynnvaughnwatkins3736 2 жыл бұрын
🙂 Hello beautiful family I enjoy watching everyone on KZfaq 🙂
@mummyandavery
@mummyandavery 2 жыл бұрын
Hello 😃😃❤️
@loriorlando8262
@loriorlando8262 2 жыл бұрын
Hello! I am just seeing your videos for the first time today. My husband and I are the parents of a 31, almost 32, year old son born with a rare genetic condition. He has been dependent upon us to care for him his whole life. I know how challenging it can be to care for these special children. Your daughter, Avery, is so beautiful. Her smilel melts my heart. And your boys are precious as well. I know life can be so busy and exhausting caring for our children, always putting them first. But, please, try and find some help/support early on. It's important. Important for you to take care of yourself as well. I am praying for you, all of you. May the Lord strengthen you each day, give you wisdom, send the best help, best doctors, friends and family to support you in all the ways you and your family need it. HE knows each one of you BEST. And HE loves you the MOST. Blessings to all of you.
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you so much, I hope your family and your son have a happy life ❤️
@francesrivard9045
@francesrivard9045 2 жыл бұрын
Love Avery's dress and socks. She is beautiful.
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you ❤️ she can hold her head up for a few seconds at a time with tummy time and she is improving slowly but her neck strength is still quite weak. X
@lulumontoya9492
@lulumontoya9492 2 жыл бұрын
She's such an angel, 💓
@kathyropa6174
@kathyropa6174 2 жыл бұрын
God Bless!
@tinacollins2055
@tinacollins2055 2 жыл бұрын
Have you tried or consider a baby carrier? One that will hold her to your chest front ways or back ways? It would leave your hands free and you could move around do your daily routine. Excuse me if I over stepped any personal boundaries.
@mummyandavery
@mummyandavery 2 жыл бұрын
I have a baby carrier and I do use it usually if I’m walking around a shop.. if I stand still she doesn’t want to be in it anymore 😂 she knows what she likes xx
@lulumontoya9492
@lulumontoya9492 2 жыл бұрын
Avery is so pretty. 💓
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you 😊❤️
@debicovert6105
@debicovert6105 Жыл бұрын
@luciemarhounova7153
@luciemarhounova7153 2 жыл бұрын
She is so cute and you really are an amazing mom!! 🙂 May I ask when did you first see those dystonic movements? Thank you ♥️
@mummyandavery
@mummyandavery 2 жыл бұрын
She was around 3 months.. we actually ended up being admitted to hospital because we thought they were seizures. But as time went on the movements became more and more often and she was diagnosed at 6 months xx
@reneemansini7687
@reneemansini7687 2 жыл бұрын
She is absolutely beautiful
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you so much ❤️❤️
@terissalynnvaughnwatkins3736
@terissalynnvaughnwatkins3736 2 жыл бұрын
🙏❤🙏 From: Tuscumbia, Alabama 🙏❤🙏
@mummyandavery
@mummyandavery 2 жыл бұрын
Welcome, my family are big American fans but unfortunately have not been yet 😂 would love to get there soon ❤️
@puppytoes6241
@puppytoes6241 2 жыл бұрын
She is so precious.
@theallyshow9185
@theallyshow9185 2 жыл бұрын
I have cerebral palsy as well, and I’m also blind. I did not start walking until I was four years old
@mummyandavery
@mummyandavery 2 жыл бұрын
But you started walking and that’s the main thing! ❤️❤️❤️
@christinavonheidenstam3206
@christinavonheidenstam3206 Жыл бұрын
I Will pray pray for Avrey as much as i can the prayers are allways be answerd🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏i Will pray so that Avrey Will talk one day
@mummyandavery
@mummyandavery Жыл бұрын
Thank you I appreciate your prayers ❤️
@christinavonheidenstam3206
@christinavonheidenstam3206 Жыл бұрын
@@mummyandavery yes thank you so much
@TheHappyLifeofKay
@TheHappyLifeofKay 2 жыл бұрын
I Just Subscribed to your Channel Love this Channel so much and just started watching it I am Friends with A few people with cerebral palsy I have Autism, And my cousin has cerebral palsy and I've worked with children who have it I love them very much Everyone different they're not cookie cutter I mean things some things are the same obviously but I love your channel I just love how you explain things and how you look at the positive you're an excellent mother I just want you to know that you are amazing and you're handling everything really well I don't know if you know God Are you even believe in him but I bet I mean I know he is proud of you for being so strong!!! God bless you!!! And so excited to be here subscriber to your channel and I hope you grow and I will share channel with people!!!!
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you so much ❤️ yes I have seen a few of their videos and have subscribed, I too enjoy watching the journeys of others. You’re so right it’s not cookie cutter at all, even if the diagnoses is almost identical the children are all unique ❤️
@TheHappyLifeofKay
@TheHappyLifeofKay 2 жыл бұрын
@@mummyandavery Yes they Are Precious and God Loves them and he sees them as Precious
@davidtrishhope9841
@davidtrishhope9841 2 жыл бұрын
Watching from New Zealand
@mummyandavery
@mummyandavery 2 жыл бұрын
Welcome 😃
@SignwithCaoimhe
@SignwithCaoimhe 2 жыл бұрын
Have you heard of sdr it has helped so many children with cp
@mummyandavery
@mummyandavery 2 жыл бұрын
No I’ve not heard of this? X
@TheHappyLifeofKay
@TheHappyLifeofKay 2 жыл бұрын
Have you watched The #HouseofHughes?
@lynevans3076
@lynevans3076 2 жыл бұрын
Hi loving your channel, can I ask did you ever find out why she went into cardiac arrest ? X
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you ❤️ there was no confirmed conclusion but I plan to film a video sharing how it all happened I’m just not ready yet emotionally. Bare with me ❤️
@BenjaminandKatiesVlogs2024
@BenjaminandKatiesVlogs2024 Жыл бұрын
❤‍🔥❤💋
@mummyandavery
@mummyandavery Жыл бұрын
❤️
@memasam1
@memasam1 2 жыл бұрын
🇺🇲👍💚🫂 you are an amazing mom
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you xx
@marikon3
@marikon3 2 жыл бұрын
Such a cute baby!! 😊 If you don't mind me asking, does she qualify to get bottox injections for CP? And if yes, would it be something that will help with her other conditions? 💛💟
@mummyandavery
@mummyandavery 2 жыл бұрын
Thank you ❤️ I think she will qualify when she’s a little older. It should help the tone in her arms and I’m keen to try it as it’s so targeted so we would be sacrificing any of her trunk strength in the process. I’m not if it would make any difference to the dystonia definitely something I need to talk with her neurologist about xx
@royakhan1
@royakhan1 2 жыл бұрын
Love from Pakistan Peshawar 💚
@katiehall1793
@katiehall1793 2 жыл бұрын
She is adorable but will you ever let her hair grow out of just keep it short because it's easier that way??
@mummyandavery
@mummyandavery 2 жыл бұрын
I don’t think I would have the heart to cut it, I know it would be easier short but I don’t mind doing her hair, I actually enjoy it and Avery gets to practice sitting at the some time so it works for now ❤️
@katiehall1793
@katiehall1793 2 жыл бұрын
@@mummyandavery I think her hair is beautiful and the longer the better as long as she likes it and it doesn't seem to bother her in any way....I have seen a lot of moms keep the daughters hair cut off short just because it's easier on the mom and it's kinda sad....
@katiehall1793
@katiehall1793 2 жыл бұрын
I also ment to say thank you so much for responding to me and I love your content!! Thank you very much for sharing see of your life with us, you never know you could be truly helping another mom baby girl and family out there somewhere going thru the same things that you are and by you sharing your and Avery's life and story you could be giving them the hope and strength to keep on fighting and taking it one step at a time!!! May God bless you all
@mummyandavery
@mummyandavery 2 жыл бұрын
I really hope so! If I can help or comfort another mum or family going through something similar then I know the hard work is all worth it 😊 it will be nice to avery to look back on when she’s older too ❤️
@terissalynnvaughnwatkins3736
@terissalynnvaughnwatkins3736 2 жыл бұрын
🙂 I have a son with autism and ADHD 🙂
@mummyandavery
@mummyandavery 2 жыл бұрын
I will be creating a video all about Zachary and his diagnoses soon. It’s such a big spectrum and much more heard of now than when I was young ❤️
@francesrivard9045
@francesrivard9045 2 жыл бұрын
Can she hold her head up ?
@marjanf56
@marjanf56 2 жыл бұрын
do you have a husband or partner who helps you with the children
@mummyandavery
@mummyandavery 2 жыл бұрын
Yes I do 😃 he works full time though ❤️ he has asked for me not to film him which is why you never see him xx
@marjanf56
@marjanf56 2 жыл бұрын
@@mummyandavery camera shy lol
@mummyandavery
@mummyandavery 2 жыл бұрын
He is 😂 xx
@debicovert6105
@debicovert6105 Жыл бұрын
Do you use Botox with her
@mummyandavery
@mummyandavery Жыл бұрын
Not yet we have asked for a referral though ❤️
DAY IN THE LIFE OF OUR SPECIAL NEEDS SON ❤️
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