What a Newly Diagnosed Patient Needs to Know

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What a Newly Diagnosed Patient Needs to Know

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Күн бұрын

In this webinar, IMF Chairman of the Board Dr. Brian G.M. Durie explains that myeloma is treatable and requires baseline testing. He discusses important myeloma-related terms, how to assess treatment response, the role of triplet therapy, the pros and cons of undergoing an autologous stem cell transplant, the role of maintenance therapy, and the importance of caregivers. IMF Vice President of Support Groups Robin Tuohy provides guidance on how to navigate the IMF website and more.
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Пікірлер: 18

@bo26201 3 жыл бұрын

I have multiple myeloma and thank you for this information

@IMFMyeloma 3 жыл бұрын

Most welcome

@mervincharles3095 2 жыл бұрын

Good day, my mother was just diagnosed yesterday and I am here trying to learn anything I can about Multiple Myeloma... How has it been for you so far to this point?

@lynnargain5748 2 жыл бұрын

That was a wonderful presentation; the clarity of your delivery was comforting!

@ggpazi 3 жыл бұрын

This was so helpful. Thank you for all you are doing.

@nurdanlane6201 2 жыл бұрын

It is very helpful. My husband recently has been diagnosed with myeloma .

@carolineblue9399 3 жыл бұрын

Thank you for this thorough but succinct information. I am now MRD negative but struggling with Revlimed maintenance. I am 46. Diagnosed at 44.

@nesreenfahmi8608 2 жыл бұрын

Very useful, highly appreciated it gives very clear explanation,keep it on

@nesreenfahmi8608 2 жыл бұрын

Support group very important for patient and their partners as if it is really traumatic

@lolobrower 3 жыл бұрын

What is the percentage of people who have chosen NOT to get an SCT and have a long remission? I am 58 year old female almost at CR after 8 cycles of Daratumumab/dex and Pomalyst and I do not want to get an SCT. I am also considering stopping maintenance and doing no medications at all and wait and see what happens.

@IMFMyeloma 3 жыл бұрын

Hi Laura, thank you for your comment. If you have a question of a personal nature, please contact our InfoLine Coordinators at 800.452.2873 or email infoline@myeloma.org.

@KeywasKorner 3 жыл бұрын

So does that mean many people die shortly after 7 years? Or what’s the overall life expectancy for a young person getting diagnosed at 33 years old?

@josipbroz4517 2 жыл бұрын

No, the graph flattening out at the 7 year mark means that those who survived for 7 years are more likely to survive even longer.

@PVflying 2 жыл бұрын

How important is monitoring neutrophil levels in detecting progression from MGUS to Myeloma?

@shahramamini6106 Жыл бұрын

hi there how are you . four months ago my blood test show more protein in the my blood test . and hematologist. took sample .and biopsy from my spine . and full blood test and full sonography and full s scan . he said my disease is m gus . and he didnt give me any medication. only said after 6 month another blood test and urine test . sometime toes pain and arm pain no to much i dont need pain killer . i am on the diet no more red meat. i eat 4 times a week fish & brown rice & tuna & more beans & lentils . brown bread & no sugar and more salad. i am non-alcohol & non smoker . please give me more information for help and what is best diet food i am 61 years old men from australia country thank you