I had 3 uncles and an aunt with Primary cerebellar ataxia. They were all born during the early 50's and doctors were fascinated by them. They always brought in the medical students to see them. My mother was lucky enough to avoid ataxia, but she died of breast cancer in 2014.

I have EA2 and through the years I take diamox and I follow a modified keto diet. Fatigue and sugar is the worst. I was told to be "a cold fish" meaning avoid fatigue, stress, and carbs at all costs. I still get attacks but they dont last as long. I have been this way for over 30 years.

She is fantastic... and I love John Hopkins I went there many many years ago before they had a ataxia group and I may have to visit again sometime... I got lucky a older doctor saw my problem and knew when I couldn't get answers anywhere else. And I had a fantastic old personal neurologist as my family doctor who linked family history.

Really informative. I had never even heard of this prior.

Excellent explanations! An important part of my ataxia healing is understanding the "etiology" and potential therapy.

Excellent explanation

Thanks so much for the education, I never heard of before about ATAXIA. My next mission is to care ATAXIA clients and I would like to provide the best professional help for her. ❤❤

I was misdiagnosed with neuropathy because of my balance and coordination issues. My conditions happened right after a second stroke. Very bad balance, right arm doesn't work correctly. Have trouble walking and writing. Strength is still there but coordination is the issue. Thank you for the video,

Thank you for this. You mentioned one thing in the video, that this disease makes the person and the family feel alone. My wife has had this since she was 15-16 years. Been in a wheelchair for the last 13.

It's sooo amazing 💜

Thank you!

Ataxia symptoms sound very similar to multiple sclerosis.

Was just diagnosed with Ataxia, what a great, informative presentation! Thank you!

mild defuse in cerebuller in mri report show. current I am sufferring from walking and talking imbalnce problem..

It's quite a problem in Cyrodiil.

I wish there was a dr who could help me😢

робите аналіз на ген-сцатаксії?Робіть.

Thankyou for teaching that I stumbled over it looking for health issues. I have migraines from back to be 12 - at 18 I started weak muscles for no reason like trying to curl my hair I couldn’t hold my hands up long enough to do that.:: my migraines get debilitating/ there are times that my vision goes double or triple it can last anywhere from a week to a little over 3 months to adjust back I have to wear a pirate patch ( 😂) to see correctly. I also have fibromyalgia there has been days it’s just hard to breath getting up on my feet has been excruciating my hands & feet both have flare ups on top of that I have noticed that when ever I would damage a muscle like below the knees ( or any muscle ) that it doesn’t heal correctly I can feel the difference/ I also get R.D symptoms where I can bump something or as even getting poked I will feel it ‘’’ but also feel it somewhere else on my body. ( very weird ) I also have what I call Hot poker spots randomly anywhere in my body feels like a hot iron from a fireplace just sticking me hurts like a mf* it always happens within seconds( I look & feel like a idiot because I say ow out loud from that pain ) as a child I had French polio where the left side of me was numb - I got through it / & let’s not forget that my left arm is freaky I have poor circulation it has a color blue to it/ & I can’t leave it down because within seconds blood rushes down my veins bulge out far & actually looks like a purple blue.. let’s see I had a extra cervical rib that was removed at 17 the neurologist thought that it was pinching a nerve & causing the migraines ( how ever he was wrong ) my pituitary gland in front of my head is twice the size it should be. Also had very very brittle bones as a kid I can as much fall down & end up with something always getting broke( worse one was both collar bones broke.. any type of smoke worse one- cigarettes 🚬 would give me a massive migraine to vomiting passing out dehydration so bad that even with my eyes closed I would still see the color blue noise or smells would make me just want to die from them :( I also with migraines would say sentences backwards Yeah “ backwards” before a migraine with it my sentence would be worse..bad DNA 🧬 😂 so thank you if you read all of this & would love to know what is going on with me & if anyone else has anything like I have thank you & stay-safe

Could cerebellum ataxia be from car accident head injury? Could it be misdiagnosed as inner ear disorder?

So disappointed you did not mention OT. I hope the ataxia center includes OT.

Great information. Could use less upspeak. Makes it difficult to take a professional seriously.

What about ataxia as a result of my 2 brain surgeries?

I have this

Undiagnosed STILL... first symptoms age 40, While in military, no TBI. Gets worse, continual occupational, Mood, Physical, vision, speech, auqua, therapies on year 14... The veterans hospital calls Still calls it fibromyalgia... Swollow trouble too. PLEASE HELP, HOW DO I GET DIAGNOSED?

👍What are common symptoms of ataxia? Balance and coordination are affected first. Incoordination of hands, arms, and legs. Slurring of speech. Wide-based gait. Difficulty with writing and eating. Slow eye movements.

My grandmother died from this. My dad and his two brothers died from this. My dad's sister died from this. My brother currently has Ataxia and will die soon. I have it and will die too.

Does the Dr in this video have it? Her speech is pretty slurred and not clear.

Why the vocal fry?

1:08 3:08 8:25 9:41

Having spent many years in healthcare securing sponsorship funds from big Pharma to fund various projects, it always astounds me that these people (above) spend their time treating the symptoms and not the cure. I find it bizarre. And no one pulls them up on it. It’s wrong. And I wonder who funded this centre.