My Gf has it.Will love her .. support her till last breath.❤️❤️❤️ If you reach here and you are reading this muskan. . ..we will fight this together. Not you don't have ..WE HAVE IT TOGETHER ..

Amazing vid! I love you all fellow 2b'ers! Huge thanks to you all over the pond x

Great to know people are actually out there fighting for us. I have limb griddle as well.

My husband was recently Diagnosed with this. This was a positive video and helped. I’m feeling so lost. Thankful for the Internet. ❤️

Definitely sharing this! Got my Dysferlinopathy diagnosis last year, confirmed last month as 2B thanks to genetic testing from the Jain Foundation.

This was really well made. Very factual and I found it to be inspiring. The gentleman was so positive and I could t stop smiling. 💚

Thank you after more than 10+years of searching and for myself (as no one was helping me find the answer) I saved up and did some specific genetic tests and they came back positive for limb girdle muscular dystrophy, my type is rarer known as LGMD2L. It’s so relieving to finally have an answer after suffering for so long struggling to keep up with the other kids, valves burning and burning, feeling weak Not able to lift my arms for long and feeling my muscles tremble while trying to move boxes and brush my hair and everyone else saying it was just in my head, while the same not trying to help me exclude conditions and if I brought them up I was the crazy one...sad it had to be me that had to do it for myself as I gave up on my healthcare professionals even when I tried to work with them, studying in research myself, trying to exclude things. But I know now what I’m looking towards and what I can try and do to look after myself and also try to get a physiotherapist to try to keep me active and mobile for as long as possible as symptoms and signs already started for a decade or more. One day I’ll share my journey here on YT on my channel.

Today technology and science is doing extremely good work but in MD Field no specific treatment available why no value of life .

why pharmaceutical company not doing works together Fastly .

Hopefully 🙏 soon we will get some treatment for LGMD! Don’t loose hope !

Ahh this video is wonderful! Well done, JF :)

I lost everything because of this disease past I forget and look future in darkness only because it's rare no treatment available .

tell me only one thing they is no value of life if no then ok . if value then why till now is treatment is not found .

me and my brother has this kind of illness i was the only one who got a chance to try a muscle biopsy and my doctor said i have a symptom of misyoshi myopathy iam 24 year old from philippines right now i can barely walk but cant tip toe and its hard to climb stairs without the support of my hands, my doctor said that this kind of illness are progressive , as of my brother condition he now cant walk and lifting his arm up is hard its really hard to live a life like this. hope may God heal all the illness in this world

Me and my brother have same more than 23 years. I from Krabi Thailand.

Amazing and thankyou for showing how Limb Girdle destroys the body.I have Limb Girdle type 2B.

Im lgmd 2b patient..plz help thighs not working no walk and now arm are affecting..plz help..also swallowing problems have started...10 years passed with this disease diagnosed in 2013 when i was 22 years

I'm 59 yrs old a filipina and Last year i was diagnosed with LGMD ..and still undergoing a therapy until now😥

I have limb girdle muscular dystrophy Registered with Jain foundation I am able walk slowly can I take HGH hormones to reduce the progress of the disease

Very Important Information ❤❤❤

My mother is suffering with worst disease last 27 years its so painful and helpless

Hi I have also lgmd 2b , how many years to we can expect to get treatment of this disease.

Please do something for us our condition is getting worse day bay day..😥

Is there anything that will help yet? I hope that there is something soon. I have a wild and crazy dream of walking again one day

Do carriers of the gene mutation experience any symptoms?

Where we can contact jain foundation in india

millions in world live life only in hope we get treatment tomorrow but no tomorrow is same . disease end there's dreams and hopes because no treatment for M D .

Does it affect the brain. Is it associated with lower Intelligence on average. Some kind of genetic muscle deseases like duchenne dmd are cleary associated

3 years ago we learn about stem cell treatment we did in Navi Mumbai in India but not good...

I am 30 yrs old facing symptoms of muscular dystrophy my cpk level is 4000 and I had done MLPA and biopsy both came normal I can't understand what to do

Is there any chance of stopping the desease or even get better , if you train every day and eat the right things ? pls answer

I have this disease LGMD2B , is there update for clinical trials gene therapy ?

Kitni age tak survived kr paate h ye patients ?

brad sir you are super human. DenRavl

if cure is not soon I think in world no value of life's because rare disease want treatment also .

My uncle suffering LGMD Musculler last 20years. I need Help ........

They all were once sporty/athletic which no one seems to know.

Mujay muscular distropy hai

let me know when we get cure .

I have it

♥️

Please help me please i request for u

Help me sir 😭😭😭😭

Please treatment liya India mein help me

Absolutely fuck me I have this