I work in neurology, and I’m watching this to make myself more educated on the illness. I am praying for everyone watching this video and those with MG-don’t give up hope, there are people fighting for you and with you. God bless

I was just diagnosed today. I’m hoping to start feeling better than I have been soon.🙃

I've had MG for 2 years now. It is insidious and I'm glad it is getting attention on KZfaq. Please share this with others. While some can live a "normal life" with treatment, it should not be generalized because other people cannot. Everyone is different.

Thank you all so much for contributing to this video. So much of me in this. I was diagnosed 21 years ago and still there are people in my life who don't understand and support me. Will be sharing this frequently in the hopes of educating more people about OUR disorder.

I was diagnosed 7 years ago with MG. It is a very hard illness to deal with but you can definitely fight through it. Stay positive even when you face hard times.

I feel so validated. It’s been yrs and soooooo much $$$$, time lost, and angst trying to find answers. I have Mixed Connective Tissue Disease but I knew there was something more to what’s going on. Started Mestinon a few days ago and was finally able to fold a basket of laundry without having to take a break. While grateful to be on the right track, I’m hurt and angry it took this long, so many hospitalizations, ineffective meds, lost nursing career, family/relative stress, medical bills, collection agencies, and, most of all, person pride. I used to be at the gym 3-4x a wk for abt 1h45m. I loved it!!!!! Now, I have days/flares where I literally have to take breaks just putting on my clothes. Every morning I get out of bed and am so physically discombobulated. My extremities have what seems like no sensible connection to my brain. It’s been yrs!!!!!! Yes, I’m glad to have a med that helps but I’m so effing angry bc MG was overlooked. I’m so very fortunate to have an amazing husband, but other than him and our dogs, I’ve lost so much of what ‘ME’ used to be.

I joined the exclusive M.G club yesterday. At first I was diagnosed as having had a serious of mini strokes. It took a Emergency ward doctor,to spot the sign and refer me to a neurologist. It took two years and various tests to get the diagnosis correct.

Just diagnosed today. Looking forward to feeling better

We need a Myasthenia Gravis community on here. I am now 3 and a half tears on from diagnosis and now pretty much wheelchair bound. I also use mobility scooter.

My dad was diagnosed a few days ago & I’m gonna do everything I can to help him through it. I have one parent left, so I don’t have a choice. I think I need him more than he needs me to be honest. Thanks for video🙏🏼❤️‍🩹

Praying for everyone with this Disease

Lupus and Sjorens and Fibromyalgia and MGD and Myasthenia Gravis ❤ pray for me

I have had for 49 years. Had surgery in 1980. It was successful no meds anymore. But I am 68 years old and getting weaker now hopefully they can help me now. I had two friends who have died. So sad.

Thank you all very much, for us who have been neglected by our caregivers and so called professionals that are just out to make a buck and pass along any problem that requires study.

Thank you for this. It's very validating to see so many other people who fight MG

Thank you for this information, I have been struggling with MG now for more than a decade

I was diagnosed in the last year. The year before, the doctor and in were trying to figure out what was going on. A cat scan showed 2 vein's on the back of my brain that are too small. So a friend, who had moya-moya, said to get to a neurologists asap. The neurologist had me got in for a mra. Luckily , I don't have moya-moya. My friend is getting ready to have her 7th brain surgery. I told them neurologist that the Mr a didn't explain why I was having double vision. He sent me to an eye specialist, who then diagnosed ocular gravis. I know have glasses with temporary prisms. I need them for distance vision. I used regular reading glasses for close up work (I crochet a lot). I am very glad I found these videos. I am saving this one to my library so people can see and hear what I am trying to explain.

I am so glad I found this channel! Diagnosed 3 years ago.. ❤️❤️ from India

i started getting symptoms 2020 and got diagnosed this year & honestly it’s been hell. this condition has made me depressed and i just want to give up

My husband has Myasthenia Gravis, and he is very frustrated. He has lost muscle strength and one eye lid drops. He takes Mestanon but is not working. Tomorrow he will get immuglobin infusions scheduled. Am praying it will help his condition.

A test came positive with this so I have to retest and do a bunch of different things

Thankyou thankyou thanyou

Learned a lot from this video. Thanks :)

Thank you....

Im Roy Martin Quintero From Phillipines this MG diagnosed lately but i dont know what to do i cant speak normal and deficulty walking i hope i will be ok..thank you for the help God bless😢😢😢😊😊😊

I have diagnosis also of MG..since 2016...until now I'm taking mestinon and predstenon...

My very good friend was just diagnose all I am doing is crying I want to know what I can do to help in every way can anyone point me in the right direction please he is 75 yrs

I have all the listed symptoms but AcHr antibodies negative. I dont trust my body any more. One hour i can be normak and a happy person, but dont know what next hour brings me. And my neurologist will just not see me because they all think its a rare disorder that i cannot have.

I am so happy to see utube videos getting made . this will help bring awareness in the future for sure. I hope mgfa will make some for ER and nursing staffs we can share.

Hi everyone I was born with Myasthenia gravis

I have Myasthenia Gravis, you might wanna give Mirtazapine a try. It started working the first week I took it.

Six months ago I was diagnosed with m.g

i know i have it as my grandfather did and i looked into my promethius and yes i have the genes. im 29 amd starting to have the pain with swallowing. its so sore.

I have had this for 6 years and didn’t know my eye would close vision went crazy my breathing fatigue doctors didn’t know

I just found out 3 days ago. There were little things I didn't give much thought. Then last August I was T boned in a wreck my side. Ive seen doctors and therapists. My doctor scheduled me a eye exam, and he said I think you got this. I said say that again. Well had blood work and other eye exams and I have it. The wreck put it in overdrive

And is so sad that social security services denied help!

I’m 14 with it and I am so scared 🥺🥺😭😭

i only have weaknesss after i lift something very heavy. i also have nerve damage all over (sfn) no eye dropping or anything! could my weakness be just from the damaged nerves

I have no support 😭😥

Anyone here from Plabable?

Any vitamins that can help?

DMSO + OZON!!!

I still havent gotten dionosed but i have to go i have go in and out of sa. Antonio i see blurry and they always have me on medication and non of my family has this kind of condition if you can help me plz that would be great

Can MG cause ptosis that comes and goes? I'm trying to figure out why the heck one eye seems to shrink a few times a month. MG came up in a Google search trying to solve this . Doctors aren't interested but scares the hell out of me when I get a headache then look in the mirror and one eye is a different size :(

I live near Phila, and a beloved and well known dj of 70 years, still going strong, passed away jan 20, 2023, from AM. we don't understand how, when it can be helped. is it possible he found out too late. In the summer, he tought he had rotaor cuff injuries. sept, oct, nov he was very thin, thinner than normal. in nov, dec, he cancelled events and we were told he was in therapy and getting the latest treatment. in jan, we were told he passed away. we were all shocked. (yes he was 82 but was always full of energy). there is a huge viewing, jan 28 in philly for him. he basically was well known to entertainers and singers. can someone please tell me if it's a disease that can be helped how did he die. thank you

How do you test for it

My brother was survived for 5 years from myasthenia gravis but then he had another complication that took him away from us 😭😭

does myasthenia gravis cause muscle pain?

I mean they all look normal

Most of them women