What is Myopic Macular Degeneration (MMD)?

Рет қаралды 441

4 ай бұрын

Discover the ins and outs of Myopic Macular Degeneration (MMD) in this eye-opening video! Join Marie as she sheds light on this condition and shares her personal experiences. Don't forget to subscribe for more informative content on MMD awareness!
Have you ever heard of myopic macular degeneration or MMD? Most likely not, unless you are either an MMD patient or an ophtalmologist. That is how little-known it is. Myopic macular degeneration is a sight-threatening condition resulting from high or pathological myopia. It is sometimes called degenerative myopia and is the second most common cause of blindness in the developed world, after age-related macular degeneration (AMD). Patients are typically diagnosed between the ages of 20 to 50, directly affecting their ability to contribute to society through work.
It is all too often considered a rare disease and is therefore woefully under-researched and often under-diagnosed. Its incidence is nonetheless rapidly increasing around the world, with an estimated 40 million people currently suffering from it, a figure that is predicted to rise to 100 million within the next 25 years.
Patients are often mis- or partially diagnosed, left-as I was-to fill the gaps online at the risk of finding inaccurate or misleading information.
There needs to be a drastic change in how patients with MMD are diagnosed and treated. And needless to say, there needs to be active research for a cure. I hope to raise awareness about this by sharing my story.
IMAGE CREDITS
From webvision.med.utah.edu/book/p...
ABOUT MMD
www.myopicmaculardegeneration.com
www.macularsociety.org/macula...
www.myopiasociety.jp/en/greet...
ABOUT MYOPIA/HIGH MYOPIA
webvision.med.utah.edu/book/p...
myopiainstitute.org/myopia/
myopiainstitute.org/wp-conten...
• Why is Everyone Going ...
RISKS OF MYOPIA
www.ncbi.nlm.nih.gov/pmc/arti...
PREVENTION OF MYOPIA IN CHILDREN
www.wired.com/story/taiwan-ep...
www.aao.org/eye-health/diseas...
LACK OF RESEARCH ON MYOPIA IN ADULTS
www.ncbi.nlm.nih.gov/pmc/arti...
www.ncbi.nlm.nih.gov/pmc/arti...
DRY AMD TREATMENTS
www.macularsociety.org/about/...
www.macularsociety.org/about/...
SUPPORT GROUPS
Myopic Macular Degeneration : Patients for a Cure
groups/92029...
Myopic/Macular Degeneration Group Support
share/2uNnR3...
COMMON MACULAR DISEASES
www.macularsociety.org/macula...

Пікірлер: 5

@dupre5338 3 ай бұрын

Very informative video! You are excellent in describing the condition. Thank you for sharing this with the world :) Best of luck to you with your health journey :)

@serenstardesign9725 2 ай бұрын

I have this too, with diabetic retinopathy. One of the scarriest things I think I've ever done is go to the eye clinic at the heart of the pandemic for eye injections... They haven't worked. Now they feel like second nature. The vision in my left eye is no longer correctable. The consultant is now talking about eye implants, with the inevitability of cataracts. I'm scared. As you've said the thought of not seeing my adult children is terrifying, as is the loss of my independence. Sending gentle, understanding hugs xx

@Ihavemmd 2 ай бұрын

Hugging you back. I hope better treatments become available for us soon xx