Hi Thaddeus, You can keep up to date with how Jessica's work is progressing directly through her Twitter account @BendyBrain twitter.com/BendyBrain She also includes shout-outs to other relevant research and people working in this area, so it's a good one to check out for more information. You can also see more recent talks and publications from Dr Eccles through the her page on the Brighton and Sussex Medical School website: www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspx - such as this recent 30 minute talk vimeo.com/346710898

@@acmedsci I have hypermobile knees how do I strengthen my hypermobile knees

@@camybesterwitch6587 See a physiotherapist. If you experience joint instability and pain from hypermobility it is important to strengthen the surrounding muscles. I have the same issue with my shoulder (subluxation and pain) and have been referred by my doctor for physiotherapy. Hope this helps!

@@elliecain3761 thank you

@@elliecain3761 If you have EDS you have to be extremely careful because physical therapy can actually make it much worse long term. make sure whoever you go to is extremely familiar with hypermobility

Hello Gergory, Could i ask you have you were diagnosed with hypermobility? I suspect I might have it aswell as autism and adhd. I struggle badly walking all day at work and I just resigned because It was too tough.

@@performa1 I'm sorry to hear of your struggles. I was initially assessed by a sports physiotherapist, and his assessment was later confirmed by an orthopedist after several visits, with the help of an MRI and extensive medical history. If you suspect you're hypermobile, you probably are, but either way I'm not sure it matters because the most helpful thing you can do is physical therapy, strength training, and postural training. Having strong muscles that know when and how to work together, and knowing how to move in ways that are safe and efficient... this is the only sustainable way out of the cycles of pain and fatigue we get trapped in. I wish you all the best!

My thoughts, precisel, Gregory; my thoughts precisely. That, and, "Ouch."

Same! my poor girls, I’m mortified 😕

I literally said "HOLY CRAP" when she started talking about postural tachycardia syndrome.

Look into the system called “functional patterns” it’ll change your life

Same here. It's like the puzzle just slid together and locked in place. 🤯

Same!

@wulfgar3000 he meant like they made it up or like its just in there imagination

wulfgar3000 Are you serious dude? She meant that people call those with POTS “anxious” or label them with anxiety even when they are calm. You can’t stop your ANS being dysfunctional.

Apparently we can albeit lot of time TMS drs do this and neural tetraing

I mean anxiety is in your head

if you are on other social media an excellent book is by claire smith its has SO much useful info in there, hypermobility is so so much more than just being bendy. DO checkout HMSA charity on twitter. I learned so much from there.

I have hyperlaxity joint syndrome and my mom has fibromyalgia

Amanda Moore congratulations nobody cares bitch

I have a hypermobile back and have suffered from anxiety and depression, and was diagnosed with OCD about 10 years ago. My suggestion for you is a high-quality, therapeutic magnesium supplement, preferably powdered. I am not a dr or naturopath but I take one (originally prescribed by a naturopath) and it has made an enormous difference to my quality of life.

sxfghsdgf asdfgadsf what is this supplement and where can I get some please?

Kinda feeling this right now.

🥰♥

You're very welcome! Supporting early career biomedical researchers like Dr Eccles and helping people benefit from knowing about their work is a key part of what the Academy of Medical Sciences is here for.

Same

Chloe Webster shame didn’t know it was related until I came across this

mandar kumthekar She says in the video

I have hypermobile and dwarfism

Spot on! Exactly the same for me, it’s ruined my boxing career because of the fear of my shoulder popping out.

OMGG I don't have fear or anything but it's there. When I walk my feet will suddenly bend for no absolute reason just by the sole reason of walking and I have a thought that if I don't watch how I walk I might pull off a Stephen Hawking moment

Same here

You can have Mast Cell Activation Syndrome (MCAS). This is a newly discovered and very common disease that is still unknown to almost all doctors. MCAS is linked to diseases such as Postural orthostatic tachycardia syndrome (POTS) Hypermobil Ehlers-Danlos Syndrome (hEDS) Post-traumatic stress disorder (PTSD) Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS Post-Lyme syndrome Irritable bowel syndrome (IBS) Fibromyalgia syndrome (FMS) Attention-Deficit / Hyperactivity Disorder (ADHD) Autism spectrum disorder (ASD) Scientific articles NCBI Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome Mast cell activation symptoms are prevalent in Long-COVID Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrome Mast Cells and Irritable Bowel Syndrome (IBS) Mast Cell Activation Syndrome: An Alert to Psychiatrists

Are you in the Cusack protocol group yet? Lots of supplements there for EDS. Also I have a question maybe you could answer? Methylated B vitamins make me feel so tired which is the opposite of what I want. I’ve had to take Seeking Health’s methyl-free. Mind you my MTHFR test said I didn’t have it.

Did it help with muscle pain I am hypobile and OCD from birth

The reason is ligaments laxity causes your cervical spine bone ,specifically c1 &c2 to compress your adjuscent nerves and blood vessels like VEGAS nerve ,carotid artery snd vain ,automatically ur sypathetic nervous system fires by saying fight or flight! If this compression continues or worsen the vegus nerve degenerate and interapt the communication between the brain and the body causing DYSAUTONOMIA witch is the root cause of most of chronic diseases, leaky gut, inflammation, gastrointestinal problems, asthma, copd chest pain ,heart arrhythmia, palpitations, vocal problems taste ,smell ,vision, hearings problems, migrain ,stroke psychological and psychiatric problems, extrimity disorder ,hormonal inbalace ,sexual, fertility problems etc .......

@@mohammedabdulkadir2004 CCI is not the cause of most chronic illnesses, and although it is more prevalent among hypermobility disorders, there are many different factors that can play a role in the same symptoms developing. Even neck pain can be caused by something other than CCI in these conditions, such as lack of proper blood flow in the neck and head area or Chiari malformation, which are both more common than CCI to my knowledge. It’s really hard to identify what’s wrong sometimes because a lot of these symptoms are sooo generalized and broad (such as headaches, pain, GI issues, dyautonomia) and can be explained by so many different things. Sometimes, it even ends up being a combination of multiple different factors. I still haven’t been screened for chiari or CCI, so I still can’t rule them out for certain for myself🥲

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Me to with hypomobilty we are prone to sycosomatic pain

How are you now

That’s dizzy, passing out thing is POTS. It’s often part of Elhers Danos syndrome (EDs). They call us who have it Zebras because Doctors are taught to expect horses when they hear hoofs - but with our condition it’s unexpected- like hearing hooves and suddenly it’s Zebras not horses 🤷🏼‍♀️I hope that made sense. Anyways- Your doctor is wrong. Being super flexible is only possible if your connective tissues are too loose. It’s what Ehlers Danos is - there’s a mutation or malfunction of the genes that make collagen basically- or that control what collagen does perhaps in our bodies. It’s like saying someone who is 8 feet tall is just tall- No they have something wrong with their pituitary gland- it’s not normal to be 8 feet tall and so they test and deal with the cause. It’s also not normal to be as bendy as we are… sorry you’re going thru this. I’m going to see a rheumatologist soon hopefully to get a formal diagnosis- none of my other doctors have ever addressed EDS. From my understanding rheumatologists are the ones who should know about it.

You need a new doctor.

i loath when doctors do that shit. and most of the time at that level it's not like they are continuously doing research like this Doctor here. I have realized that we have to be somewhat of researchers our selves and listen a little more to our intuition. I'm not sure if i have hypermobility but i have somethings going on with the musculoskeletal system and I try to bring up my insights and its like its over looked. smh

I've got hypomobilty OCD and muscle pain I had pots got over that gone into muscle pain had IBS as child mum has ms same

The link between joint hypermobility and anxiety is Mast Cell Activation Syndrome (MCAS). MCAS is linked to diseases such as. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) Postural orthostatic tachycardia syndrome (POTS) Hypermobil Ehlers-Danlos Syndrome (hEDS) Post-traumatic stress disorder (PTSD) Gulf War Illness (GWI) Post-Lyme syndrome Irritable bowel syndrome (IBS) Fibromyalgia syndrome (FMS) Multiple chemical sensitivity syndrome (MCSS) Chronic inflammatory response syndrome (CIRS) Interstitial cystitis/bladder pain syndrome (IC/BPS) Attention-Deficit / Hyperactivity Disorder (ADHD) Autism spectrum disorder (ASD) Scientific articles NCBI Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD) Mast Cells, Stress, Fear and Autism Spectrum Disorder Mast cell activation and autism Mast cell activation symptoms are prevalent in Long-COVID Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrome Mast Cells and Irritable Bowel Syndrome (IBS) Mast Cell Activation Syndrome: An Alert to Psychiatrists

Same here! It's like we are twins

These conditions clearly cluster, the data is showing it more and more over the years. I also have EDS, POTS, & I’m autistic. I’ve had chronic pain for the vast majority of my life & most doctors tend to treat you like you’re lying or out of your mind when you have these issues. It’s absolutely maddening at times. I’ve learned to essentially treat myself because doctors haven’t been of any hell to me.

What pain does your son have had OCD all.my life pelvic pain muscle pain in shoulder feet armpits everyday.yes medical prossion waste of time

THIS IS ME

Look up ehlers danlos syndrome also

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Comorbid