What it’s like for us: the reality of living with viral hepatitis

Рет қаралды 29,734

8 жыл бұрын

Those with lived experience of hepatitis can face significant challenges and obstacles when it comes to getting their voice heard and influencing national planning. This session features patient representatives Jazzy De Lisser and Dee Lee sharing their stories and experiences and reminding us why we are all here.

Пікірлер: 178

@Cody6918 4 жыл бұрын

Jazzy , what a great thing it is that you shared your story,and what a great outcome.I hope life deals you great cards from now on,you rock!

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/nseKZbmTmd-yeps.html

@dannymeske3821 8 ай бұрын

I have had Hep c 1b since 1964 and have had no symptoms yet. I'm 77 my liver is still in good shape and I plan to live with it till I die!

@Graceii800 18 күн бұрын

Being recommended to Dr Abiola on KZfaq was a blessing after years of suffering . I have finally been cured from Hepatitis virus thanks Dr Abiola you are indeed a Blessing to this generation #DRABIOLA 😎🤗🎉

@karlschneider9479 11 ай бұрын

I probably contracted hep c in 87 but was not dignosed until 96. About 4 years ago my liver stopped processing fluid and I ballooned to almost 300 punds (I'm 6'3"). It got so bad I threw up a lot of blood and almost died. I was put on Harvoni which cuted it. By then the damage had been done and in August of 2020 I underwent emergency transplant surgery at Mass General Hospital. Today I am hep c free and living a good life.

@Graceii800 18 күн бұрын

@selfiesverige4427 8 жыл бұрын

Fantastic speech by first young women-i could feel your pain in my body. Love- many harts from Sweden/Kaj

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/nseKZbmTmd-yeps.html

@tlbailey1469 3 жыл бұрын

Happy for her. My first treatment failed of Epclusa & they’re thinking of putting me on Vosevi. 🙏🏼🙏🏼🙏🏼

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/nseKZbmTmd-yeps.html

@ktnow88 8 жыл бұрын

Oh Dee. Wow. You were an aMAzing Ambassador for why we need to build awareness, increase treatment, increase inclusion and understanding and cause a fairer world. How wonderfully brave of you and Jazzy. Well done. We support you!

@ORTHODOX-PATH 6 жыл бұрын

Kate hallo from Greece, I am 36y.o i suffer almost 15 years of Hep C,if anyone took thee new treatment "harvoni',I just know if he/she get rid of it.I appreciate any information and i want to know if it is too late for me after 15 years,i cannot take it anymore. THANK U SO MUCH FROM THE BOTTOM OF MY HEART ! my mail is .. paulosperrakis@gmail.com God bless

@alohpeter1450 3 жыл бұрын

I want to thank Dr itua for curing me off of Hepatitis b, I was affected with the virus, when I saw people giving testimony on Facebook and Instagram, I saw people testifying on social media of how they were cured of the deadly virus that Dr itua saved them with, I rushed and WhatsApp him and he sent me the cure and I was cured, this is why I share my testimony to the world that I am cured of the deadly virus this his WhatsApp contact: +2349018197949 and email with : dritua859@gmail.com

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/nseKZbmTmd-yeps.html

@Graceii800 18 күн бұрын

@TheIsabelrose 3 жыл бұрын

Jazzy de lisser is my Godmother i'm so proud of her for being amazing!! I love her from my heart

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/nseKZbmTmd-yeps.html

@vijaybhaskar4212 3 ай бұрын

@Thelsabelrose Goode day Rose. Your Grandmother looks young and healthy. I would like how she is now. Ask her about that medication (that one tablet she took for treatment). If possible pls ask her to post new videos of her life travel. So impressed.

@jeannielynn3836 4 жыл бұрын

What a brave and incredibly strong young women

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/nseKZbmTmd-yeps.html

@oviatasanatoasa9130 5 жыл бұрын

Wow - this was so painful journey but glad you make it free of this virus

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/nseKZbmTmd-yeps.html

@Graceii800 18 күн бұрын

@joshualewis8002 6 жыл бұрын

Believe it or not I can totally relate to her story not entirely but about 94%

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/nseKZbmTmd-yeps.html

@SwedePotato314 2 жыл бұрын

My first round of treatment was interferon at age 22. It was horrific. I could not imagine yhe pain ig a 6 year old child going through that treatment and the mother who had to make that choice and care for her daughter while being infected herself. My second round of treatment was Harvoni at 29 when my insurance would finally cover it. It was successful and while not fun, it was 1000x better than Interferon. At a liver level test 2 years ago, I was found to be infected again. I don't know how. I have been sober and clean from drugs for years. I don't know if it was from something medical, a tattoo, acupuncture, unknowingly having someone use my razor or tweezers. My husband doesn't have it. I'm 35 now and this is the only time I've been able to physically tell that I am infected and showing symptoms. Having this again while having a 2 year old daughter, a full time job in the drug and alcohol treatment field, being much older and during COVID pandemic hasn't been easy. If you even think you might have been exposed at any point, go test. And don't delay treatment. It sucks and it's not an easy 2 or 3 months. But it is SO much better than having later stage symptoms. And living with fear and guilt. I thought I'd be judged. It reminded me of a life I'd left far behind me. So i kept putting it off. I convinced myself that it was the previous infections that left something behind that tricked the test and that's why the test came back positive. I rationally knew that wasn't the case but I convinced myself that its was. I don't regret a lot in my life. But this was and still is my biggest regret.

@user-cm6qg4lj3n 2 жыл бұрын

i really hope you respond to me..i was told that a person will test positive even after cure...is this right? this coming from a proffessional. Dr says it will always alter test because of treatment. Im baffled

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/nseKZbmTmd-yeps.html

@Graceii800 18 күн бұрын

@ddonlee 6 жыл бұрын

You are so brave. Thank u for sharing. I hope there will be a cure for hepB some day. I was just diagnosed, im so sad

@skillfuldabest 5 жыл бұрын

What were your symptoms prior to getting diagnosed? I have a slight yellowing of the eyes and i'm freaking out thinking i might have hepatitis.

@BayaniMagtanggol 5 жыл бұрын

google search for Bob Beck blood electrification. the basic is simply electrifying your bloodstream hoping that those viruses goes into blood circulation and if it hits that small electricity from the device it will die off. for me it makes sense. it promises just a six month period and after that get a blood test. there are procedures though that you strictly need to follow like drinking a glass of water an hour before blood electrification. otherwise your kidney will suffer accumulating all the toxins from your bloodstream through electrification. so help your kidney flush out those accumulated toxins by drinking a lot of water.

@jbastidas29 4 жыл бұрын

@carbon copy what where your symptoms?

@liveforchrist1474 3 жыл бұрын

The bible says our tounge is the steerage of our ship so we should only say good things about ourself. We should say, "I don't have hepatitis in the name of Jesus. I am healthy and well in the name of Jesus." Benny Hinn's Christian Ministry and CBN's ministry have websites you can put your prayer requests on. Be well in Jesus' name, never quit praying! God bless!

@emelianaadi7285 3 жыл бұрын

Hi Lee, can I please get your email or WhatsApp number so we can chat?

@dougiequick1 6 жыл бұрын

Who REALLY knows for a fact how much life changes if one is infected or not? I had HCV from 1980 on (at least) ...I always "felt" that I KNEW something was wrong with me ...I just KNEW it comparing my life with the energies and abilities of others... then again? I mean HOW could I "know"? see the problem is there is no frame of reference ....I mean if the liver fails? well THEN it is duhh ....but up until some tipping point? It is guess work ...I did the treatments described in this video ...they sucked ...but MOST of the rollercoaster ride (I think) was the result of what people SAID ....I mean the information on the disease is so controversial ...there never was real consensus what it REALLY meant to have the virus ...some people appear unaffected and others devastated ... doctors are apt NOT to believe the patient . One thing is for sure hardly anyone infected with geno 1 was cured via interferon ...winning at that was like winning the lotto ... not worth the side effects but it is hard to not go for it when one understood how bad the hcv COULD be...and yes I TOO got the harvoni cure at a cost of 1100 dollars PER DAY for180 days! Thankfully insurance paid not me

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/es5_gtim15jXcas.html

@letsee3616 2 жыл бұрын

I have hepatitis b but my doctor didn’t say anything still 😃 but I’m starting exercise and eating apple 🍎 orange and different fruits and I will beat by myself!!!✊

@aimeequaifes175 2 жыл бұрын

My health was horrible because I was diagnosed with Hepatitis B and I felt like there was no hope for my health because I was told there was no cure. But today I am here to let everyone know that there is a herbal medicine to cure Hepatitis B and other diseases because I was able to get rid of my Hepatitis B with the help of Dr.Auchi on KZfaq channel herbal remedies..

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/es5_gtim15jXcas.html

@Graceii800 18 күн бұрын

@linussamuel8748 Жыл бұрын

My heart just keeps thanking you and thanking you Dr Igudia for all you have done for me, you gave me your words that you could heal any sickness or disease, thank you for permanently curing me of my Hepatitis B Virus you are amazing

@anthonynwaogu708 Жыл бұрын

Thank you Dr Igudia for being the most trusted doctor among all, your professionalism was on a high standard, thank you for coming to help me out with my Hepatitis B Virus

@patienceamodu5559 Жыл бұрын

May God continue to bless you Dr Igudia for always listening to me and always being there for me, your medicine was top notch, thanks for taking away my Hepatitis B diseases pain. I'm grateful doctor

@rabigarba-ty5fh Жыл бұрын

I don't know where to begin, but you are the most caring doctor that i have ever known. Thank you Dr Igudia for taking away my Hepatitis B infection pain. God bless you. So much accolades to you sir.

@chibuikenwanyanwa8945 Жыл бұрын

I thought my body would never be the same again, but you fixed it. My heartiest gratitude to you Dr Igudia for helping me cure my Hepatitis B successfully.

@mujahidyalhassan2481 Жыл бұрын

If the world had more people like you, it would be a better place. You make a difference, Dr Igudia thank you for curing my Hepatitis B disease and introducing your medical products to the worlds

@janeildavis9219 Жыл бұрын

Do you know how I can contact this doctor

@elenasreide9529 Жыл бұрын

@@janeildavis9219 do not contact dr. Igudia. He is fake

@mrs.augustabowen6457 Жыл бұрын

No it's not too late to be cure I recommend Kx2 Herbal medicine That's what i used and you can get it from DR.VIKRAFT HERBS ON KZfaq CHANNEL.

@idrisbagaruwagwarzo4363 11 ай бұрын

I really do appreciate you Dr Igudia youtube,your commitment towards saving human lives is steadfast ,all the knowledge I got from you and,the help with the herbal meds, I was recently tested negative of Hepatitis B,I’m so happy thanks doc

@kusinaalex3227 3 жыл бұрын

what is the medicine of hipa b.

@richardmanhan1982 3 жыл бұрын

To cure Hepatitis completely,use kx2 Herbal Green Tea Medicine.it’s very effective and active.that’s what I used and it work fast.You can get it from Dr.Vikraft Pharmacy store via WhatsApp:+2348160264268

@aimeequaifes175 2 жыл бұрын

@Graceii800 18 күн бұрын

@PtakiKujawiaki 5 жыл бұрын

Can somebody write me if it is hard to live with other person having that virus? I mean i am healthy but my girlfriend has this dissease. We spend big amount of tine together including walks, cinemas, drinking, sex and other stuff. We date almost 1,5 month now. I know that i must avoid a contact with her blood. I know about a diet which she will bring to her life in the nearest future and i will support her fully eating the same things with her. I will also be supportive in „no drinking alcohol and non smoking” policy which she will bring up with a diet. But if it is more that i can do ? I am asking for help because i want her to be the happiest girl in the world when living with me. Thanks in advance.

@annonymousw2829 4 жыл бұрын

You need to make sure that you have been vaccinated.

@jesterfavoriteplay3199 3 жыл бұрын

GET vaccinated

@arlindfazliu26 3 жыл бұрын

If you've had unprotected sex with her and are not vaccinated you have Hep B, too. Go get checked!

@ophiolatreia93 3 жыл бұрын

@@annonymousw2829 you can't get vaccinated against hepatitis C.

@ophiolatreia93 3 жыл бұрын

@@arlindfazliu26 who mentioned hep b?? He only said this virus. He probably means hep c. Hep b is much easier to cure

@NooraWisPakelsTV 2 жыл бұрын

What's the name of the medicine she took?

@SwedePotato314 2 жыл бұрын

Interferon in the first one ans Harvoni is yhe second one

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/es5_gtim15jXcas.html

@godislove7500 Жыл бұрын

@@SwedePotato314 kzfaq.info/get/bejne/es5_gtim15jXcas.html

@Graceii800 17 күн бұрын

@mujahidyalhassan2481 Жыл бұрын

If the world had more people like you, it would be a better place. You make a difference, Dr Igudia thank you for curing my Hepatitis B virus and introducing your medical products to the worlds

@africabeauty16 11 ай бұрын

Hello can you please help me come into contact with Dr Igudia. Wanted to hear about that medical products which help you. Please❤

@SagirSulaiman-pb3ky Жыл бұрын

I Really Appreciate your good Work Dr Igudia on KZfaq, Thanks for Curing my chronic Hepatitis B diseases. No more Pains and sleepless night, Thanks Dr Igudia.

@anitaquaye3318 Жыл бұрын

Are u sure his medicine works

@SagirSulaiman-pb3ky Жыл бұрын

@@anitaquaye3318 Yes it works

@mrs.augustabowen6457 Жыл бұрын

@@anitaquaye3318 I recommend Kx2 Herbal medicine That's what i used to cure mine completely and you can get it from DR.VIKRAFT HERBS ON KZfaq CHANNEL.

@liveforchrist1474 3 жыл бұрын

@Graceii800 18 күн бұрын

@NooraWisPakelsTV 2 жыл бұрын

I have hepatitis B what medicine should I take?

@ansarshalla7969 2 жыл бұрын

Same with me

@aimeequaifes175 2 жыл бұрын

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/es5_gtim15jXcas.html

@godislove7500 Жыл бұрын

@@ansarshalla7969 kzfaq.info/get/bejne/es5_gtim15jXcas.html

@missives6261 6 жыл бұрын

What's the medicine name?

@MissBehaven1974 5 жыл бұрын

for the Hep C ? .. i was cured with a very expensive cocktail of ALFA-INTERFERON and RIBAVIRIN... it did its job,.. im cured.. but the side effects are not something you want.. but sick and doomed vs cured and been in hell.. I know what i choose

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/es5_gtim15jXcas.html

@Graceii800 17 күн бұрын

@rockingsaurabh2115 4 жыл бұрын

Which drug is good for heapatities b

@osmanht1327 4 жыл бұрын

entecavir 0.5

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/es5_gtim15jXcas.html

@godislove7500 Жыл бұрын

@@osmanht1327 kzfaq.info/get/bejne/es5_gtim15jXcas.html

@Graceii800 17 күн бұрын

@emmanueldemesi4960 7 ай бұрын

Please what is the name of the drugs she took im currently sufferring with this Virus 😭😭😭😭😭😭😭

@darkberries2422 4 жыл бұрын

I'm a chronic hepatitis B carrier😕

@lisajoy9914 4 жыл бұрын

I just got rid of my long term hepatitis b disease. I’ve been diagnosed with the hepatitis b disease for 6 years, but I was recently cured from it completely!. I’m so excited. There’s truly a cure to hepatitis b. Thank you 🙏 Lord.

@osmanht1327 4 жыл бұрын

Lisa joy ma'am pls how u cured from this disease. am also carrier 😢

@darkberries2422 4 жыл бұрын

Lisa Joy please kindly share your story

@lisajoy9914 4 жыл бұрын

@@darkberries2422 what is your email for an assistance

@karlmia9421 3 жыл бұрын

I recently got cured from my Hepatitis B virus through holistic healing by Dr Aluda..what's app him via +2348145636867. or Email him via draludaharbalhome@gmail.com if you are facing the same terrible illness for your solution draludaharbalhome@gmail.com..Dr Aluda has herbs healing for the following illness Diabetes 1 and 2, Herpes Virus, WEIGHT LOSS, ALS, HPV, FIBROIDS, PLANTAR WARTS, CANCER, LUPUS VIRUS

@idrisbagaruwagwarzo4363 Жыл бұрын

@chibuikenwanyanwa8945 Жыл бұрын

I thought my body would never be the same again, but you fixed it. My heartiest gratitude to you Dr Igudia for helping me cure my Hepatitis B Virus successfully.

@gordonwanless8351 3 жыл бұрын

EVER CONSIDERED NATUROPATHY?? CURED MY CANCER IN 6 DAYS..KILL THE CAUSE DO NOT PLAY WTH THE SYMPTOMS A TAURUS/GOAT TO A VIRGO/GOAT GOD BLESS

@jerryfurgill4275 3 жыл бұрын

Dr Umoru scam

@godislove7500 Жыл бұрын

kzfaq.info/get/bejne/es5_gtim15jXcas.html

@rabigarba-ty5fh Жыл бұрын

I don't know where to begin, but you are the most caring doctor that i have ever known. Thank you Dr Igudia for taking away my Hepatitis B infection pain. God bless you. So much accolades to you sir.

@hserwahtarwawa5378 7 ай бұрын

Who is Dr Igudia? can you show me his channel

@Graceii800 17 күн бұрын

@@hserwahtarwawa5378 Being recommended to Dr Abiola on KZfaq was a blessing after years of suffering . I have finally been cured from Hepatitis virus thanks Dr Abiola you are indeed a Blessing to this generation #DRABIOLA 😎🤗🎉

@mujahidyalhassan2481 2 жыл бұрын

If the world had more people like you, it would be a better place. You make a difference, Dr Igudia thank you for curing my Hepatitis B disease and introducing your medical products to the worlds