A very eloquent, humorous, and humble chap, he's a credit to himself and his family.

I love this brave man and so honest i am 74 and had my diagnosis only last Oct 2022, so I feel one off the lucky ones in that I didnt get it when I was younger, I have been able to enjoy walking . dancing climbing etc but now I do know the true meaning of parkinsons, and it is devastating and my HEART GOES OUT TO EVERYONE SUFFERING WITH THIS CRUEL DISEASE, BUT LET IT NOT BEAT US. LETS US HOPE FOR OURSELVES AND FOR THE NEXT GENERATIONS THAT SCIENTISTS WILL FIND A CURE GOD BLESS YOU ALL.

I like the British man straight to the point...love UK💗

Sir John Walker, a NZ Olympic gold medalist runner, was diagnosed with P.D. in 1996 and is still active. Don't despair, try anything to slow its progression, and keep moving. I play badminton with two P.D. fellows aged 72 and 83. My 68 brother has a recent diagnosis and is using an Australian u/v light device said to stimulate the gut biome that help create dopamine.

What an articulate and composed talk. Thank you for your effort, bravery and for being a damn good orator. I have had a stroke, not Parkinson’s I know, but I too have to take a raft of pills and face related ‘issues’ each day. Fortunately I can look forward to some sort of recovery, I hope! I am in a wheelchair coming up to a year now. But I can see tiny seeds of hope, despite setbacks that leave me debilitated. Thank you again for the insight and may I wish you better times ahead. Kindest regards to you Sir.

Thank you so much you described my life to a T, my friends and family will tell me get up do something get your shower get out and walk ,I can't do anything they can do anymore they think I have given up ,It hurts when I'm talked to like that.So your speech was so reassuring.Thank you

Oh my gosh what an amazing speaker and the sad reality of this diseases horrible effects! Yet he certainly gave us hope for the future. 😏❤️🤞🤞🤞

Powerful description of Parkinson's symptoms delivered with sincerity. Thank you.

This is awesome 👌 we need more of these kind of videos with people who have been afflicted with this horrible disease. 😢

Colin Cheesman, thank you for your fine delivery in this Parkinson's Disease talk I'm wondering though sir, how your doing today. I hope your able to still communicate with your granddaughter 🙂💕💕

I’m new to this disease and just experiencing the symptoms for about 6 months. ITS INSIDIUOS! Thank you for the straight truth and frank delivery.

I am a caregiver this has enriched me with more empathy and understanding of this cruel condition.

It's the worst if none of the family understand or know what's happening to you. I am 70 and have been living with it in 5 years. I know it's hell.

Brilliant delivery honest and succinct...my hubby seven years on this journey and this is the most realistic summary of how this horrible disease is...tough on the sufferer and sometimes a lot worse for the carer seeing their partners decline and trying to cope with everything...takes a toll on both their physical and mental health.....

Was diagnosed three years ago, right side shaking, slow walking, severe fatigue, bone pain. Have depression and anxiety. Have nausea and vomiting. Demoralizing

This video is now more than 7 years old ( when I was diagnosed) but still soooo current. I have watched it many, many times and each time I am impressed with how Colin described his issues - which are almost identical to mine.( except that I can no longer speak or write properly). I plan to send this video to my closest family and friends so they know a bit more than before. Thank you Parkinsons UK and thanks to Colin Cheesman also. Hope he is still OK.

So Well said. It brought tears to my eyes.

My very close friend past away October 2019she had Parkinson's for 30year and bless it was not the Parkinson's that she died of thakyou for sharing this video,

I hate PD. My mom has Stage 5...the tremors, the falls, slurred speech and just watching her waste away breaks my heart. I cry almost everyday. I try to talk to her as she can’t really talk because she says she has no energy to speak. If the world scientists developed a vaccine for Covid in less then a year, I bet they have cures for all kinds diseases but big Parma and the government know that “medicine” brings in big money for them so that’s why scientists won’t find a cure for this reason. Big pharma big lie and secret telling the world there’s no cure for PD or anything.

Thank you for this. I am here because my best friend was diagnosed with PD recently and I need to learn more about it so I can be as helpful to her as possible. I need to know what's coming.

Thank you so much for this video. About a year ago I noticed my energy for a 47 year old male was falling compared to others. Than came the mornings. Ugh 😫 I feel like I'm 120 in the mornings. I move like a turtle and everything hurts and my legs are so tight. Now a year later I have trouble swallowing. I have zero energy and no motivation to do anything. I've started to notice internal vibrations at times in my legs and in my jaw. My eyelids have tremors that come and go and now I am starting to notice that my fingers will move by themselves and then stop. Then my foot started to do the same thing. I am extremely fatigued. It is all I can do to get through a day of work. When I get home I am absolutely worn out. I can sleep 12 hours and it feels like I have not had any sleep at all. Now I'm starting to notice that in my dreams whatever I dream I am acting out in the bed. My legs feel like I need to move them really fast to release energy. It's all weird and scary. I don't know if it's PD but in 25 days I'll goto the Mayo Clinic and I pray I get some answers as all test here have showed I should be in good health. I continue to pray for us all.

Much respect for this gent with the courage to share his personal information in order to help others deal with this disease.

Thank you Thank you!!! I'm so grateful for all the support, the research, the sharing. I was only just diagnosed. I'm glad i don't have to take this journey alone. ❤

Thanks for being so open. And True about your feelings.

I've had early onset for 12 years now my balance is 💩 💩 but I don't let it get me down and I push the limit every DAY

Best talk about Parkinson i have heard from the other people.

Thank you for your personal parkinson life story. Not far from mine. Until I've decided to get DBS. Then yes I felt hope. Feeling DBS is feeling hope. Cheers to my Neurosurgeon and Neurologist team to give me back my life before those years of PD.

a wonderful and inspirational message!

Such a courageous man. Thank you so much for your insights

My husband had Parkinson’s and we were very fortunate to have an amazing team of doctors, nurse practitioners at western hospital in Toronto, Ontario, Canada. He had two DBS surgeries that made they last eight years with the disease easier to deal with. This same surgery has now been used to treat a person with alcoholism and some how the patient doesn’t crave alcohol. This has been an amazing breakthrough .

God bless you from Scotland

My Daughter is 45 years old and was just diagnosed with Parkinson's Disease, her whole right side and she is a Nurse. I know she is devasted, so I feel the need to move back to North Carolina from Florida to see if I can help her, it's in the very beginning stages, so I feel like I need to go be with her in the next year, she will get the best care and live a long life.

One of the best talks on Parkinsons I have ever heard!!

Thank u for sharing this. Such a brave man. My husband has signs but has yet to been diagnosed. This helps me understand what he might not tell me because he's a strong man. I hope in the years ahead I can treat him With love and patience FIRST as my husband and SECONDLY to make his challenge easier by standing by his side

What a wonderful words to explain the way it is to live with Parkinson’s. Thank you for sharing this!

Very inspiring for anyone who has a similar issue one step at a time. Thank you.

You hit the nail on the head. Thank you!

hope that we could find the cure sooner rather than later x

I like this guy!:)

Thanks to Colin Cheesman for educating us . I hope that treatment will improve and that the researchers find a solution to alleviate the suffering .

Thank you for speaking of what I feel like and endure daily

My son is like this gentleman and it is heartbreaking.

Thank you for your presentation.

After 20 years of what was dx'd as PD,, it has become a prayer for God to take me home. ❤

What a perfect talk. It was inspiring.

God bless everyone! 🙏❤

Well said sir. You are correct when you say we are all living in hope that a cure comes sooner rather than later- I try very hard to forget I have it but as soon as I want to move away from my laptop I am brought back to reality- wheelchair to Walker to lounge then sit down again- which is wrong I know but it’s such a relief. I’m going deep sea fishing this coming Sunday - I’m basically dreading it if it’s too rough but I gotta go as I promised myself I would catch and release a marlin every year until I was 80. Now coming this next month to 78 I’ve managed it and it’s a challenge I intend to keep going even when I’ve reached 80. This short video was brilliant and one day when I’ve got my voice better 😊 going to try and talk about my day in the same positive way. Here’s to a cure!🎉 Dicky Evans

God bless

What a very inspiring and brave man!Thank you for speaking about this terrible disease.

Thank you

Thanks Colin. You /are inspiration😊

I know I don't have Parkinson but I deal with conversion disorder which I think it's something else I have bad tremors, weekness everywhere, can't walk without a cane, numbness, nerve pain stiffness etc and just getting worse just learning to cope but can't work but I did try but couldn't and went to therapy, try physio couldn't help me, seeing specialist. I feel like my life is disappearing I front of my eyes but keeping strong and I deal with this 24/7 and going on 3 years wish I can find a doc I want real answers

I've just watched this video for the first time. I'm 62, in my 9th year after my diagnosis and feel exactly how Colin describes his life. How is he now?

My stepdad Bill committed suicide on July 30. He had Parkinson's for 21 years. I'm still in shock. He jumped off an overpass onto the road. His obituary says he died peacefully but it was nothing but peaceful. He died hours later of internal bleeding. His pelvis was broken, his leg, wrist, and the list goes on. My mum is never going to be the same. I wish Bill would have looked into MAID. I understand his quality of life was low compared to his earlier years, but I wonder how much of this was caused by the meds. I'm processing. We're all processing. I won't get the answers I'm looking for. I have to remind myself of that. I loved that man so much. He was all good things. This was in Moncton NB.

Just found this what a brilliant speech hit the nail on the head Fantastic I am posting to my friends it just what I want to tell them but can not put it better Thanks I appreciate your speech and thanks 🙏👍

Definitely relatable. 👍 thanks 👍

As someone recently diagnosed with Parkinsonism ( not Parkinsons ) have only to look around streetwise and in supermarkets to see there is a awful lot of elderly people in bad shape. Dont know what they suffer from but suspect there is a lot of underdiagnosis and misdiagnosis of these neurological illnesses.

Hi, I am 70 and was diagnosed two months ago, I have had problems for the last 15-20 years, was told it was essential tremor then benign tremulous parkinsonism, then things just got worse trouble holding things, dropping things when cooking etc, cannot write, cannot swallow properly at times, restless legs, foot tapping, voice is husky, grinding teeth etc etc. My Doctor thinks I'm at stage 3, on Simipex now I just feel that I have been robbed of my ability to work on my car and do other hands on tasks. I live alone in a fairly remote Australian community with no public transport to speak of. Driving is important but I think it is only a matter of time before I lose my licence. I enjoy a beer and people say they don't think I have PD and I just try to laugh it off. Have spilt a few beers as well, I just say "I may spill my beer, but I can still remember where I left it" and laugh. It is a cruel slow disease but thats the way the cookie crumbles sometimes, so we just have to keep on keeping on. I find as stupid as it sounds playing rock/pop music helps me with getting moving, must be the beat. All the best to you all.

I relate so much to everything he is saying.

I'm 31 and diagnosed with it at 28 and what a brilliant orator for one and all of those things I can relate to beyond just the tremor that I have to use "my left arm" to type and bend 1 finger and lots of little things one does to try and seem like "everything's fine".. good stuff and never stop fighting Parkinson's!

I have a friend who has had parkinsons for about 12 years now and I can see he is struggling and I think he is getting dementia but he won't admit there is anything wrong with him. I just don't know what to say

well stated

My father has pd for 13 years also, he is gone very far down that road and he can not do much for himself anymore and can not be left alone, he also has delusions and memory problems. This disease has absolutely robbed him off his life and I hope and pray we get a breakthrough in the near future.

wow! Powerful.

❤a very interesting talk

I have nothing to look forward to except a hell to live in.

Quisiera saber si hay información en español, soy pac con diagnóstico de Parkinson en México y deseo conocer sobre este manejo o incluso ser parte del estudio de prueba. Gracias

Je boodschap is mooi aangekomen in België 👍Well done 👌

God can only help tnks for your video 10 star

I have Parkinson's and what it's like is a living nightmare tremors head in hand balance issues speech issues swallowing issues hallucinations delusions terrible that have Parkinson's have had it for 18 years

Unbelievable brave😊

I have had Parkinson's now for 5 years. I would not wish it on my worse enemy. It is truly a very angry disease. No mercy what so ever.

Yes God help us

I have a multiple of symptoms ,resting tremors,facial tremors and twitching,stiffness every day in walking and in the middle of the night with restless jerking in legs,not able to speak and when I try to speak gibber jabber words come out,lots of pain and sometimes head starts to bounce around feel like every day gets worse but I have seen 3 different Neurologist here in Orange county California who can't diagnose me ,they give me different diagnoses ,I have Parkinson's in my family I don't know if it is hereditary,need a good Doctor to help and go the extra mile and not just guess,I start having symptoms in Oct of 2019

My sister got Parkinson's aged 70, and that was bad enough, the tremors, the falls etc, but she got dementia within 2 years, and now at 75 she is in a nursing home, talking gibberish about everything from how her Mother hasn't been in touch for a month when our Mother died 25 years back, and how she has been for a long walk along the sea front and had a meal out, when in reality she can barely do the soft shoe shuffle, as I call it because of her shuffling stooped gait, to her bathroom, she talks in an extremely quiet voice which is part of the Parkinson's. It's like the volume has been turned down really low on a TV. Now she is doubly incontinent so every time I visit her I end up having to change her, not that the care home aren't helpful, they are, but she will get up to say she needs to wee, so I either stay with her or hover outside bathroom only for her to then be faecally incontinent and it's everywhere, even though she wears what is effectively a nappy. It's a complete nightmare, my formerly clean neat smartly dressed sister who was always out and about early in the day, loved doing things, enjoyed her holidays, travelled to New Zealand etc, is now confined to a unit in a nursing home with other equally confused old souls. Her transition into nursing care came about because her last fall down stairs at home which ended up in a fractured wrist and a bleed on the brain and her elderly husband of nearly 80 couldn't cope anymore. It runs in our family as my maternal Grandmother had exactly the same, my paternal uncle also had it for years but his symptoms were slightly different with constant saliver, couldn't talk properly for years, was confused but didn't really have the full effects of the dementia side to it, and who died in his late 50s. I believe only 15% of cases are genetic though. Everyone is different of course and there are different forms of Parkinson's, so not everyone gets the dementia side of it. But an insidious disease.

Amen!

Oh I wish x

The Prison of Parkinson's - how poignant and aptly put. The despair, the "why me?", having no one to talk to, lest complain to, is par for course. Unless you 're in it already you have no idea about the kind of things that go through a Parkinson's inmate's mind when gathering all the pills to start off the day. Some days you shrug and utter to yourself: " May be I don't need brekky today - I am already so full". Other days you just want to cry. It is time we break the law - by breaking these invisible walls of the Parkinson's Prison! The current administration will only take this seriously when they themselves become Parkinson's inmates. Instead of helping the super rich to become the filthy rich, how about easing the financial burden of the pill swallowers by easing their 401K tax burden?

I have many good days with of my tremer how can be my driving seems a little better maybe I could be more part of the cure.I haven’t been reading about the resuracelike I use to How could my tremor be gone after 18 years. My memory is worsening I think.but my speech is better at times pain level seems better to. How can this be. Walking my legs weaker Not that strong my balance much worse with many things some inprovment tremor almost gone Done

I fallow your instructions I like it

I wonder how the gentleman is doing now?

If you told a Neurologist all that would they believe you? Not bloody Likely.

Please do more research for cure

Please tell me the roll of Botax injection in Parkinson disease.

Every No word is so true it is terrible disease

why have three of the speakers been sat with their backs to Colin ?

Fantastic lecture. Thank you for sharing it.

It's hell!

Drugs drugs drugs... and the essential nutrients that are needed every nervous system to function normally? They ignore.

Oh crap !

Meditate on the pure Holy word of God in the King James Bible. Proverbs 13 verse 12'. Hope deferred maketh the heart sick: but when the desire cometh, it is a tree of life. Amen. GOD BLESS YOU ALL.

What’s it feel like? Torture

I am fighting the battle to i pray for a cure i punched the wall hard hurt my hand nightmares .

Who needs help healing up with this Parkinson's disease make a comment

I have Parkinson's, tell me the treatment.

Nnuu

Parkinson disease🤢🤢 is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms completely💯…My Dad is well again🤗

H

I have parrkins

5