What's New in Parkinson's Treatment?

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Жыл бұрын

What's New in Parkinson's treatment? with Melita Petrossian, MD. A Parkinson's Community Los Angeles (PCLA) "Let's Talk Parkinson's" online live program from October 27, 2022. www.pcla.org.
PCLA's "Let's Talk Parkinson's" events are intended as an informational and educational resource for the Parkinson's community. Always consult with your healthcare team for medical and treatment advice. The views and opinions expressed by presenters and participants do not necessarily reflect those of PCLA. Sponsorship support does not influence PCLA's content perspective or panelist selection.
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Parkinson's Community Los Angeles is a non-profit organization. If you enjoyed this free program, please consider donating to PCLA on our website at pcla.org/donate/.
PCLA's online events are intended as an informational and educational resource for the Parkinson's community. Always consult with your healthcare team for medical and treatment advice. The views and opinions expressed by presenters and participants do not necessarily reflect those of PCLA. Sponsorship support does not influence PCLA's content perspective or panelist selection.
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Пікірлер: 78

@johndutton3679 7 ай бұрын

Let it be known that there is hope for Parkinson's patients who don't respond to PD drugs, as is my case. I had an aggressive form of Parkinson's along with MS and I had zero luck with any of the drug regimens. It was a tough road with constant Tremors and muscle stiffness. I found my answer with focused ultrasound surgery and I consider it to be a stone-cold miracle and a non-invasive one at that. In the time it takes for a long lunch my tremors were totally abolished and the muscle stiffness dissipated by about 80%. My singular goal in life is to make people aware of this as an option because I want my fellow sufferers to experience the joy that I have now. Everyday I smell the roses. Should anyone not believe me I made a documentary which is on KZfaq titled Tremor Documentary 2022. It has won 23 awards thus far. I hope that it gives a degree of Solace to people who will struggle with tremors and are good candidates for this form of therapy. It can't hurt to ask your neurologist!

@RahulVarshney956 Ай бұрын

have you had any balance issues? did you treat both sides? my dad (85) has essential tremors in both arms. cold sleeves work but for a limited duration. he is planning to get HIFUS but we are concerned about the balance issues.

@johndutton3679 Ай бұрын

@@RahulVarshney956 best of luck for your dad. I applaud his courage . No I have not had any balance issues at all. The only thing I have some muscle rigidity on the right side and a bit of a limp. I consider this a small price to pay for getting rid of the Tremors entirely. It's amazing stuff

@Jamesfourr Жыл бұрын

Thanks!! Patient with dr Marvi hope this presented by you tube…great job James fourr.

@RahulVarshney956 Ай бұрын

How can someone sign up for LIFUS? Can we purchase a machine? I tried sending an email to UCLA, no reply. My dad is 85 and willing to fly. We live in San Jose. Don't mind paying out of pocket, though I believe Kaiser would reimburse us as he has been authorized to get HIFUS. Concerns with HIFUS is he might lose balance after.

@odayabdal5721 Жыл бұрын

Hi Guys Does anyone have the link to the Strive App to use on my Apple Watch?

@shakystrong7451 Жыл бұрын

i been fighting parkinsons for 9 yearrs got no help so far will u suport shaky strong

@carmitafreire6862 Жыл бұрын

It´s great! Thank you!

@user-ss3le3kc9x 10 ай бұрын

I am diogonised of pd for the past 7years. I taking livadopa but no progress

@johndutton3679 4 ай бұрын

See if you are a good candidate for Focused Ultrasound Surgery. I had it done and my Tremors were totally abolished in the time it takes for a long lunch!

@donkelly2319 Жыл бұрын

a-dbs available soon? Works about half the time.

@sandraellis Жыл бұрын

Do we have to pay for this Watch ?

@freemandhority1579 Жыл бұрын

😊😊

@freemandhority1579 Жыл бұрын

😊

@geoffreyiles1519 Жыл бұрын

Company Zhitta using an angiogenesis drug FGF-1 in a clinic in US Virgins to treat PD - any comment?

@gustavotec311 Жыл бұрын

Was tested in 8 humans with excellent response in all cases.two patients were record in video the evolución.search this videos in KZfaq

@horajaideep Жыл бұрын

Any plans for coming to India

@carinazavala645 Жыл бұрын

I'm curious to know what modifications can we do to our treatment using SPEAK OUT! for patients who are hard of hearing.

@elainec4725 10 ай бұрын

7😊😊 😊

@elainec4725 10 ай бұрын

⁰⁰

@navin572 Жыл бұрын

I am 46 yrs old now I am diganosied perkisions when I was 22 yrs age now i medication is syndopa 110 tab for every 2 hrs I am unable to walk properly and tremmor is for both hands kindly can u suggest what can I do for improvement .

@cherylginsburg-smith3375 Жыл бұрын

Dbs?

@extrajoker7900 Жыл бұрын

Itne saal tk kese lekr chale ap Parkinson.. can u guide me plz

@cherylginsburg-smith3375 Жыл бұрын

@@extrajoker7900 Deep brain stimulation

@YesPlease1 Жыл бұрын

High dose thiamine (vitamin B1). Get the book 'Parkinson's and the B1 Therapy'

@Celticmist-qz6ve 10 ай бұрын

Focused ultrasound

@maxutkurmangaziyev8328 Жыл бұрын

My mom has a Parkinson's disease. I can't help her she is getting worse every month and levodopa isn't helping so much. Send me some experimental medication if you have it

@donkelly2319 Жыл бұрын

What if you can't exercise cause the levodopa and other treatments don't work anymore? Just give up?

@muzinekhan1051 Жыл бұрын

My father is 76 yrs old and has been diagnosed with parkinson’s disease. Actually he was having stiffness in his left leg and hand tremor in left hand plus having ram sleep disorder accomanied by hallicunations of flies and ants during night. But unfortunately when he got covid 2 yrs ago from dat day his condition worstened .He was hospitalised 3-4 times.Now he cannt walk . He only takes 2 steps with help and then falls.He takes levodopa but no improvement. Also having cognitive disorders. Can u suggest anything please.

@gregoriobuzarang8348 Жыл бұрын

take virgin coconut oil while fasting

@antoniolopez688 Жыл бұрын

I know somebody who was diagnosed with Parkinson's in April of 2022. He was treated with levodopa but was discontinued after he was discharged from the hospital. The disease progressed to stage 5 and he was bedridden when I met him in January of 2023. Somebody gave him vitamin supplements and after a month he can stand up from his bed and can ably walk.

@user-gf6sy1in9e Жыл бұрын

请问能说一下补充的是什么维生素吗？谢谢

@ae394 10 ай бұрын

If he has severe termer I recommend doing Focused ultrasound. My dad did it last year on he's right side

@brentdobson5264 9 ай бұрын

One understands simple vitamin B1 can restore mobility for some !

@ravinair8818 10 ай бұрын

86❤

@horajaideep Жыл бұрын

I am suffering from 2008 I am 51 years

@rschennai6997 Жыл бұрын

I am diagnosed as PD first stage stiffness on left hand and gait issue. Advised medication and exercise.

@GoProGoalieUzi Жыл бұрын

Exercise is huge!! Start immediately! And take sinimet! I was diagnosed in 2018 at 40. Now I’m 45. I have exercised my entire life and play sports. PD sucks ..but what can we do..nothing but pray and exercise. Feel free to check out my channel and subscribe. I have some exercise videos ❤

@roscoro Жыл бұрын

Hi, exercise is the best medicine.

@ryanpeters9142 Жыл бұрын

Meds make it harder to function without them, Swimming ,walking. Then get your diet right. Try stem cell therapy while you're in the early stages, and focused ultra sound. Keep your ass fucking moving!! Trust me when I say this,exercise exercise and more exercise

@hansscholte5472 Жыл бұрын

Some benefit also from infrared-helmets, and/ or hydrogen-inhalation and/ or b1-therapy and/ or keto-diet with intermittent fasting. There is NO silver bullit, but still there are alternatives! Try and find out

@sonjateddy Жыл бұрын

@@hansscholte5472j TV V

@GoProGoalieUzi Жыл бұрын

I was off for 36 hours last week!! Thank god it was on my days off. I was almost going to go to emergency but a pharmacist told me to increase my sinimet by .5 tab.. it worked

@extrajoker7900 Жыл бұрын

Hello I want to know more abt ur pd.. how do u manage ur pd with off period?

@GoProGoalieUzi Жыл бұрын

@@extrajoker7900 hey there, I can’t off times are bad. Really bad. For example, it’s my day off from work. I exercise at 530am, then when I have multiple multiple off times, I pace and shuffle living room to far side of kitchen and keep doing it, until my calves are on fire. Then I lay down and do sit ups. It’s very depressing..but there is nothing I can do, you basically have to deal with it. One can increase sinimet but then you get the involuntary jerky movements…

@rajanchandrasekar6850 Жыл бұрын

@@GoProGoalieUzi t

@asianamericanadvice6016 Жыл бұрын

Why didn't you mention the new Anavex drug Blarcamesine preparing for Phase 3 trials? It seems like it works really well for the 88 people who tried it for the Phase 2 trial. Most of the symptoms of PD were actually IMPROVED!