Kari Nordmann Me too!

Same here

Same

Me as well, praying for Phil and Alex's precious baby girl!

Me too 😭 Praying for all these babies

Nana Finn me too

I have CHD too! Keep up with my journey on Instagram and Facebook at The CHD Life. Insta: The_CHD_Life_

Same here!! I had the Fontan OHS May 1985. ❤️

@@EstrellaNavarrete hello ..I am priya ,my baby is also suffering from congenital heart disease .his BD Glenn process done in 2016. Now he is 5 year old .doctor saysthey will go for fonton process.i m worried about how is quality of life after fonton process ? .plz help me

priya maurya hi Priya! I can’t speak for others, but my quality of life has been great! I’m almost 37, I have a great career in higher education, I’m married, I sing in my church music band, I love swimming in the pool with my family, we enjoy traveling, I did play some sports as a younger teenager in school. My oxygen level is always above 95, and I feel great. Life hasn’t been perfect, but it has been pretty close to it! I can’t complain. I’m blessed. 🙌🏻 I wish you the best and will be praying for your son. 🙏🏻

I also didn't know it and today after watch Phil & Alex finding their daughter have it, you tube recommend this video. I watch their videos for over a year now. When I found I am pregnant, I was praying for them and short after me when they announced they are expecting, I was happy as I was for myself. I hope their baby girl will be fine and they can pass this hard time. Love from Afghanistan

This gives me so much hope, thank you.

our son is 19 now, played sax in highschool band, rebuilt his own truck, Autocrosses my mustang, has a wonderful girlfriend, recently started DJing part time on a local country station(maybe from the months on the vent, but when his voice changed, it REALLY changed- sounds 10 times bigger than him), he did try to get into the AirForce, but was declined due to the heart/lung history- but hes been working steadily since he was 16, saves his money, wants to buy a new dodge charger...so easy to forget those scary days long ago as he went thru his three open hearts, two caths before 3 months old and under 6 pounds... God Bless our Little Miracles!

That is so wonderful to hear. My son has had 2 open heart surgeries by the time he turned 7 months old. Being a mom to a baby with CHD is something else.

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Contact number dena sir

Do you have another child without heart desease. Is there chance to healthy baby after one baby with heart defect

My son is just weeks and he had now same problem please 🙏 dua

How many surgeries had done?

Congratulations.... #heartwarriors. #chdawareness

You surgery is done?

Thank you for this! I am pregnant and they think my baby may have a CHD and I am terrified.

I’m 28 and my baby had CoA and open heart surgery. Your comment made me feel better for his future

Hannah Roberts how’s your daughter doing? ❤️

Hannah Roberts How is she doing ?

Ashley Russell hope is your child doing! I had the Fontan 5/1985 ❤️

How are you now

@@yashashreesawant3590 I am pretty stable. I have my yearly congenital heart clinic visit with my congenital heart team. I am dealing with a few issues. My pediatric cardiologist said we will talk today and see what my echo has to show. I have good days and bad days. I just take it one day at a time. I have improved on medication. My heart function was more stable on the last echo. Hoping to hear that my heart function continues to be stable with my medication. My congenital heart team at the John Hopkins Children’s Center have been amazing and have gone above and beyond the call of duty during the pandemic.

@@PinkHawk191 good may god bless you live long

@@PinkHawk191 hey i hv query my baby has angiography and stenting done bt she do not gaining weight shes total correction is pending what do you think she will gain weight after total correction

@@yashashreesawant3590 I don’t know. I only know my specific condition and how I am doing. I would ask her cardiologist.

You were very lucky and blessed as well. So sorry for ur loss. He was in ur life for a reason. You can do this rise up and raise awareness in his honor. From one chd mom to another

LucciKay I’m sorry for you loss he is in a better place now.:’(

Which type of Heart defect ur son has??vsd or asd??

😭😭😭😭😭

But it is so painful to see your baby in pain n oroblem every time

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How's your baby now?

My son too was born with Hlhs...very rough and hard..but nothing makes u stronger than the love of your baby...make sure u get all the help u need..I had to fight to get nursing help at home..and secure therapy...star kids program is saving his life..and also gave peace to myself..

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My son Gabriel has HLHS he is due on Christmas. I love to hear things like this to give us hope as we are scared .. how is your son doing?❤

I’m so sorry for your loss 😞

Praying for you and your baby 🙏🙏🙏

@sarahjeanjamil thank you she's 3 weeks away from being 5now lol and is doing amazing!

How Is he doing now?

Can baby become normal???

My baby has same problem N i m worried too much

He is 8 month old

Sooo sorry to hear this prayers this family is in my prayers #chdawareness

the first day our son was at Rainbow's NICU, a little girl in the next isolette was failing...youre like 6 feet away, cant help but hear doctors explaining nothing more can be done, they took their little 6 hour old daughter and held her for the first and last time in a little room off to the side...oh how i hated being there, your heart goes out to those folks- nurses and doctors too- for what they are going thru, but soon, the mind races- was our son next? could we deal with it if he was? you just want to scream... think I stood there all night like a zombie, people came and went, but it was just surreal...in the end the thing that to this day has stuck in my mind was- that little girl never got to see a single sunset, yet how many times had I been upset over a bad day at work/car breakdown/the worst relationship failure/etc...all are moot in the grand scheme of things- how did I have any right to the 'poor me' stuff- that little kid never got even one sunset. tell you what, I havent NOT noticed a single sunset since, and someday when my time comes, hope to tell that little girl all about them...we all take so much for granted. My son made it thru his heart ordeal, three open hearts, two caths in under three months, weighing under 6 pounds- hes 19 now, works hard, is a fine young man...forgetting those scary days with the alarms, the 'bag' to get them breathing again, the hopeless fear as they go down to surgery, and so much more is oddly 'easy' sometimes- the rollercoaster ride is one most folks will thankfully never know, but to those that have, the good/bad days often come flooding back- and they need not ever be forgotten...we were there for a reason- trying to remind folks not to take things for granted is sooo hard to express, even if youve been there seeing the successes and failures, its still near impossible to put the thoughts to words... so sorry about your friends daughter - I know how you feel.

My son also same problem. Now he is 3 month old. How is your health condition Sir . At the same time please tell your,s mom and age different.

My daughter just had her AV Canal “repair” by Dr. Van Arsdell here at UCLA and I couldn’t imagine a better team by our side for her care. I will always be an advocate for Mattel Children’s Hospital even though they’re considered a smaller children’s hospital here in SoCal.

Salute to you!

For being so brave

Salute and you've made it.. Hugs and kisses

Salute to your way of living.

Frankie E good luck with your transplant! You’ve got this 💪🏼

Thx it’s in 2 weeks

How are you man?

Hugss and kisses for you Denise...

Catherine Marchand thank you to both you and your husband! I have transposition of the great vessels and I was the youngest to have the Schumacher repair in 1980 in Minnesota. Obviously I am thanking your husband for all of the lives he has saved and helped. I thank you as well for always being there for your husband to get him through those bad days when he may have lost a patient or something didn’t go as planned. It takes a lot to be there for a spouse who is on call 24/7 weekdays, weekends and holidays. You are right, patients see their cardiologists like family, my cardiologist and heart surgeon were invited to my wedding. Unfortunately my cardiologist was working but my surgeon was able to come and he got a standing ovation because without him I would not be here! My first year I spent Easter, Memorial Day, Fourth of July and New Year’s Eve and New Years day in the hospital. Again thank you so both so much for your love, hard work and family-like support to your husbands patients! ❤️

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Congratulations po.. you are a warrior and a survivor...

erin haf same here!

I am sorry for your loss 😢😢😢

How is your son doing now? I’m a 44 year old with a CHD called transposition of the great arteries I hope & pray things are going well ❤🙏🤗

A warrior child and parent..

How old are you now? Same with my son, we only found out his Congenital heart disease just yesterday

My health was horrible before I decided to try the Protocol Of taking Dr salato herbal mixture. I felt there was no hope for my health and I was to try the Protocol thinking it wouldn’t work because I have visited so many hospital but same result. However, I was convinced by my friend to try the herbal medicine because I wanted to get rid of Heart attach. The herbal mixture that was given to me was really quick and easy to take, and since I have been taking it for less than 5 days I have less outbreak. But within 2 week i was fully cured from Heart attack The herbal medicine really work and I will like to share this great herb doctor contact with you all email him drsalato9@gmail.com or WhatsApp +2348073823302

So sorry for your loss 😢😢

😢​@@nikkialgien

My prayers with you.how is your baby doing now?

Hope you and your baby are doing well now

Same in our case. , My baby was having his 2D echo just yesterday and find out that he has Tetralogy of Fallot with severe Infundibulovalvar pulmonic stenosis.

We are advised to have his surgery as soon as possible..

Hi everyone! Thank you so much. My son is now 2 years old and had 2 heart surgeries to correct 4 conditions so far. PDA, CDA, VSD and aortic stenosis. Although the aortic area is still experiencing higher blood flow pressure due to having 2 valves that are slightly curved and a muscle mass near it, he is well and is a very active toddler. :) there may be a need for another surgery in the future if the pressure to the aorta is too much, but that’s not until maybe when he’s a teen or an adult. My channel name changed but I’m the original poster. :) thank you for your prayers

Sending hugs and kisses as well as prayers po

I hv soo many questions

star wars reviews what type of CHD you have. Please share. My pregnant wife was told we will have a baby with heart defects.

What chd do you have ?

my baby had this problem

@@nehalhamza7799 I feel so sad for you.

Sending love , hugs and kisses po.. Praying for her recovery

Sorry for your loss of your brother I couldn't imagine losing my brother 😢😢😢

@@nikkialgien he died years after my birth but i can imagine loosing another brother it would be painful especially o n how close you are

Are you ok now

We are praying for your recovery