If we didn't do these fun things, we won't have anything to think about when we're laid up crashing. Thanks Finn.

Well done video Finn. I have another take about risking a crash other than my mental health. I've been very ill with M.E. for 18 years. I have crashed hundreds and hundreds of times. I recently went on a wine tasting trip with friends. I then crashed hard for 10 days, but I'm just now getting my feet back after almost 20. The sickness of my crash will fade away into the dark hole where all of my past crashes live. I won't think about it as a singular event for long. But, I'll never lose the memory of the great time I had sharing friendship with others. When I take my last breath, it will be the memories of joy, not the memories of suffering that I'll have on my mind. One other thing... "rolling PEM". I've never put a name to it. Now I have one. Thanks for the video. Be well. Oh...subscribed!

Thank you for mentioning the sweats. Your attitude is key. I am really working on this. No fight or flight.

Yours is the first video I have watched after realizing there is a name for this and YES❣️. So much fits and most of all the brain working problems. Thank you.❤️

Your searching for words was just So Relateable!! Thank you for sharing.

Great T-shirt Finn! It's always lovely to see your face 😊 You're absolutely right to pick and choose things to do that make you happy and improve your mental health regardless of the PEM, that will come later. It wouldn't be healthy to literally sit still until the ME magically disappears. This type of video works well I think, not much editing for you and when you couldn't think of 'rolling PEM' you put it on the screen when editing.

Fin I have only just found you online and you are a breath of fresh air I have ME/ CFS and you describe me pardon the pun to a tee . Thank you for sharing your struggles it helps me to cope with this debilitating illness, I now am single after a long marriage and unable to work have gone through the benefits and PIP route successfully eventually big sigh of relief. However like you I also choose my battles and try to have a life of sorts and suffer badly with payback . Thanks Fin just binge watching your blogs x

The funny thing is that you taught me about rolling pem, so you forgetting it felt like "Right, class, are you paying attention?" So I was all"Yes! Yes! I know the word!" XD But I lose words just like you and my memory is bad. I also want to comment on the quality of life bit. I saw this one video by Jessica Kellgren-Fozard here on KZfaq saying some good things about quality of life as a chronically ill person, I'll try and find it. And you were perfectly fine in this video even though you were not feeling your best. Take care and I hope you feel better soon!

Just found you, well YT finally suggested a great channel that I relate to. I've subbed as you are an absolute gem. I have M.E, underactive Thyroid and Fibromylgia.

Having my first rolling PEM. Holy shit this sucks. Feels cruel

I often say to people "some things are worth feeling ill for" . Many people don't grasp that about M.E. anything we do is a cost / effort evaluation x

Thank you so much for posting this! This helped me so much!

I love a good Finn waffle 💙☺️🥰 My question is why doesn’t your backyard have any grass lol 😂

I just found your channel and I'm so excited! You're a gem! This is exactly the content I need right now. It makes me feel far less alone. :)

Brain fog suxs, I have never heard of rolling pem but fully get it. I always explain my me/cfs to ppl who don't understand as everyday I get so much energy $$ somedays it's just pennies. I flare when I have spend all my energy $ and go into debt. In debt (pem) there is no energy, zippo, zero.

I enjoyed the video. As raw as you are about your ME/CFS will help others that may have it.

Thank you for sharing....please don't Edit...record the real deal for all to see and understand....subscribed ❤✌🇨🇦

Hey m'love! I love this style of video: it feels like you're sitting down with us for a chat and it's so sweet & comfortable 😄 I think you're handling all of this with extraordinary grace and good humour, and you are doing a brilliant job of adapting and moving forward with Fred in tow. FWIW I know the whole accessing words issue far too well: I say my words are getting 'stuck' and it frustrates me no end. I get very cross with myself (which of course isn't helpful). I completely agree with your thinking about PEM being 'worth it' in these circumstances and I see it exactly the same way: for our MH and our quality of life it's essential to have these challenging but wonderful experiences, and we plan for the inevitable crash as best we can. Joy is one of the most important things in life and we should never deny ourselves a chance to taste joy x

Well said friend! Makes total sense to me. That trip is a spiritual one for you, and what you got from it this year, is getting you through this tough PEM spike. Love the new videos! Dude the Finnwaffle thing kills me😂❤️ i need a shirt #Finn🧇! I feel like i do that so often, my wife is usually 😐🙄😄 have a great week Finn🏳️‍⚧️🤗

I love this new format so much. It takes me back to the days I found you! My Finn!!! Your symptoms of Fred sound so hard to to manage. You are doing so with that kind and gentle spirit of yours. I am THRILLED you and FurrFurr have this amazing memory to last a lifetime!! So so so wonderful. Thank you for always sharing your world with us. Your book was incredible!!! It triggered me ( not a bad thing, I just related to it that deeply) , thrilled me, endeared me to even more if that is even possible. Love you beautiful boy!!!

It's hard to explain why it's worth the crash sometimes but we can only be careful so long. We still have dreams and goals and we have to enjoy our lives! I love this new style of video I always cut out my foggy moments but you are inspiring me to be more real about how my illnesses affect me when I'm trying to film xx

I hope you're taking advantage of disability benefits + PIP, it's in place for people like yourself x

Here’s a question: How do you deal with boredom and frustration when you’re too fatigued to do anything about it? (If you do get bored and frustrated when you’re that tired, that is) In the beginning of my struggle with exhaustion, brain fog and crashes, I found it easy to rest because it was so clear that I needed it, but now it can sometimes drive me mad with boredom to have to spend another day in bed, and it’s not very restful to be so frustrated. I had acceptance, but it seems I only had accepted it as a passing thing, and now that it seems potentially permanent, the acceptance and peace of mind with it is crumbling.

I love your shirt Finn 😄🐱

You are such a sweetheart Finn you are a awesome person love ya darlin❤❤ xx

Love you dearly! I'm so glad you explain how this affects you. Waffle on! I can not in any way compare what I go through to your degree of symptoms. But I can relate to the "pay back". With RA I have some days I can go "balls to the wall" as they say, but then there is the crash. Major fatigue and joints swollen and feeling on fire. Thank you for your positive attitude and honest talk. My question would be...how is Chris handling these changes? Much love💚

Needed to hear this today. I commented a few videos back that I moved at the same time you did. What I didn't say is that I was also in a car accident in late June, so I was moving while in recovery from whiplash, AND one of my brothers died a year ago this week (and my father 11 months ago), so it's been a rough period for emotional stability as well. Today I chose not to push myself to do something I really thought would help my mental health, but between ongoing whiplash pain, an asthma flareup, and what is probably rolling PEM post-move, I finally decided that the emotional boost would be outweighed by the physical and emotional stress combined. So now I'm sitting alone in my house, sweating and brain-fogged (I have no diagnosis, but my symptoms are so similar to your description of ME/CFS), instead of out having adventures. I think I did the right thing, because I feel awful today and I'm sure I would have been even more miserable out at a renaissance faire, but it helps to hear someone else's perspective that my initial impulse to push myself physically in order to help myself emotionally really IS a good impulse --- to a point. When I crossed that line, I cancelled the trip, but it's still the right way to think, as long as the scales weigh in favor of the long-term gain. I can't give up on having fun, even with everything that's weighing me down. Thanks as always for your insights and positivity, Finn

Thank you fir sharing about FRED. I have found myself so ignorant to this before your videos. It seems difficult and treatment is really still progressing to ho folks with it. I hope things in between dealing with FRED give you some release.

Much love and understanding for you Finn! *subscriber support hugs!* 🤗 I was in my best friends wedding today and I made sure I have the full week off next week to recover and have my crash. It was well worth the crash though, she was beautiful and the wedding was lovely! I'm looking forward to to the time off to recover, but as always, wish I could do something useful in that time as well. We love you too Finn! I guess if I had a question to ask, it would be: Are you and Chris still thinking about getting a pet of any kind? And of course, how is the garden coming along or are you still figuring out where to put your things in your new home?

Great video

Stay away from carbs and hydrate.

Hello my friend. As you know I have CFS/me and I kind of experience it differently than you. I think here's what I want to share and I never hear you say it this way. maybe it is the same but we say it differently. Besides CFS I have degenerative disc disease I have neuropathy you know there's other things going on. So with CFS I feel while I'm doing something I am feeling massively unable to function and do it. It's not like I do something and then I pay for it later, it's that I can't even do it because when I'm doing something I'm so out of it and I feel like a train has run over me that I can't physically do the thing I want to do. now sometimes what happens for me is I'll do a bunch of things because for some reason when I take my Adderall as you know it will give me energy so I'll get some shopping done and a few errands and then when I come home I have a complete meltdown crying screaming I feel so overwhelmed and so burned out and so depleted emotionally and physically. But it doesn't last for weeks or days like you speak about with the post-exertion malaise. I just think it's interesting how we all deal differently with even the same condition. For instance I would have never been able to go to Glastonbury. Just the notion of going there dealing with the crowds and all of the other things going on would have completely wiped me out I could not do it. So you do it knowing that you would have this payback when you got home. But I couldn't do it in the first place I would never be able to do something like that. Anyways I just think it's interesting. I am so glad I have a service dog because without him I really don't know why I'm even living sometimes having CFS and a lot of things that come with it it's like your reduced to existing not living. So I do have thoughts a lot about dying and death and what is the purpose of what I'm going through and then I think of my dog who I love more than anything. Thank you for the waffle never think you're doing or saying things that are just not that important. Everything you say is important everything you say is interesting no matter how you say it. sending you much love and I hope this comment finds you feeling better.

Your symptoms don't sound fun at all 😥❤️ I'm glad you're exploring the ways in which you can experience things that make you happy. I know it's not easy but you are doing a great job in looking after you while this chronic illness is happening. You are looking really good and this video makes me so proud of you. I don't mind at all that we get longer videos when there's no editing 🤩❤️ Sorry to hear you have arm pain 😥 I hope it feels better soon 🫂 And yes, regarding the 'Questions & Answers' video.. I noticed you are almost at 20k subscribers and thought it might be a way of celebrating that milestone. But whatever you decide will be great!

Love the T-shirt The rolling PEM idea explains a lot about how people are able to keep pushing and pushing and then just can’t any more. I can completely understand how sometimes it’s worth the payback to enjoy a one-off event that you love x