Greg, "bloating until not able to breathe" is such a relatable description! 🥴 I'm sorry to hear that your wife had to go through all of that before she was able to get a diagnosis and find some relief. I'm glad she's found something that's working well for her. I'll be sending lots of good wishes her way!

CJ, this comments means the world to me. I hope you have an absolute blast in Hawaii (we're going for the first time next year and I can't wait!) and that you'll continue to share what you're up to. I think it's not just my videos but comments like this that will encourage others to get out and live life, despite the diagnoses and extra planning required. I'm so glad you're here and I'm sending lots of good wishes your way!

Oh goodness, I'm so sorry that my use of "remission" has worried you. As I said in the video, I really don't like that term when it comes to gastroparesis because it does assume a "temporary" recovery and that is not AT ALL a given. Plenty of people recover and stay recovered. This video actually speaks to the worry you're having directly: kzfaq.info/get/bejne/aMVimKSCmbnddJs.html Hope it helps!

Thank you for the link…. Your channel is really my favorite for all my gastroparesis worries and questions! 👍🏻

I'm so glad you've found something helpful in the videos! Thanks for being here 💖

Alicia, I'm so glad you're here! And you're the living, breathing hope right now... you're doing well💖 If you haven't watched this video, I think it would be helpful when it comes to that worry about things worsening again: kzfaq.info/get/bejne/aMVimKSCmbnddJs.html I'll be sending you good wishes!

Hi, Lana. Good to see you over here! I hope something in this feels helpful for you.

Lisa, I'm so glad you've found the info helpful and that's you're doing well. What you said is so important. Knowing that we (and life) are more than any diagnosis or illness AND we are fully capable of dealing with whatever shows up. It changes the whole experience. We'll definitely be talking about disordered eating sometime soon. I think it's a significant issue for a lot of people navigating GP (it was for me for a long time). Looking forward to that conversation!

Hi, Crystal! I've been really reinvigorated lately and there's so much more I want to share here... so stay tuned! (One of those things is to do an updated FODMAPs video, so you might be interested in that when it comes out.) I've noticed the same as what you're describing, that my symptoms are a "signal" of sorts, showing me that I've gotten caught up in something (whether it's stress or eating in a way that doesn't work for me). It's taken me a while to get to a place where I don't feel any blame or guilt when those signals show up (I think we're all always doing the best we can at any given time) but simply to see it as an invitation to make some different choices and take notice of things I've been ruminating on or stressing about. You can't do it wrong! We're all learning all the time. I'm glad you're here!

Thanks so much, Joan! I appreciate you being here.

Marguerite, that's wonderful to hear! So glad you're here and that you're doing well.

أخي كيف التعايش مع خزل المعده اتعبني هل يوجد ادويه او نصائح الى هذا المرض ضيق نفس فضيع

Teresa, I appreciate your kind words 💖 I hope you find the books helpful and empowering! I can't say specifically about the neurostimulator exacerbating nerve pain other than fibromyalgia was one of the things I was diagnosed with many years ago and I didn't have a problem with the device. But that's not a very large sample size! I would certainly discuss it with all of your docs and specialists if it's something you're considering. I actually want to bring on a fellow coach who specializes in chronic pain for a discussion soon... so hopefully that will be helpful to you, as well!!

@@lwwgp Thank you and I’ll definitely do some more research. That certainly sounds a great idea and look forward to the upcoming episodes. Big hugs and stay well xxxx ❤

Hi, Kristin. I'm so sorry you're going through this right now. I've been told the same thing and I know how frustrating and hopeless it can feel. I think the most important thing I can share with you is just how dynamic this condition truly is over time. I've seen it not only in my own experience in the past 18 years but also with hundreds of clients. "Nothing they can do" doesn't mean that you'll be having the same experience you're having now forever. It also doesn't mean there won't be something else to do at some point, either something the doctors will have to offer or something you'll come across that makes sense for you. If you haven't already, definitely check out the video I did with Samantha last year. She's is in a similar situation but her experience has opened up in a really interesting ways. You might hear something helpful in it. In the meantime, I'll be sending you lots of good wishes!

Hi, Sheila. I'm so sorry you're struggling right now. What you say about being run down and having subsequent diagnoses due to the malnutrition is something I experienced, too. I certainly remember how frustrating and overwhelming it felt. I wish I had something more to help eliminate those symptoms for you (if don't have my Quick Start Guide or if you haven't read my books, there might be something in there you'd find helpful). Other than that, I'd just invite you to stick with me in the conversation around the "inside out" approach to living well with GP (there's a playlist of those videos on my channel if you've missed them) because that's truly something that can bring relief from the frustration even there's nothing else to bring to relief from the symptoms. (And I've found sometimes when we're able to alleviate the frustration, etc. there's a physical benefit too.) Sending you lots of good wishes!

Hi, Ryan! Yes, my gastric emptying normalized (I had two normal gastric emptying studies after lots of delayed results over many years) and my symptoms resolved to the point where I was eating pretty much whatever I wanted to eat. I was able to turn off my gastric neurostimulator and discontinue all medication. This lasted for a while (almost two years, I think) and then I had several things happen -- a miscarriage, a stomach flu, and then a new medication for something unrelated -- that combined to put me pretty much back to where I started way back when I was diagnosed symptom-wise. Fortunately, between then and now, my experience has changed dramatically and I'm not afraid of having gastroparesis anymore. So it feels very different from a "coping" standpoint. I do the things that I know help me feel better and other than that, I don't think or worry much about it all. That's the stuff I'm really trying to share here because it's helpful no matter where you are with symptom management, etc. So all of that to say, yes, my symptoms did resolve and my emptying did normalize for a period of time. That's not uncommon. People get better -- sometimes permanently, sometimes intermittently -- but the idea that once you're diagnosed, you'll have this forever is a misconception that's common out there. And whether or not the condition resolves completely, there's certainly a lot we can do to feel better and it's totally possible to live WELL either way. Hope that helps!

@@lwwgp it does. Thank you SO much! It gives me hope that there is a light at the end of the tunnel! I was diagnosed with idiopathic gastroparesis after having COVID 19 back in January. It got progressively worse until I finally knew something was wrong and went to the doctor about it.

@@ryanpate4 Oh there is so much hope to be had! Truly. I know most of what you read on the internet having to do with gastroparesis is quite depressing but I always remind people that those who have gotten better or are simply living their lives with gastroparesis and doing fine aren't the ones posting in Facebook groups and creating instagram accounts about the condition. So we tend to see mostly the people who are struggling and it makes it looks like *everyone* is struggling in that same way. I think sometimes that itself creates negative effects and it's another part of the reason I keep getting out here to hopefully spread a little light and hope! I don't know much about post-COVID GP at this point but if it's similar to other post-viral GP cases, I would think the prognosis for resolution is good. Most post-viral cases resolve within a few months to a couple years. I'll be sending you good wishes!

@@lwwgp thank you!

So true, Kara. Looking forward to bringing on some other coaches to talk through these things. I've worked with some clients around eating issues and it's funny in that the "inside out" stuff we've been talking about in regards to gastroparesis applies to all of that, too. Will be some great conversations coming!

Hi, Naveed. I'm sorry to hear that you're struggling right now. This article might be helpful with the multiple dietary restrictions: livingwithgastroparesis.com/faq-how-do-i-manage-multiple-dietary-requirements/

@@lwwgp thank you. I've bought both your books.

Hi, Naveed. H. pylori can delay gastric emptying but as far as I know the mechanism isn't well understood. It's definitely something to discuss and with your doctors on!

@@lwwgp my consultant says no. My issues started in 2017 with severe stomach pain during a trip to Pakistan. A year later, I was diagnosed with H. Pylori. In 2018, I started to get very full very quickly thinking it was gastritis. Over time, my symptoms have worsened. Tightness in the pylorus region. Gi map has showed h. Pylori has returned. Number is low but present. I now have SIBO, reactive gastropathy, severe bloating, constipation. I still believe it has been the cause and damage my vagus nerve.