When Zach and Leslie Wieber started their family, they were unaware of Fragile X syndrome. Then in 2012, they received the news that changed their lives. Their sons, now ages 13, 11, and almost 10, all live with Fragile X syndrome. Like many parents, the Wiebers felt relief and fear when their children were diagnosed. That fear motivated them to connect with the Fragile X community and with Dr. Craig Erickson at Cincinnati Children’s Hospital.
When FRAXA Research Foundation launched its very first illumination - Niagara Falls in 2018 - the Wiebers made a quick decision to see the spectacle in person. They gained new friends and new hope for the future.
Zach and Leslie never miss an opportunity to give back to the community or to help others learn more about Fragile X syndrome.
FRAXA’s mission is to find effective treatments and ultimately a cure for Fragile X syndrome. We directly fund research grants and fellowships at top universities around the world. We partner with biomedical and pharmaceutical companies, large and small, to bridge the gap between research discoveries and actual treatments.
Treatments for Fragile X are likely to help people affected by autism, Alzheimer’s, and other brain disorders.
To learn more about FRAXA's Fragile X syndrome research, to get involved with Fragile X awareness and events or to donate to FRAXA research, visit www.fraxa.org
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