I totally agree with you. They are both so amazing. Also, all the laughter and teaching from her Nana. Great Dr. Feldman as well. She is being taught so very well. What a great ROLE MODEL.

There is nothing more precious than this little girl!❤

You & Ana were made for each other, the love you have for each other.

its the condition she has- Arthrogryposis Multiplex Congenita

AMC is not a progressive condition. It is in fact regressive, meaning as they get older, their limbs regress and go back to how they were when they were born. AMCers are at their worst (as far as limbs being fixed/contractures) at birth. I think part of the confusion is that you're looking at it from an incorrect perspective. It's not about how the limbs look or how an AMCer presents/appears. Nothing about AMC is cosmetic, at least we don't concern ourselves with cosmetic issues. AMCers will never "look" the same as others. In clips you aren't seeing the limbs as they are due to clothing covering them or positioning. It also looks very different when the body is much smaller. However, what you did not notice (and it totally makes sense because you're not familiar with AMC) is that under the clothing and under the skin, she had severe contractures on all of her joints. Her legs were literally stuck in that position. Bent at the knees, feet turned sideways. Her arms were stuck straight, unable to bend at the elbows, unable to grab anything with her fingers/hands. At 10mo old she hadn't had a single surgery yet and had very little range of motion throughout her body. So while to someone who isn't familiar with AMC she may have appeared to look similar to other 10mo olds, structurally and internally her body did not work. She was stuck. Ana and I spent the next 5-6 years of her life going through major surgeries, doing hundreds of treatments, countless hours of therapy, to help her gain movement in her limbs. At 10mo old she could not even consider standing or learning to walk. She was not able to straighten her legs enough to walk until after her leg surgery at age 3. She didn't walk until she was three and a half. So while you may see her in shorts and t-shirts today and notice her clubbed wrists more and notice her knees more pronounced (because AMCers will always have super skinny limbs due to lack of muscle), her function and abilities are 1000x better than they were or could have been with her body how it was at 10mo old and her progress has just continued to grow and get better and better over time. She's built what little bit of strength she will ever be able to and she can do so much with her arms and legs that she never could. Now again, AMC IS a regressive condition so...if she stops moving, stops getting treatments periodically, stops wearing braces, etc. she will totally regress as she gets older. Not that it's getting "worse" but it's trying to return to what it was so she would/could lose ability/mobility over time. Contractures can reform, tendons tighten back up, etc. Anyway, hope that helps and makes sense! Always happy to answer AMC questions. Thanks! :-)

@@AMCPrincessAna thank you so much for the great explanation. I am just trying to learn more about AMC. So does all this mean that Ana will have to have treatments, therapies, braces etc. for her entire life because if she stops all of that she will regress? In other words will there ever be a time where she is through with treatments and surgeries and is cured or is it something that will continue her whole life? You are doing a great job with Ana and meeting all of her needs.

Nana has 2 adult children.

Although I have been following your amazing story for many years, I thoroughly enjoyed the replays. The three of you are such a beautiful family. It's amazing to see how Ana has grown and matured in just a few short years.