Am going through the experience of glioblastoma in the left lobe in my husband. The symptoms you shared of your dad are similar to my husband. Language ability is diminishing. The questions you pose are my questions. Hard to look at the overall picture. Thank you for your story.

Sad to read all these situations...my father who was a strong 74years old man , since June is no more himself. Surgery went "well", chemo+radio is on going with terrible effects...I still have hope but this disease is monstrous, he is disappearing day by day

I really hope they get far and find the cure for this. Dr Seyfried is very successful in this endeavor and hoping to see the impact of his work The Gospel! Jesus Christ loves you and died, rose from the dead, and ascended to heaven to pay for your sin! Repent and turn to Him and you will walk in light and be saved. Read the book of John and Luke to see God's love for you!

Thank you for sharing your story. As an oncology nurse it will help me help families better ❤️

Adhd and Dyslexia etc ruin my attempts to communicate in writing. Scrivener was almost a life changing as zotero. I would give zotero a kidney if it needed one. Scrivener 3 was so promising but as awidows peasant version 3 made things more complicated, it still doesn't work with zotero, the nice simple key presses became finger river dance. Really disappointed with it wish i had still got scrivener 1 still installed.

My dad died from this a week ago. He lived a little over two years. But the last year is quality of life was terrible

My father was diagnosed with a glioblastoma 10 months ago. While going through treatment i have tried to have conversations with him about end of life care so i can avoid some of these pitfalls. I have children and animals, so ultimately i think it would be best for him to move in with me. His home is simply not equipped for me to be a full-time care giver and i would like to have time to prepare my home for the day he moves in. But like your dad, he is incredible stubborn and thinks he's always right.

If you live in a state with death with dignity … and are diagnosed or know of loved one that is …. Please seriously consider this option. This should be one of the most important things to be discussed with your doctor immediately and if they seems uncomfortable with it. Seek help from any death with dignity organization you can find. They help with doctors. Time is not on your side.

Check out sosoak soaking chair. Its chair thats connected to shower and is way better than bath tub or toilet hats. Its like a chair that fills with water just sit and relax without the trouble of filling a toilet hat or a bathtub. Control temp too and has spill drain plug to drain into tub or shower.

AJ - were you your father’s only caregiver?

AJ - did your father regret his decision to undergo his second brain surgery? You said the surgeon estimated it would give him at most 2-3 more months.

Would you recommend Scrivener for writing a screenplay for a beginner? I’m torn between this and Final Draft. I just don’t know if Final Draft has the ability to write freely and create character profiles outside of the screenplay itself.

I can't imagine writing without Scrivener now! I don't write directly in it, but it's a lifesaver for organizing and safeguarding my work. Before Scrivener, I lost entire chapters due to Google Docs and its useless versioning system. Scrivener's organization, automatic saves, backups, and compile features are invaluable. I love being able to compare scene parts side-by-side to fine-tune transitions.

My 53 year old Dad is Gbm4 Patient . Is anyone full recover from this cancer . My Father Completed Surgery Then Completed Chemo And Radiation . Now taking Temoside treatment for next 6month we complete one cycle now 5 remaining. Is any way to defeat gbm4 completely.🙏🙏

little trick, just activate flight mode on your Ipad. Thank me later…

Thank you for this frank discussion of your experience. I think there is much you say about the trauma of it, the questions you have, etc., that many people can relate to. I know I can. Hope you are enjoying getting back to your writing and other projects.

You're a good son and you have done everything you could for your dad. Tells me he raised you right. 😊

Two years and two weeks ago my father passed away from Gilobastoma. Seeing him slowly lose himself until became a husk of his former self was extremely difficult, and truth be told I still haven't been able to fully revover from that trauma. I still get nightmares over it and when I do I usually cannot go back to sleep afterwards as I would tremble and cry afterwards Unfortunately for us, my father would slip and fall and break his hip during one of those bathroom trips, which worsened his condition as he had to go to get surgery to reduce his pain His passing was also quite painful sadly, he had a death rattle an wasn't sleeping for his final 2 days alive The last meaningful interaction with him was 3 days before his passing, I was the only one in his room, he asked for water and I got the cup near his mouth, he then took it with his good hand and drank out of it by himself, the last "normal" thing he did in life. After the sip and after he handed me the glass, he looked at me and took my face in his hand, he didn't say anything, but had tears in his eyes while looking at me, he wanted to tell me something but him trying to speak was causing him a lot of strain, I just took his hand in mine and said "it's ok, I understand" This was the last moment alone I had with him

I'm glad you've got a lot of views.

dang this is scary with someone with a similar cancer.

No such thing as no existence.

I am 4 days into 3 grade 4 hemorrhoid removals.. I have slept a whole 5 hours in 4 days.. the pain is so unbearable I would honestly rather not be here anymore.. not that I would ever do anything stupid. Had to quit taking pain meds 2 days ago as I was so constipated it was making my insides throb.. I would never ever ever do this again. Its getting really annoying have to swet it the hot bath for 21 of the 24 hours a day. I have lost 9 pounds on 4 days

My friends husband just passed on Friday night from this horrible disease and her journey as his caregiver was pretty much a carbon copy of your experience, I just wanted to commend you for the love and cate you have shown to your father.

Bless you for caring for your father during his illness 🩷

Good day, I can strongly feel the pain you had to go through, and I believe that your story can make many other people see the difficulties of suffering from hemorrhoids. I am a nuclear medicine student, and I am currently doing research on hemorrhoids for my university, I would really appreciate working with you and having your testimony present in my research. Please 🙏🙏 I would extremely appreciate it if you respond.

we are 3 weeks in from my husband (46) having an eye test due to headaches, being rushed to hospital as he'd lost half his vision, without even noticing it. He had surgery within days and he's now very weak, tired, can't do much for himself, though more than I expected, and a little confused now and then. He was a senior nurse working full time in ITU 4 weeks ago, just with headaches. He is waiting to start chemo and radiation therapies, but I volunteer at a hospice, so I know it's not all about death. So I made sure to get him under their care as soon as possible. So that if he does need more symptom management than we can cope with at home or if the end is very close, I will be able to make one phone call and get him in to hospice, where people I completely trust will be caring for him and me. It's like a second home there for me already. We are both nurses, so we know what's coming, but dealing with it is a whole different ball game. we are renewing our marriage vows in 2 weeks, I just hope it wont exhaust him too much and he'll be able to even make it there. Thank you for this video, it made me feel so much less alone and helped a lot. Thank you ❤

Thank you for this. It's easy to feel alone in such a horrible situation, but seeing videos like these are a reminder that its something many people go through.

Goof luck to you.

Here in Canada we have medically assisted dying and if I ever get glioblastoma I would skip all medical intervention and avoid all the discomfort and g.

What a wonderful way of honoring your dad

Horrible Horrible disease. I wouldn't wish this on anyone

It's been 32 years since my dad died from brain cancer. He fought for 5 years before the inevitable end. I was about your age when he passed and he was way too young. I was in the military but managed to get out a precious few weeks before he died. It gets better but there is definitely a before and after version of normal or OK.

My dad was given 6 months to live in April of 2018 due to GMF. He started immunotherapy immediately along with radiation. He’s still here 6 years later with no signs of disease! Have hope because miracles are real!

We discovered my mom had a brain tumor last week. She’s 77. Thought it was a stroke. Very subtle signs until she suddenly couldn’t walk and slept all day. She has decided to refuse treatment. Her quality of life would be bed ridden. I’m going to miss her but in the morning I meet with the hospice team.

You had to do the surgery twice?! Holy lord.I had a Hemorrhoidectomy just over five weeks ago. Thankfully (especially after hearing your case) I was able to take pain medication. The one for inflammation was magic. I could take that and within 10 minutes actually feel comfortable lying down. Sadly, I could only take one pill every six hours and the effect only lasted for two hours. I had to plan my day around those two hour windows and you better believe I saved the last for sleeping. In terms of bowel movements, yeah. That was the scarriest part of the whole ordeal. Thankfully I didn't get the urge to go until day 3 of my recovery, but that's when the hardship began. I was so swollen from the surgery that I couldn't relieve myself for 10 whole days and every day after getting the urge to go got more and more uncomfortable. Thankfully my regular doctor knew what to say and told me what I was going through wasn't pain, but discomfort. What I needed to do was find the best place to relax and do something to get it off my mind. This surprisingly worked. Since I wasn't in any pain, I just calmed down and found things to do to keep me distracted. By day 10 when it started to turn into pain, the swelling had died down enough that I was able to finally pass on my own. It was painful and scary, but the relief afterwards was so calming that I felt like I had finally gotten through the worst of it. And sure enough, I did. Every day it got better from there. Here are my additional suggestions to add to AJWriting's suggestions for those who haven't gone through this surgery yet but plan to. 1. Prepare for massive bleeding. Incisions are made both inside and outside the rectum and it will continue bleeding for a long time. If you've got a bed, wear a thick absorption diaper so you don't stain it. If you're just going for a stroll, wear a pad. And don't worry about what genders these pads are made for. If it looks comfortable, get it! And do whatever you can to clean the area at least three times a day. When blood accumulates in that area, it will reek in no time. 2. Use an Ice bags that you can put ice inside instead of a pre-loaded ice bag (Either with liquid or gel). Bags you can refill with ice last longer and are quicker to refill. I recommend using crunched ice or small cubed ice since this will help the bag shape around the sensitive area. Use a thinner absorption pad or medical gause so the cold can get through.

you're an amazing Son!

amazing video!

Can you provide an update? Do you still use it?

Bro this shit is brutal

I want to thank you for sharing this painful and heartfelt story. We found this when searching for information on glioblastoma. While we have since lost our loved one, this video help provide a ton of perspective and set meaningful expectations. We had very little info from the doctors on what to expect and while we were going through the worst of it, we repeatedly referenced your video among each other to maintain reality and perspective. Your story has helped more than you know.

Thank you for documenting and sharing AJ. I, too, lost my father to this awful disease just a few weeks ago. Your video really helped our family to understand what to expect as the disease progressed and what signs to look for as it continued to impact his brain. As a previous commenter stated, one has to 'live' this to 'understand' it, 100% spot on. Nothing can prepare you for watching someone go through Glioblastoma.

I applaud you for speaking out! Yes, I thought bc I can deal with pain I also would be ok. Now at week 6 I can see the end of the tunnel. But it has been a tough recovery

My friend has stage 4 glioblastoma. He's doing horribly

How do they tell what grade it is if they can’t biopsy it due to the location on his brain stem?

My husband was diagnosed one week ago with inoperable pons tumor in the brain stem.

WHYIS THIS INSIDIOUS CANCER NOW SO PREVALENT?????😢😢😢

I've written more than a hundred novels (70+ under my own name) and dozens of nonfiction books in Scrivener, and I can honestly say I've never found a writing tool that was its equal. That said... I probably only use 1% of the software, and there are definitely things that bug me about it. If I could pick out the bits that I use and cut the software down to just that, I'd do it.

My Mom was just Diagnosed with glioblastoma and two weeks after finding the tumor her right side is paralyzed

First of all, thank you for sharing your experience and it sounds scary familiar with our situation. My dad is 62 and has been diagnosed with Glioblastoma a week ago. Last couple of years he already had cluster headaches from time to time, but the other symptoms begun suddenly after traveling with the plane. (Sometimes it make me think the pressure while flying triggered the tumor he already had, or at least made the symptoms pop). He became more quiet, talking less.. struggling over words and feeling weaker by the day on his right side. The tumor is located at the leftfront of his brain. Like you've described your dad, mine is also very stubborn/determined. Always did everything by himself.. a real handyman.. very active and definitely a talker/chatter. Now not able to express himself or very hard, gives emotiomal moments (not only for him). He is a good man, good heart.. had a touch in a lot of peoples lives. Always there for everyone, especially his family. Last thing I would want, is him to suffer.. so you can imagine, your story really hit me. Thank you again for sharing your story.

$$$ is the bottom line