The music is too distracting and utterly unnecessary.

My daughter has lupus for 10yrs now She struggles some days and some days she's ok but not a nice illness Strongs to you as well

The headbanging symptom - does it feel like suddenly there is too much gravity on your brain? Like you are on a roller coaster kinda but times 10. This is one I have never connected to whatever I have going on but experience it from time to time. Almost drops me sometimes.

Your hydroxychloroquine might need to be adjusted. Glad you went from 200 up to 400mg daily as that is almost a minimal dose but you do want to stay below 10mg/kg/d. Eat “low on the food processing, emphasizing plant based. This seems to be the commonality of the various “anti-inflammatory diets.”

Bless ur ❤, I am right there w/u! I just had reconstruction ankle surgery on both ankles from Lupus attacking them. I have had Saphnelo added to my regime. I can totally relate. ((Soft hugs))

The severe fatigue makes you depressed

I am healing for systemic lupus Is multi fact peace, less stress, gut, healing from inside out..

You give off Justin Gaethje vibes

Excellent video thank you so much, I have been going through a lot of the same symptoms that you mention. Chronic pain, headches, sweating usally a cold sweat. tingling in hands and feet cold feet and hands. nausea. Very tired even when I wake up. My lymph nodes swelling. throughout the body. Elevated WBC I went to doctor and have more tests coming up but they are thinking maybe Luakemia or lupus. Been dealing with for years. My aunt has lupus so maybe hereditary? Thanks again this video helps me understand.more and sounds like very possible I may have lupus.

Some tips that may help battle with Lupus. Autoimmune has more to do with emotional experiences of life…. We need to analyze our early life….and think how we felt about self during any traumatic experiences and what kind of beliefs we have created about ourselves after that experience. We need to pay attention to your subconscious thoughts (self talk)and analyze if there are any self rejecting thoughts (I’m not good enough)or beliefs. Nature of autoimmune is self destruction (body’s immune attacking body it self) so root cause can be associated with the self rejection thoughts and beliefs. How we feel has direct effect on our endocrine system and hormonal secretions. Different lower quality emotions(anger, hatred , fear , jealousy, sadness etc.)creates different illnesses in our body. While high quality emotions ( bliss, peace, unconditional love, compassion, acceptance, forgiveness etc.)has healing effects on our body. Painful thoughts creates pain in body. “Staying happy no matter what” is the key to good health. At physical level….gut flora, leaky gut, wrong food habits and wrong sleeping patterns triggers flair ups. To manage gut flora you can take probiotics or cultured yogurt. I believe leaky gut would be the main reason at physical level. Toxic waste particles making escape through gut lining membrane in to the blood vessels. These particles travel through blood and accumulate at various parts of body…which than triggers immune system and creates inflammation in that part of the body.. Various methods can be applied to minimize toxins reaching to the blood. 1)Healthy diet and eating habits so digestive track is not acidic all the time. Excessive amount of gas (vata)and acid (pitta)causes inflammation. Including more raw vegetables with meal can help. Fenugreek seeds can be used to control Vata. Fennel seeds or few ajwain seeds can be chewed after meals to control pitta. Chewing Dhanadal (coriander seeds)also produce lots of saliva which is alkaline ( controls pitta). Dudhi ( bottle garud) juice also good for controlling pitta. Drinking termeric with black pepper or with a drink containing little bit of fat ( milk or coconut milk)can also work as anti inflammatory. 2)Intermediate fasting…good amount of time gap between meals so body has time for self cleaning. 3)Including some herbs in daily routine to properly flush out toxic wastes from the body ( apple cider vinegar, Amla, trifala, tulsi leaves, green tea , some detox teas, ginger tea, psyllium husk etc) 4)Strengthening the intestine lining ….Desi cow Ghee is believed to do that job. Also practice of Kapalbharti or other abdominal exercises may help too. 5)Managing the stress…because stress can also imbalance certain glandular functions and increase toxins. Mind has to be at peace to help body function properly. Mind can not relax when there are Inner conflicts or confusions going on. Anulom Vilom (alternate nostril breathing)is best stress relieving exercise. 6)When there is pain and inflammation, affected area can be massaged with warm sesame oil or any other herb infused massage oils. Mahavishgarbha oil mixed with castor oil would work well. Many people use castor oil packs to manage inflammation of inner organs. Another remedy to draw out toxins from body is soaking entire body in warm epsom salt water. 7)Sleep well…not enough sleep for several days can trigger symptoms. 8)Drink good amount of warm water in morning empty stomach. And stay well hydrated rest of the day. 9)vitamin D supplements must be taken. Also Knowledge of five layers of our body is very important. When physical body is ill, we can work on other four bodies(energy body, emotion body , wisdom body and bliss body ) to heal physical body. Certain yogic breathing such as bhastrika pranayam or kapalbharati prabayam can be practiced to increase life force energy in our bodies.

The Mediterranean diet is one of the healthiest diets you could live by. I have Hashimoto’s and Lyme disease. Or you could look into the AIP diet. That is supposed to be good to except it’s really restrictive.

Please help . I have had the SAME thing 😢. The rheumatologists call it migration arthritis have done absolutely nothing! What tests will show I have it ? I need to get the proper treatment started but they still haven't properly diagnosed me. What do I do? Thank you. I'm suffering over here

When you have a flare, have you gotten your vitamin D level checked? I have lupus as well, and if my vitamin D level is low, I can become depressed and I can be more prone to contracting a bug that can trigger a lupus flare. That's what I have noticed

i’ve been off prescriptions for over a year now. Is there a link between high anti stones and long Covid?

I am 63 years old I found out I had lupus in my early thirties it really took me down I couldn't even get into a car I would have to rush home and vomit all day couldn't even get out of bed then it was a time that when I was trying to raise my grandchildren the things that help me there cuz I couldn't sleep worried about them the whole time and I kept getting worse and worse so I had to let my grandkids be adopted out so that wasn't all of it it just got worse and worser I tried to work I'd be sick all day long I have to force myself to work because my joints I still kept making myself work but as I got older and older my eyesight got worse than me and my brother has got a i bread is called blindness without darkness can't see small print everything looks fuzzy sometimes yes I get these bad headaches it's like somebody's stabbing something in my brain I've had two double hernia operations I've done had one of my sciatica nerve or out of living in an upstairs apartment couldn't even go nowhere couldn't even sit on the toilet to use the bathroom it was so bad but the doctors would not help they tried to give me pain pills then they try to say that I didn't need them then they were supposed to give me a surgery because it tore something in my back Bear valley I kept getting myself going I didn't want none of the pain medicine because all it does is mask it but I hate to tell you there's so many different kinds a lupus a lot of it they don't understand they don't know about but there's different kinds of lupus I don't have the butterfly lupus there's more than others I have a friend she can't go outside of all it done made tumors go inside her body and they cannot take them out because there's just too many of them I used to not be able to be out the Sun at all but I try to get out the Sun a little bit because I do need the vitamins from it that's best for your bones but honey I got fibromyalgia and the lupus on top of it what we all go through from lupus but they call mine the cousin of Lupus they said if it was regular lupus and not the cousin of Lupus I would probably not be here you know what I'm saying I mean it's just bad for everyone but yes honey it will take everything in your body all your tissue your whole body is a different kinds of tissues so yes it can take any of it and then medicines I want to go there because the Sony medicines I can't take if I'm sick the only thing I can take is the Alka-Seltzer cold or a phenergan for my stomach I have to take that every night a half an hour Alka-Seltzer tablet and then again before I go to bed and then I wake up not even getting no sleep I toss and turn all night my whole body hurts so when my back was real bad with the sciatica therapy and it was just nothing but I couldn't even do it the the lady said cuz you are in too much pain that didn't help but I look up online and there's this lady her name is Barbara O'Neill she's in with all-natural stepssome of the stuff out there we can use as medicine and that's all kinds of herbs and spices and different kind of vegetables fruits that you can take and do in the seeds all kinds of seeds different kinds of plants that can help you and if you get on there on Facebook and look up for Barbara O'Neill and she is really good because she's all with natural stuff not the stuff that you get from pharmacy it's got all kinds of stuff in it to hurt you it will make your lupus work and that's something you don't want to go through believe me I can't take anxiety medicines I can't take a lot of medicine because I went through that and had to end up getting rushed to the hospital so no I don't take no medicine for my lupus like I said 63 years old be 64 in November so honey I've been through so much of the stuff that you're talking about but you got to keep making yourself go and push at it look into all the natural stuff look up Barbara O'Neill you can't get up there and ask questions but she is about all natural stuff so I would do that it's better than the crap they tried to keep giving us so I think I'm going to try a lot of that I've lost all of my hair just about I got so many bald thin spots my hair breaks and just falls like I said in the mornings and like you said I don't have no energy I got to make myself get up and push myself through each day people does not realize there's times I'm okay some days are okay I get through those other days it gets to so bad but there's nothing we can do about it but they keep putting us through stuff and they don't really even know about lupus that much but I know there's a lot of us go through a lot of similar things and some of us go through a lot of different things I need to wear my little my blood level goes up and down I can't get on swings I can't go on right so much things I can't do because I have blackouts I get so they got me on a blood thinners and I'm anemic Anna got thyroid problems and yes it can make your throat sore and make it takes all your tissue and your body and you don't know where it's going to hit next but the thing is you got to watch about medicine to take because the side effects of got on it you got to watch cuz lupus will pick up the side effects and you never will get rid of it I'm telling youI'm telling you don't take a bunch of medicine look at all the side effects because I've got things like that goes on from side effects so I just quit taking it they had me on so much medicine I went cold turkey and got off of all of it the only thing I take now is my blood thinners and my thighs were in medicine and then I do take my dinner can now I'm a pre-diabetic as well lupus will attack everything and anything that goes on in your body you just got to look for things and try to find solutions on your own like I'm trying to tell people that if you don't look for something natural it it's going to get worse so that's what I do I don't take none of the medicines for no lupus because I have Lupus so I still don't take nothing for it I just tried to find a way to do it on my own do stretches for your muscles yes it hurts got to keep working at it and try to find natural ways medicine waste in herbs and spices and even different kind of seeds and some of our fruits that you can smash up get get up there and look for Barbara O'Neill she will tell you different kind of things that will help you naturally what God gave us in this world believe it or not there's always medicine that will cure a lot of things and help us through it that would make our bodies stronger naturally not what pharmaceutical giving us all they're doing is poisonous I don't take none of that I just do what I got to do naturally I'm going to try a lot of randomize that Barbara O'Neill has and see if help me in a lot of ways with my joints and stuff like that I'm an old woman that ain't going to give up I'm going to keep pushing myself through it and pray to God prayers helped you as well pray to God because it prayers has got a lot of power and it is a lot of miracles with it but keep pushing yourself through it we all are going through all kinds of things so God bless you

Thanks so much for the video... I was diagnosed with Systemic Lupus two weeks ago after routine Labwork came back with my Platelets in critical level (had zero symptoms) I am now on a 6 week high steroid treatment and will start taking Plaquenil today. I am with you and absolutely hate the steroids and is near unbearable at times.... Stepped down weekly from 100mg 60mg and am starting to get a little bit of sleep but my stress from this drug is through the roof and related with your theory that it is counterproductive to keeping myself calm. UGH I know it is necessary though and hope I will be taken off in 4 more weeks after my step down process is over.... Anyway, I am a bit nervous about starting the Plaquenil today so thought I'd do KZfaq research and came across your channel. Also, interesting fact: 4 members of my family now have Lupus. My Mother (who started out with Discord in 1973 and has since crossed over to Systemic at 81 yrs old) Her Brother who has since passed always had systemic Lupus and was diagnosed back in the early 1970's with a life diagnosis of 10 yrs max - You are correct in saying it was a death sentence back then. Now, the second generation finds my brother with Discord Lupus and myself with the Systemic Lupus. I would like to debate those that say their is no genetic link to Lupus 😐

Thank you for sharing

This was good to find take care , I have lupus also and my kids never new me when i WAS having seizues and weakness but all of a sudden within a year i went into remission for 24 years so it can happen. 2 years ago i got phenmonia related to my lungs and it started again and now im on meds again .Deal with a bit of anxiety but have managed fine. I will be 67 in 3 months and am lookin forward to many more years.

Thanks a lot for your video...I am from Cyprus...I diagnosed with lupus ...before 1 month ...at first i thought is denontydis one year ago.... I wandering if with diet we feel petter...❤❤ thank again...

I have skin lupus and systemic. Was treated with Benlysta IV treatment with lupus specialist. I have had it for years and the deadliest fatigue has left me to stay indoors to sleep all the time. Effected kidneys and lungs. Then crossed over to Mixed Connective Tissue Disorder and Sjogrens disease. I am constantly fatigued and my quality of life is not good. Did they give you Plaquenil and steroids?

I take Plauqunil ❤

Are you able to work full time still? I'm finding it tough.

I have Lupus Nephritis and was diagnosed in 2014. I've had 2 serious flares. I was in remission for 6 years before my last flare. I've never been prescribed HC but Myfortic(Mychophenolate).

Thank you for this video! My dad has lupus and recently the Dr thinks I may too. I get my tests results in a few weeks. I’ve been in chronic pain for 12 years and lupus explains why even after back surgery it’s never stopped hurting.

Your story really resonates with me. Thank you for sharing.

So this may be a dumb question. So far I was investigated for MS. But si far not enough typical lesions. It is 100% inflammation that comes in flares. Also evidence in the spinal fluid. Now the MS clinic is testing for Lupus. I can not see this being positive. But it may explain the breathing problem and hypoxia. Do some people have problems with walking, standing and arms quitting?

Hey. I have lupus also. Had lupus for a long time but didn't know it. How I found out was when I went to the emergency room due to one day my legs were getting a rash that got so bad that one of my legs had a giant hole. It looked like someone shot me in the leg. I still suffer today with fatigue, depression, anxiety, rashes that causes an urge to itch,. I cannot wear any tight fitting clothing. I would start itching severely. I try to stay fit and I work 2 jobs. It's a struggle but I push myself. i Did you know that there is a type 1 and type 2 Lupus?

I also experienced a lit of pain etc with covid and other viruses. The extreme emotional symptoms sound like herxheimer reaction from detox, which would make sense, bc your body will actually use a virus as an opportunity to detox. Another possibility is that you may have viruses etc. In the brain (that become m9re active when you are ill) like has been found in MS

Love this video! White female here diagnosed in 1985, dealing with all this for almost 40 years. Such a frustrating illness! Everything you said is true. I quit talking to people about it. 😢 keep pushing forward!!❤

i have lupus and RA and i relate to your story sooooo much. i got so bad one year i couldnt walk to the toilet or get out of bed, or bend down to tie my shoes, frozen hands, horible neck pain, migraines, photosensitivity, black spots in my vision, tinitus, all of it. i thought i was going to end up in a wheelchair within the 6 months, thats how bad i got. on top of it all the other stuff… night sweats, feaver, anxiety, depression, mouth sores, throat flares, not being ablw to lift my arm, EXTREME pain in my joints, thin hair that falls out, constant anemia, bruises all over, huge bloated stomach, TERRIBLE allergies as well, hypermobility, fatigue, bad teeth, and i do not get taken seriously because i look “normal”. its hell. ive had heat stroke, light heat and humidity sensitivity, constant migraines to the point of throwing up from how extremely painful they are…. its incredibly frustrating. neck and upper shoulder pain that is constant. trouble sleeping.

Sorry you’re going through this. I know from experience how this feels. However, changing eating habits, exercise and supplements for the gut/others have really helped reduce the pain. I guess at this point we all have to try whatever we can and see what works best for you. Low vitamin D usually comes from GI issues. God bless.

Can a person with lupus get any financial help from anywhere? Disability?

So many of your symptoms are what I have experienced for many, many years. I had doctors dismissing my symptoms. So much on my Bloodwork was flagged and they still blew me off and gaslighted me. Finally, with my list of symptoms, bloodwork and even pictures of my rashes I finally have a doctor who wants me tested for lupus. Thank you for sharing this video. Those phantom pains is something that made me think “WHOA”! I know exactly what you mean! Most painful feeling I have ever felt. God bless and keep being your best advocate for your body.

Hey Ryan. The video was sad and inspiring at the same time. I hope you are doing well. I wanted to ask since you responded to my comment in your last video which was appreciated greatly. In that response you said that you had done the lion diet? How long did you do it for? I appreciate your responses. It makes me feel less alone 😢.

As an old geezer found out I have SLE and APS both; still it's nice to put a name to this after 10 yrs. Quite a journey so far

Lupus, fibromyalgia, protracted benzodiazepine withdrawal symptoms, All have very similar side effects which one could it be ?

Thank you so much for this video! I feel so lost but trying to be positive. I was recently diagnosed with lupus and rheumatoid arthritis 3 months ago. I am trying to figure this out I am currently on plaquenil which is helping a lot but now my doc wants to also put me on methotrexate or benlysta and I’m just trying to research. I honestly don’t want to be on any meds and just go natural but I know deep down I need it. It’s good to hear other people’s perspective. Thank you!

Hello, how is the current treatments and advancement going? In all those years (after diagnosis), were you able to achieve remission?

Sounds like you also have Sjögrens with your lupus as well, like me. I have cured myself over the last two years with Ivermectin and can finally function without chronic medication

It really hurts when the comments come from family. They love you but are in serious DENIAL.

Excellent video

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Thank you ❤

This is very true. As much as I try to prevent myself from sun exposure, No matter how little time in the sun. Thank you, Man with Lupus ❤

I gas a question. I watched your video of your story of your journey with lupus. I did the math of when you said from 10 to 12 years old symptoms started and your current age of 39. Since you have had lupus for 29 years have you constantly taken medication or tried avoiding it and eating s diet which causes less flare ups?

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Did you do a lot of biking when you were young?

Are you enjoying the Video? Would you like to see another video from the 'Man with Lupus' channel? Look no further -------->. kzfaq.info/get/bejne/g6p5lLSgqZncf5c.html

Well presented. I was diagnosed with lupus SLEN 1994, 30 years ago. Somewhere in the journey they added lupus nephritis to my condition. In general I am living a very enjoyable fulfilled life. I do have a very severe joint deformity in my fingers however. I found certain foods are potentially the biggest trigger for the swelling and pain.