I hope we can have a medication directly for the skin, against the skin tightening 🙏🏽 please

Excellent!

Thank you Ed. I’ll be looking into this treatment asap

I can't seem to find where the handout is located to be able to print it out. Can anyone help guide me how to find it? I'd love to have that for my own personal use & for my physicians.

I hope a medication to stop the collagen overproduction can be created 🙏🏽🙏🏽🙏🏽🤞🌠

Hi, I'd like to know if a medicine can be created to stop the collagen overproduction? I'd like to know what are the investigations/research about it. Thank you 🌻🙏🏽

I hope a cure or something to stop the collagen extra production can be created. It's terrible that there's nothing yet! Blessings and prayers to all the people suffering because of this terrible disease.

So informative Ed. I'll mention this to my rheumatologist, who declared that i am fine despite all of my symptoms.

Ed, thank you for being so kind and helping us! You are a hero to many

What blood work showed positive? RNA Polymerase 111? Scleroderma-70?

Please Help me i m in so mch pain every dy i have been diagnosed with liited scleroderma but my diagnosis is very very challening and i have lost so much weigh since thanksgiving and i dnt want to let this disease take me please help me and my family :( i am so so sad no one knows what is happening to me and i am embresed to go to th er please help me

I have to say I was impressed with how caring the nurses and support staff were at the center, I was a nervous wreck and their demeanor put me at ease. Not to mention the thoroughness of Dr. Boin. I give them A+ all around!

You are doing great work don't stop keep going 👍🎉

Thank you for all you do 🙏🙏🙏🙏🙏🙏🙏♥️♥️♥️♥️♥️♥️

Hi

This is awesome Helene 👏🏼 💜

Hello

I need to get an appointment

Thank you for this podcast. It's great to know research is moving forward.

Bottini...... Did you name the baby after me??? 😂

This was an amazing informative video. The presentation was done so well for anyone to understand. Thank you very much.

Hello Sir Ed If you don’t mind, can you please share your email id, as I would love to share my condition and symptoms with you and get myself gain some of your valuable knowledge on the issue

So much good information. The explanations are wonderful

Thanks Ed Harris for guiding me here! Very helpful info.

I have all the ANAS antibodies positive, the Mexican doctors here in Mexico, never ever cared. (For years, and a two German doctors,as well I Germany). The antibodies were elevating. Again nobody knew why and none doctor here cared, one was like "oh ummm all positive" and yawned. It's been so difficult when most of the doctors apparently "rheumatologists" don't care, they easily (misdiagnose) "diagnose" fibromyalgia.

can someone have blown capillaries (over a year ago) with naked eye, phone camera/light. thankfully I took photos, but now I see NO capillaries whatsoever. are they just gone?

very very informative! I have never had my ana pattern stain/titers explained to me. once I had this bloodwork, looked into the possible indicators of all diseases listed on my bloodwork...diffuse scleroderma fits all my square pegs in square holes. (through many, many presentations such as this, I do believe it is what I have. I just need an actual answer. I'm over four years into my original misdiagnosis of lupus. I need a sSCL knowledgeable doctor to look at my records from rheum, heart, skin, pics of blown capillaries, overgrowth of nail keratin, all my teeth rotting under the gums, colonoscopy and endoscopy, weight loss, extreme skin changes, sudden onset of reynauds, thick skin,broken capillaries, frozen fingers, new calcifications, all starting suddenly with what I thought was a spider bite as I had several painful hot swollen fingers in the beginning. I'm near Boston. The more I try to be an advocate for my health, the more I seem to be dismissed with a diagnosis of from one as some kind of hand arthritis and fibro, then another rheum. psoriatic arthritis (?! with no follow up!) I'm glad I can understand the b.w. numbers now. I'm in my late forties and I'm experiencing fec. and urine incontinence. I hope I can find a specialist willing to see me. If it happens to be something else, I'm ok with it. I just need to know as my family knows I'm sick, but without an official diagnosis I essentially have nothing. Thank you, the more I learn; the more prepared I feel to detail my clinical presentation/ progression from 2018 until now. Bless you.

Hello, am from india even I have Scheroderma affected my life at younger age of 22. Want to join Scheroderma foundation, can anybody help me.

Even am suffering from limited Scheroderma, it's hard to accept it n live along with it.

God bless you Dear Doctor 🙏🌺

Who is on meds here ? I don’t know if the meds or disease is making me tired .

God bless ❤️🙏🌺

Many thanks for the great lecture 🙏🌺❤️

God bless you Doctor 🙏🌺❤️

This needs more awareness where could I join Im ready to talk to people about this Demon Disease Seek God! He is the way! God Bless You all!

So what's up with Dr Chatterjee? Scleroderma expert in Cleveland but doesn't do specific antibody testing. No nailfold test. Very dismissive. Basic bloods were normal and I keep getting referrals to Psych 🙄 This was so informative and validating actually. Thanks guys. Talk about a delay in diagnosis I can't walk and now I have shortness of breath, back (kidney) pain, and chest discomfort! But CK and ANA was normal which is all that was tested. I just need to move.

So thankful Ed. He reaches out. Love him and I don't even know him.

My PCP diagnosed me with a terrible case of Fat Old Depression. Turns out it’s kidney disease.

My bf is also suffering from scleroderma...will I marry him??

Fantastic work Lynn! Well done.

Can I jump in a bath full of ice for my mom or is it only the hands?

Well done Lynn.

tv1y1 vyn.fyi

I watched the replay and I found it very informative. Thank you!

Thank you so much for this.

*اللهم صل على سيدنا محمد وعلى اله وصحبه وسلم تسليما كثيرا عدد خلقك و رضا نفسك وزنة عرشك ومداد كلماتك و عدد ما كان وعدد ما سيكون وعدد الحركات والسكون.* *اللَّهُمَّ صَلِّ عَلَى سَيِّدِنَا مُحَمَّدٍ نُورِ الْأَنْوَارِ وَسِرِّ الْأَسْرَارِ وَسَيِّدِ الْأَبْرَارِ، وَزَيْنِ الُمرْسَلِينَ الْأَخْيَارِ وَأَكْرَمِ مَنْ أَظْلَمَ عَلَيْهِ اللَّيْلُ وَأَشْرَقَ عَلَيْهِ النَّهَارُ، وَعَدَدَ مَا نَزَلَ مِنْ أَوَّلِ الدُّنْيَا إِلَى آخِرِهَا مِنْ قَطْرِ الْأَمْطَارِ ،وَعَدَدَ مَا نَبَتَ مِنْ أَوَّلِ الدُّنْيَا إِلَى آخِرِهَا مِنَ النَّبَاتِ وَالْأَشْجَارِ صَلَاةً دَائِمَةً بِدَوَامِ مُلْكِ اللَّـهِ الْوَاحِدِ الْقَهَّارِ.*

What are the Facebook groups? I would like to join. I'm in the original scleroderma group

WoW! Thank you Dr. Furst for your time and dedication to helping the Ssc community be well informed on vaccination(s) & Delta variant 7/31/21. Great job Tina!