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@RS-lo7uv 3 ай бұрын
I am a patient of choriderimia.. Have a treatment of choriderimia?
@curechm 3 ай бұрын
There are currently no approved treatments for choroideremia, however, there are things you can do to try and keep your eyes healthy overall, please visit: www.curechm.org/for-patients-families/ for more information. We also encourage you to sign up for our e-newsletters which will provide information on upcoming virtual and in-person events focusing on research and patient/family education/networking: www.curechm.org/get-involved/#getnews
@marylynnrodgers1091 7 ай бұрын
My daughter has choroideremia and now her son just got diagnosed with it also. My daughter's issue the Drs said might not progress. Now my grandson don't know. It's devastating
@curechm 7 ай бұрын
Hi Mary: We would be happy to connect you or your daughter to other parents of children with CHM, we have two chat groups that meet regularly. Please also be sure to sign up for our e-newsletter, we have regular educational webinars and conferences regarding potential therapies in development and many other resources on our website: www.curechm.org
@paulstanton2471 3 жыл бұрын
Hasn't this line of research now halted?
@paulstanton2471 3 жыл бұрын
Thank you for posting this. I'm a 65 year old male, I guess I've been relatively lucky as my choroideremia has been slow onset, and although I stopped driving about 14 years ago, it was only in 2017 that I told my ophthalmologist that I was starting to experience real difficulties.
@curechm 7 ай бұрын
Hi Paul - Please sign up to receive our e-newsletters at www.curechm.org as there are many mutation agnostic optogenetic and other therapies currently in development that may have potential for later stage CHM patients.
@oscarc554 4 жыл бұрын
Amazing step forward to a cure 😭
@oscarc554 4 жыл бұрын
Let’s do fundraising in California I will be willing to participate and am waiting for human trials 🙏
@oscarc554 4 жыл бұрын
Go bulldogs CSUF💫
@Bishop472 4 жыл бұрын
I have choroideremia and was recently told that gene therapy would not help me due to my vision being too far gone. The only hope is stem cell therapy. Can anyone please help me to find help.? Please.😞
@rogersample9813 5 жыл бұрын
Can you contact Jay Cruz Semple on facebook about gene therapy?
@oscarc554 5 жыл бұрын
Is there a cure I am not aware, beside some of the current trials going on? How do we become part of trials if our sight is almost 0/100?
@kathiwagner3727 4 жыл бұрын
Have you contacted the Choroideremia Research Foundation at [email protected]?
@purushothamandurai7232 6 жыл бұрын
Same condition my self also god will help us, please share any treatment u found [email protected]
@curechm 4 жыл бұрын
Please contact the Choroideremia Research Foundation at 800-210-0233 for information on clinical trials for which you may qualify.
@stardust103158 12 жыл бұрын
I'm very proud of you, Jeff.