Thank you for your story. I'm struggling for last 6 years as well and finally just 2 weeks ago was diagnoses with Behcet's disease. At some point it is relief , finally I know a name of what makes my life that horrible , but still so much unclearness , how should I keep on living , what should I do and so on ....

I know this video is old but I’m glad I found it. I’m 25, but was diagnosed with behcets at 12. It’s physically and mentally no joke. Thank you for sharing

من هم تازه متوجه شدم این بیماری را دارم😢😢. زخم دهان. بدن درد . ناتوانی حرکتی علائم من بدشانس هیتن😂😂😂

The spit sound ugh

I still don't know i have behcet's disease or not. Last month i got some ulcers on vulva and mouth ulcers. I frequently get mouth ulcers as atleast one time in two months. Last month i got 5 ulcers in my mouth. And this month one. Also i have severe knee and back pain. When i got genital ulcer i went to a gynaecologist..she suspected behcet's but then i went to other gynaecologist they suspected its uti because as i had ulcers on my genitals so i had a burning sensation while urination...my crp was 24mg/dl then after 5 days it decreased to 3 mg/dl. So is it behcet's disease? Also sometimes i get headache (Edited) - last month when i got those episodes of ulcers i got some on palms too

neanderthal is the trait

Fellow warriors unite

God bless you and get you bencet’s free........Amen

sad my left eye got almost fully blured since last year and i was diganosed with behcet, i have same as ur issue with ulcers but no joint pains

Dr said i had neuro bechets pls sir help me you know when available gene tharapy for bechets pls sir help me nd pls researching for latest news about gene tharapy.i need your help pls sir 😢 😭

Hi, I hope you are doing well. I had numbness in my legs for 2 months and one night suddenly my right eye got blurred and when we went for diagnosis they came to the conclusion that it is Behcet, so I hope if you can please tell me that if my eye is blurry because of Behcet’s then is it curable? And the doctors said that the meds can have a lot of side effects so are they big side effects or a person can live normal life with them?

Thanks for your video of been struggling with this for years and years now and I can’t relate more to your video than I’ve ever been able to with anyone

Hey man! Thanks for sharing ive just been diagnosed with becets 2 days ago after cvst dvt and eye problems and ulcers i miss smoking week alot because im on warfrin ive been too scared to smoke but its good to hear there is light at the end of the tunnel. Take care!

I have fucking glaucoma because of all the prednisone for my uveitis

Im a boomer weed has been part of my whole life i always found that a little buzz ( couple hits ) would motivate me, anyway Ive burnt the candle at both ends my entire life & now in my early 60s, figured my health has got to go to shit but in the last couple of years few things have became noticeable & recurring and has led me here researching Behcets haven't been to doctor yet but Im pretty sure Im on the right track Ive subbed & reading up everything you have do have any suggestions for me thank you

Please don’t stop posting…I have watched all your videos and find them very informative/inspiring!

Good on you for making these vids. I’m a med student and this made it memorable for me. Keep keeping on brother.

You are a real hero❤

Such a relief to be able to find others online who have had Behcets. I was hospitalized for five weeks last year with pancreatic cysts. They got so big that it pulled the tube off that connected my pancreas to my digestive system. Had to be fed via a pick-line to slow weight loss, 66 lbs in three months. One thing I can say that has been super helpful is Plaquenil. I have chronic fevers, and Cleveland Clinic gave Plaquenil to me to help with that, but it also helped with ulcers. I still get them, but not so much in my mouth and down below. I do still get skin ulcers on my bum and scalp. Anyhow, thank you for your candid KZfaq videos. Huge help!

Glad I found your channel. Trying to find my people as my Behcet's progresses.

You are a Behcet’s cheerleader. I’ve was formally diagnosed in 2005 but struggled with symptoms starting in 1999. Everything you talked about really hit home. I’m gonna have to listen to this video if I ever start dating again. Thank you thank you thank you 🙏🏻

Omg you sound like me ! I’ve had this curse twenty years ! Now my son has it ! I can’t. Some days I don’t even want to go on anymore I’m tired now ! I never complained but now I can’t walk wheel chair and home bound .. I can’t do much my bedroom has become my prison cell ! Sorry if I sound so morbid it’s so hard now .

I would have. enjoyed your story if you hadn't used curse words,But I too have it,I just dont swear about it ,But thank you for your story.

(((HUGS)))

I believe I have behçets my doctors due as well, I have generalized anxiety and Asperger’s syndrome.

Hope you are doing good warrior. It’s been more than two months when we talked here.

I woke up blind once too.. just like all the other test. This one came back normal 🤷🏾‍♂️

Have u read the book “Food Paradox”? It is a book about eating anti inflammatory. It’s helped me with have less inflammation. Good luck. I’m sorry we are going thru this.

Hey Allis, hope you are still doing good. Wondering if you’ve ever searched for aHSCT and if it is a valid option for your case? It is quite expensive but I’ve came across some studies that show good results for Behcet’s cases. Some of those who had it stayed in complete remission for long time.

I would love some online support group to talk to people who have been through this

Wondering if this man is doing well now.

Man, I was diagnosed too. All I can say it is fucked up and definitely sucks. The most fucked up thing is that they can not even tell why this shit happened too me. I wish you all the best man 💪

I had weird symptoms for a while. I had multiple episodes with swollen testicle and sores there+ sores in the mouth that I have had as long as I could remember. I also got erythema nodusum. Unfortunately I ignored all of these symptoms until my leg swoll up exactly a year ago and turned out it was a blood clot. Time went by and those other symptoms came and disappeared until last summer. The sores didn't go away and I went with almost constantly swollen red spots on my legs(erythema nodusum) it kind of calmed down but then I got neck pain. Mild at first but after like a week it got intense. I got fever and the erythema nodusum came back. I got to the doctor but they didn't know what it was. They took MRI CT and all of those things. After a while they found out that it was a blood clot which they thought was weird since I was on blodd thinning injections already. Then they knew something was wrong and they did research and looked at rare diseases. The doctor called us and asked if I had any of those sores, I said yes and we got called in to the hospital and they found out. Put me on intravenous prednisolone like 70mg or something, colchicine, azathioprine. I have heard and read that the disease some times kind of burns out after time, so I am hoping that I will have few episodes of it.

It has helped me with mine. My story about pot is same. Dabbled when 16 hated it stopped until a year after I found out I had behcets at 39. My husband grows it for me

Absolutely fuckin awful, correct again

Omg, THANK YOU. I have Behcets and this is so true. It is an incredible struggle. I look for actual people who have Behcets on KZfaq every so often and I'm so glad I came across your video. Thank you

I found out when I was 40. I have had the symptoms as long as I can remember but when I was 37 was when it got bad. I have uveitis. Keep having stranger things happen. I’m sorry to hear your eye doctor was a dink! Thanks for sharing. My story is long as well; pretty much close to yours. It is so hard because it’s kind of a lonely disease. Maybe they all are?. Not to get into too much detail but I have seven other siblings six of which are addicted to painkillers so I refuse to take any over-the-counter pain medication so my dear husband (Jeff)started growing marijuana for me which is legal in the state of Maine and it has helped tremendously. With the pain and stress of this disease. Question: did you ever be diagnosed with H-pylori? I ask this because I have been doing a lot of reading and it seems like they’re starting to discover these parasites and bacteria like H. pylori that causes the immune system to literally go into overdrive which kind of kicks in the Behçets. I don’t really know the dynamic behind all of it I’m still reading about it. Thank you for sharing your story.