hi dear how are you now,i hope your optic neuritis now is gone,,i diagnose with optic neuritis this january 2024,i lost my vision twice until now i take medication

This is exactly what I’m going through right now. I was just discharged after 6 days and diagnosed with Optic Neuritis OS and Lupus 😞 I hope you’re doing well now …

Thanks for sharing your story. Currently dealing with something like this.

May God have mercy on you!

In May of 2018 I was diagnosed with optic neuritis. To this day I am still suffering with the condition. It is difficult because we become prisoners in our own homes. But if we train ourselves and work very very hard at it we can find a new normal. For me the hardest part has been when people tell me I'm not really blind. Like fuck them. I am now legally blind, unable to work and struggling everyday. Prayer is the only thing that helps me through it all. I hope and pray your outcome will be better

Thanks for your story. I have had issues for many years and ERs and Drs. have told me a lot of stuff mostly stress, anxiety or depression and even that it is just dry eyes. My right eye is close enough to blind that Id rather it be blind, less aggravating. I have horrible pain behind the eyes. I have vertigo and fall a lot also, even when using a cane. I have numbness in my cheek, arm, hand and leg, my ears ring. ANYWAY, I am finally getting a MRI tomorrow but it is without contrast and not orbital, so I feel like it still may not catch the issue. I guess I will know in the next few days.. I hope you are doing well these days, I will check out your channel to see if there is an update.. God bless you and yours..

still wanna know

How are you know dear

Praying for your well being Hanna

My wife is also suffering with ON. I love her so much. We are fighting with this. Thanks for sharing your story. It really motivates us.

My first symptom was optic neuritis! Such a scary thing!! I wish you well and I hope they get the treatment straightened out to help !

Hello everyone and to Hannah, I hope everyone is doing fine and getting better! So I also have optic neuritis and am still in recovery. So what happened? Basically 5 months ago I was diagnosed with dengue so that was just dengue for about a week with a temperature of 40-41°c. We were expecting to be discharged after that week but on this 6th day of that week I noticed something changed with my vision. I told the doctor and he said maybe it was just because I was over sleeping. So we disregarded it but on the 7th day which is supposed to be our discharged day my eyes vision began to worsen. That time the doctor was alarmed and brought me to this area were they have my eyes checked i dont know where it was because I can no longer see properly and my eyes are not that good already at adjusting from light. When they checked it they found my nerves on both sides of the eyes to be inflamed. So they don't know what to do because usually what they do on optic neuritis alone they have this to be followed by steps on treating it, so they were giving us hopeless choices of which to choose. Because they dont know if this optic neuritis of mine is caused by the viral infection which they know how to treat it or caused by Dengue. They don't have any idea. But the doctor said that there's a big chance that it is caused because of dengue but they have no assurance at all. Until all doctors gathered together including my neurologist and they find my case very rare since in the Philippines there is no study about it. If there will be i might be the first one. So what choices they gave me us was whether to follow the treatment where they IV me with steroids or have it hel on itself.. but both choices were no guarantee of bringing back my vision. That was the hardest part. They didn't give false hope so they immediately told me the truth because also them they dont know what to do because doctors are only humans. U get what isay right so. We were scared at that time because everything was so abrupt. So we did go for the treatment and got my self in steroid for a month 5months ago and now im doing better. And still recovering. What's so hard about it before was that i was also an active person and i do lots of sports so it was very hard. But i realized about what God has done to me from the past. He has given me problems before that i was able to surpass and why should i fear this one. He has given me this challenge i know He's by my side. Keep fighting everyone!!! If u need someone to talk to feel free to pm me FB : Eyys Mark Goks facebook.com/acecgocotano

How are you doing in 2022??????

Hey Hannah I’m a person dealing with MS I’ve had it since I was 8 years old I am declared legally blind but I am 23 about to be 24 I just wanna say you’re not alone love 💙🙏God bless you

Me and you are going through the exact same thing please check for sarcoidosis disease

Hi Hanna, I just wanted to reach out and thank you for this video. You are not the only young person going through this, scared; I’m 22 and was going to be a teacher before I started to get debilitating migraines and optic neuritis. We still don’t know why, I get my MRI results back this week so fingers crossed it’s something treatable.

Hope you’re doing well.

How are you today?

Try using organic Iodine it helps a lot.

Thank you Hannah for sharing your story. I am.currently in the process of finding out what my health pathway is going to look like. I just cried today when I was given my diagnosis. Thanks again for sharing.

I really would love to know how she is doing now.

Hannah i have this for the past 8 years everyday stay strong girl ❤

I am diagnosed optic neuritis 2 month ago during my exam. Am right eye was 20/15 but with in 10 days i scored 20/40. My doctor gave me 5 days of methylprednisolone 1000mg. . After thus my vision gets better i scored now 20/20. Alhamdulillah. But i can't see coloures diply. 😢....... I hope that allah repair you

Girl i am going through the same thing. Its very hard especially being a full time student and driver. It has not only impacted me physically and financially but also mentally. I cant study nor work as i used to. I have constant severe migraine and fatigue in my eyes. Whenever i overwork my self i feel terrible/ crying all the time. Lets focus on our mental health first and i am sure we can overcome it. It something that we need to accept and live with.

Hannah i hope you are doing fine now, please let us know how everything went, ive been dealing with the same problem for the past couple of months.

I’m currently experiencing this🙏🏾 hopefully everything is well!!

Any update on your vision?

Hope everything is going well with you Hannah. 🙏🏼

Your video is so very inspiring! I am also a optic neuritis patient and has a multiple aculliosis i feel your pain. Im totally blind last 6months ago but after i get the ivig medicine may vission ack little by little but not as normal like before. I prayed for your healing and mine stay possitive in jesus name we all healed. ♥️

good luck and i pray you get better. i may be facing the same. God bless you

What mediation are you on now to help prevent relapses?

♥️♥️♥️🙏🏻

Does optic nerve swelling always lead to blindness

how are you doing now?

Prior Navy . Going through the same thing I am going through all the testing. You are not alone

Hey Hannah, it’s been a while since the video wondering how you are doing now ?

I hope you are doing better dear. I also have optic nerve damage due to upper cervical instability. If you can please get checked for that. I'm getting prolotherapy.

So sorry for what you going thru. I truly pray God heals you 💟🙏🏾 pray for healing and strength. ❤️💜

Hope you are doing well.

Swear this started for me after getting covid.

Hi Hanna, how are you? You are a very strong girl. I was proud of you. I have also been diagnosed with optic neuritis and am being treated with steroids. My vision went from 20/100 to 20/30, however I still see a lot of spots and I can't distinguish colors well. It's very distressing. It hurts. A hug from Brazil and I await your response. Hope you're okay, Hanna. You can give me hope for my improvement

These symptoms are also very similar to sarcoidosis we have to ask ourselves what is it that is causing all of these strange neurological illnesses is it something in our food or environment or something else I hope this young lady has fully recovered and will let us know how she is doing

Hanna, so sorry to hear what you've be going through. I have similar problems as you and having a terrible time with it too. I my vision problems are just part of an autoimmune encephalitis called DPPX. Tirefness, headache, left side and nerve problems. My antibodies messed up and on retuxamab and ivig too. Ask your neurologist to check autoimmune diseases... I feel miserable too... :-(

Hanna, your video made feel like I was with you. My husband is going through the same symptoms. It is heart breaking. I am so sorry for your vision loss. Could you please tell me your final diagnosis? Doctors are looking into NMO, MOG for my husband. Right now NO is telling him NAION with no treatment but his vision loss in left eye is chronic which is not typical of NAION. My husband has headache on left side of head every day.

Hanna, I just wanted to say thank you for posting this video. I think you helped me figure out what I have. For the longest time, I have been going through exactly what you have but wondered what is happening to my body. Chronic headaches, pain/pressure around my eyes, confused, feeling lightheaded and nauseous, major vision problem, random pains in my body, burning sensations on my feet / legs, etc. My doctors diagnosed me with anxiety but I knew it wasn't that. Just like you, I have been very healthy and active before all this and only thing I complained about was not making enough money prior to all this happening. Now, I just wish to be healthy again. Just want you to know how thankful I am that you had the courage to post this video. You're not alone either. Take care of yourself and be strong.

Have faith Hanna. I am going through a similar situation for the past eight months. It’s terrible but God will heal me. I have faith.

I’m goin thur this just started can some one help me out with this I’m so scared

You are a strong person, you are not alone

Hey

Any updates?