Clarification to the video: Some hospitals require patients who use ventilators to be in the intensive care unit (ICU). However, the hospital where this situation occurred does NOT require people who use ventilators to be in the ICU. I have been to this hospital before and am usually placed in a regular hospital room (unless I am critically ill and my medical issue requires ICU level care). To understand where the disagreement occurred regarding me needing an ICU room, let me explain the bed assigning process in this hospital. In the hospital, there is a hospital employee who is responsible for assigning beds to patients. This person, who I will call the bed assigner, collects information from every hospital floor about which beds in the hospital are available. When a bed becomes available, the bed assigner looks at the list of people who need a bed. When a match is made, the bed assigner reviews the information about the patient to make sure the correct type of bed is being assigned. For example, if the doctor requests the patient receive an ICU bed, there must be justification for this need. All bed assignments must agree with hospital policy. For example, if hospital policy states a person with a certain medical condition needs a certain type of hospital room, the bed assigner MUST assign a bed based on the hospital policy, even if it disagrees with the doctor’s request. Once the patient is approved for the bed, the patient’s information is sent to the charge nurse in the unit. The charge nurse has the responsibility to assign the patient a bed and a nurse. If the charge nurse refuses the patient, the patient remains on the bed wait list. Then, the next person who is eligible for that bed is assigned to the unit. Here is where the issue arose. The doctors stated I needed a regular hospital bed. The bed assigner, after reviewing my medical case and hospital policy, also agreed I needed a regular hospital bed. When a regular bed became available, I was assigned to that unit. The charge nurse accepted me as a patient, assigned me a bed and assigned me a nurse. Upon arriving on the unit, the nurse informed me she refused to be my nurse because I required too much care. The charge nurse was contacted and agreed with her nurse. I was pulled from that unit and placed back on the hospital bed wait list. The charge nurse placed a block on my chart which prevented me from being accepted by any other regular hospital unit. The only units which she said could accept me as a patient where the ICUs. There was no evidence in my medical chart that I needed ICU level care. Moreover, hospital policy stated I could be in a regular hospital bed. Thus, the bed assigner kept my bed status as needing a regular hospital bed. Now, since no charge nurse on a regular hospital bed unit would accept me as a patient, I remained indefinitely on the hospital bed wait list and spent my hospitalization in the emergency department.
@ArthurSavage17 сағат бұрын
I recently started taking 7% hypertonic saline in a nebulizer for BOS. It is uncomfortable but reduces coughing a lot especially while walking or exercising.
@LifewithaVent4 сағат бұрын
Thank you for sharing.
@amypearsallКүн бұрын
I was going to say, "You mentioning it is harder to speak: have you thought about using an AAC device when communicating with your mom, or out in public?" However, watching the whole video and seeing you switched back to 7mm size tube, I guess this is not a consideration at this time; maybe in the future.
@LifewithaVent4 сағат бұрын
Thank you for the suggestion. That is a great idea. I will look into it.
@IndigoJoКүн бұрын
Why did this ENT doc who'd never seen you before think she knew better than everyone who had treated you over several years what size trache tube you needed?
@LifewithaVentКүн бұрын
Many doctors have told me the trach tube I use is too small. I thought I would try a larger size trach tube to see if the doctors were right. Now I know I am using the correct size, and I no longer have any doubt about it.
@GretchenParker-qe1txКүн бұрын
Hey chronic illness warrior that was a great video it was very informative. Maybe you can do a video on why end up on a vent or what happens leading to the surgery to get the trach. Sending 🥄🥄🥄🥄🥄
@LifewithaVentКүн бұрын
Hello. Thank you so much. I appreciate the video ideas.
@JunesTravelsКүн бұрын
Nice video
@LifewithaVentКүн бұрын
Thank you.
@LiamODonovan-l6eКүн бұрын
You are always interesting, wishing you the best
@LifewithaVentКүн бұрын
Thank you so much.
@Puppy_1Күн бұрын
Hi my friend I’m definitely praying for you. Ouch that sounded painful. I just wanna let you know that my nephew still watches your channel all the time and he is now in rehab. He’s able to breathe for 25 minutes on his own. Which we never thought would happen, but he can’t. He’s also now eating on his own. He did pass the test. I’m definitely praying for you, my friend and stay strong. I meant we never thought he could do that but he can. I knew he could, but his family wasn’t sure when he gets at a certain point we’re hoping to bring him home vent and all. We’re hoping that he’ll come here because that way we can watch him closely. Definitely praying for you my friend. Stay strong.
@LifewithaVentКүн бұрын
Hello. Thank you so much for the update. That is great news! I am so happy he can breathe for 25 minutes on his own. And he is also eating too. How wonderful! Thank you for all the prayers. I really appreciate them. All my best to you and your nephew.
@Puppy_1Күн бұрын
@@LifewithaVent they had my nephew on a thicker tube for a while too he said he couldn’t breathe out of it so they changed it to a smaller one again we came by to get a few things for him and he wants a cheeseburger. They said because his final cord is not severed. And just basically broken that he could regain use of his lungs on his own and be able to breathe with a supportive ventilator with mouthpiece instead of the tracheostomy. We’re praying for that he’s got his hopes up high that he can manage going to mouth ventilation versus trachea ventilation because he hates the trach. He was wanting me to ask you if you ever get what’s called air hunger, because he sometimes does. And it makes him panic when he does. He doesn’t get it as often as he used to, but when he was first on the ventilator, he did. Pretty bad.
@thanos1000000fcКүн бұрын
It's very dangerous to switch to a bigger size. The stoma adapts to the size you have been wearing for such a long time and it should not be stretched further. You were lucky you didn't damage your trachea.
@LifewithaVent4 сағат бұрын
Thank you for sharing.
@alfajames4169Күн бұрын
What size is that
@LifewithaVentКүн бұрын
The trach tube has an internal diameter of 7 mm.
@EBBE-uf2wp2 күн бұрын
Bivona does not have inner cannulas in the U.S. market. DIC tubes have been phased out. They do not offer these tubes, just BluSelect for PVC and Bivona silicone.
@LifewithaVentКүн бұрын
Thank you for the information. As of Feb 2024, the Bivona TTS and Aire-Cuf had the option of having an inner cannula. Inner cannulas were not included with the tracheosotmy tubes, but they could be purchased separately. (The inner cannulas were available for purchase in the USA.) If the Bivona inner cannulas have since been discontinued, my apologies for not being more up-to-date on the ever changing landscape of respiratory care.
@EBBE-uf2wp2 күн бұрын
This can be very confusing for clinicians. Stick with ISO mm sized tubes.
@LifewithaVentКүн бұрын
Thank you for sharing.
@sandraportillo79513 күн бұрын
I am a pediatric home nurse. Most of my little patients are on vents…. Most are terminal. You, my friend, are blessed and just as much a blessing!! I am so very sorry your dream of becoming a doctor is vanishing, but God has led you to a greater calling. Not only are you teaching the physical issues with tracks and vents, you are showing that life doesn’t end with a trach and vent, it is just a curve in the road. I love you, your videos and your videos and, your perseverance!
@LifewithaVentКүн бұрын
Thank you so much. I appreciate all your kind words.
@karenpollicina85824 күн бұрын
My late husband had complex medical problems also with a trachy. I had nurses,that came daily but I looked after him 20 hours a day.With 2 nights of a nurse sleep over.Every hospital visit ended up days in the Emergency department because no ward wanted to take a trachy.
@LifewithaVentКүн бұрын
Thank you so much for sharing. I am sorry you and your late husband went through so much. My heart breaks thinking about everything you-all must have endured.
@sushilalama67964 күн бұрын
You are amazing
@LifewithaVentКүн бұрын
Thank you.
@susanoshaughnessy9435 күн бұрын
In our hospital, a person on a ventilator is required to be in the ICU. And, the hospital is responsible for that pt’s care - even if it’s something they manage at home. I can’t just bring my medications from home and self administer them, for example. So, at our hospital, they would not allow you to self manage your vent care. They might allow you to do your own trach care - supervised by staff - but ultimately they are responsible. so, if you got a mucous plug for example or an infection, they would be responsible if anything happened to you. I understand your point of view that this is your regular self-care, but I also understand the point of view that the hospital is responsible for you while you’re in their care. I’m sorry it’s so complicated. 😢
@LifewithaVent4 сағат бұрын
Thank you so much for sharing. I have been admitted to hospitals in which patients who use ventilators are required to be in the ICU. However, this is not the policy at this hospital. The only times I have been in the ICU at this hospital have been when I was critically ill and required high level care for my medical issue. During all other hospital admissions, I have been in a regular hospital room. The hospital bed assigner (who makes sure all hospital policies are being followed) along with the doctors all agreed I belonged in a regular hospital room. The nursing staff disagreed and blocked me from getting a regular hospital room. When a bed assigner gives a room to a patient, if falls to the charge nurse to assign the patient a room and a nurse. If the charge nurse does not assign the patient a room, the patient cannot go to that unit and remains on the wait list. If the bed assigner would have agreed with the nurses that I needed ICU level care, I would have been assigned a bed in the ICU. However, the bed assigner disagreed with the nursers request and believed based on information provided by the doctors (and following hospital bed assigning policy) that I only required a regular hospital room and the services provided in a regular hospital room. This is where the gridlock came into play. I was assigned to be in a regular hospital room by my doctors and the bed assigner, but no charge nurse would give me a bed in a regular hospital room Thus, I remained indefinitely on the bed wait list, and I spent my entire hospitalization in the emergency department.
@nancybentsen93815 күн бұрын
wowyou almost died yup they say its anxiety alot i have emphesema
@LifewithaVentКүн бұрын
Thank you for sharing.
@amypearsall5 күн бұрын
It seems what your explaining is hospice is end of life care, without things that would extend life, and being on a vent and/or feeding tube/tpn conflicts with that. Sorry to hear about your friend. You seem to have a good attitude about your life.
@LifewithaVentКүн бұрын
Thank you for your sympathies, and thank you for your kind words.
@amypearsall5 күн бұрын
I like what you said about, ' (you) could be angry or upset, but are choosing to educate others through videos.' Take care!
@LifewithaVentКүн бұрын
Thank you so much.
@tetra3ne56scur36 күн бұрын
The fact that you were banned from the hospital room *doesn’t not make any sense* Hospitals are suppose to care Like I said, what kind of hospital is this? You were being screwed up in the hospital still by lousy nurses and doctors
@sarahdore78846 күн бұрын
It is crazy but it’s because most ventilated patients are critically ill and thus in ICU so regular floor nurses don’t know how to take care of a tracheotomy or ventilator. This situation where she can care for herself isn’t typical. Hospitals are so worried about safety and making sure they won’t face litigation I’m not surprised they wouldn’t change their policy on short notice or make an exception
@LifewithaVent4 сағат бұрын
@tetra3ne56scur3 The issue was not the hospital; it was the nursing staff. The nursing staff decided I could not be in a regular hospital room, even though I am almost always in a regular hospital room (unless I am critically ill and my medical issue requires ICU level care). The hospital and doctors agreed I should be in a regular hospital room. However, the nurses refused the accept me as a patient. Due to this gridlock, I remained on the bed wait list indefinitely, and I spent my hospitalization in the emergency department.
@LifewithaVent4 сағат бұрын
@sarahdore7884 Thank you for sharing. This hospital does not have a policy that patients who use ventilators must be in the ICU. I have gone to this hospital many times and am usually in a regular hospital room. Hospital policy stated I could be in a regular room. The nursing staff decided that since I was on a ventilator, I was too much work. They refused to accept me as a patient. As a result, I remained on the bed wait list indefinitely.
@sarahdore7884Сағат бұрын
@@LifewithaVent oh wow I’m sorry, that must have been so frustrating. It too bad when fear comes before taking care of a patient. Staying in the ER is terrible!
@Jilly_Neutron6 күн бұрын
I stumbled upon your videos very recently and have appreciated listening to you and your perspective. I used to be a CNA in long-term care and hospice (your "why I'll never go on hospice" video is how I found you) and now work in clinical research, so I feel I have some "insider," but hopefully non-biased, information to add. Over time, and especially over the pandemic, hospital nursing ratios have been increased. There are many reasons for this: overestimation on time saving from new technology, an overall shortage of skilled nurses willing to work bedside, private equity taking over many hospitals and trying to increase profits, greater burden of disease in the population overall, etc. Then we add onto this that nurses have also now been criminally prosecuted for medical errors they've made, rather than looking at the system that led to those human errors as a way of prevention. Now there is an essential part of the healthcare system stretched to their limits and scared. I can understand that nurse's fear of having a seemingly more complex and higher risk patient to care for. Yes she should have listened, but she also should not have been put into a position where, even if your level of care was slightly higher than what the ED nurse said, she would not have been able to handle the extra load. The system is broken and we need to advocate for both education (which you do so wonderfully) and changes to benefit everyone.
@LifewithaVent2 сағат бұрын
Thank you so much for sharing. That is great insight. I really appreciate your comment.
@SunnySunfish-s9m7 күн бұрын
My mother who has ALS is on ventilator and also feeding tube has ran into this problem several times. Because of the vent she would have to be in ICU. Once when the ambulance was taking her to the hospital the driver called the hospital to say that they were bringing a vent patient. The hospital told the driver to not bring her there. Just one of many issues we've ran into with service. It's sad. No help for those who need it the most.
@LifewithaVent2 сағат бұрын
Thank you for sharing. I am so sorry to hear about these challenges. It is heart-breaking.
@ScientistPrepper7 күн бұрын
OMG. How crazy. And funny video.
@LifewithaVentКүн бұрын
Thank you.
@JunesTravels7 күн бұрын
I think her cruise videos are on her other channel
@LifewithaVentКүн бұрын
Yes they are.
@tomsclim727 күн бұрын
Sorry to hear about your experience. Unfortunately being human, there are people who wear uniforms but it is not service above self but the self preservation comes first for these people. The Florence Nightingale oath just tossed into the drain...sighh. anyway hope things worked out eventually?
@LifewithaVentКүн бұрын
Thank you so much for sharing. Yes, everything worked out. I got the treatment I needed in the emergency department and was eventually able to go home.
@GoFishOffice8 күн бұрын
That's so annoying my friend. Please stay well ❤
@LifewithaVentКүн бұрын
Thank you for sharing.
@aliciamando8 күн бұрын
We had a similar situation with my trach 8 year old
@AndrewBouvier-ix8ot7 күн бұрын
Omg thats horrible :(
@LifewithaVent2 сағат бұрын
@aliciamando I am so sorry to hear this.
@donaldrack8 күн бұрын
They really get freaked out by us, don't they?
@LifewithaVentКүн бұрын
Yes they do.
@GretchenParker-qe1tx8 күн бұрын
That's ridiculous they shouldn't have banned you from your hospital room just because you're on a ventilator. Sending spoons so you feel better. My chronic illness warrior❤
@LifewithaVent2 сағат бұрын
Thank you so much.
@nesthi8 күн бұрын
That's awful that you felt like that. But I'm glad you are in a better place today! Have a good rest of the weekend! 🥰🐿💙
@LifewithaVent2 сағат бұрын
Thank you so much.
@olddudesteve49838 күн бұрын
This video is Out of sync (I must protest), if you’re on a Cruise than all videos should be cruise-related - Anxiously awaiting Part three of your Cruise - not something that happened “several years a-go” 😅😅, hope you’re having a Great time.
@dorisirving22708 күн бұрын
You have to go to her other channel for cruise related videos
@amypearsall5 күн бұрын
'Protest' is rather strong; this channel is all about being on a ventilator. Her other channel covers other things. Other video creators do the same, as far as having videos lined up for when they are on vacation.
@LifewithaVent2 сағат бұрын
@olddudesteve4983 The cruise video series contains about 12 videos. This translates into 12 weeks of videos. I do not have 12 additional videos about cruising to post on this channel. I may post one or two videos about cruising to this channel.
@Yssa_fit8 күн бұрын
You are awesome ❤❤❤❤
@LifewithaVentКүн бұрын
Thank you.
@Maggiemae338 күн бұрын
Thank you so much for being the light you are❤
@LifewithaVentКүн бұрын
Thank you.
@donniejo88888 күн бұрын
they LOVE taking their own Ignorance out in poor quality care and actual ATTACKS on ventilated people
@LifewithaVentКүн бұрын
Thank you for sharing.
@iamhappy_peach8 күн бұрын
Im so sorry to hear about your experience. I hope this wont happen again..
@LifewithaVentКүн бұрын
Thank you.
@tahishalewis1308 күн бұрын
Thanks for sharing
@LifewithaVentКүн бұрын
Thank you for watching.
@LiamODonovan-l6e8 күн бұрын
I'm glad you are better. Love you're better
@LifewithaVentКүн бұрын
Thank you.
@DanielIssabey8 күн бұрын
I am at a 31 and was told it is not high, is that true?
@LifewithaVentКүн бұрын
I am not sure. It depends what the reference range is. If you are concerned about your results, please feel free to seek a second opinion.
@calebthomas54118 күн бұрын
I have two size of the HME I'm 30 I used the smaller size was wondering why I get dry so quick the bigger one feels wayyy better! I thought it was because of smaller air flow or something with the smaller size one LOL thankyou for the information!
@LifewithaVent2 сағат бұрын
Thank you for sharing. I appreciate the insight.
@clarkhedrick7209 күн бұрын
Here is how it is going for me in two weeks I had seen primary care doctor twice and 1 urgent care visit and been discharged twice from the hospital saying I had viral tonsillitis which was likely since I was in weak shape but I knew something was more wrong. I was admitted the third time after losing 7 pounds in a week even though I had only been eating 300 calories less. I have lost 21 pounds in a year from my all time heaviest weight of 130 and I’m not that short at 5ft 10in. I was admitted in the hospital the nurse was really heavy she ran me into a room and I had first an ultrasound nothing appeared then a ct scan without contrast and ct scan with contrast which showed SMA syndrome and a Nurse practitioner knew what it was but never expected to see it and she showed her colleagues and they were in shock and they brought 5 specialists of the same speciality and they were all in 100 percent agreement that this is SMA. I also, had mri scan with and without contrast and it showed up on those tests too. The worst part for me is that I can’t vomit easily so I constantly have nausea and it just sits and the cramping is agonizing and I can tolerate a lot of pain and I have tried the strongest anti nausea medicine and even that makes me nauseous. The problem too is my kidneys really work extremely well so I have to urinate a lot which would leads to dehydration normally but this makes this condition much harder because I’m drinking 5 liters of liquid a day and close to dying of dehydration according to lab tests and I was only given two bags of saline over a 3 day hospital stay. I been fortunate I can still tolerate eating normal food but with limitations and I cannot eat lunch so I’m forced to eat two large meals to keep up with my calorie goals which is 3,000 so I eat a 1,500 calorie breakfast and a 1,500 calorie dinner and in the meantime I have not only deal with the usual symptoms but hypoglycemia as well.
@LifewithaVent2 сағат бұрын
Thank you for sharing some of your story with me. I am sorry you have been through so much. I cannot imagine everything you have endured. I am glad you are able to still eat normally but with limitations. All my best to you.
@clarkhedrick720Сағат бұрын
@@LifewithaVent It has radically changed over the last three days and I’m down to two small meals and will require tube feeding.
@chillibilli142910 күн бұрын
Thank you. God bless you. I pray healing over you in the name of the father, son, and holy ghost.
@LifewithaVentКүн бұрын
Thank you so much.
@nancybentsen938111 күн бұрын
whats the difference bettwen oxgen and a ventt i use oxgen
@olddudesteve498312 күн бұрын
A little something extra in the TPN that day ? ❤❤
@LifewithaVent2 сағат бұрын
LOL!
@FullTimePatient3712 күн бұрын
Woah 2:34 what on earth! Hugs hugs hugs!
@LifewithaVent2 сағат бұрын
Thank you.
@FullTimePatient3712 күн бұрын
Can i ask if your breathing is better now? Am i seeing correctly that your lips are in cyanation? I hope you are doing better ❤
@LifewithaVent2 сағат бұрын
Yes, my breathing is better.
@olddudesteve498313 күн бұрын
😂😂😂 You’re so crazy 😂😂😂
@LifewithaVent2 сағат бұрын
Thank you.
@1213141516SX14 күн бұрын
Your explanations are excellent and very helpful. I also watched the suction part closely and I have a question to you. Did you ever try a tracheostomy cannula with suction port? This helps to remove secretion from above the cuff in regular intervals. We have designed a special portable aspiration device for automated subglottic suctioning. It can be set to aspirate for 10 to 60 seconds with 3 to 60 minutes pause time. Much less than the usual recommended 4 hours interval. Such short suction intervals prevent secretion leaking into the lung our out of the stoma. Reduces risk of lung infection and deep suctioning from the bronchial area. If I could raise your interest pls watch below videos on KZfaq: kzfaq.info/get/bejne/m9qPasxq0M7aZ30.html kzfaq.info/get/bejne/mrOBm7t-0JaoqoE.html
@svetlanasiber28815 күн бұрын
SLP here, and nobody teaches this better than you. Thank you for helping so many. I'll be sure to pass on your link.