I have high crp and esr levels, just paid privately for ANA blood test to see what's going on. suffering with major fatigue, joint pain in knees, achy legs, pain in neck and elbows. hoping its not RA as I've already had Cancer twice. 😢

Usually if someone has Lupus then we most likely have ms.cause it goes with it,

I have MS.and Lupus,

Thanks for this info

I have Endometriosis. Than came problems conceiving. Than Lupus. Scleroderma. Fibromyalgia. Osteoarthritis. Now they i have mixed connective tissue. I am tired because it feels like i am sick since i remember 8/9 always something wrong. Oh also have Methyl gene problem. So there are no treatment options. They just treat symptoms and if I get extremely sick i get bunch of steroids pumped up that’s it. Now in my 40’s feels like giving up everything and forget about medicine 😢

Thank you

Low dose naltrexone is effective for sjogrens. Check out LDN research trust on KZfaq. Will give you information on LDN. My rheumatologist did not tell me about this . NHS U.K. will not prescribe this . A private prescription is necessary. LDN helps with the inflammation associated with Sjogrens . Dry eyes and mouth so much better now . On it 6 years

Cut to the chase if you’re busy and go to 11.45 of this interesting video There are huge amounts of money made in the manufacturing of medications to treat this disease so a cure as with so many health conditions is totally counterproductive to business and shareholders I strongly advise deep massage with oils and keep your hands active and mobile mobility is key avoid clenched hands for long periods also read comments from people who are successfully treating themselves Good luck

No one single video on KZfaq tells/explain the Difference a Negative or a Postive outcome AFTER taking this test. How hard is that?

I know this doesn't relate to getting good sleep and darkness but the opposite--bright light is also an issue. A note to all rheumatologists in general and their office lighting. One of the worst and last appointment to a former RA (here in San Antonio) was when I was left in a waiting room for 45 minutes with a ceiling full of fluorescent lights. I had to sit there with my sunglasses on. For some funny reason the field around these kind of lights can affect the immunocompromised. My suggestion is lowering the intensity of office ceiling lights and perhaps use lamps. Plus, I always carry a hat, sweet dreams!

Thank you Dr. Ortiz for discussing the importance of sleep. Yes, getting good sleep is key, it really makes a huge difference, dark and quite is a must. My husband likes sleeping with a fan blowing. I have Sjogren's along with the dry eyes and mouth. A fan blowing on me dries out my nose, mouth and yes, even my eyes closed shut. We sleep with the fan on his side and two pillows stacked sideways between our two regular head pillows. The two stacked pillows divert the fan wind from landing on me. I also sleep with an eye mask and ear plugs, yeah it works.

I have swan-like deformities, Heberden nodes, edema, swelling that won't go away on my legs, hands, and ankles, flaky skins on my legs, my left side is much larger than the right, arthritis, and I am using a walker and have a power chair. My CCP came back as a weak positive 23, my RA Factor came back as a 47, but my ANA came back negative. What does this mean?

So rest and take ibuprofen. That's really not helpful. People have jobs and kids and can't just sleep all day. Plus we are all basically living on ibuprofen already. Just another well meaning but completely patronizing lecture that ignores the reality. How could you maintain your career as a physician with these recommended strategies?

Know one believes me,is what i think,what doex ASA 2 mean please?

Why did you feel that you should take Dr "Jones" off NSAIDS if they were helping him???

The video has value but the music is toooooo loud in the background and is distracting. Thx

Based on the results of many blood tests (8 vials) and my physical symptoms (pains in right arm muscle, (I am left handed)), shoulders, back of right hip and behind both thighs, I was diagnosed (by my new Rheumatologist) that I have PMR. I do not like taking medication. If I was your patient what meds would you suggest I start taking that would have the least amount of side effects. I prefer to only take over the counter stuff such as Tylenol, IBU, and/or Aleve. If these pills work to remove pains in my body, is there any reason that you can think of why I should be taking some other type of medication? Please let your response be based on the premise that you agree with the diagnosis of PMR. I am just asking for your opinion and realize you are not my doctor, etcetera, etcetera. Thanks.

Thank you for this video..and ALL of your videos, they remind me how important it is to care for myself and what to do and not to ESPECIALLY when I’ve reached my physical & mental limitations

EXCELLENT

Over the years I have noticed that my body doesn’t tolerate cold / cool air around me , there’s no way I would get to sleep in a cold / cool room 🤷‍♀️ It actually keeps me wide awake 💁‍♀️ My body , room & bed must be warm , cosy , toasty , heaps of layers 🤷‍♀️ The cooler / cold weather is the worst for me , my body goes into severe pain , inflammation , tension , shock ! 🤷‍♀️ I cannot even breath cold air I get sinus & head colds ! No wonder bears hibernate during the winter 🥶 25 + is comfy & relaxing 😌 Ty

I tried it but had to go off because the delayed stomach emptying stopped my hydroxychloroquine from working. For all the “benefits,” there are serious downsides that don’t get enough press.

I was prescribed this for poison ivy to take for 12 days, is it dangerous? They started me at 40 mgs and tapering down to 20 then 10.

Thank you

My ana and double strand was positive in 2023 now my ana is negative and my double stand is positive my Rheumatologist still does know what's going on with me

It’s so depressing because I can’t even get in to see a rheumatologist😢 I’m living with the symptoms and it affects the quality of my daily life. My NP ran ANA and one came back positive. They did another with a panel. She said you do not have an autoimmune disease. It’s so hard when living with symptoms that has changed the quality and be told you’re fine. Any recommendations? Could an internal medicine doctor help?

It’s so depressing because I can’t even get in to see a rheumatologist😢 I’m living with the symptoms and it affects the quality of my daily life. My NP ran ANA and one came back positive. They did another with a panel. She said you do not have an autoimmune disease. It’s so hard when living with symptoms that has changed the quality and be told you’re fine. Any recommendations? Could an internal medicine doctor help?

Treatments?

I asked my rheumatologist if it could be possible that my arthritis was seronegative (not detected by bloodwork, but have multiple symptoms). He told me there was no such thing.

Lemme try you on my scenario that every Dr. I've seen can't figure out or it's too much for them. Umm.. there's certain stuff I'll just leave out but overall healthy individual who was 27 passed out first time in my life and went from there. Currently, I've been diagnosed with no cortisol which led to Addison's disease, and then in a span of 2 to 3 years over 95 kidney stones with prob. 35 lithotripsies, WPW 2 Ablations- 2nd Ablation led to 7-hour surgery massive heart attack left ventricle collapsed ends with stent and sent on my way, then diagnosed with heart failure which my eject. Infarction is 33% right now, most recently double kidney failure- on slow dialysis with them digging the clots out of the tube in hospital but didn't have to have permanent dialysis. There's more but that's the basic then my PCP ran the RA panel and I came out with this disorder. What's one question I could ask to help advocate for myself? Im now 34 dont look sick can play it off great until I cant. Anybody that may have any insight?

I was just diagnosed with MTCD and have felt very lost as to what is going on. I have done lots of research but it only seemed to confuse me. Unfortunately my rheumatologist is not as forth coming with information and feeling of hopelessnes and feel lost has increased. I want to thank you for this video as it's made me feel less lost and little more aware. THANK YOU

Can somebody answer what does a negative Ana ifa/ cytoplasmic staining present mean?

Why I don't trust doctors. They no longer perfect their diagnostic skills. They push drugs. Hand in hand with Big Pharma, they are responsible for the decline of medical care.

Thank you so much for this his video. My daughter in law is suffering terribly with many of the symptoms you talk about here without a definitive answer. I now understand that at any given season the driving force can change. God bless you!

I have had the symptoms for over 35 years. Not being to straighten up when bent over. In my family my father and aunt and my aunts daughter have it, and now me.

I had positive ANA. Was told in 1994 I had Lupus. In 2017 I got extremely sick. Pain, vomiting, couldn’t eat etc.! In 2018 I was diagnosed with Celiac Disease. My ANA is now negative.

I'm a bit new to this. Walking on my cold tile floor can do it to my toes. I need to wear slippers at home. My doctor sent me to see vascular people, which makes sense to me. I'm not sure how rheumatology is involved with this.

I was just diagnosed with PMR this morning.

SA needs 100% Safety and Security, World Class Education, Justice Fair and Equal but Applied Fully, Health and Hygiene, Free Enterprise without restrictions on any one..... the economy and the rest will naturally follow.

I got ANA pattern golgi apparatus and no one seems to know what this means. I have so many symptoms.

Totally worthless advice for she gived no excact advice about bad, and good food!

You don’t mention it, but it includes Zepbound also right?

I was diagnosed with dermatomyositis at the age of 5 and spent 11 years fighting it. I'm 30 now and I'm showing symptoms again. I go to a new doctor soon to get tests done. They never did a muscle biopsy on me, I guess because I was so young but I had the rash and weakness at the time.

I have quadriceps tendinitis/ quad muscle pain near the knee and I was prescribed 10 mg prednisone tablets PO - 1st three days take 4 tablets once daily , next 3 days take 3 tabs once daily , next 3 days take 2 tabs once daily and next 3 days take 1 tablet once daily - 30 tablets for 4 weeks (12 days ) - is this safe from side effects??? I am Type 2 diabetic taking Lantus once daily - my last A1C was around 7.5

Regular bee stings in summer help I reckon.

I’m wondering about the interaction between Semaglutide and the typical medications we take for our autoimmune disease such as prednisolone and immunosuppressants such as Mycophenolate Mofetil. Semaglutide can have some unpleasant gastro side effects as can MMF (from personal experience) and steroids. I am interested to know whether taking everything together would just cause gastrointestinal overload, resulting in not being able to tolerate Semaglutide.

Eating carefully and exercise on whatever level seem to be the better way to go.

I have Gastropareis and right now I am suffering from constipation. The Monjaro which is the same as Ozempic Made the constipation worse. I can’t remember if it made my lupus systems worse because I was in so much in my whole body at the time .

I tried once during the pandemic but unfortunately had to stop due to the pain and inflammation I experienced after every injection. I would have zero energy and full body pain for 2-3 days after every injection.

I am not seeing this virtual hand therapy app link. Could you please repose it?

OA can affect another part of the body. The nerves and spinal canal. It can be debilitating enough to cause disability.