I really need help with medications. Thinking of going to Nashville. Where is the best place to go. .

Bad last three nights. Only get to sleep at 5am. Its so awful.

I take Licorice Peony pills (Chinese herbs) and Magnesium Theonate. They gave my life back to me. I believe the RLS was the result of a no-taper withdrawal from Wellbutrin (anti-depressant) after 3 months. RLS was so bad it actually crossed my mind to paralyze my legs.

It’s hell. All I have is cbd right now and I’ll get medication hopefully in a few days.

Well that just made me weep. Is there no hope….no cure? I can’t go on like this!

I have had it for over 20 years. I have self-harmed to distract from the horrible sensation. I can't work anymore. To fellow sufferers - you are not alone!

I have exactly this terrible sensation in my feet most night specially if I eat late

Have you guys thought about giving this poll to Fire and rescue companies?? I was a medic for 18 years and now I believe that most of my diagnoses are due to my lack of sleep from being a medic. I was EMT-B of the year in 2004. I have RLS, and OSA, and positive I have ADHD but was never diagnosed due to a lack of doctor care and lack of parental education regarding ADHD. ADHD was our normal part of growing up as well as country living. I had ADHD as well as about 10 or more of our elementary school class. We started school in early 1971. We had a group called the enrichment program. We were all taught our alphabet early and how to count and multiplication tables before going to the Head Start program at 4 years of age. The summer we graduated 6th grade I was the only student to attend Gallaudet College to learn more sign language so that I could translate for a deaf student transferring to public school middle school through high school. This was from 7th grade through 12th grade. I would do the first 10 minutes of my class and then go to her class to translate for her/ I was the only student to receive a dual diploma in our school. I received my diploma in 1985 and a dual diploma for translating for her. I am the only student who received a dual diploma in the county in the history of our school system. I have always been an overachiever and I also learned Spanish in high school and still currently translate for many Hispanics in my area for students and adults to help them integrate into society and employment for Hispanics. Also, I remain in contact with the student that I did ASL for. Also, I translated Spanish from Mexico instead of Spanish from Spain. Currently, I still speak Spanish daily and have learned 5 dialects of Spanish. I speak Spanish daily as well as English. I use ASL several times a week to communicate with my friend from school. I am still an overachiever even though I have now been diagnosed with multiple sclerosis and I am currently at the age of 57 I am in a manual wheelchair. I also am currently on disability and have had several operations such as a spinal fusion from a car wreck in 2012 as well as a total left shoulder reverse arthroplasty in 2017. I now am currently thanks to this 2016 webinar am currently questioning my MS diagnosis and am currently also in touch with doctors to help me with my sleep issues. I also take a multivitamin and I also take Iron 65 mg daily, D3 250 mcg daily, Magnesium 500 mg daily, B1, B6, and B12, I am also currently taking Ropinirole 1 mg with 2 mg q morning and 3 mg q night. and have been for 24 years, and also taking Baclofen 20 mg q morning 1 20 mg q afternoon, and 40 mg q night, and amitriptyline 25 mg q night. I currently am also sleeping 2-3 hours and am awake for 5-6 hours and repeat several times in 24 hours. I also use daily the Walmart brand of Bengay several times a day on my SI joints and take Aleve back and muscle pain relief. My SI joints get inflamed a few days before it's gonna rain and my saphenous nerve starts zinging and my RLS gets out of control with spasms a few days before it rains. My RLS is very out of control and my RLS changes from my right leg to my left leg and it starts out in my foot and then goes to my knee and is followed by my hips. I now understand what you guys mean now about the ropinirole being the cause of my RLS. My doctor has told me to stop taking my ropinirole but is also unwilling to prescribe anything to replace the ropinirole. I am wondering if the ropinirole XR could be comparable??

It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.

It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.

It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.

The only way I can get any relief is to inflict pain on my feet, I use one of them spiky massage balls and roll my feet on it, try it you will get some relief.

PLEASE READ BELOW…Effective treatment!! I had developed severe RLS augmentation all over my body after taking Ropinirole and Gabapentin for multiple years. My quality of life suffered so much that I was constantly thinking about suicide I found an RLS specialist neurologist who prescribed Methadone 5mg, this was a miracle treatment for me. I take it one hour before bed and it 100% removes all my symptoms. This has saved my life and I can now sleep well for the first time in over 15 years. I’ve been on Methadone for 4 years with no side effects. I know how terrible this disease can be, please ask your dr to prescribe you Methadone if nothings else works. It will change your quality of life.

Thank you so much for your work. 44:33 I dont have RLS when i'm sick (fever). And i've RLS EVERYDAY. So I confirm.

Thank you!

Horroble ! Threre is no awarness onnat desease ! Its so Bad.

Where is the research ?

Unfortunately, opioids are the WRONG thing to do. RLS is the result of chronic endorphin depletion. That is easily and quickly reversed with low dose naltrexone. If you stop, it simply comes back, but people generally feel better with improved endorphin levels. Thats my experience in over 10 years of research into endorphin depletion syndromes and its reversal. Not only that, but low endorphin levels means you lose much of your cellular immunity making you even sicker. Narcotics are an admission of physician ignorance, diagnostic failure and effectively predispose the sufferer to significant risk dependency and expense. Not only that, continued narcotics use further diminishes endogenous endorphin production and nowadays, doctors wont prescribe narcotics without expensive testing and frequent office visits, leaving the sufferer even worse off than when they started. IN MY PROFESSIONAL OPINION, TREATMENT OF RLS WITH NARCOTICS IS MALPRACTICE.

Where is the solution ?

Here because I'm having augmentation after being on ropinrol. UGH, it's worse than ever.

Sharing PERSONAL experience in hopes it may help someone with similar RLS symptoms: I have a moderate case of RLS In calves. A YT video by a PHD, not MD, was a HUGE help for me. He said some causes of RLS are low potassium & dehydration & added that antacids block potassium absorption. Suggested using a HIGH dose potassium powder 1000mg. (Can find on Amazon) Self findings: I must DRINK LOTS OF WATER, cannot take antacids. CBD based rub (roll on) relieves symptoms. BEWARE of dopamine receptor agonist drug treatment!!! Unless you want to chance the potential loss of impulse control very REAL side effects. SERIOUSLY!

I am crying after watching these videos, have had RLS all of my adult life and am 71. Iv'e been through every test, jumped through every hoop and med (RopineroleER) is augmenting leaving me no options except gabbapentin. I'm just so tired, I know what the feeling is to want to give up. It does help to know I am not the only one. My maternal grandmother and 5 aunts had it including my mother. The name we called it "jimmy legs". Finally found a doctor who believed me because his wife also had it. It is a insidious disease.

I feel you. I, too, have restless legs syndrome. You have described it like I haven't been able to. I have noticed lately that I have been having trouble occasionally holding a pencil ( I love to colour in) I never would have put imthat down to RLS. I have noticed some of the same sensations in my arm of late. Thanks for sharing your story.

I have been wondering why I haven’t been able to fall asleep since I turned 22 without drugs, maybe I should get this checked out with a proper sleep study. Sometimes even with the drugs it takes me straight up 3 hours to fall asleep. Sometimes it feels like I didn’t sleep at all.

I have mild symptoms, but I describe it as similar to an itch, that is similar as a non-painful sensation in a particular body spot that is very distracting, like a itch is. An itch is relieved by scratching it. RLS symptoms are relieved by moving the body part with the sensation. But like a persistent itch, the sensation immediately returns. If one is trying to sleep, it can become impossible to drop off while having to move one or both legs every few seconds. Growing up, my mother had the same symptoms. We called it "the jumps". It was much later in life that I learned it was a medically identified condition.

It's in my knee joint. An unbearable urge to move the joint. So I'll Jostle my leg, extending it in and out half a dozen times or so trying to relieve that awful unrelenting feeling. It often doesn't help and it comes in about 30 second intervals. The awful urge to move the leg never entirely goes away in thoes 30 second waves. It might lesson a bit, but rages back in about 30 seconds. This can last for several hours or more. I used to get it in my elbow joints too. But I haven't had elbow RLS in some time. I'm a male and physically fit. I have Always been naturally athletic. I'm not over weight, don't smoke and only have a few beers on Fridays. I've suffered with this since I was in my 20s.

many thanks! I've suffered from what I now think is rls since1990! I've been accused of wanting attention,wanting to be a drug addict, and faking. In 2000 I was told that my leg problem was due to fibromyalgia. my doctor prescribed tramadol in 2005. I've had increased pain for about 6 months now.I think its augmentation. I stopped tramadol (and benedryl) last weekend. and its been hard. I see my primary care Dr tomorrow. because of this webinar, I now know how to explain what I experience every night. I have hope! many many thanks!🙏

As crazy as it sounds, I believe there's something in the chemtrails causing it.

I have RLS and. It is in my legs and my arms too. I feel like screaming sometimes.

I was a fidgety kid. I remember my mom getting very irritated with me, grabbing my legs, and hissing “sit still!” I was unable to explain that it was almost painful to try to not move, to stop fidgeting. It wasn’t until decades later, after treatment for psychiatric illness, that the nighttime rls started. And now added in is post menopausal hot flashes. Sleeping is a precious commodity.

I'm experiencing augmentation right now. I actually just requested my dosage of requip be increased by .5mg. Going to explore alternatives to that medicine now.

Hello, I am an 73yo Australian female, a long time sufferer of RLS and it is genetic in my family as most of my sisters and brothers are affected by this horrible disease. I am on Sifrol and experiencing augmentation and concerned that my GP will increase my dosage. I am frustrated by the lack of knowledge about RLS in Australian GPs, so I was mpressed with the information gained in you video and I am wondering whether there is a branch of your foundation here in Australia. Failing that, is it possible for a non-US citizen to join your foundation? If so what is your email address, I need help. Thank you Leintje Cusmano

Suffered first episode at age 15. Full blown RLS every day of my life started at age 28 😢. New Dr. I saw last week said she wants to “wean” me off Requip! Calmly I sat because I know I’m not seeing her again. Thanks for sharing your story.

Kratom was the only thing that relieved 100 percent of the rls

OMG...I must try this. To get off nightly medications...Ty, ty, TY

My 11 year old has not been to school in TWO months, she has RLS all over her body! It's so bad she has massive involuntary movements similar to tics but worse a lot of the time. It's stolen her freedom. Sometimes we have to feed her because her arms and hands are so effected. Her WHOLE body is effected every single day and night she suffers. We need help... we are swimming up stream with these doctors, they don't get it.

I've got rls my dr remembered I had low iron levels 12 months ago and he said start taking iron again and it fixed my rls thank goodness

I explain it:"Imagine you feel like you have an intense itch deep in your leg muscles and the only way to scratch that itch is to move your legs" I feel that at least conveys how all consuming and disruptive it feels. Its not a pain per say but an extremely uncomfortable sensation that demands an action to feel relief. It's like trying to sleep while ignoring a super bad itch

I hear you my dear. I got it now in all extremities and I'm going through hell at nights as the drug PRAMIPEXOLE had turned into augmention... I wish

5 tryears ago- since then they found that parmipexole makes it worse. Gabapentin, but was taking it for years before the RLS got bad. And Rhus Tox which I've been taking for my fibromyalia for years. Oh, I have a tens unit- bought it for back pain but couldn't reach where I need it. Can I use the tens device with my varicose veins.

This was very helpful thank you for posting these webinars.

😢. My RLS is awful. Morning. Noon. Night.

I hope you got help, but I really hope you call Anderson podiatry in Fort Collins, Colorado. Restless leg syndrome can be cured with a nerve decompression surgery. I just had it done October 5th, and I am completely cured. Dr. Anderson has been curing patients of RLS for years. Just go on his You tube channel. All your questions will be answered.

I had never heard of RLS, but I know about it now. For the last year, I've been sleeping about 3 hours a night - off and on and during the day when I'm at work, I have to take Ropinirole but I'm now taking more than I'm suppose to and it takes forever to work. Iron infusion seems to be what the doctor thinks might work. I took iron pills for a month and it didn't do anything except constipate the heck out of me. Believe me, I'm no sissy, but this is just about more than I can take.

Worst thing ever and i have a terrible doctor who is not interested in it and doesn't care

Are there any effective physical therapies?

Isn’t it obvious that low dopamine causes depressive symptoms? You need to make a distinction between symptoms brought on by problems with dopamine and problems with serotonin. Recently it has been found that low serotonin isn’t necessarily the culprit when it comes to depression. Personally I find that any form of serotonin makes both RLS and depression much worse. But I also don’t tolerate dopamine in drug or supplement form so it’s complicated. I just know that I feel more driven when my dopamine is up. Recently it has also been found that social anxiety is probably caused by high serotonin. You mention anxiety but it’s a nebulous subject matter at best. I feel an agitation in relation to the RLS that I think could be labelled anxiety. But I don’t believe I suffer from an anxiety disorder despite what doctors would have me believe. So please try and deepen this subject a bit more. This was a rather shallow presentation though I’m glad at least some issues were brought up.

Medicinal Cannabis works a treat for me. About an hour before bed and some Magnesium Powder.

28:35 - I have Akathisia, which is a medication injury from taking psych drugs AS PRESCRIBED. Akathisia is the most horrific side effect/iatrogenic illness in existence. Akathisia is often described as not being able to sit still, having the irresistible URGE to move, extreme restless agitation. It also includes the INNER mental/emotional agitation, terror, and extreme anguish. Having a doctor willing to LISTEN, and LEARN and prescribe an opiate treatment HAS SAVED MY LIFE.

Please advise your Email Thanks Kahn