Sorry about your condition. Mitochondria is not a life sentence. The male and female body's has different and specific times when precursor, NAD is produced in adequate amount to activate and replenish the.mitochondria, the medical fraternity is not aware of this fact.
@shauntayecooper94894 күн бұрын
This is lovely videos
@TheMitoWarrior4 күн бұрын
Thank you!!
@user-or4ru7qu3p7 күн бұрын
Hi my name is Imre. You probably won't see this but I hope you do. I also have mito. I was diacnosed when I was 9 years old and I'm 15 now. I love your channel I love watching people with chronic illnesses that is more or less in the same shoes as me. My heart and intestines is effected. I have low mucle tone. I'm always nauseaous and most of the meds you take I take. I have a feeding tube and a port a cath. Me and my dad watched you before and he really likes your channel and I'm a new subcriber. I'm still going strong.😊❤ Thank you for posting and keep up the hard work and never give up. You are special in your own ways. 😊❤❤❤
@TheMitoWarrior4 күн бұрын
Hi Imre! Your comment made my day! Life with mito is really hard and I really appreciate you sharing a little bit about how you're affected too. It's good to know none of us are alone. Thank you for watching my channel that always means a lot!❤️
@MackG77714 күн бұрын
Had my 4th episode in the past year this week. Worst one ever.. full blown stroke symptoms. Couldn't speak, left side completely dead and aura all at the same time. Lasted what seemed to be 6 hours and set in the ER for 12 hours. Hoping for a cure. I changed my diet and am strict with it. I don't even drink caffeine anymore. Hopefully it will go away. Praying the same for you kiddo.
@meaganladewig510116 күн бұрын
How come doses are always increased, can you not just stay on a low dose if it's working
@GoFishOffice29 күн бұрын
Looks like a lot of fun ❤
@shauntayecooper948929 күн бұрын
I hope you have a great vacation
@TheMitoWarrior27 күн бұрын
Thank you!
@raybod177529 күн бұрын
Glad to see you can travel to enjoy the great outdoors.
@melissacooper8724Ай бұрын
My doctor just prescribed me Zoloft. I hope it will help me with my anxiety.
@helpholocaustsurvivors3480Ай бұрын
great contant please please continue
@pumpkinknappe2835Ай бұрын
I started taking CoQ10 and Carnitine on advise of my neurologist. It didn’t feel like it helped at first until I stopped it for a surgery and I got really sick. The hardest part is finding CoQ10 that I can take down my GJ tube. Have you found any liquid brands?
@puddlesplasher710 күн бұрын
I dont think i can put the link in KZfaq comment, but Now Foods makes a liquid CoQ10... I've used their version, and many others from them, and their supplements are good quality.
@GoFishOfficeАй бұрын
Thank you for the updates ❤. Calling it feeling potsy is so cute, I might use that... being I deal with POTS also 😊
@cierracunningham4454Ай бұрын
Hey hun are you still taking Zoloft I started taking 25mg for a week on June 14 this year and went up to 50mg about a week ago I’d like to know how it’s going for you ❤
@bby_jaquelinАй бұрын
How is it going for you?
@TheMitoWarriorАй бұрын
Yes I'm still taking it and it's going well. I don't have any side effects that I notice, and it has continued to help stabilize my anxiety. I'll be on it 3 years this October. I hope it's going well for you❤️
@andrealeobons2 ай бұрын
I’m always happy to see you are stable. I have talked to you one time here, you gave me an adorable long answer. Those of us who are sick know how difficult it is to be consistent. Don’t apologize so much, we know the struggle. :) It is amazing that you post at all! 🥰 God bless you.
@stefs34602 ай бұрын
Thank you as always for your helpful posts!😃 I also find that missing Coq10 dose makes fatigue worse, also for me vitamin D vitamin Bs and Folic acid super important since I always seem to be low. My heart is giving me some trouble with tachycardia arrhythmia lately, hopefully can get that settled down soon. May I ask do you also use CPAP? If so has it been helpful? So far I am not finding it helpful.
@TheMitoWarrior2 ай бұрын
Aww you're so kind! No I don't use CPAP❤️
@emilycarey76672 ай бұрын
I’ve never heard someone explain this horrible mito episode so well -
@emilycarey76672 ай бұрын
And the DW pillow- Mitochondrial disease patients who are also doctor who fans…… Start club?
@TheMitoWarrior2 ай бұрын
Haha stop that's the best! Who's your favorite doctor?
@emilycarey76672 ай бұрын
@@TheMitoWarrior Capaldi
@emilycarey76672 ай бұрын
I’m see that CO-Q-10, sister!
@mjclaudianava53972 ай бұрын
Hi, I am in love with a guy who has mitochondrial disease. I met him through a dating app. I want to know the chances of this disease being passed down cause he is rejecting my love due to his anxiety
@TheMitoWarrior2 ай бұрын
Hi! It really depends on the kind of mitochondrial disease he has. If he doesn't know, it's best to consult with a genetic doctor about it. And if he's rejecting your love due to his anxiety all you can do is be there for him. ❤️
@belleringr63773 ай бұрын
อืม
@mostafamosly61423 ай бұрын
Thank you for sharing..you're a fighter and faced it all.This is so inspiring for me.
@TheMitoWarrior2 ай бұрын
Aw thank you. That's very kind💕
@sharmainholtzhausen66983 ай бұрын
I am from South Africa, my 10 year old daughter had a Hemiplegic Migraine attack on 26 February. Life has been different for everybody since it happened, she struggles with everything, reading, studying, playing sports, talking, remembering things. She used to be this active, very clever and outspoken child, now is she is someone else. She also has a lot of mood swings, and sometimes it feels as if she has 3-4 different personalities. Thank you for your videos, I just found them an will let her watch it, maybe it will motivate her.
@sarahosborne74773 ай бұрын
How are you feeling now?
@GoFishOffice3 ай бұрын
Always fun to see you. Thanks for the updates
@FullTimePatient373 ай бұрын
Wow 10:32 hugs that's rough
@FullTimePatient373 ай бұрын
Welcome back Hailee and happy birthday 🎈🎈🎈🎈
@shauntayecooper94894 ай бұрын
Hello how are you doing happy birthday I hope you have a fantastic day
@TheMitoWarrior3 ай бұрын
Hi! Thank you! I'm doing good how are you?
@shauntayecooper94893 ай бұрын
@@TheMitoWarrior I am Ok
@angiemarquez064 ай бұрын
Hi
@TheMitoWarrior3 ай бұрын
Hey!
@pumpkinknappe28354 ай бұрын
Ayyyy happy birthday!
@TheMitoWarrior3 ай бұрын
Aw thank you!
@lisahooper75784 ай бұрын
Can you please share your current treatment for hemiplegic migraines. Thx! My daughter suffers so badly.
@TheMitoWarrior3 ай бұрын
I take L-Arginine which is a over the counter supplement. That's what helps me primarily.
@mr.cmr.c38554 ай бұрын
You're very brave and its admirable to see you share this very personal experience with us. I'm loosing my transplanted kidney after being on dialysis for over 7 years. The amount of stress, anxiety and misery I've been through is too much. Now I'm facing the fact that I'll need another transplant. In my area the southeast, its the worst for finding a cadaver kidney. So basically, unless I get a living donor I'll be faced with going back on dialysis. I cannot handle doing that again so I'll be gone when this kidney finally fails. With all this going on, I've decided not to go on Zoloft. I'm opting for CBD oil and I'm hoping I've made the right choice.
@msonation13104 ай бұрын
I’ve been suffering since I was 16, they can’t tell me what’s wrong I’m 18 now these are hell
@garyssimo4 ай бұрын
Getting sun on our skin in moderation fuels our mitochondria. Honey...please go out in the sun. Im 71 working my butt off as a gardner. When i forget to take 200 mg co q 10 I really can tell. Carnitine is in all meats. I get GREAT prices on Piping Rock and Sansons sales and buy one get one free which they both offer.
@garyssimo4 ай бұрын
look at bright light as soon as you wake to sleep better. its NATURAL melatonin made by nature
@michaozga78254 ай бұрын
It’s my 15ty day and I keep waking up at exact 2 am everyday. I’m worried
@TheMitoWarrior4 ай бұрын
Reach out to your doctor/psychiatrist. There's a chance zoloft may not work for you but something else will and that's okay!
@zonyacak41284 ай бұрын
I've been diagnosed last week. I'm afraid to go out. Can you live a normal life?
@TheMitoWarrior4 ай бұрын
Normal is all relative. But truthfully, you'll have to adjust things and make sure you are taking care of your body, and possibly try out medications to help symptoms. But besides that, you can still live a beautiful fulfilling life. I know firsthand how much a diagnosis like this flips your world upside down and makes you feel life will never be the same. And in a way it won't. But you are more resilient than you think. (trust me) Give yourself space and time to process all the emotions. But don't let all those emotions keep you home forever. It's really hard in the beginning but you will find your footing even if that seems impossible now. You can absolutely live a really great normalish (like I said, normal is all relative) life❤️
@Bsvst.50304 ай бұрын
These drugs cause mitocondrial problems
@Bsvst.50304 ай бұрын
Your doc warned you about PSSD?
@marieswearingen86784 ай бұрын
I know this was 5 yr ago but in case you see this, thank you for being brave I was diagnosed with this about 9 months ago ago it’s a scary disease but not being able to find information about it is worse. I hope you are doing better by now I am just starting my journey , take care of yourself
@TheMitoWarrior4 ай бұрын
Aw thank you for your comment❤️
@zacharycox20144 ай бұрын
Thank you for the video. I have been struggling with this for 4 years. Going to doctors and them dismissing me as imagining the symptoms. I just got an MRI done and it was normal and my doctor said its likely hemiplegic migraines. Gping to a neurologist hopefully soon.
@lfgnelkwlgnl48235 ай бұрын
You are in no position to recommend therapy. Why identify with “your” anxiety? These are classic symptoms of malnourishment. I had them too. Are you consuming any amount of processed food? Are you consuming any amount of salt? You shouldn’t be. Are you consuming lots of fresh fruit? You should be. If you are getting these absolute basics wrong, be honest with yourself and admit that you are choosing the easy path of depending on toxic, harmful drugs for the illusion of feeling better. Your body is trying to alert you that something is wrong. Listen, don’t suppress it!
@ShiftNudgeАй бұрын
Everybody should try therapy and everybody should recommend trying it.
@Kiwifruchtbanane4 күн бұрын
Oh my god. You can't be serious. 😂
@justlooking86835 ай бұрын
Thank you,brave young Lady.
@queenofcheap63105 ай бұрын
I totally understand about the people who give you 'advice' & really mean it. Like it will stop our Mito just like that. I had a 2 month stay it hospital up in Sydney, Oz & this lovely lady had seen me about the hospital, she was holding a big cup of green stuff so stopped me for a chat. I told her what was wrong with me & she said this green drink with help me & stop the disease. She said 'here, take this one, I haven't had any yet'. I said no thank you but she was insistent so I took it with thanks. I went & had a sip & it was celery juice!! It was so terrible & I like celery itself but not the drink. LOL. It's so hard not to laugh sometimes as there is nothing wrong with our brains! 🤣
@TheMitoWarrior4 ай бұрын
Stoppp, celery juice sounds nasty! It truly is hard not to laugh sometimes😂
@queenofcheap63105 ай бұрын
I have these 'attacks' & I've never heard of a Mito crash so thank you so much for wording things that I understand. I'm a Mother of an adult son who has CP so I have spent many years looking after him until I was told I had Mito in 2012. I was 39 years old & a nurse so everything went out the window. I haven't worked since then which has been my biggest unset as I loved caring for people. You are a lovely young woman & I think (sadly) that as you have had Mito for most of your life, you don't know any other way to live. That's what my son says about his CP. He says 'it's his normal'. I wish you all the best, from Australia, Helen 🦋
@TheMitoWarrior4 ай бұрын
Aw thank you so much Helen❤️
@Kingdaniel11315 ай бұрын
HELP!!! how do I get help with these types of migraines
@GunijansFamousQuote-st5ed5 ай бұрын
we are waiting your next video Friend ❤️
@arandomqueerfanpeep76555 ай бұрын
I'm starting to suspect i have hemiplegic migraines, and am going to bring it up to my doctor soon. I've had chronic migraines since at least 5th grade, and the hemiplegic symptoms for at least a few years now. (Not sure on the exact timeline bc bad memory and i think the symptoms are getting more intense over time) Most of my symptoms are as bad as they could be, ie, no blindness or paralysis, and speech issues aren't so bad. But the one symptom i can't deal with is the falling. I'll be fine one minute, and then my knee buckles and im suddenly sitting on the floor or clutching the nearest piece of furniture. It sometimes gets so bad i can barely walk. It would be more manageable if I didn't have so many migraines, but weather acts up? Migraine. Period? Week long migraine. Bright lights? Migraine Hopefully the doctor can help and i can get a job again without scaring the sort of customers who get concerned when their cashier is replaced by a bag of potatoes, but we'll see
@annacooper12995 ай бұрын
Sorry for your loss take all the time you need
@TheMitoWarrior5 ай бұрын
Thank you❤️
@HimAnshNA5 ай бұрын
it's really terrifying, you doing your work as usual and Normally and you suddenly get, lil symptoms are starting, you start to be worry and can't do anything but watch it getting worse and you get a Hemiplegic Migraine attack, i do not stress and not be anxious anymore but still i am living with this fear, we don't know where i be what i am doing when it attacks we just can't explain ourself, and it's even hard if we try to tell this to someone who have no idea what we facing , while having trouble in talking words properly. this is very scary. i just wish i always have someone with me who knows about this problem whenever i am going through those attacks.