You may be familiar with this product already. It's a shower wheelchair. It's made out of PVC, and the seat of it is designed like a toilet seat where a hand-held sprayer can shoot up from underneath. The wheelchair has small caster wheels on the legs. So you sit the person down in it, and wheel them directly into the shower, and you can pivot the chair during the shower to any position you need. When the shower is over, the person can be wheeled out, dried off and wheeled into the other room. The wheelchair can be wiped down and put away. I don't think it is collapsible. It doesn't rust as it is made from plastic. I found one in a thrift store one day and I told a man who cared for his wife this way about it, and he was desperate and ran up and got it the same day. He told me after that it made his job SO much easier.
@annealbert949013 сағат бұрын
I also noticed with my Dad that hypersensitivity happens . Water becomes painful . Especially if too hot or too cold. Nerves are damaged . Warm water helped or just washing with a warm cloth and a tub of water . I also noticed he still got embarrassment. Covering up a private body part helped too . Putting on favourite music helped to distract too
@JohnvanGurp41 минут бұрын
@@annealbert9490 thanks for your comments. I really haven’t looked into it to any degree and I never thought about the changing sensitivity of nerves. It totally makes sense! Long before diagnosis, Heather was already exhibiting signs of odd, thermal regulation, by wearing coats when it really wasn’t coldand really fussing over household temperature and car temperature etc. it all follows. Luckily I don’t have any concerns with the nakedness and privacy and she has no problem with me being right there in the shower with her and helping her clean. Thanks again for the comments, I really appreciate it!
@toryberch14 сағат бұрын
John I went back to some older videos and Heather has a beautiful voice she seems like she's in the beginning phase here? Not sure but I'm glad she got to enjoy her time out 👍
@JohnvanGurp3 сағат бұрын
This is just eight months ago in September 2023, so two years after diagnosis. A walk like that would be impossible today and even that amount of vocalization and speech is completely gone. The rate of change is just staggering.
@toryberch15 сағат бұрын
Yep as a Parkinson's patient with dementia you got it right with the time n space thing. I can't walk through a door frame or turn a corner without hitting the wall lol and I fell 3 years ago and broke my right ankle and 3 mid toes just from stepping down to the ground off my back porch I fell like a pole going sideways so now I'm very cautious and afraid of movement I wish I could suggest something as to the shower accept maybe play soothing music 🎶 if she enjoys it helps my anxiety
@AltDavidMiscavige15 сағат бұрын
Will that permit be recognized in Sunnyvale Trailer Park? Randy will probably still have ya towed ya know, especially if you don’t bring him a cheeseburger.
@JohnvanGurp15 сағат бұрын
@@AltDavidMiscavige 😂 hahaha!
@toryberch15 сағат бұрын
Hi, whats the brand name please? This looks handy to clean the shower walls as well 😊
@j87waldoКүн бұрын
Prayers for you sir 🙏 thank you for staying by her side . It so hard to watch some one die twice ...
@deedeew4040Күн бұрын
John, I am curious, none of my business but does dementia run in her family? My late husband's family dementia and Alzheimer's frequented his family.
@JohnvanGurpКүн бұрын
That’s a totally legitimate question! The answer is, no sign of it other than one ancient grandmother. It seemed to come out of the blue. It’s just the fickle finger of fate.
@deedeew4040Күн бұрын
@@JohnvanGurpplease know our hearts and prayers go out to you both.
@margritpiepes8242Күн бұрын
God bless her Heart. My Mom had Alzheimer but I was not there due to being overseas . Sometimes she did the most wildest things . I hood hd us having if getting a assistant to help him out . Because caretakers get burnout and depression .
@deedeew4040Күн бұрын
I have watched half a dozen people share their spouse's journey with this dreadful disease. You are education millions of people throughout the world. I was a care-giver to my late husband with Alzheimer's. I have to be honest with you, I would not be able to be a care-giver again, it took everything out of me. You are a kind, caring husband to Heather. Thank you for sharing.
@JohnvanGurpКүн бұрын
@@deedeew4040 I can understand that! And thanks for the supportive comment, I truly appreciate it.
@MsMamatubeКүн бұрын
I'm an in home caretaker. Most of my clients have a shower chair. It helps them to feel more secure & the fall risk is minimized.
@JohnvanGurp40 минут бұрын
@@MsMamatube I’m definitely gonna get one, and even if I don’t need it today, it will undoubtedly be necessary in a very short while. Thanks for the suggestion!
@jenniferrobinson17922 күн бұрын
I have early-onset FTD. What helps is being kind, but not condescending, and speaking calmly and clearly. Give your loved one time to respond; don’t rush them or assume you know what they will say. It’s hardest on caregivers, because you understand what has been lost. I feel as if my self has suffered erosion.
@JohnvanGurp2 күн бұрын
@@jenniferrobinson1792 thank you so much for your insight! I really appreciate it… And this has been my approach since day one. Best wishes to you.
@sisterluck54492 күн бұрын
Way she goes. 💜
@JohnvanGurp2 күн бұрын
Ha, yes! You nailed it! 💪
@user-tf9bm5su7z2 күн бұрын
Thank you for sharing! You are a wonderful husband and caretaker! Please also take care of yourself!
@JohnvanGurp2 күн бұрын
@@user-tf9bm5su7z thank you so much, I’m doing my best.
@user-sj8mf8jn1z2 күн бұрын
I admire your can-do attitude. You’re doing such a great job of being vigilant without impatience. You’ve got this‼️‼️
@JohnvanGurp2 күн бұрын
@@user-sj8mf8jn1z thanks so much, I really feel like things are going as well as can be expected.
@faithhopelove91762 күн бұрын
I'm sorry you and your wife are going thru this. I hope today is a good day for you both. I watched a documentary recently called "Alive Inside" its so good. Hugs from Michigan.❤ kzfaq.info/get/bejne/oqioZcpqzrTGdZc.htmlsi=G85WaVgKjvx2I3Gg
@JohnvanGurp2 күн бұрын
@@faithhopelove9176 thanks for your comment, I’m going to watch that movie!
@CapWalks12 күн бұрын
Have you watched any videos of Dr. Mary Newport? Her husband had dementia and she found coconut oil and C-8 MCT oil made a hugely positive impact. Good luck brother
@JohnvanGurp2 күн бұрын
@@CapWalks1 I haven’t seen any of her material, but to be open about it we are way past that point. I really appreciate you commenting here!
@CapWalks12 күн бұрын
@@JohnvanGurp Dr. Newport has a compelling story. I’m convinced she is onto something. Good luck my friend.
@noah49872 күн бұрын
Look into the work of Dr Georgia Ede. Incredible stuff.
@JohnvanGurp2 күн бұрын
@@noah4987 unfortunately we’re way past looking at diet as a way to prevent this disease from progressing. Her brain is steady significantly damaged.
@noah49872 күн бұрын
@@JohnvanGurp you may be able to stop/slow the progression. I truly believe that modern medicine has been influenced by big pharma and that the doctors have been misled. Dr Chris Palmer's book Brain Energy goes over a lot of it as well in regards to mitochondrial function. It may sound like a Hail Mary attempt, but I think at this point it could be worth a try. Best of luck to you both
@stevepeppers5602 күн бұрын
Sir ive been watching mom go down 3 plus years. Youre both in my prayers. This stuff kills 2 at the time. Hope you have help. We do not
@JohnvanGurp2 күн бұрын
@@stevepeppers560 I’m sorry to hear that you don’t have help… That makes it extremely difficult. I hope you find a way to get someone to help in someway. I don’t plan to be a second victim of this though, I’m pretty determined.
@nancyevans12782 күн бұрын
New subscriber here. Thanks for sharing!
@JohnvanGurp2 күн бұрын
Thanks for subbing!
@BTNomad2 күн бұрын
That was totally my sister. She couldn't follow directions or watch anything with comprehension. She was 56 when it started to get really bad.
@JohnvanGurp2 күн бұрын
It’s crazy how many younger people get it…
@BTNomad2 күн бұрын
@@JohnvanGurp, you have to wonder how many people go undiagnosed or misdiagnosed before it's clear that it's dementia. So very sad.
@BTNomad2 күн бұрын
, I did learn that Jackie used yes or yep to stop a conversation.
@adventurousdoglover2 күн бұрын
My mom is going through this (adopted) and she’s alone most of the time. It’s so sad to see 😢 Thank you for sharing these moments ❤❤🙏🏻🙏🏻
@hvangurp2 күн бұрын
Good move John.
@CarrieAKouri2 күн бұрын
My sister-in-law developed dementia at 54. She had similar issues. Sending you and Heather peace and strength.
@JohnvanGurp40 минут бұрын
@@CarrieAKouri thank you for your kind comment.
@anneholmberg42 күн бұрын
John...YT introduced your channel to me a couple of days ago with the video of Heather's change to eating with her fingers. A much loved member of my family is dealing with PPA--it's been a little over two years since diagnosis, maybe five since we first started noticing changes--and though each person's journey through this horrible disease is different, it helps to know about the varied ways it can manifest and how others are coping with its progression. This disease is hard on everyone it touches, but it is important to know you are not alone. Your love for your wife and your patience and compassion are inspiring and comforting. Thank you so much for sharing.
@JohnvanGurp2 күн бұрын
@@anneholmberg4 Thank you for the comment… it sure does seem to manifest differently for everyone. The PPA complication really throws a wrench in things, and it makes so much of the existing resource material less relatable, so I’m very glad you found my channel as it makes it gratifying to share our journey. Best wishes for you and your family member.
@asselstines2 күн бұрын
A raised toilet seat with a frame may help. as perhaps a bath bench or chair in the shower will. There are a lot of wonderful adaptive products available from medical supply businesses and some pharmacies. An occupational therapist will also have some great ideas on how to lessen the fear of dear Heather not knowing what is going on behind her. You two are such a sweet pair.
@JohnvanGurp39 минут бұрын
@@asselstines I’m definitely looking into what products and assistive devices will be best. I bought a raised toilet seat, but I haven’t really put a lot of effort into using it as she still OK for now with backing down onto the regular toilet, but the writing is on the wall that I will have to install it soon. Thanks very much for your kind and helpful comments!
@northernlitez12 күн бұрын
New subbie here. What your doing here is gifting alot of people. Very brave and giving on a painful snd hatd journey. My friend was afflicted with this disease from hell snd also my mom who i moved in with for 9 months. God carry you both❤
@JohnvanGurp2 күн бұрын
@@northernlitez1 Thanks so much for that uplifting comment about my videos… it makes this a valuable thing to me too. Yes, it’s a brutal and vicious thief of a disease. I’m doing my best to keep it positive and manageable as a caregiver. Best wishes to you.
@northernlitez12 күн бұрын
This disease is so heartbreaking and especially in you ger folks like Heather I have a very dear friend, my movie buddy, we went to many movies together, who developed early onset dementia and has been in a nursing home and wheel chair for too long now. She is a shell of herself. I miss her soooo much😢 Sendi g love znd hugs
@JohnvanGurp2 күн бұрын
@@northernlitez1 I’m sorry that you’re grieving for your friend… it’s heartbreaking.
@GrandadsOtherChannel2 күн бұрын
♥
@PorkChopPiper-ln4uw2 күн бұрын
Thanks for sharing your journey with Heather.
@patriciacyr30012 күн бұрын
I am taking care of my husband who also has early onset dementia. I have been learning as I go. I believe you are right about your wife's fear. I found that if you have your back to the water and they are facing you, you are able to help get them washed. Then have them move closer to you and rinse them. This way they can see you and you can explain what you are doing. I also shower him in the am because it he is not as tired. We have one of those higher type toilets. He doesn't have to drop back down as low. He also has a fear of falling back when getting in bed. I have him sit on edge of bed and put one arm behind his shoulders and my other arm under his knees and pivot him into bed. I hope this is helpful to you. I came across your videos yesterday and they have been helpful to me.
@JohnvanGurp2 күн бұрын
@@patriciacyr3001 it sure is a learning process, with a lot of adaptation and flexibility as things change. Wishing you the very best going forward. Thanks for your nice comments.
@KohlerstaceyКүн бұрын
I'm wondering if you can have her straddle the toilet, facing the tank. That's something women in hoop skirts sometimes do. But I'm wondering if setting the toilet in front of her would help. You, of course, know your situation far better than I do, so this is just meant as a possibility, not a criticism
@macherie29242 күн бұрын
Thank you so much for your videos my mom was diagnosed with dementia and we take care of her it is such a sad disease
@nancisailormoy91352 күн бұрын
I wonder if you could get a nice teak shower bench that she could sit on and the water would then be in front of her. Of course she still has to sit down but maybe they make one that is taller so she doesn't have to sit so far down. I also know they make high toilet seats which might help. It elevates the seat so they don't have that feeling of falling backwards.
@JohnvanGurp2 күн бұрын
@@nancisailormoy9135 this is a great suggestion, and it’s been on the back of my mind. I will definitely consider getting a shower bench. I tried one of those toilet seat, raising things, but I found it was a little awkward. It also made the hole quite a bit smaller… I’m not sure, I might try it again when/if things get worse in that department. Meanwhile, I’m having some success in guiding her to the toilet and being a little more forceful than I used to be.
@suemar632 күн бұрын
There is so much to learn about this horrible disease (condition?) Your videos are helpful, as are the comments others leave. Truly, community at its finest. Stay strong all......
@JohnvanGurp2 күн бұрын
@@suemar63 it takes a village!
@penni64322 күн бұрын
September 2023 to now. These vlogs are so important to those just starting out caring for a loved one with a new diagnosis. With your wife, the difference in just 10 months it is such a vast decline. As a nurse, I encourage people to tell their stories and share their tips they have learned about the disease process they are experiencing. Just as what you are doing in this video. Such valuable information and education you are providing while mourning the loss of her future and yours, caring for her, and trying to manage your own emotions. Hugs!
@JohnvanGurp2 күн бұрын
@@penni6432 thank you so much for your encouraging comments! You definitely understand why I’m sharing… Take good care.
@penni64322 күн бұрын
We all know that ALL diseases suck. But the ones that rob you of your thought processes and memories suck the most. It shouldn't be this way. Bless you for loving her through this. Hugs!
@pineconelife2 күн бұрын
These are really good videos John. Helps us who are following yours and Heather’s journey have a wee bit more understanding. I can only believe they are helping those experiencing what you are experiencing.
@JohnvanGurp2 күн бұрын
@@pineconelife thank you Heather. Based on some of the comments, I think I’m actually helping some people, so that in itself is enough reason to keep doing it. Take care!
@user-zw5ql2sj1f3 күн бұрын
I came across the channel researching dementia and other individuals who have been diagnosed or the caregivers. Always looking for positive approach’s to care. My husband has been diagnosed. It’s just nice to network with others and you don’t feel so alone. Hope that makes sense. God Bless.
@JohnvanGurp3 күн бұрын
@@user-zw5ql2sj1f Please stay in touch, you are not alone! I found that there’s so precious little in the Alzheimer’s and dementia care world that I can truly relate to. Besides the fact that most of the sites and information seems to be focussed on people who have a longer term with the disease, they usually don’t also have aphasia, they are usually older, and the caregivers are typically not their spouse. So as a 63-year-old spouse old caregiver to a partner it’s a much less common presentation, and it has some unique challenges and feelings and emotions tied into it. I totally get what you’re saying. Hang in there and I hope you have as smooth a time with caregiving as I have. It’s tough as hell, but it seems manageable at this time.
@suemar633 күн бұрын
You're a good and patient man. Bless you.......
@sewmeonekenobi6393 күн бұрын
How long did it take to get to this stage? Respectful question. Thank you.
@JohnvanGurp3 күн бұрын
@@sewmeonekenobi639 The first signs there might be something wrong were around June 2021, so we are at three years since the first hint. It’s been so extremely rapid… hard to catch my breath sometimes.
@nancisailormoy91353 күн бұрын
I think because I followed the Pippens yt sent this to me. My sister had been having memory issues for a few years but never was actually diagnosed, then in 2021 it started to really show and she was having trouble dressing, could no longer go out alone because she would get lost but I think she was in denial then in Nov. she had a stroke and surgery but never regained consciousness and as sad as it was I always felt like it was the easy way out for her. I would not wish disease on my enemies. Prayers for you and wife and you are doing a wonderful thing sharing this for others that might be in the same situation.
@JohnvanGurp2 күн бұрын
@@nancisailormoy9135 thank you for your comments… It’s a brutal disease! I just learned about the Pippens so I’m going to watch some of their material as it seems very relatable. Take care!
@GrandadsOtherChannel3 күн бұрын
Good evening, John 👍
@ea60513 күн бұрын
thank you for sharing. have you done any research into how a ketogenic diet may help?
@JohnvanGurp3 күн бұрын
No, I haven’t explored that. I think we are well beyond that point anyways… the brain atrophy shows up on CT scan.
@ea60513 күн бұрын
@@JohnvanGurp i think the concept is on the keto diet your body starts producing ketones which the brain can use for energy instead of glucose. its not a fix but might make things a bit better.
@gregorywills22313 күн бұрын
Sorry to hear of the diagnosis. Live is so unpredictable and crazy. AND short.
@JohnvanGurp3 күн бұрын
You got that right!
@bieneneuer26293 күн бұрын
Es sind Vergiftungen bitte schaut euch U.Werth die ewige Nadel oder Dr.Klingenhardt an es muss nicht so enden.Viel Glück und liebe Grüße aus Deutschland.💚🍀
@sonnykat4623 күн бұрын
Thank you for doing these videos to educate us. Big hugs, it's not easy for you.
@user-tf9bm5su7z3 күн бұрын
Hope you get help when the time comes. Its a horrible disease.
@JohnvanGurp2 күн бұрын
I’m keeping my options open… I have help now from a couple of sisters and my daughter, and Heather goes to a day program three times per week so I have some free time to get things done and to decompress. I’ll consider live-in care at some point if it seems like I need it, and I will also consider long term care in a facility if needed. Thanks for your comment, I appreciate it!
@andyinsdca3 күн бұрын
Sharing is important as it gets the message out that you're not alone; others have done this and they can see you doing it. Being alone handling something like this is VERY difficult.
@lauriemontgomery36973 күн бұрын
Oh John, this is so hard to see I can only imagine how it is to live this life. My mom needs memory care now - we have not pulled the trigger yet.
@JohnvanGurp3 күн бұрын
@@lauriemontgomery3697 it’s such a hard decision! Wishing you peace and strength going forward. Thanks for the comment.
@katherinemitchell90033 күн бұрын
YT brought it into my feed. My mom was diagnosed last November and I will be her primary caregiver. Because of that I try to learn everything that I can.