Thank you so much. Watching this tonight while laying on an ice pack on the floor while I’m waiting for something in the oven.
@marjomaxАй бұрын
Bonjour, Cool la vidéo de présentation. Je trouve ces sacs super bien. Mais comment faire pour le commander depuis la France. Merci
@Fr199832 ай бұрын
Sorry to jump on two years late but thanks so much for this video. Do you get your PA funded but social care? I'm 26 with chronic illnesses and always up for a chat if you want ☺️
@mobstercrow75153 ай бұрын
I hope this doesn't offend you, but you sound like the British version of Gayle from Bob's Burgers. Bob's burgers is one of my favorite television shows and I love Gayle!
@garethball78034 ай бұрын
Thank you for your comments on flexifoot. I am about to return my NHS crutches after a repair to a broken ankle but want my own single crutch for work for a while.
@user-ko2qt2md4z4 ай бұрын
are you aware that your blog is....not..secure...mark
@HelenePavey5 ай бұрын
This is very brave of you to spend so much time explaining this. Thank you. Have you had your B12 levels tested and have you thought of having b12 injections? How are you now, I realise you published this ages ago?
@cleopatrag50647 ай бұрын
thank you so much for sharing this. i am the same age as you and have had a nightmare with carer agencies but thankfully finally got social services to fund a PA! this has been a really helpful insight to what support from a good PA can look like. I know how vulnerable it can feel to be open publicly about the realities of living with health conditions and needing support to maintain a good quality of life so I really appreciate you making this video and sharing it with us. This has helped me more than I feel I can put into words. I feel very hopeful now about what life can look like once my PA starts working with me <3 thank you!
@AGirlCalledNaomi7 ай бұрын
Hi there, I’m so glad this video was helpful to you and has given you hope for hopefully a better life once your PA starts and you start to build up that professional relationship with your PA. Diane who’s in this video has been with me over 3 years now, almost 4 probably (!) and we get on so so well and we have a good routine going and she’s very attuned to my needs and she just loves her job. It will be hard at first for both you and your PA but the great thing about PAs is you have someone who is supporting you constantly so you see each other regularly so you have that time to establish a routine and relationship as opposed to agency carers. There’s such a shortage of PAs; I’m really struggling to find extra PAs to join my team so I’m using agency carers to fill the gaps so I know the difference in care. I made this video more to highlight and raise awareness of just the variety in what a PA can do to support someone and enable them to live out their life as well as the relationship that you build up with your PA. I really appreciate your comment it was lovely to read and all the best, Naomi
@elinalannah00228 ай бұрын
Lovely to spend the day with you 🥰🎄
@AGirlCalledNaomi7 ай бұрын
thank you - would you like to see more DIML vlogs like this when I’m well enough to film them?
@elinalannah00228 ай бұрын
Your Christmas tree is gorgeous! I love the ballet themed ornaments🎄and I felt so happy seeing my Christmas card to you on your window sill ☺️
@AGirlCalledNaomi8 ай бұрын
thank you and thanks for the card x
@elinalannah00229 ай бұрын
I love this! 🦓 ♿️ xx
@AGirlCalledNaomi7 ай бұрын
thanks ☺️
@cococreates2610 ай бұрын
Thank you for sharing! I definitely need to get some fairy lights now too 😍😍😍
@AGirlCalledNaomi8 ай бұрын
I love fairy lights!
@EmilyJane2010 ай бұрын
Your home is lovely.I would love a bungalow of my own one day x
@AGirlCalledNaomi8 ай бұрын
thanks, I hope you get your bungalow one day
@elinalannah002211 ай бұрын
I would be in heaven In your craft corner- it’s incredible!! Lovely to see you have a dedicated space to create now🥰
@emilyannfrancesmay391911 ай бұрын
Thank you, Naomi. I'm considering a career change and am considering becoming a PA. Thank you so much for your honesty and opening up. Bright blessings.
@AGirlCalledNaomi11 ай бұрын
That’s great! I’m glad you loved my video and you’re considering becoming a PA it really is such a rewarding and fun job. My PAs love coming to work and we have a great working relationship. There’s also such a shortage of PAs; I’ve been desperately looking for more PAs for a long time but there’s just so few people out there. I’m sure you’ll be an asset to the profession!
@MatroyshkaV Жыл бұрын
Very well done, my dear!❤
@AGirlCalledNaomi11 ай бұрын
Thank you so much!
@therandomcuriositiesofrae.2001 Жыл бұрын
I’m a new subscriber. Wish I had your confidence to do one. 💕☺️ I've just ordered a thrift bag to send some stuff off.
@jodeeleedavis Жыл бұрын
Can you please do your wheelchair review folding
@AGirlCalledNaomi Жыл бұрын
Could you please expand on what you mean by this please? Naomi
@mrssuzybuck2070 Жыл бұрын
I got FND after my second vaccine Astra Zeneca
@millymay0025 Жыл бұрын
Thank you for your bravery and generosity in coming forward and sharing your experience and symptoms. I think through people like you, showing so much courage, the understanding of FND will increase! I too have FND and share some of your symptoms, you explained everything in your video very well! Thank You for sharing!
@AGirlCalledNaomi Жыл бұрын
Hi Milly, thank you so much for your lovely comment what you’ve written is so so kind and has really made my day. It takes a lot for me to open up about FND because people assume it’s all in our head rather than it being a neurological illness. But on the other hand I firmly believe that it’s only through talking about it and sharing that awareness of FND and the true nature of the condition can be raised. Hopefully the more FND is talked about the more people will understand it. Also thank you for watching my video. Naomi
@millymay0025 Жыл бұрын
@@AGirlCalledNaomi I agree with you completely and believe the same thing! The sigma and prejudice against sufferers of FND is appalling, it’s like the poor cousin of disability nobody wants, yet for so many people it’s the factual reality of daily life. The part you are bravely playing is addressing this stigma and championing so many hidden suffers, is amazing and inspiring, I hope you feel some pride and achievement in that! My career was (I say was, as 2 years ago I gave it up, unable to cope) in communication, PR and brand management, I feel more inspired today than every before to join you and do what I can to help address the stigma, bring true awareness and promote education of this disorder. It’s time the world understood the real FND, not the heavy Freudian misconceptions we all still fight to lift off us everyday! You are an inspiring person Naomi, keep going one moment at a time and rest well! Xx
@AGirlCalledNaomi Жыл бұрын
Thank you Milly. I want to be brave enough to talk more about FND especially after the experiences I’ve had from health care professionals. Do you have any suggestions for videos I could make on the topic of FND?
@millymay0025 Жыл бұрын
@@AGirlCalledNaomi I’ve just liked your Instagram page, so will send you a message 🙂 I would always say, talk about things that you feel passionate about and want others to understand about FND, maybe tackle some of the preconceptions people have? Sometimes it’s really good to just ask questions too, and communicate what you’ve learnt about some of the questions you once had, maybe when you were diagnosed for example 😊 I think you are doing a fantastic job of talking about FND and ME!
@AGirlCalledNaomi Жыл бұрын
@@millymay0025 thank you so much that’s really kind of you. I’ll take that advice on board and think how I can make a video about FND as I know I don’t have many and haven’t done any for a while.
@rainebow1994 Жыл бұрын
I just subscribed today and all the clips I've watched have been helpful!
@meganhasley89752 жыл бұрын
It feels like my circle isn’t building up into a cylinder shape on the sides and is just getting wider. Any clue what I’m doing wrong?
@AGirlCalledNaomi Жыл бұрын
Hi Megan. I’m really sorry for my very delayed reply. Once you’ve built the base you need to stop increasing your stitches and just take out your stitch marker and work a single stitch in each space going round and round building up the sides of your can cosy to your desired hight. Hope that helps and works for you. Please do reply if you get stuck and I will respond much much quicker next time! Naomi
@jomaxspencer6502 жыл бұрын
Does ME affect fertility in women's health? Perhaps in the severe ME cases?
@jomaxspencer6502 жыл бұрын
Thanks for this video.I literally got fed up of buying replacement crutch foot pads. They worn out every couple of weeks. This video explains why they worn out because we walk at an angle. Now I know flexifoot exist and I'm going to order some. Thanks
@AGirlCalledNaomi2 жыл бұрын
Hi there. I’m so glad that this video was so helpful to you. Another positive I feel is that unlike many disability products the FlexyFoot ferrules are a fairly good price especially for something designed so well. I hope that they work out better for you. Since I started using FlexyFoot ferrules I’m more steady so I feel more confident when I’m walking with my crutches. You’ll have to let me know how you find them after you’ve started using them. Naomi
@kolad2646 ай бұрын
Thank you its very helpfool . You a star !
@susannadavies78852 жыл бұрын
Happy Birthday Naomi 🥳 I’m glad you had a lovely day!
@susannadavies78852 жыл бұрын
Hi Naomi, I just saw the article about you in the MEA magazine and was pretty sure I recognised your photo… so I also checked out your KZfaq channel! I moved away a year ago but would love to be in touch with you again if you’re interested - please look me up on Facebook if you would like to reconnect :) x
@HannahHodgson2 жыл бұрын
New subscriber! This means so so much. Thank you for your detailed and thoughtful review. 💜
@MegaDeansy2 жыл бұрын
Cheers, the info is much appreciated !
@AGirlCalledNaomi2 жыл бұрын
You're more than welcome and I'm glad the information was of help - I aim to help people know what products are out there.
@fuschiarose2 жыл бұрын
Looks so cool! I made one of these for my sister years ago, but yours looks way better than mine did.
@cococreates262 жыл бұрын
😻😻😻
@JohnWayne-fq1yc2 жыл бұрын
Thanks for the info about the ferrules!
@cococreates262 жыл бұрын
Hi Naomi! 😻😻😻
@MEAssociationUKCharity2 жыл бұрын
Thank you for sharing this vlog Naomi. It is very important to raise awareness of ME/CFS and to show the care people who are severely affected require to manage daily activities of living. I can imagine how vulnerable you may have felt sharing this on KZfaq, however, please know you've done remarkably well and have truly shown the reality of ME/CFS - Emma
@sarahgibbons97372 жыл бұрын
I used to read a lot of dystopian fiction as a teenager. I will research this book..thanks
@AGirlCalledNaomi2 жыл бұрын
You're welcome, I'm glad you liked my first book review and you've found a new book to try. I really did love this book once I got into it. The sequel to this book is 'The boy of the bridge' so I've got that on my list of books to listen to. Let me know your thoughts on this book once you've read/listened to it as I've love to hear your thoughts and take on the book.
@sarahgibbons97372 жыл бұрын
Thanks for sharing this Naomi. I appreciate that it took a lot for you to share this. I am currently awaiting my pip decision so this was useful to help me think what I could spend the money on to make my life easier.
@TheElmospoon2 жыл бұрын
Great vlog. I'm sure it will be good for others who are wondering about direct payments or some of the things they can have help with. I don't know if this is helpful to you or anyone reading this but this is the technique my PAs and I use for my compression socks just imagine it with someone putting it on instead of like in the video where the person is putting it on themself. I mostlt use nhs ones as I find it easier to put those on but I do have a few pairs of interesting ones including dinosaur ones kzfaq.info/get/bejne/gsyPgM9_zp_YkmQ.html
@mollysmith68732 жыл бұрын
It's lovely to see Diane after hearing about her and how she's made such an improvement to your quality of life x
@AGirlCalledNaomi2 жыл бұрын
I’ll be sure to let Diane know :) when editing I felt quite vulnerable showing that I need help with things like getting a bath but I wanted to help raise awareness of how important people like Diane are. PA’s and carers and unpaid carers too are not recognised for the wonderful work they do to change and enable people’s lives. I definitely think both paid and unpaid carers deserve to earn more for what they do. I find it Absurd that there’s people on a supermarket checkout earning more especially when it comes to carers allowance which when working out their hourly rate income is less than minimum wage! I know this video was much requested and even chased up asking me when I would be sharing it so I pushed myself to film, edit, upload and add subtitles to get it shared on time so I’m now having a quiet weekend as it was a massive challenge to do all that. I also have another video in the making to share how challenging it is to be a KZfaqr with M.E and other illnesses just so people understand that I love my channel but equally it is so hard especially when people are chasing me up asking when I’ll be sharing certain videos.
@chlo3002 жыл бұрын
This is brilliant.
@AGirlCalledNaomi2 жыл бұрын
Thanks so much Chlo
@mayflower21582 жыл бұрын
Hey. What happened to your a day with my PA vlog? I was really looking forward to that. Thank you for your video though. I never use disabled with people I know, despite fitting the criteria. Mainly because I feel people wouldn't even think of me as coming under this label, mainly because I don't actually share things about my condition. So I feel they'd just think I'm attention seeking if I ever were to call myself disabled, so i don't. I know it's sad in a way. But sadly life isn't so kind to things they can't physically see. It's far harder to understand something that isn't displayed on full view. So people are less sympathetic & believing. This is how I feel anyway.
@AGirlCalledNaomi2 жыл бұрын
Hi there, thank you for sharing your thoughts on the topic of this video. I haven't forgotten about the video on what I get up to with my PA and I will try and get round to filming it when I can. I'm really glad to hear that it's a video you're looking forward to watching. Things have just been a bit challenging for me lately as my health hasn't been too great and I've been waiting and trying to get a date for my surgery. so I've just been using videos I made a while back. I hope to be well enough to film soon but as I'm sure that as someone who also has chronic health issues you can relate to how challenging it is to run a KZfaq channel. I love my channel but it takes up a lot of my time and energy to film, edit the footage, upload it to KZfaq then add subtitles also which I do to increase accessibility. I haven't forgotten about the PA vlog and I hope to film it when I'm able to.
@AGirlCalledNaomi2 жыл бұрын
Hi there, just an update for you. I wanted to film my PA vlog when there was some variety to show the wide range of ways in which my PA supports me so as I have a hospital appointment this week I've started my PA vlog which I'm filming over the course of a week so I can show the many different ways my PA supports me.
@cococreates262 жыл бұрын
😻😻😻 Thank you! Xx
@cococreates262 жыл бұрын
Thank you for sharing! So many people don't realise how long we have to "save up" for just to do Christmas. Many people don't realise how much energy it takes/how overwhelming it is to just being around people ❤❤❤
@AGirlCalledNaomi2 жыл бұрын
You're welcome. It seemed a bit much to talk about all my illnesses and how each one affects me so I just focussed on M.E for this video as I think that one can be the hardest at Christmas due to how little energy I have and the hypersensitivity though obviously dealing with a seizure and as a result badly dislocating a few joints on Christmas Day also isn't that much fun either! But yes as I type I'm reaching for my noise cancelling ear plugs as my some of my stepmum's family have just arrived and I'm tired and finding the noise a bit painful so I'm staying upstairs (plus I'm terrified of covid). But yes totally, people don't understand how EVERYTHING uses energy even just travelling in a car or holding a conversation but also how M.E has many other aspects and symptoms especially when you have severe M.E.
@mayflower21582 жыл бұрын
I'm so sad about these, I feel people only see them as a mask exemption lanyard now. I was actually told by a train officer it was great I was wearing one, because many people don't and still don't wear a mask; and then went on to ask why I was wearing a mask though 😏 I had to tell him that it actually represents a hidden disability. Quite sad really. The point of them i find had been overshadowed
@AGirlCalledNaomi2 жыл бұрын
I totally totally agree with you! It's losing it's meaning first like you said during the pandemic people where just buying them as they didn't want to wear a mask and now people like the design of them so companies are designing and selling their versions of a sunflower lanyard. I feel it all could have been stopped if Hidden Disabilities and places like supermarkets who offer free lanyards asked for evidence of disability when people where purchasing them plus they're so cheap it to buy it doesn't put off people who want to evade wearing a mask. I made this video originally to highlight the real reason behind the lanyards but now it's loosing it's meaning. I still find in some places that they understand they're for hidden disabilities and you would have thought transport staff would be aware that they highlight hidden disabilities - that's the point of them it shouldn't be vice versa. Also thank you for watching some of my videos and commenting. It's nice to hear from people who watch my videos.
@mayflower21582 жыл бұрын
Omg wow!! This look suits you SO.... MUCH! I almost didn't recognise you! I'm new to your videos so looking back at your past videos, and I really wanted to see what aids you use. So really glad to have found this one
@mayflower21582 жыл бұрын
Hi, sorry you're struggling. It's not easy. It would be really helpful to see the vlog, but also if you could do a video showing how you go though the process of getting care? As I'm in the UK too & sadly probably need to apply for some support now. Thanks
@AGirlCalledNaomi2 жыл бұрын
Hi there, yes I can totally relate to the emotionally difficulty of realising that you're not coping on your own and/or with the support of family and friends. I've have a few requests for the vlog so I'll be doing that. Your suggestion for the other video is a great idea so thank you as I'm always after suggestions and ideas. With my health as much as I love my KZfaq channel I may do your suggestion initially as a blog post (I did sort of talk about my journey from first needing care to where I am now in this video but I can explain more and in order in my blog post) and then one day I may make it into a video also as I know so people find KZfaq more accessible but I do have an accessibility widget on my blog. My blog is www.agirlcallednaomi.com and if you're on Instagram my account is @agirlcallednaomi_blog.
@mayflower21582 жыл бұрын
@@AGirlCalledNaomi Oh no sorry I meant the process of getting care as in how to do about accessing it, like how to apply. But I really appreciate you sharing your blog because I would like to take a look. Also it is true that I definitely find KZfaq easier. Great to hear you will be trying the vlog! It will be so interesting to see! Thanks!
@AGirlCalledNaomi2 жыл бұрын
@@mayflower2158 Hi, oh okay thanks for clarifying - it's helpful to know what information you wanted and hopefully I can help you out. I'll still plan to do the blog and video as it's a good suggestion of yours. Thank you for checking out my blog and it's good to know that people like yourself find my KZfaq channel more accessible than my blog. I've been blogging for a few years so now I know that I may look back on my blog posts and make some of those old blog posts into videos for my channel - what do you think and looking at my blog have you seen any particular blog posts that you'd like me to make as a video? As well as my blog you can check out my Instagram @agirlcallednaomi_blog as I have other and share other videos there too especially shorter videos.
@mayflower21582 жыл бұрын
@@AGirlCalledNaomi Sure! I definitely will! And I'll be more than happy to let you know. It's so lovely that you care about your viewers thoughts & opinions & take time to respond to them fully. So nice! 🥰
@AGirlCalledNaomi2 жыл бұрын
@@mayflower2158 Hi there, I've made a little video about how I got care both privately and also the process of having an assessment and getting care from adult social care. I made is as a video as I know you find videos more accessible. Are you on Instagram as I'm planning on adding the video on IGTV as putting it up on KZfaq would mean refilming as it's not great quality plus the editing and adding CC which is all pretty exhausting and time consuming.
@cococreates262 жыл бұрын
😻😻 Potsie here ❤❤
@AGirlCalledNaomi2 жыл бұрын
Unfortunately I must welcome you to the PoTS party and whilst fainting isn't that fun standing up too quickly is a perk as you get a high for free!
@cococreates262 жыл бұрын
@@AGirlCalledNaomi 🤣🤣🤣
@smudgyguide82552 жыл бұрын
Thanks for sharing.
@cococreates262 жыл бұрын
❤❤❤
@brianbordenkircher523 жыл бұрын
Thank you both for sharing! I also have FND and have tried to explain it from my perspective for some awareness: kzfaq.info/get/bejne/hbx6oMaYma6wYJs.html
@elise93253 жыл бұрын
Really struggle with sleep. Thanks for the tips! ❤