Thank you so much for sharing your story, Matt and Skylar. My partner and I are considering starting down the path of IVF, it's quite a difficult decision as I'm still asymptomatic.

Good Luck por exemplo no problem

Sentamos processo degenerativo

I'm from Brazil My name is Genivaldo Rodrigues Ribeiro March Chanel sensibility ataxia 7 Generation Word my country Brasil

Congratulations Chanel see you I have si 7 S6

How does a child with cerebral ataxia feel that she cannot be left alone and has anxiety? She feels she needs to constantly hold something, is very emotional sometimes, and has difficulty regulating her emotions. the cognition is not understood in the school. could you advise? How do you think I could help with a neuro physio?

17.54 ....55.45 α-FP

I have dementia at this point. I am 4 months post stroke

The eyes are crazy after a cerebella stroke

Thank you so much for sharing!

What medicines are available for mucous build up and swallowing issues with coughing , My hubby seems to be drowning ,and Noone is helping , God I need some answers ,please help me .

Is there somewhere I can go for appointment I am in London England

www.ncbi.nlm.nih.gov/pmc/articles/PMC8504390/

Do you have any knowledge on SCA 17?

Thank you from Ontario Canada

i have sca it stated at about 50 i am 64 it going fast now

Sca 2 any helpful resource

My son has the sptbn2 gene so we assume its sca5 I also have the same gene duplication I believe but with me no symptoms. However my son does

Thank you for a wonderful presentation. I am a SCA 12 patient under the care of Dr Srivastava in India. I just walked into his clinic after some family members discussed that we should get testing for SCA12 as our parents seem to have the disease.

Great webinar thanks for being part I really appreciate it

I have cerebellar ataxia. I have no balance and I'm in a wheelchair. Is there anything I can do to get my balance back?

I had an serious brainstem stroke fell me with eye problems and no hearing in right ear which changed my life if not for eye ,I could deal

I was diagnosed at 5 with ataxia but I have no paperwork for it do I need to get rediagnoses?

This runs in our family I was tested for this in 2024 so far I'm the first one to be negative for it

FYI, Botox and filler regulars, the doctors will think you are drunk 😡

Could you please speak about the SCA 34 too. Thank you so much

As a trainee have to say I much prefer the pathological naming immediately reminds you of the actual major structures involved leaves no room for guessing as to patient presentation that is if you understand anatomy (why ❤ neurology).

Cutting out gluten soy and chemicals has worked for me , airborne particles effect me the most.

I am Epileptic (absences seizures) taking Lamotrigine for it and have Cerebellum Atrophy/ loosing memory, but not others symptoms yet. One side effect of Lamotrigine is having problems with balance, coordination. I want to know if the Lamotrigine med can harm the Cerebellum? Thanks!

I would like to try this drug going to call pizer had a bad stroke, and I 16:17 was still suffering a year 😢 nerologist, though

How do you deal with inpatient people when you speak? My husband thinks he knows what I am going to say he interrupts me all the time. And he doesn’t get things correct. Most of the time he isn’t repeating my information correct. I would like to finish my thoughts myself. And he has his own hearing problems.

Thank you

Canada

I have SCA 8 - Denmark - no family history - repeats 100 after a genetic test …

i have sca 34 its going faster now i walk like i am drunk

I really appreciate this! I am disabled because I have ataxia. I have suffered thousands of sleepless nights! This gentleman has done an excellent job in explaining the symptoms! Mine originally started because of a brain tumor in my cerebellum and underwent a crainectomy. My uncontrollable vomiting was thankfully controlled once the tumor was removed. But, all of the other symptoms make me absolutely miserable!!! Every year it's getting worse! I'm definitely going to contact. Thank you very much!

Prevention... it is too late! I want to hear what to do now that the stroke has happened. Innovative treatments and approaches...

I had sttoke ln the brainstem got my eye ear and face on right side with a Effects balance

Todo sobre la ataxia no, la curación ni está ni se la espera. De qué sirve que nos cuenten sintomas que conocemos por padecerlos? Hace 16 años que estoy diagnosticada y no ha habido NI UN SOLO AVANCE! Ponganse las pilas ya!

My doctor has not ordered any tests for me, of nutritional deficiencies. I am 89 years old with gluten sensitivity, and salicylate sensitivity. My son is a confirmed Celiac and I think I am one, too but no doctor ever looked for it although I had lots of symptoms except no diarrhea. My son did have it. I have had worsening balance issues for 12 years. Help!

Things are on the up and up for us ataxians😊

Ontario Canada

Please get checked for gluten sensitivity and get your vitamin D levels checked. I was experiencing ataxia and stopped gluten after a positive genetic test. You can learn more about this on Dr Peter Osbornes website called Gluten Free Society. You can even purchase the gluten sensitivity genetic test from his website. I hope you can find answers.

Good day from Ontario Canada

Good day from Ontario Canada

More than doubling the size of NAF & expanding & developing new helpful programs is FANTASTIC!

I have SCA1 and i vaguely remember (i was a kid) in the mid 1990s when they were officially able to say a cure was possible. My mother was happy.