My Fibro Flares | Hurting to Healing
15:57
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@jayneelinor
@jayneelinor Күн бұрын
Thank you.
@ranchochihuahua
@ranchochihuahua 5 күн бұрын
I tested negative. However, I have flares. I have deformities. My fingers don't point the right way anymore and my toes are trying to do weird crossy things they shouldn't do. My hips, back, shoulders, elbows, wrists, fingers, ankles, and toes are affected. Sounds awfully similar to RA to me.
@Karen-n8j
@Karen-n8j 5 күн бұрын
I've had RA since 2017. Thank you for sharing your story. I hope I will hear more info from you soon.
@vwma74
@vwma74 6 күн бұрын
Thank you for your positivity I have MS Lupus RA & Sjorgens & it gets kinda loopy trying to differentiate which one is actively causing me drama so videos like your helps to sort it out easier to seperate. Keep it up. “Anxiety in a man’s heart weighs it down, But a good word cheers it up “ Proverbs 12:25 your video can help cheer up someone who is having anxiety differentiating their autoimmune diseases with simple explanations
@nicoledavis2044
@nicoledavis2044 7 күн бұрын
You are an absolute angel in this world for making such a great and helpful video ❤
@nicoledavis2044
@nicoledavis2044 7 күн бұрын
I’m starting this soon stupid question but how do you empty the sharps containers what do you do when it’s full 😅
@JA51711
@JA51711 8 күн бұрын
Ty
@straighttothedisco
@straighttothedisco 8 күн бұрын
That’s interesting! I got inflammatory poly-arthritis as a diagnosis, my RF was near high but not close enough to be positive. I noticed the fatigue, I had memory problems, my eyelashes grew and I was able to break my nails easier.
@johndiaz2853
@johndiaz2853 9 күн бұрын
Fibromyalgia is an autoimmune disease! Patients have a defect in the mitochondria!
@taurus-queen8066
@taurus-queen8066 13 күн бұрын
I found your video because I was contacted about clinic position. I have never looked into rheumatology but your videos has me intrigued. I have a year of experience (skilled nursing facilities mainly). Excited for a new change. Enjoy your weekend.
@miesahsufien9928
@miesahsufien9928 16 күн бұрын
You are supposed to do it on the outside of the thigh
@MommySlays
@MommySlays 20 күн бұрын
So I was at a 14, PCP referred me to rheumatologist. Was having random pains on one side but turns out it’s a pinched nerve. Was fighting to get referral to be told over phone by rheumatologist that my levels are normal and my anti-ccp is negative so now I’m confused. Cuz homie said I don’t meet the criteria to be a patient. Don’t get me wrong I’m grateful but confused. Grateful for the breakdowns. Yes it was helpful
@RestfulRheum
@RestfulRheum 19 күн бұрын
Thanks for sharing! Yeah it can be confusing. There are many reasons why someone can have RF 14 that aren't RA or autoimmune related. That's why rheum docs often look for other things like anti-ccp, joint pain/swelling, joint stiffness etc to help differentiate. I don't remember what the reasons all are but I'm glad your PCP referred you to look into it further.
@iloveshaakah
@iloveshaakah 20 күн бұрын
Great video Thank you.❤
@armadillobunny8695
@armadillobunny8695 21 күн бұрын
Thank you for this video ❤️🥺
@joemurphy710
@joemurphy710 25 күн бұрын
I received my first “looks like rheumatoid “ at the age of 16. By that point, I lost my ring finger knuckle… 13 years old. I was given the seronegative RA in my early twenties. So, 45 years later and it has slowed tremendously. However, I am so accustomed to pain that I miss mini flares. I now get diagnosed via X-ray or ultrasound during a flare. What made it much less damaging- I quit smoking.
@RestfulRheum
@RestfulRheum 19 күн бұрын
Thanks for sharing! Anything that helps is always awesome.
@lynnettecapozio7327
@lynnettecapozio7327 26 күн бұрын
I am starting Plaquenil today and so appreciate your video.... thank you!
@soniaraymond6360
@soniaraymond6360 27 күн бұрын
I have been on it for about a month. I am in pain every day. I was told it would take 6 months for me to feel a different 😢
@RestfulRheum
@RestfulRheum 19 күн бұрын
I'm sorry to hear that. I was often told it can take up to 6 months for these meds to work but that it can take less than that.
@synthiamarie273
@synthiamarie273 28 күн бұрын
Thank you good information 😊
@vanessaallen8758
@vanessaallen8758 29 күн бұрын
I heard that with chronic fatigue there is exercise intolerance. However, fibromyalgia is helped by exercise. Is this true?
@RestfulRheum
@RestfulRheum 19 күн бұрын
Thanks for the question! From my experience exercise intolerance has been true with both chronic fatigue and fibromyalgia and that exercise helps. I've found it depends on the day and the type of exercise. And how I pace myself. I couldn't do High Intensity interval training like i used to but i could walk for short periods of time or do gentle stretches or squats. I think it's more of a how you exercise and how your body feels that day.
@esthersissoko1478
@esthersissoko1478 Ай бұрын
How are you able to get multi blood test
@diamondunknown9219
@diamondunknown9219 Ай бұрын
Thank you
@miraid06
@miraid06 Ай бұрын
It’s called “the spoon theory.” Originally used for explaining what it’s like to dive with Lupus. Website is called “but you don’t look sick.”
@LilithMonster93
@LilithMonster93 Ай бұрын
I just took enbrel last tuesday and for the first time in years I was pain free for 5 days. I have lupus that has given me RA and i would dread waking up and depressed to the point of wanting to give up. Listen we are all going to die, i would rather live the rest of my days to the fullest pain free and be the best mom I can be than be in the bed in pain. I just want my life back. Do not listen to people saying it killed someone they know. If I don't get the inflammation down I will die anyways.
@urabeastgirl
@urabeastgirl Ай бұрын
Thank You!!!! Very! Very! Much. Because I have RA, type 2 diabetes, a bad back and shoulder due to an injury. And my RAS prescribed me “methotrexate, prednisone, and sulfasalazine. For it at first. Then she saw that it wasn’t doing my arthritis any justice especially, the prednisone because “of course those are steroids and they can be dangerous if taken for long periods of time. They can actually damage your nerves and joints.” So she D/C the prednisone slowly, and the sulfasalazine but cont’d the methotrexate and put me on Enbrel 50 mg once a wk. But I have had it now for almost, if not! Two weeks now in my refrigerator and I’m so afraid to use it. My mind is telling me not take it but this excruciating daily pain is telling me to take it. And the only reasons that are keeping me from taking it is the fact that one of the side effects of taking it is that it may cause “DEATH!” And I have a lot to live for and I am just not ready to DIE YET!!!! ❤❤❤
@LilithMonster93
@LilithMonster93 Ай бұрын
@YOUPEOPLE-h5n I was scared too for years. I did parasite cleanses and herbal supplements and changed my diet, and not a GD thing worked. I am on week two of the shot, and I have a little pain here and there in my hands, but it is nothing compared to having to literally roll out of bed and walk hunched over at 42. Embrel has been out for a while. It has a 78% success rate. I refused to read the bad side effects and read only the reviews the ones of success, and I am so glad I did. I cried after the first week because I woke up able to drive and actually enjoy it again while jamming my music! I love to sing, and it got to the point that my ribs hurt so bad I couldn't take deep breaths to sing. I am 42, not 92, and I have a 13-year-old son. Listen, like I said before, we are going to die, all of us.. why not live now pain-free and not worry about the future. We are not living while being in pain. I hope my story helps you. This was not an easy choice for me. It took me 4 years to make it, but now I wish I had done it sooner.
@colleenr871
@colleenr871 Ай бұрын
Is it really true that RA cant attack organs? I thought it was rare but that it could.🤔 Ive been having complications like a gastric bleed and inflammationin my stomachvisible on a scope (im now on stomachmeds to reduce), kidney issues etc. I do also get a facial flush that resembles a butterfly rash. In 2019 i was negative for lupus but getting retested on Tuesday. I was diagnosed with sero positive RA in 2019. Sounds like it may be lupus but since it wasnt before i also thought it could be just really bad uncontrolled RA. But now im wondering 😮
@RestfulRheum
@RestfulRheum 19 күн бұрын
It can; perhaps I didn't explain the difference well in the video. My understanding is that lupus's MO includes attacking organs, similar to how RA's MO is to attack the joints. So you can commonly see that at any stage with lupus. RA affecting the organs is more of a rare late-stage complication thing but it's not it's MO like attacking the joints are. Thanks for asking!
@justme-ru2po
@justme-ru2po Ай бұрын
Really clear explanation. Thank you!❤
@RestfulRheum
@RestfulRheum Ай бұрын
Hope you get some deep rest with this practice. Let me know how you feel in the comments below 🌺
@365daysofmeditation
@365daysofmeditation Ай бұрын
Just what I needed on my study break today, Thank you! ❤
@RestfulRheum
@RestfulRheum Ай бұрын
Glad this was helpful for you! 🌺
@latoshabudde4570
@latoshabudde4570 2 ай бұрын
I am starting my Humira tomorrow in the morning. This video was so very helpful. Thank you so much.
@colenestoneburner7704
@colenestoneburner7704 2 ай бұрын
Ware can I find auto immune test?
@user-vi5to5wp2l
@user-vi5to5wp2l 2 ай бұрын
I have white blood cells my platelets show white blood cells is a form of cancer leukemia blood cancer cells why I been very very ill and me haveing congestive heart faluire and intersistitist bladder dissese and bladder cancer and renal kidney disease and kidney failure this trueth and no ghinea Moore family members can say they been dignosed with these things I Felicia Gonzalez dignosed with these things not no rodica ghinea Moore that is fraud ok this Felicia Gonzalez diagnosis buy Dr this trueth can't lie the trueth exposed why I been ill
@matthewgibson27
@matthewgibson27 2 ай бұрын
Took my first injection yesterday. As someone who has to get blood checked every few months I really did not feel the needle at all! Thanks for the video!
@michellesmoments
@michellesmoments 2 ай бұрын
Thank you so much for this. I am watching all your videos. I've suddenly been having pain in my fingers and toe A visit to my primary doctor bought up concerns of rheumatoid arthritis. I'm so concerned. Waiting for my results. My daughter has Multiple Sclerosis. She's 37. Listening to your story and channel is so helpful. Thank you so much. Your videos are very helpful.
@zariamicheal2365
@zariamicheal2365 2 ай бұрын
This was very helpful thank!! I’m a college student and I am switching to humira so I don’t have to keep coming back for my infusion for my IBD. I was afraid I was gonna have to stab it like an epipen
@khalidsheeraz2062
@khalidsheeraz2062 2 ай бұрын
I am a Leopard lover too. I am deeply interested in protecting leopards in Pakistan. Let us form a Leopard Club of Pakistan.
@tesfalem9566
@tesfalem9566 2 ай бұрын
Doctor am sick this RF rheumatoid factor but we taken medicine but still please I take which medicine patter
@seanflynn00
@seanflynn00 2 ай бұрын
I have swelling, swan-like deformities, Heberden's Nodes, and arthritis, and I need to use a walker to walk and have a power chair. My results came back RF Factor 47, Anti CCP 23 as a weak positive and the ANA came back negative. Years ago, I had the tests, but I was walking, and they said it was "unremarkable," but since then, I have been so much worse.
@user-qi2bi2wg6d
@user-qi2bi2wg6d 2 ай бұрын
So funny. I thought that too but black people do get sunburned.
@ishuverma5530
@ishuverma5530 2 ай бұрын
My mummi has Ra factor 207 She cry because of pain Please give me some guidance, how to take care of her and her diet
@truthfullytoyou
@truthfullytoyou 2 ай бұрын
Very resonating! Thank you!
@sarahk758
@sarahk758 2 ай бұрын
Thank you for having these videos still up. It’s helping me understand, while waiting to find out what it is I have. I’m seronegative. So kinda a toss up atm, but my rheumy thinks it’s ra. Hope you’re doing well. ❤
@DRhodus-bq3vp
@DRhodus-bq3vp 2 ай бұрын
I dunno if you still read these, but thank you! I can relate completely and im just beginning to process and heal from my trauma. I really always felt it was a big factor in my RA flares.
@amys2078
@amys2078 2 ай бұрын
Thank you. This helped A LOT and really helped calm my nerves a little bit. I’ve been so worried I would do this wrong and you explained and showed everything perfectly. Literally THEE BEST video on how to give yourself an injection. Thank you again!
@jennyk123
@jennyk123 3 ай бұрын
Thank you 😊
@Ariana-793
@Ariana-793 3 ай бұрын
My English is very broken but you’re very educated that was very easy for me to understand everything ! Thank you so much for your beautiful English 😘 sorry for my bad writing ☺️☺️
@teriabradley3086
@teriabradley3086 3 ай бұрын
I did find this video very helpful. I am on a years long discovery of what my issues are, how they effect my functioning and how to manage them (RA, Fibromyalgia and Adhd etc., etc). I've just recently started to wonder if I may have chronic fatigue because, with great disappointment, I've become less energetic and more fatigued over the past 10 years (I was more active when I just had chronic pain) I'm starting to not be able to remain awake throughout the day or sleep at night. It's very overwhelming because im not able to keep up with my nieces, nephews and other family and friends as I was able to before. And engaging in activities that give me great joy and fulfillment has dropped dramatically. But apparently according to a lot of other people, there isnt anything wrong with me. And I can't seem to find a doctor that will pay attention to how the fibro and all other issues effects my life. I'm discovering more and this video has added to my knowledge, helping me to try to find other avenues to take so i won't feel like a prisoner with no life. Thank you 👍
@nancyrudisill5404
@nancyrudisill5404 3 ай бұрын
Thank you
@Bichonfrise369
@Bichonfrise369 3 ай бұрын
I have fibromyalgia lupus and rheumatoid arthritis 😢
@Bichonfrise369
@Bichonfrise369 3 ай бұрын
Thanks 🙏
@haroonroy4009
@haroonroy4009 3 ай бұрын
My recent RA Fector range on 19/05/24 became 178, I am taking deltacotril every day with combination of other medicine,. Every morning I hv severe joint pain,specially in both knees. Please advice???
@kaylove8706
@kaylove8706 3 ай бұрын
Today was my 1st day on humira! I am coming from skyrizi… it did nothing for my joint pain. Let’s hope humira works for me!