40 years of RGP lenses !!

When will be the treament come out

Did you finally get the cataract done?

😂

thanks for sharing

How’s the eyesight doing joe? Since the op?

P R O M O S M 🙄

Keratakonus is a very sad disease. We live with trying to deal with our deteriorating sight everyday..unlike people who are born blind we have the beauty and blessing to see at full hd, only to have it be slowly taken away from us. I try not to think about it, but the sudden change every other year makes it hard to try to accept that eventually you'll be blind. For my case it was self diagnosed. I rubbed my eyes so much in highschool due to OCD I lost the vision in my right side. And now only have 20/50 with corrected lenses. I know I'll go blind in the future, but I will create SO MUCH ART before I go blind that I'll have people wonder what I could a done had I been blessed with 20/20 vision..God bless you all, and I hope you get through this anxiety. All love

The exact same happened to a workmate of mine. He ran a bath and the tap water was a little bit brown to start with and cleared pretty soon but he thought this brown was rust from inside the pipes so he continued running his bath and got in and bathed. Later that evening his eye became ithcy , bloodshot. By next morning he was in so much pain he had to take the day off work and go to A&E where the Doctor told him" you have a parasite in your eye and it's went round the back of your eye and dug himself in. My workmate had to use eye drops every 2 hours to try entice the thing out and eventually it did come out after 4 days, but the poor fella was in agony those 4 days.

I'm almost 24 and been trying to do the Air Force for almost 5 years, Military was something I always wanted to do at the age of 5 now I most likely can't go that route because of Keratoconus and it bothers me every time I think about it.

Hi everyone. My child has been diagnosed with LCA, due to the RDH12 gene. I saw that the video was posted 7 years ago, so please i would like to get in touch with families that went through this to find out how was the progress of their children.. Jackson is so adorable, you should be really proud! How is jackson now? thanks in advance

Legends

I am a mother of a blind son he is having ROP... Is there any advancement in their treatment...please let me kow

I too have had this since I was 9 and I’m now 35. No surgery yeap and daily lubricants are a life saver

I have this its not nice, thankfully I see ok.

Today is my baby laser surgery. I hope and pray that everything will be normal.my heart is so broken. She's so young,she's been through so much.Mahal na mahal ka ni mama sarina!mahal ko kayo magkakapatid. Get well soon to all the babies who is suffering from illness.God is Good🙏🏻

Take care Matilda, you're really brave! You're a huge inspiration for adults with this condition.

I am almost blind from one eye keratoconus is at advance stage The other eye is at moderate stage. And the worst part is I do programming and I sometimes cry when noone is around.

I have Keratoconus and it is getting worse as the years go on. My only option is aggressive surgeries that cost a fortune that don't really even fix vision, it just stops it from getting worse. The quality of life is poor either way for someone with Keratoconus, you have to wear glass contacts that irritate the hell out of me and glasses at the same time, I choose not to because my eyes hurt more doing that. I just gave up honestly, no one cares about this disease, no one understands it. Not being able to pass a vision test in order to drive means ZERO freedom in life.

God bless you sienna, stay strong ❤❤❤

OMG this guy reminds me of myself when I was his age💕 Best of luck

I am 26 and i still have mine (i only have 1) we didnt know i had it till i was 9. Only reason we found it was because my eye is sensitive to light and i would squint alot, still do.

Amazing. Good luck!!!!

It's very hard to live with keratoconus. Especially without Money, you're stuck

I have a very rare eye condition called choroideremia. I'm 52 now and I'm almost completely blind due to this life-changing disease. .. The remaining sight I have ( Completely blind in my right eye) in my left eye is like looking through a straw. I was turned away from gene therapy due to only being able to see out of my left eye and was informed that the only hope for me would be stem cell therapy. I understand due to the pandemic and the lack of funds research has been so to speak put on the back burner.Im looking into charity or fundraising or to do something to raise funds to further research and to possibly find a cure for this life-changing disease. if there is anything I can do to raise funds please let me know. Thank you.

Hi guys, just wanted to know does corneal transplant surgery hurt and how long the surgery lasts. I was suggested for Dalk.

Lovely special woman 🥰

Can't we live with congenital cataracts?

That is terrible. You have my sympathy.

this is so sad

I am currently suffering from keratekonis 😭😭 I am 26 mom of 4 and cornea transplant is off the table for me because it got so bad. My eye level is at 334 . People don’t realize how difficult it is to live with

is LCA is now treatable?

I have stargardt

How are Jackson now ? Is any treatment available for LCA now ?

Today my nephew diagnosed with LCA, so painful when we came to know it. Is LCA now treatable?

what fantastic athletes you both are

My baby niece has this problem no doctors know what to do 😢

Have you finally found founds ?

My husband is blind and has this. He is 85 and it's terrifying for him. Is there any cure?

Good day..hai Rose nice can know you here. I was living with stargardt's disease sinced 2006. Never give up Rose. You have a great life on future, always thankful to God. Wish you all the best in your life.. take care..from roseline

Judith Potts a diligent hard worker for research, education, awareness and a support group for people with CBS and their loved ones. Well done.

I have had corneal dystrophy since I have been a child, using lubricants daily can stop the pain and attacks . I haven’t had any surgery so far but plan on getting a PTK surgery once the pandemic is over

Reading is one of the my most utilized occupation, in my old age; without reading I my as well be dead. life can be very cruel, particularly The only revenue for the old people. !

kzfaq.info/get/bejne/kL94lMJnmdi6eGQ.html

I have the same disease I can’t see in my left eye the doctor told me there is nothing they can’t do about it

I’m legally blind and since COViD my Charles bonnet syndrome is really bad it’s really hard nothing to take or anything

Is it tax deductible tho

i had that cancer too as well as my sister and father

Please buy a expensive pair of binoculars. I am an old man who knows. Leica or Swarski...