Hi! Unfortunately we can't say when a treatment will come out, but that's why we are funding research into it.
@fernwiggins2993 ай бұрын
Did you finally get the cataract done?
@Gucci_sniper4 ай бұрын
😂
@michaelferguson1965 ай бұрын
thanks for sharing
@l-dog-85426 ай бұрын
How’s the eyesight doing joe? Since the op?
@bennybreitenberg6 ай бұрын
P R O M O S M 🙄
@luissalinas914310 ай бұрын
Keratakonus is a very sad disease. We live with trying to deal with our deteriorating sight everyday..unlike people who are born blind we have the beauty and blessing to see at full hd, only to have it be slowly taken away from us. I try not to think about it, but the sudden change every other year makes it hard to try to accept that eventually you'll be blind. For my case it was self diagnosed. I rubbed my eyes so much in highschool due to OCD I lost the vision in my right side. And now only have 20/50 with corrected lenses. I know I'll go blind in the future, but I will create SO MUCH ART before I go blind that I'll have people wonder what I could a done had I been blessed with 20/20 vision..God bless you all, and I hope you get through this anxiety. All love
@BexJade198 ай бұрын
Hey lovely, it is a very sad condition, but please don't give up hope. Keratoconus will not result in complete blindness. I have been living with condition for 36 years, I haven't as yet had the transplant and no cross linking. The progression slows down around your 40s, I am an artist also working with the eyesight that I have. warmest wishes to you.
@davidboydarnott41710 ай бұрын
The exact same happened to a workmate of mine. He ran a bath and the tap water was a little bit brown to start with and cleared pretty soon but he thought this brown was rust from inside the pipes so he continued running his bath and got in and bathed. Later that evening his eye became ithcy , bloodshot. By next morning he was in so much pain he had to take the day off work and go to A&E where the Doctor told him" you have a parasite in your eye and it's went round the back of your eye and dug himself in. My workmate had to use eye drops every 2 hours to try entice the thing out and eventually it did come out after 4 days, but the poor fella was in agony those 4 days.
@jasonlejuan975 Жыл бұрын
I'm almost 24 and been trying to do the Air Force for almost 5 years, Military was something I always wanted to do at the age of 5 now I most likely can't go that route because of Keratoconus and it bothers me every time I think about it.
@tonydeandrade9523Ай бұрын
Military service should still be possible, maybe just not combat duties. iI was conscripted in the early 80s - admittedly with undiagnosed KC. I went through full combat training and deployments with specs. Just remember, every role in the military is important, not just "Front Line" operations. Don't let KC hold you back !!!
@user-px1hh5nz5r Жыл бұрын
Hi everyone. My child has been diagnosed with LCA, due to the RDH12 gene. I saw that the video was posted 7 years ago, so please i would like to get in touch with families that went through this to find out how was the progress of their children.. Jackson is so adorable, you should be really proud! How is jackson now? thanks in advance
@l-dog-8542 Жыл бұрын
Legends
@aishasafi6885 Жыл бұрын
I am a mother of a blind son he is having ROP... Is there any advancement in their treatment...please let me kow
@scorpiotrc Жыл бұрын
I too have had this since I was 9 and I’m now 35. No surgery yeap and daily lubricants are a life saver
@pinkbeatle20122 жыл бұрын
I have this its not nice, thankfully I see ok.
@Louchanyamada2 жыл бұрын
Today is my baby laser surgery. I hope and pray that everything will be normal.my heart is so broken. She's so young,she's been through so much.Mahal na mahal ka ni mama sarina!mahal ko kayo magkakapatid. Get well soon to all the babies who is suffering from illness.God is Good🙏🏻
@roshnirisal5494 Жыл бұрын
How is she now
@sharaa___92592 жыл бұрын
Take care Matilda, you're really brave! You're a huge inspiration for adults with this condition.
@priyanshuvettori51792 жыл бұрын
I am almost blind from one eye keratoconus is at advance stage The other eye is at moderate stage. And the worst part is I do programming and I sometimes cry when noone is around.
@ShorttvWorld Жыл бұрын
I will not live anymore keratoconus destroyed my life
@Nokkternal2 жыл бұрын
I have Keratoconus and it is getting worse as the years go on. My only option is aggressive surgeries that cost a fortune that don't really even fix vision, it just stops it from getting worse. The quality of life is poor either way for someone with Keratoconus, you have to wear glass contacts that irritate the hell out of me and glasses at the same time, I choose not to because my eyes hurt more doing that. I just gave up honestly, no one cares about this disease, no one understands it. Not being able to pass a vision test in order to drive means ZERO freedom in life.
@truthlight28167 ай бұрын
Damn you get it. Imagine being a black man. Lol my life is a joke now. The infamous you're not blind from family and friends.
@saddy7042 жыл бұрын
God bless you sienna, stay strong ❤❤❤
@margunnarsson47542 жыл бұрын
OMG this guy reminds me of myself when I was his age💕 Best of luck
@vtrash65322 жыл бұрын
I am 26 and i still have mine (i only have 1) we didnt know i had it till i was 9. Only reason we found it was because my eye is sensitive to light and i would squint alot, still do.
@ufanisoneetze2 жыл бұрын
Amazing. Good luck!!!!
@franko85762 жыл бұрын
It's very hard to live with keratoconus. Especially without Money, you're stuck
@priyasindhu57342 жыл бұрын
I agree. Well, I am in that condition but gonna make it better.
@Bishop4722 жыл бұрын
I have a very rare eye condition called choroideremia. I'm 52 now and I'm almost completely blind due to this life-changing disease. .. The remaining sight I have ( Completely blind in my right eye) in my left eye is like looking through a straw. I was turned away from gene therapy due to only being able to see out of my left eye and was informed that the only hope for me would be stem cell therapy. I understand due to the pandemic and the lack of funds research has been so to speak put on the back burner.Im looking into charity or fundraising or to do something to raise funds to further research and to possibly find a cure for this life-changing disease. if there is anything I can do to raise funds please let me know. Thank you.
@varunbansal72422 жыл бұрын
Hi guys, just wanted to know does corneal transplant surgery hurt and how long the surgery lasts. I was suggested for Dalk.
@vidyavox2576 Жыл бұрын
I have glaucoma anyone know the cure pls help me
@crittersofearth99142 жыл бұрын
Lovely special woman 🥰
@markanderson670711 ай бұрын
Oh my, yes.
@Native7222 жыл бұрын
Can't we live with congenital cataracts?
@k_tubbs2 жыл бұрын
Well yeah. I have congenital cataracts. My first ever surgery will be in 1 week. And I'm basically going blind. If I were not to treat it, that's the outcome. A person can live with blindness but ya vision does help in the day to day. 😅
@otiebrown99992 жыл бұрын
That is terrible. You have my sympathy.
@ht-sd4je2 жыл бұрын
this is so sad
@ht-sd4je2 жыл бұрын
😟🙁☹😨😰😥😢😭😣😞😓👀
@daughteroftheking72652 жыл бұрын
I am currently suffering from keratekonis 😭😭 I am 26 mom of 4 and cornea transplant is off the table for me because it got so bad. My eye level is at 334 . People don’t realize how difficult it is to live with
@pinkbeatle20122 жыл бұрын
sorry to hear this :(
@vidyavox2576 Жыл бұрын
I have glaucoma anyone know the cure pls help me
@priyanshuvettori5179 Жыл бұрын
@@vidyavox2576 glaucoma can be easily prevented from eye drops and regular screening but glaucoma can't be reversed.
@priyanshuvettori5179 Жыл бұрын
Just keep taking the medicines that your doctor has prescribed and prevent it from progressing further.
@tonydeandrade9523Ай бұрын
Keep fighting and stay positive - I have lived with KC and RGP lenses for 40 years now.
@mzhdaabdulrahmantofiq46852 жыл бұрын
is LCA is now treatable?
@sandybell3332 жыл бұрын
I have stargardt
@didyouknowthat4433 жыл бұрын
How are Jackson now ? Is any treatment available for LCA now ?
@didyouknowthat4433 жыл бұрын
Today my nephew diagnosed with LCA, so painful when we came to know it. Is LCA now treatable?
@MrBerry673 жыл бұрын
what fantastic athletes you both are
@Faffymonay3 жыл бұрын
My baby niece has this problem no doctors know what to do 😢
@artemedutech3 жыл бұрын
Have you finally found founds ?
@SandyzSerious3 жыл бұрын
My husband is blind and has this. He is 85 and it's terrifying for him. Is there any cure?
@roselineitijawa28423 жыл бұрын
Good day..hai Rose nice can know you here. I was living with stargardt's disease sinced 2006. Never give up Rose. You have a great life on future, always thankful to God. Wish you all the best in your life.. take care..from roseline
@bernadetteglass62223 жыл бұрын
Judith Potts a diligent hard worker for research, education, awareness and a support group for people with CBS and their loved ones. Well done.
@reenamistry23353 жыл бұрын
I have had corneal dystrophy since I have been a child, using lubricants daily can stop the pain and attacks . I haven’t had any surgery so far but plan on getting a PTK surgery once the pandemic is over
@engin77873 жыл бұрын
Reading is one of the my most utilized occupation, in my old age; without reading I my as well be dead. life can be very cruel, particularly The only revenue for the old people. !
@DJ-JAY-Q3 жыл бұрын
kzfaq.info/get/bejne/kL94lMJnmdi6eGQ.html
@gabrielmerza69043 жыл бұрын
I have the same disease I can’t see in my left eye the doctor told me there is nothing they can’t do about it
@dannyinsight13243 жыл бұрын
I’m legally blind and since COViD my Charles bonnet syndrome is really bad it’s really hard nothing to take or anything
@OkieBadu3 жыл бұрын
Is it tax deductible tho
@virginiagiddings3 жыл бұрын
i had that cancer too as well as my sister and father
@stevelieberwirth33253 жыл бұрын
Please buy a expensive pair of binoculars. I am an old man who knows. Leica or Swarski...