I don't know how I will fight with this disease...cp...I am 31..need someone help.. I don't wana die

0:52 0:53

Thank you for sharing 🙏🏻

I have a 14cm mass none cancerous...going through procedures waiting to see specialist for out come & treatment...🤔

slides would've been helpful...

Exactly what happened to me. It's awful

Its 2024 any update about treatment

Saturated fat is not bad. And we should not be recommending vegetable oil. This advice is opposite of what is healthy. There’s better information out there. This is harmful advice.

Should a ipmn be removed from the main duct

It’s mind blowing that 56k watched this video and I hade to still occasionally inform Drs. what is wrong with me. 😞 Please keep spreading the word!! Thank you. 🫶🏻

I don’t have any islets left. 😣

Dr what can lead of loss of pancreas normal lobulations , and what makes tail looks bulky in a CT SCAN, though there is no tumour

I came across this video by accident and I couldn’t believe I wasn’t alone. I’ve struggled with pancreatitis for 30 years. My story is very similar to the people who have shared. The information was very helpful. When one person said they wish someone could feel this pain for a second so they could understand. I know have cysts in my pancreas. I have been diagnosed with IPMN when I was 31. I shared this video with all my family members. With hopes they could better understand this condition. I feel that hearing other people’s stories they could better understanding what I go through and not “ here we go again “ I thank all of you for sharing your stories and how you all have found ways to cope with a devastating condition.

My,14 year old nephew is suffering with Pancreatitis.

yes this is great information

I’m so grateful to hear from others who share the same experience as my self, it really motivates me to keep fighting. Because I have been through a lot over the past 8 years. This is only time I am hearing from people with chronic pancreatitis.

My heart goes out to all of us who have this awful disease. It took so long for me to get a proper diagnosis. I've lived with this for 17 years now. It is a journey. Thank you.

Happy Heavenly Birthday Leesha. You are loved and missed.

Well done, could you give us an update, how do you feel yourself nowadays?

Homeopathy medicine is useful for pancreas disease

Thank you! What medical group did you choose? Have you had surgery? What life changes have you made? Wishing you the best!

Damn they couldn't make a smaller incision?? Jeez!

WOW, I know Leesha and had not ever seen this video, I am ashamed to say. My love and prayers are with you, Leesha!

One thing that Everyone needs to know Pancreatitis is Exactly Painful!! If you haven’t ever experienced it, please don’t doubt everyone else.

I don’t think it’s humane to leave patients who are suffering with this to go through it without pain management.

🙏🏻🙏🏻🙏🏻🙏🏻💜

I am not a health professional, but I do have a Pancreatic Cyst. With the sample taken from the cyst. Why can’t the cyst just be drained as it sits on the Pancreas?? If drained, will the cyst return once drained??

Claremont new Hampshire

I went to the teaching hospital clinic of one of the attendees, about when this was filmed. “No evidence on imaging.” No treatment, because we “don’t see any evidence you have chronic pancreatitis.” Good-bye, good luck. Luckily, my gastroenterologist said “b___ s____,” and treated the symptoms. Then evidence is there now, but we’re still treating my symptoms, pretty successfully on the whole. Maybe he listened to your presentation?

I am a professional KZfaq Marketing Expert

i want to help you By getting your video to more people

As a fellow parent fighting for her child. My heart bleeds for you.

I have hemochromatosis and had to go into hospital due to having pancreatitis and had ketoacidois too ..I was diagnosed with type 2 12 years ago and now told I have type 3c and having to inject 😢

Thank you for giving me hope!😅

My symptoms or pain starts on the lower back and radiates to abdomen. Is it not common ?

VX880 which is from vertex pharma can cure type 3c diabetes?

Currently diagnosed with EPI, Thank you for doing these panels, you are helping many that are suffering with little support.💙

AMAZING!!!!

You are a good speaker. I have EPI. Diagnosed recently. 72 years old. Taking ZENPEP. Thanks for your informative presentation.

I had my tpiat to you about six months ago and I feel so much better

I'm appalled by the healthcare system in the West (I'm in the UK). I've had constant left side abdominal pain & nausea for over a year & as a 35 year old man, knowone seems to care. I finally got an ultrasound a few months ago. The practitioner told me at the time she could see fat infiltration in the liver & pancreas. My doctor sent me a text a week later, ignoring the pancreas discovery & told me I simply have fatty liver and should consider improving my diet. Fatty liver alone should not be causing these left side abdominal symptoms & my diet is good, but there was no suggestion of further investigation. I've pushed the matter and have now been referred for an endoscopy & awaiting a CT abdomen appointment. It's so discouraging to hear that people have been misdiagnosed & had unnecessary surgery as a result. I pray I can get to the bottom of this soon. Listening to this video I'm not convinced I have pancreatitis, my pain is a more constant dull ache that is made worse by lying on either side, but I am convinced the ignored fat infiltration of the pancrease has something to do with it. It feel like my pancrease is in trouble

pancreas pseudo cyst. observed sometime ago. however thank be to god was reading packet ingredients, a phrase one hadnt heard at that time: ''malic acid'' came to light, - discovering this product during 'my checking of ingredients' process in regards to 'new to me foodstuffs' & listed on pack ''tangfastics'' was '' malic acid'' believe it or not [long story here] ''tangfastics'' was literally available foods at that time, and certainly not typical 'food' in my case .. ( it was needs must; bovine gelatin, malic acid, sugar not that bad right thinks me, well, okay sugar not great in regards inflammation but ) anyways, was on hospital acute care bed were search engine check revealed [some] efficacy in regards to sudo cyst / malic acid. picked up 500g off of amazon. 1/2 teaspoon, warm water, also, creon caps, sporadic fasting ..fresh fruit, herbs & veg, exercise [ Qigong : pancreas related stretches also ] so far so good. appears to be 'melting' the pseudo cyst i think is a way to say. YMMV

Absolutely cannot eat fats. Lab test: Exocrine Pancreas Insufficiency suppose to be between 200-1000. I am at 50. I feel like I have been through a lot. These people have been through so much more. Made me cry.

Thank you. The pain never completely goes away. It's so comforting to know I'm not alone.

I had acute pancreatitis about 6 yrs ago

Wow have had trouble since I took ozempic for weight loss since then have pain in pancreatic area this so insightful thank you for sharing

Is she still alive?

Hi can we have an update on her? Is she still doing well? I have just been diagnosed with chronic pancreatitis . And will defiantly do this surgery one day

The ER dismissed me when I said I use Marijuana. No fluids were given, and I went home with the same pain.

I was just diagnosed, and I can relate to everything about the pain. Thank you for sharing your story.