Thanks alot for the update through Q&A and well articulating the current progress.
@AndyPadilla324 күн бұрын
This is a great Q&A. Thank you for providing some clarity on these topics.
@PsychOut10125 күн бұрын
What would a gene therapy potentially mean for an older child or teenager with foxg1 that is well past the early stages of brain development?
@AndyPadilla3Ай бұрын
Great insights. I appreciate the explanation. 🙏🏼
@AndyPadilla3Ай бұрын
It’s great to hear this type of research is underway. I look forward to hearing more about the progress and outcomes of this work in the Fink Lab at UCD.
@CureSYNGAP1Ай бұрын
Well said Nasha, thanks for sharing these observations. We agree!
@valdesishsilva72685 ай бұрын
❤❤❤❤
@adelaidedupont90175 ай бұрын
I loved it when Abey quoted Donald Rumsfeld - "I went to school with the brain I have".
@ashleyrenzi31887 ай бұрын
hi corbin!!!!
@raymondkemei49867 ай бұрын
I got diagnosis for my son today, how do I get in touch with you ?
@FOXG1Research2 ай бұрын
please see the website at www.foxg1research.org and connect with us!
@Bartas2527 ай бұрын
Amazing job. This is an unprecedented, unbelievable story. I hope my fox will write anything one day to me. God bless you.
@cindydashnaw4078 ай бұрын
What a wonderful message by inspiring people! Thank you for sharing your experiences and children with us.
@athulpravhakar1008 ай бұрын
Nice shoe
@Eunomia0011 ай бұрын
Was für ein demotivierendes Videos
@user-yu7uh3pu4h11 ай бұрын
Dr.your a very beautiful woman and I wanted to say hi
@user-yu7uh3pu4h11 ай бұрын
Hi beautiful how are youy name is Pete Carbullido I seen you on you tube and want to talk to you
@user-yu7uh3pu4h11 ай бұрын
Who is the one in the white pants
@user-yu7uh3pu4h11 ай бұрын
Hey buetiful how are you
@user-yu7uh3pu4h11 ай бұрын
She pretty good looking
@user-yu7uh3pu4h11 ай бұрын
I like to see her in person
@unker77 Жыл бұрын
Dr. Nadia Bahi Buisson 🥂
@gotohell78 Жыл бұрын
2:42
@alfonsolorenteguerrero1444 Жыл бұрын
Thank you man ❤
@shutzenko7315 күн бұрын
Much appreciated
@shutzenko7315 күн бұрын
@@alfonsolorenteguerrero1444🙏
@nadslibra Жыл бұрын
A truly memorable experience that we will never forget ❤️ #CureFoxG1
@waynefitzpatrick4295 Жыл бұрын
"promosm"
@kevinchiang1645 Жыл бұрын
23:51
@tt55899 Жыл бұрын
Nothing happened
@alfonsolorenteguerrero1444 Жыл бұрын
❤
@alfonsolorenteguerrero1444 Жыл бұрын
Thank you man ❤
@shutzenko735 ай бұрын
Red lingerie matches her shoes
@rosebed14 Жыл бұрын
Amazing! It's just so inspiring what a community of passionate people can achieve.
@michaelasjogrencronstedt6946 Жыл бұрын
❤️🙏🏼🤲🏼🛐
@goldcentralco.6936 Жыл бұрын
❤
@wtb61 Жыл бұрын
I have a grandchild with Fox G1 Syndrome. I pray one day there will be a cure.
@internationalfoxg1brainfac328 Жыл бұрын
Hi Nasha, Could you share more details about the clinical trials. How can parents share interest to have their children enrolled? Thank you
@FOXG1Research Жыл бұрын
Please reach out to the FOXG1 Research Foundation Australia for all FOXG1-related matters in Australia. [email protected] All parents worldwide will be sent an email with all the details regarding the trial.
@mechthildroll6533 Жыл бұрын
Nasha, so clear, so good AND hopeful. CONGRATULATIONS to you and all the FOXG1 Research Foundation team!!
@oliverroll9238 Жыл бұрын
Congratulations to the FOXG1 Research Foundation team on your tremendous progress!! Happy 5th Birthday!!!
@monicacoenraads1518 Жыл бұрын
Well done Nasha. The Rett syndrome community is cheering for you!
@michaelasjogrencronstedt6946 Жыл бұрын
Thank you so much ❤️🙏🏼🛐💎
@fabionani Жыл бұрын
Há avanços nessa pesquisa? Fiquei bastante animado!!!
@Hello-._-.2 жыл бұрын
I would be very interested to see what impacts whole plant cbd oils would have on cells
@surfinglynn2 жыл бұрын
Thank you for the update!
@elizabethshultz4732 жыл бұрын
Thank you for sharing Josie. 🥰
@brunotomassetti542 жыл бұрын
♥️
@ShZubairAhmed2 жыл бұрын
Is a red pimple also a sign of any thing? My kid have one on his hand and one on his thigh. Pls reply!
@CureSYNGAP12 жыл бұрын
Bravo!
@Random-JustAnother2 жыл бұрын
God bless you Crosby and family!!! #Foxg1Syndrome
@555Pleiades2 жыл бұрын
Thank you for everything. I wish you a Happy New Year!
@alexandrabaas9792 жыл бұрын
Wat een schattig jongetje, ik hoop dat het hem en jullie als ouders goed gaat en de hij gespaard blijft van (epileptische)aanvallen. Veel geluk en liefde samen
@HG-ig3qr2 жыл бұрын
The Lord picked the perfect parents to raise a perfect beautiful little boy. Good bless
@HG-ig3qr2 жыл бұрын
@@itsallperspective7415 I'm sorry your life is full of negativity. But you should know the meaning of love, and the miracles that God gives.
@HG-ig3qr2 жыл бұрын
@@itsallperspective7415 I pray you found the fulfillment of love. Nothing in life is perfect but it's how we love it's what brings hard to ease.... I'm sorry this video brings you pain but the love in the parents eyes should tell you different. I think they would rather have him under any condition they face
@HG-ig3qr2 жыл бұрын
@@itsallperspective7415 any human life is a blessing. If one of your family members got in a car accident that paralyze them or I lost limbs from fighting in war. Does that mean they shouldn't live. Because you don't think they're perfect or they're not a blessing. I wonder how perfect you feel you think you are. For you to say that baby is broken and not a blessing.... I don't think you believe in God. But we all die one day and we'll have to stand in front of God. I hope you feel that you've been a blessing to others after condemning a baby. To me you probably believe in abortions.
@HG-ig3qr2 жыл бұрын
@@itsallperspective7415 I pray one day you find peace within yourself so you can understand how precious life is. No matter what circumstance. Maybe one day you'll pick up the Bible and read it to understand God's words.
@HG-ig3qr2 жыл бұрын
@@itsallperspective7415 I pray your negativity goes away and that others don't have to read the words you display. Because to me you don't have any feelings for this child or his parents.