It is still true that doctors caring for our loved ones do not provide enough compassion, understanding and information to the families of people with dementia, any dementia. I'm the kind of person that will seek out information for myself rather than continue to be disappointed. That's one of the biggest pieces of advice I can share.
@annekristineosoffsky32222 ай бұрын
In December, 2017, my oldest brother was diagnosed with Parkinson's disease. I was diagnosed with Parkinson's in 2004. He was placed on C/L ( generic Sinemet). I have been on this medication since 2007, & told him that as long as I take my medication regularly, my symptoms are well controlled. Unfortunately, we knew it relatively quickly, that Greg's symptoms were more "severe". Hallucinations, sometimes violent, & physical deterioration was swift. It was not until his autopsy that we were given the diagnosis of Lewy Body disease. Greg was the strongest, brightest person I have ever known. It has been 6 years since his death, I am still in shock how swiftly this disease brought down the "Goliath" in our family. God bless every family that this disease traumatizes.
@passinthru47884 ай бұрын
With all due respect, I take issue with some of this Lady’s assessment of symptoms indicating presence of Lewy body dementia, as many see images in clouds and trees, even mountains and rocks. There is a name for the phenomenon, and it is not Lewy body dementia. Folks hear noises and such, without explanation, many folk at the same time hearing loud booms or crashes, and are well adapted people not having dementia. Although the events are also present in dementia patients, there is some very strange phenomenon occurring. I also believe there is a correlation with covert and overt narcissism connected with developing LBD as many folk exhibit symptoms of all 3 at times. However, I thank the Lady for her time and effort in creating this presentation.
@lesliefreeman12934 ай бұрын
🌟 P r o m o s m
@sheryalderman19865 ай бұрын
What was the weather like in riddle 3/9/24
@deniesekline-thatcher83805 ай бұрын
There is No True evidence that food & aerobic exercise. People are born with these things all these offers of cure does not stop or slow it down unless you are born in a bubble‼️ what might help be prepared for eternity! MEDICATIONS have MANY horrible side effects! Stop offering people who are always going thru a bunch of difficulty. FALSE HOPE‼️That is wrong 😑 💧💧💧
@bananabreadguy79606 ай бұрын
Who else is here because of The Nature of Predators? 😅
@patrickmonk38126 ай бұрын
Thankyou dear friend. Thank yoy Martha.. Thank you Derek Kerr. My tub is slowly draining but I ain't circling the drain-yet. Long may your ticker keep on tocking, untill it doesn't.
@MWIKWABEMogere7 ай бұрын
Support me please
@ximenavalenzuela56048 ай бұрын
Una bella película para romper Paradigmas
@paulcurran48988 ай бұрын
Is there a support group for PCA? For patients and/or families... I have been looking for one.
@ICME8229 ай бұрын
可以將ChatGDP的功能 植入 Parorobots 裡面? 進行一般的對話?
@cindylee785510 ай бұрын
HELP!!! Can someone with ALL THESE HORRIBLE SYMPTOMS have days where they seem quite normal then go back to sleep disturbances and seeing people???
@redtrinitygirl5 ай бұрын
MY mom seems to be doing this.. she had about 10 months with mostly good days now she is just napping and has locked me out of her house. she don;t know who I am when I'm knocking on the door..
@StevenWithrow10 ай бұрын
Kay Ryan’s work reminds me of my favorite children’s poet, Valerie Worth, whose “small poems” also share the “recombinant rhyme.” Worth and Ryan did not know of one another, as far as I know, but the similarities are so wonderfully present. Hoping more Ryan readers discover Worth’s amazing writing.
@MarianneSciucco11 ай бұрын
Looking forward to screening this at my community college.
@KevinKunze Жыл бұрын
Made me tear up a little bit watching the trailer. Can't wait to see the full movie
@robertyoung1777 Жыл бұрын
Poor audio quality made this unintelligible. What a waste.
@johng5295 Жыл бұрын
Great content.
@zoerobinson4429 Жыл бұрын
Beautiful, heartfelt. Thank you.
@islandbirdw Жыл бұрын
Recently I’ve been following a young couple who are in their late 40’s and the young man has developed LBD. He described an interesting sensation that occurs when he get so fatigued he just “zones out” he feels it start near the frontal cortex and then moved up and over his head. He then withdraws and takes a nap. He doesn’t sleep well at night also. His wife and childhood sweetheart is a nurse and so she has had to quit working to take care of him full time. Neither of them are even 50!
@darlinspaces Жыл бұрын
My Uncle has this since only 69. I asked my Dr if it can be hereditary and she said no. Then she says” if you have Dementia, that’s it”. As if to say there is no help? Sometimes Doctors can be so off putting I don’t understand them.
@charlesstuart1119 Жыл бұрын
So when it starts one must get more dopamin asap, is that right? How do we get it then?
@maryerichardson8302 Жыл бұрын
I never tire of this video or of Frank’s kind, compassionate wisdom. Thank you, Frank.
@meandcadasil7093 Жыл бұрын
Excellent, short presentation. Thank you.
@tizunetatn8803 Жыл бұрын
Great job ladies! Thanks for sharing and being brave to post your own life lessons to teach others!
@boxpositive1782 Жыл бұрын
I have a new client that I suspect has CBD - not yet confirmed clinically. This has been a useful presentation thank you and strengthens my rationale and reasoning for further PET scans. I am convinced he has CBD.
@xiylo. Жыл бұрын
What are the main symptoms youve noticed ?
@boxpositive1782 Жыл бұрын
@@xiylo. Communication - almost total inability to give answers, just a puzzled look. An alien limb - his right leg he finds difficult to use. Complete incontinence. Rapid deterioration from onset of symptoms 3 years ago. Frontal lobe and cortex deterioration on MRI
@xiylo. Жыл бұрын
@@boxpositive1782 wow
@xiylo. Жыл бұрын
@@boxpositive1782 that’s a lot
@xiylo. Жыл бұрын
@@boxpositive1782 thank you for the information
@user-tg6gv2lm5s Жыл бұрын
請教善知識,什麼叫做『電震體』?感恩
@chestinerenaebullardcooper1083 Жыл бұрын
Honest
@chestinerenaebullardcooper1083 Жыл бұрын
🎧
@muskduh Жыл бұрын
Thanks for the video!
@richardflores4877 Жыл бұрын
Are you going through anything and need support?
@muskduh Жыл бұрын
@@richardflores4877 oh yes, plenty
@richardflores4877 Жыл бұрын
@@muskduh how can we connect? Give me your gmail address so we can connect
@muskduh Жыл бұрын
@@richardflores4877 no thanks I have professional support already but I appreciate the help
@lisamargaret3051 Жыл бұрын
My son has suffered autism spectrum since childhood and has battled with it all his life. But recently taking Dr Ehizogie herbs have helped him get rid of it completely, his speech is vital and his social skill is perfect. I'm so glad and happy now His channel is #drehizogie.
@bakokat6982 Жыл бұрын
I must comment on your rather “hospital “ ideas that you seem to think will work at home. Dr. You seem to think that anyone can provide care for a loved one at home. Not everyone will be able to physically care for their family member. ie:/ a wife my not be able to even lift their larger husbands legs for range of motion, or turning them in bed, etc. Not to say even take care of their family member’s incontinence, whether urine or fecal. Nor can most retired couples be able to afford having care done by home care agencies. I find your advice to get emotional help from other than the Dr. Caring for the patient. Do you realize how that is very costly,and the difficulty finding time and money to do that while trying to care for their disable family members. Feeding tubes are now bad, in lieu of what starving, feeling hunger, being dehydrated. If you have clean up your family members urine and bowel movement’s, by it’s nature is not a private thing anymore. It is simply what is needed done. I think your presentation is fair enough but truly not terribly practical for most families trying to keep their family member at home. And most families cannot afford the total care costs that are charged in nursing homes.
@mahakaalvonjuggernaut420 Жыл бұрын
What a shitty teacher
@harrysteve3744 Жыл бұрын
My uncle motor neuron diseases (ALS) was cured and reverse permanently who has been of wheel chair for year’s with the help of DR OARE a powerful herbal medicine doctor from Africa 🌿 and most of the symptoms are gone which are loss of breath,difficulty in swallowing and many other’s! Thank you very much #DROARE on KZfaq channel 👍
@gcnmrr_ Жыл бұрын
Amazing! May I know the references please
@eileensoucy381 Жыл бұрын
. P
@pankajkalaiya42402 жыл бұрын
That was five years ago and back to the beginning
@henripentant11202 жыл бұрын
Important to test test test because people with LBD can not take haldol like they might prescribe ordinarily!
@xzczczcxzcasdsadas2 жыл бұрын
I had a relative that passed away from CBD.
@dewiialjoe7112 жыл бұрын
I really enjoy this video very helpful and very detailed information
@quintarafullard96262 жыл бұрын
As a black women, I can relate to these experiences in so many ways. Thank you for sharing your voices. This is a great video!
@nickvoutsas51442 жыл бұрын
The essence is Love just , Jesus Christ forgave all that we might live life through the Gifts of the Holy Spirit rather living a life of death.
@erinoshaughnessy65682 жыл бұрын
This is such pertinent information and I want to share it with my family because my dad is in the later stages of this disease. I’m a nurse and I’ve studied palliative care and this is a wonderful collection of helpful info. The ‘um’s throughout distracted me… I get it, and I hate to be picky. AITA, yes.
@barbmendenhall20932 жыл бұрын
😂
@whereslaska2 жыл бұрын
I'm 63 and am convinced that I have early early Lewy Body symptoms. My Grandmother, Mother, and Aunt all died with dementia (never specifically diagnosed) but I was a caregiver for both my Grandma and Mom... I KNOW it is LBD. My mom told me she thought she was getting it at my age and I denied her reality. I'm still here... but I'm fading.
@pranavgaikwad55352 жыл бұрын
Plzz belive in Jesus he is the only real god and he can heal you and i am not doing this for relegious sake because jesus came for whole world and he is real God he loves you plzz prayer to him he will heal you i have experienced even I am just 17 and i was having ocd disease he healed me trust jesus and i can help you trough prayer if you want
@pghbekka2 жыл бұрын
Sending you love on this difficult journey! If you haven't, I do recommend you pursue the diagnosis. The earlier you know it, the more effective medication can be (we know it is terminal but some medications can slow the progression a good deal, and sometimes reverse some affects for a time). Also, having it on your record can be imperative as your reactions to medications as a person with Lewy Body can be very different. It sounds trite, but keeping active can help you maintain as well. Again, sending you so much love and sympathy!
@innersting31743 ай бұрын
I was just diagnosed with lbd and am holding you in my heart. (I am much older, 74)
@yvonnesmith23353 ай бұрын
My husband has been diagnosed with VD, I also believe that he has LB but was told there is no way of diagnosing a living person with LB. The only way to tell is by autopsy. What is the test they do before death to diagnosis LBD.
@thejurydoctor609717 күн бұрын
@@yvonnesmith2335 Single-photon emission computerized tomography (SPECT) or PET imaging. These tests can show reduced dopamine transporter uptake in the brain.
@YuriyKhovansky2 жыл бұрын
I know Weedborn has solutions to most diseases.
@allandocater62962 жыл бұрын
Let's check Weedborn oils if you want to help yourself cheaper and better.
@jungbechtospk402 жыл бұрын
I checked a lot of CBD oils. I think CBD from Weedborn is the best.
@janelewis77472 жыл бұрын
My mom has this, she is very cruel to me, not to my sister? Is this part of the diagnosis?
@kiloton19202 жыл бұрын
Yes this seems to be an early sign, along with falling. Your sister most likely sucks up to her so that’s why she is nicer to her.
@pghbekka2 жыл бұрын
Yes, it can be. Many times, the aggression and paranoia targets the person who gives the most care, unfortunately. It can also fluctuate as to who is considered the bad person. If it helps at all, if this is new behavior, it is not really how your mother feels. She is frustrated and scared and can't put her fear into words or understand completely what is happening, so she targets an outside cause.
@pa1154 Жыл бұрын
Yes my mother got diagnosed with this disease 5 months ago and she hates my brother but likes me as a caregiver. Be kind to her. She's just showing symptoms