It is devastating to be constantly asked „whats wrong with your voice“ or „sounds like you are getting sick“ - absolute social terror. And what i am noticing as my voice gets worse, is that people dont want to talk to me after they hear my voice a couple of times. They just find it uncomfortable or difficult to hear and talk with someone else. It is very isolating

I have this, it fcking sucks so bad. It's so hard to speak.

Glad this is out there 👍

This the best video I have yet seen on how to understand and manage my SD. Thank you so much.

I think the women on my dad’s side of the family have this, they all have kind of a irregular, uneven way of speaking, especially in their older years.

kennedy 24

Maybe I am deaf but all the guys in this video just sound normal lmao.

I get periodic Botox shots in my sternocleidomastoid muscle to eliminate more than 90% of symptoms.

Interesting. Thank you.

I’ve been living with this condition for 35 years now. Initially I saw a gp who dismissed me as being a time waster. That put me off ever seeking help. I have brief respites from it very occasionally. No apparent reason why, but in those times I no longer feel like a freak. I have noticed that the less at ease I feel with someone, the harder it becomes to speak. If I get really anxious I can barely speak at all. As a result, I shy away from people and situations in order to avoid the embarrassment and shame I feel, and the more negative attention it gets the worse it becomes. It’s a catch 22 and I can honestly say it has held me back from being the person I know I am inside. Funnily enough, I am a professional saxophonist and sing backing vocals in bands. I imagine speaking and singing use different parts of the brain. Is there any organisation in the UK that anyone knows of who I might get in touch with? If so, please drop me a message. I live in hope 🙏

I’ve been living with this condition for 35 years now. Initially I saw a gp who dismissed me as being a time waster. That put me off ever seeking help. I have brief respites from it very occasionally. No apparent reason why, but in those times I no longer feel like a freak. I have noticed that the less at ease I feel with someone, the harder it becomes to speak. If I get really anxious I can barely speak at all. As a result, I shy away from people and situations in order to avoid the embarrassment and shame I feel, and the more negative attention it gets the worse it becomes. It’s a catch 22 and I can honestly say it has held me back from being the person I know I am inside. Funnily enough, I am a professional saxophonist and sing backing vocals in bands. I imagine speaking and singing use different parts of the brain. Is there any organisation in the UK that anyone knows of who I might get in touch with? If so, please drop me a message. I live in hope 🙏

None of these really sound bad. Not like RFK jr bad anyway. Thats on a whole nother horrible level.

I'm from indonesia, i think i got spasmodic dhysponia too, can anybody help me?

I have what Cathy has... sounds just like her

What effect does GERD have on this group of vocal conditions ?

Apparently most people find talking as natural as walking. I wish I knew what that was like. Speech disorders is like cerebral palsy for talking

Did Katherine Hepburn also have this affliction?

This is terrible for these people

I feel kind of bad for these people 😢

Some of these people sound completely normal. I wonder if a lot of the cases out there go undiagnosed

😢😢😢😢 0:32

Robert F Kennedy Jr sent me here

Thank you Lupita for raising awareness, this is very eye opening

I’m 25 and just got diagnosed with the abductor version of Spasmodic Dysphonia after 10 years of people telling me I just needed to relax and practice. Got botox treatment last tuesday, so will see in 3 weeks if it works for me. Fingers crossed. This condition is exhausting..

I think i have sd. I first noticed when i was pregnant at age 26. Gradually started noticing breaks in my voice airy choppy and hard to pronounce curtain words. also feel that if im aware of it. It gets worse.

I was unable to breathe after my injection.

when speaking becomes very difficult due to a physical problem, even people that are very quiet by nature learn how much they enjoy speaking freely.

29:43 that is too QoL impactful: thr has to be a betr way. tho my cyborg idea is a little hard to test in rats...tho if it is external. heck, run on a cell phone? ill have to think on it. _JC

****24:00** who came up w the basal ganglia idea?* is that another hand wavy caper. why not fine motor cerebellum?* i imagine thr is no imaging either way. why are systemics not ever touched on? i know we all love procedures, but im sure everything has been throwing at it over the decades. what about robotic vocal boxes. i could write an algo to fill in whr the word sounds are shaking - you could likely do a cut and paste on either said or the sound wave. & also x2 the space between words. _JC

18:40 Ab response to botox (q type) _JC

Wht happened to her and why did it bring on such symtoms

Runny racist mouth is more appropriate 👌🏽

I just heard of this after googling Jeff Pegues' interesting voice. Anyway, it kind of reminds me of when people jokingly imitate elderly people speaking... is it more common in seniors?

Thanks Scott!

Mine started at my second vaccine shot June 2021 and has gotten worse and my speech and eating and swallowing is bad .they told me i had dysphonia and they keep putting my appt out 2 to 3 months .i dont understand.i m in md

Can Spasmodic Dysphonia be caused by anxiety of public speaking? I often find my voice gets breathy and breaks a lot when speaking in front of people.

i guess most of those who comment here have this illness. Well, me to. I am having this since 20 years old, now i am 32. Most people on the phone think i am 60 years old because of my voice. Sometimes i can speak easier, sometimes i can only whisper. But sometimes my voice clears out completely, i mean it becomes normal, but very rare, maybe 2-3 days in a year, which are the happiest days for me. Itried ol sorts of breathing exercises. I tried all sorts of voice exercises. I have been to a psychiatrist, psychoterapist, phoniator, phonoped, multiple different ones. I tried some psyhotrop drugs, it helped, but very shortly. My voice worsenes a lot with some kind of stress....without stress its better, i can say what i want, but not without the struggle. At least i am not alone with my disorder....I wish health to everyone.

I don't know......I don't see a huge difference from how he sounds now.

I'm so happy that the surgery worked. I enjoy his podcast every day.

Is this related to ASL?

I have this, getting worst when i feel nervous

Hello. I'm from Brazil. Does anyone know the name of the vocal alteration that happens at minute 2:26?

I have been diagnosed with spasmodic dysphonia and tremors, which makes really difficult to communicate on daily basis even with my family,i am stressed about my work career, any advise please😪

Scott Adams brought me here.

My mother has had this illness for more than 40 years. As someone who has spoken on her behalf for much of this time, I think she would agree that the most frustrating aspect is that people outside of her circle tend to be dismissive and assume she is mentally challenged. One of the best exchanges I witnessed was at her college reunion. A friend said, "Come on, let's go someplace quiet so I can learn your voice." After 20 minutes, she was able to communicate with her without disruption. Understanding and patience go a long way!

I was pron to Bully since grade school. I cant even express my thoughts even I have a knowledge as I was afraid people will judge me once I started to speak. I cant get a proper job even I a a degree holder because of my voice. Can u imagine the life Im living? 😭😭😭

I have this since grade 2. Can you imagine the life Im living? 😭😭

لطفاً در مورد دیستونی حنجره ویدیوهای بیشتری نشان داده شود

سلام بی زحمت نوشتن ها به فارسی ترجمه شود

My late neighbour talked like this but she had cancer and said that the chemo did all sorts of damage to her but was grateful to be alive.