I am 29 and got daibosed toady of this desies 😢

Hands down to you, I want to live a life just like yours. I was diagnosed at 30 ish, the pain started when I was 19. I'm 33 now, and trying to change my relationship with the pain, no letting it rob me again. I lost my medical residency because of it, and so much more. But it made me a very empathic person, very insightful. The medication you were given was related to opressing your inmune system?

You dont need to explain yourself Im under the care of cragavan hospital wer needs must im not didnt go private i hope u fèel better the pain is awful but the tiredness is awful your right self care is right im on biologic

Hope hes well but im 40 and im not lucky like him im on biologics

What a lovely clinician! Every knowledgeable and very compassionate and understanding. ❤ thank you

Damn i got fibromyalgia after COVID... Is that the 'trauma'?

WOOW SHE'S SO SMART

I went to my Dr in horrible pain and turn into crisis ,,but she THINK IT'S IN MY HEAD ,,,

THIS DR IS THE BEST

Hi Andrea, perhaps I can fill in the missing details - the answers aren't unknown, it's just that few people have knowledge of them. I believe I have a good understanding and explanation of Fibro that I can contribute to helping you understand this simply. My experience? Well, since 2011, I have personally helped over a thousand people recover, typically in demonstrations in front of audiences of students learning how to help people remove their own chronic pain and conditions. And having trained over 1,750 practitioners that includes doctors, nurses, physiotherapists, psychologists and a few neurologists! I wrote up the theory I and all my student put into practice regularly, I provide this free, not even needing to give an email. Several people have even written to say they got better just from reading it. I guarantee if you have Fibro you will totally recognise my description of how it starts and why it can go away - totally, I really don't believe in managing pain when it can simply stop being produced once you have the message. See for yourself at oldpain2go.com/meandfm. What you do about it after that is up to you, but you will certainly understand the illness and can start your own journey of discovery and recovery that can be incredibly quick. This weekend I demonstrated in front of some students, helping Liz, who had fibro since 2006 and she left totally pain free an hour later. Do not despair there is hope for you once you understand. On Sunday I fly out to Amsterdam as an exhibitor at the International Association of Pain 50th Anniversary Congress, where I will be explaining this to many of the 6,500 top pain specialists and scientists in the world, so hopefully many more pain professionals will understand how best to help you.

Such a lovely lady and such a nice attitude towards life and its challenges.

What kind of nedicin do you take, because my story is similar to yours!!

LDN causes my hair to fall out and have sleeping problems even when taken in the morning. I don’t know what to do because I can’t tolerate any of the medications. Thank you for this video! Maybe I need to try that website you mentioned.

All fibromyalgia patients have tuned into Dr Ken Berry’s YT talk about the root cause of fibromyalgia, right? 🤔

I'm so glad there's people talking about this condition. In 2005 I was told by a psychiatrist that it was all in my head and just to get it out of the way he sent me to my Doctor and then my Doctor said there's no such thing. You need to see aromatologist, just so they can tell you. That you don't have that. I never understood why they sent me a rheumatologist. But I guess that Doctor didn't wanna admit. They already knew something about it, but after that it was still hard. They sent in me to a woman Doctor here in San Antonio, home supposedly. We're studying this condition and knew a lot about it. She saved my life. But I have suffered with this since 2005. And it's been so painful so stressful every day. Something different. I am now 60 years old and I have very bad Arthritis and I have astroporosis. My Doctor has told me that I have degenerative bone disease. And I do have synthematic lupus. And I have had cancer. I had And now I'm finding out that I might be struggling with lymphama. What makes it worse? Is that I have diabetes, and I've had high Blood Pressure. There are days where I can't even walk right without pain. It hurts to lay down. It hurts to sit down and it hurts to walk. Grateful that I have my faith. That helps me get through the days. We need more doctors that understand this syndrome. Because once it attacks a body, that's already weak. You're in trouble. Thank you.

In this condition planet ayurveda’s boswellia curcumin works amazingly well.

So there is no cure just only to pervent pain and destruction to the body. This is not a light to the end of my tunnel. But this video helps me to know no matter what i just need to keep living, keep going less movement makes it worse. Im just tired of my body breaking down, pain and on fire all the time. I hope their research helps come up with a cure. 😢❤

Thank You! ✨️🙏🏻✨️ I also have OCD which Fibromyalgia has made It Worse It's Horrible 😭 the Migraines,the burning sensation in My face & then It goes It My ear OMG I Want to Scream 🤯🤯🤯🤯🤯

Hate these sorts of videos. This sounds like a very mild case and doesn't do justice to people having to deal with moderate to severe symptoms. Many people, with a variety of conditions, struggle with fatigue. This guy can walk 22km a day, I can't walk 22 steps without a walking stick (on a 'good' day) No mention of not being able to type, carry a bag, etc. Other than a diagnoses and fatigue, what does he know about PsA! Maybe those not affected by the disease would be more understandig if we didn't have videos like this diluting the seriousness of it.

I have a hunch that fibromyalgia may be a thiamine problem. Hear me out. Some early research on thiamine, before it was added to fortified foods and it became taboo to question that wisdom, indicates it is very easy to overdose (5mg daily and up), with symptoms similar to autoimmune hyperthyroidism. Which is known to be common in fibromyalgia. It kind of makes sense because thiamine stimulates the metabolism. Now at the same time, too little thiamine, known as beriberi, can give a kind of typical muscle tensing known in fibromyalgia pain. I just fell to this problem myself, couldn't move because my lower back muscles were tensing painfully. Took about 2 weeks to get out of it after taking a few mg B1 daily. Given how difficult it seems to be to get the proper amount of this critical vitamin, it is no wonder that there is a problem, especially since nobody seems to know about the excess side of the picture and that you cannot buy thiamin in doses less than 50mg, when the proper dose should be 2mg. What's further complicating the picture is various drugs that deplete thiamin, like diuretics, so that now you definitely cannot rely on food (fortified or not, most natural food also contains reasonable amounts of thiamine), but supplements put you in excess. And at the same time you need to take it daily, because the body doesn't store much. I'm on a maybe 10mg thiamine daily now, best I can judge from measuring. Probably too much still but in any case better than the too little I relied on from only food.

Hi ,so i suffer from ankylosing spondylosis and the worst pain that i get is in my right SI joint.i just came back from a walk with my dog,not a long walk ,just 2km but ny back hurts so much,im unable to sit down or move. My treatment is going on,but for my sacroilitis i've been told to work on my back muscles and core that it'll prevent me from hurting my back.but when i strt to workout,i get sharp pains in my back at times,what should i do in such times? Not walk ,take rest,take painkillers?

How come you can split wood which requires a lot of force? I'm not being critical but you look quite mobile.

Thank you for sharing Mark! Recently diagnosed PSA warrior here and I’m terrified.

Thank you for sharing.... I am going through what you have been going through...it helps some times just to know your not alone in this situation... sending a hug to all others that may need it. at times AS is rough we are unable to move the way we want to but must appreciate how we move... i look forward to more inspiring videos kind regards

What is your "regiment"? Are you on medication? Biologic TNF? Im an airline pilot with AS and sitting full time in a small space is the worst thing i can be doing to myself with AS.

I was diagnosed with AS today.

I was hoping for information a protocol, a website Not look at me I’m awesome 😢

Hi guys, commenting in case anyone knows the answer. I was diagnosed 3 years ago after a particularly bad flare, uveitis (which seemed to speed up diagnosis) and a connecting of the dots of on and off back pain over the years. However, I have been blessed with a relatively flare-free period for a couple of years now. I have bad days, where I'll have a short burst of inflammation but I can normally walk it off and no longer take NSAIDs to manage the pain (I know I'm fortunate and that could quite easily change tomorrow). I've always thankfully been able to get about my day. My question is around medication... is the medication purely about pain management or does it stop progression of the disease? I basically want to know if I should be taking my meds in between flares, despite being relatively pain free? I'd rather not be taking Naproxen if I don't need to but would of course if it is going to stop the progression and protect my future self!! For now, pain is not an issue but i guess I dont know if the inflamation could still be there causing damage! Sorry for asking in KZfaq. Very difficult to find anyone who knows and Rheumatologist only checks in annually given my recent experience. Ps. I'm 35... if that's relevant. Thanks!

Causation autism ADHD heds

I'm glad you started life anew and have turned your marvellous creativity to other things😊💯

Hi Amanda and every one I staring with the symptoms went i have 24 I use the Humira for 4 Years is good medecine but im change for the beer now Im 49 im veter thand Before just I thinking God is my hepl,

I think that the focus on blaming smoking for server flares is absolutely incorrect. I can say they it could be more of a problem with things that you allergic to and you just do not know. You also get a slow allergy reaction which is mostly never said by design. That being said, if you are craving a food way to much, it could mean that food is your allergy. They same goes for over craving with smoking, like chain smoking.

i'm an identical twin with psoriasis, inverse psoriasis and psoriasic arthritis, but my twin has none of these so they're right it's not only genetics

Being a patient of AS...It feels a bit comfort knowing I am not only one to suffer..😂...Its also encouraging..

Could a flare in the knee be misdiagnosed as a meniscus tear?

I wish that we had rehab in the USA. Yes, my house is a mess by my standards. I’m waiting for Otezla to work on my swollen feet and aching body!

I am 51. I have a still undiagnosed sickness that I susoect is AS. It has ruined my life. No job, no house, no pension, no savings, I am utterly ruined and despite the urgency, I can not work. No Dr has ever taken it seriously. I had it at age 15. Now I do not bother with Drs

Soccer not football

Some of the things she says make me want to cry! I can’t find a doctor that would take seriously. I now live in the Netherlands and when I finally hit to see an TA doctor, she told me she couldn’t find anything and that maybe fibromyalgia but there is no treatment for it. I suffer from migraines and barometric pressure issues, the neurologist gave me amitriptyline (25mg) and it helps a little but it’s true, the side effects are awful. I wish there was a way to get all her slides! She gives so much information. I wish she was my doctor! 😢

What treatment/medication did the doctor give you? I use a no/low starch diet and that has been the trick for me. But- I like you- had 10 years of severe pain until I got diagnosed. This was a touching video. Thank you. What made you decide to produce this video?

Yoga, light exercise, nail mat and go organic plant based foods helped me a lot. No problem sleeping. Takes years to improve. Never take pills you will get side effects guaranteed.

Hi this is a great information talk. I went into remission for a long time. I started eating gluten and things started to turn 🍐 shape. Itchy back , inflammation in a knuckle in my left finger and now in a joint in my toe left foot. I'm all this, RA signs but not positive in the blood. Anyways l have a mix of labels as well as hashimotos. I started on caster oil applying on my knockle and inflammation has gone . Itchy skin has gone . Have gone gf again . I'm waiting for my foot to get better

You walk better then me jm.bone on bone

Thank you 😢 I am suffering and I believe this is what I have. I know I have to keep moving.

I’m 57 been dealing with fibromyalgia for about five years finally got the actual diagnosis here recently. It’s a bit of a drag, but the more I move the better it is.

I was diagnosed 49 years ago the doc just gave me pain killers x said some people end up in a wheelchair by they are 50yr.no advice.l take suppliments x low carbs diet also use the gym this has helped me.but still get flare ups.x

I have been suffering from AS for 12 years. I am now 44. I do exercise minimum 1 hour in a day. No problem with my posture or apperance. But ı sometimes feel pain and ıt takes for months unless ı take anti-inf tablets. I don' t want to take any pill but ı feel have to do. I hope medical experts find a core cure for this chronic illness. I wonder why ı suffer pain although ı do sports regularly and eat healty foods. I don't smoke, ı don't drink alcohol alot. Just imagine a normal super life but still suffer pain and try to understand it.

I really wish if doctors could find some sort of treatment for this. It really kills you when you see your friends enjoying playing and having fun and you are just unable to get off bed. My whole childhood was wasted suffering this pain. I'm an adult now but still have unbearable pain. Please god save us from this pain.

I was diagnosed at age 21 and ive never bern controlled...the extreme tiredness is just too too much! 😢

I have AS to but I take AS as a positive thing because I used to be 120 kg and it motivated me to loose weight and be active and now I am 74 kg fit and fine everyday doing exercises, though it pains some times but the pain goes away if I continue doing my exercises 😊