As someone who suffered infintile spasms and was recently diagnosed with epilepsy it is such a sad thing to see this little angel suffer the same I did when I was young.
@meditogofilmproductions11 ай бұрын
After watching his videos it seems like his seizures aren't getting better even with medication but I might be wrong idk
@meditogofilmproductions11 ай бұрын
Poor little guy This sucks so much I hate watching people struggle with diseases and syndromes like this epilepsy syndrome CDKL5
@MuhammadAhmad-gm2uq Жыл бұрын
If you recite the under mentioned prayer 400 or 2000 times, all of your child's illnesses will vanish by the mercy of Allah (all glory and praise be to Him). "O Allah, send prayers, peace and blessings upon our Master Muhammad, the medicine of hearts and their treatment, the soundness of bodies and their cure, the light of vision and its illumination, the spirit of all spirits and the secret of their endurance."
@SimoneLeembruggen2 жыл бұрын
Please like and subscribe
@dariendeal84132 жыл бұрын
How old a he
@SimoneLeembruggen2 жыл бұрын
He is now 7 years old and still inspiring me
@cassandraporter30682 жыл бұрын
Why is they holding his arms down
@user-tl1pt3vh2e2 жыл бұрын
ابنتي تسوي زي كدا هادي تشنجات صرع
@moneyheist85242 жыл бұрын
So sad to see 😭😭
@nancyjones64282 жыл бұрын
What a beautiful baby, hope she's getting expert care by a pediatric neurologist.
@asiakym3 жыл бұрын
Bwah-hahahahahaha!!!!!
@harisathya43223 жыл бұрын
Oh god please save his health please avoid seizures from this little boy 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏
@meditogofilmproductions4 ай бұрын
That won't happen
@shaycarson64593 жыл бұрын
That one eyeball😂
@shaycarson64593 жыл бұрын
Maybe she’s just being a starfish lol😂😂
@asiakym3 жыл бұрын
Omg, lmfao!
@nurjahan313 жыл бұрын
You can’t HOLD A PERSON like that during a seizure.
@binkybunnysway9433 жыл бұрын
Oh bless him I'm so sorry. Madness how humans and animals alike suffer from these my little house bunny has them! Keep fighting little man. It must be so frightning for you I can't imagine my child going through this.
@binkybunnysway9433 жыл бұрын
Oh bless your heart little one. Lots of love
@francescocastellaneta3 жыл бұрын
Hello, I am a doctor specialized in special children, if you need for your beautiful special child contact me by writing to the whats'app number: +393711582355, for you who do not live in Italy I work for free.
@Jack_Rabbit3333 жыл бұрын
Soooooo sad for him
@mayrahernandez48953 жыл бұрын
) K
@Jack_Rabbit3333 жыл бұрын
I'm praying for him I hope it get better darn seizures
@fernviking79093 жыл бұрын
I hope you have cbd for him now. My mom takes it to recover appetite due to cancer & I use it for pain due to degenerative disc disease. It’s a miracle drug! He’s a beautiful boy & I'm sad he’s so compromised, but cannabis may lessen the seizure activity as well. Big plus!!
@pablomunoz20843 жыл бұрын
Niño hermoso, Dios te guerde y te de la cura.
@carla_c49693 жыл бұрын
No lo tomes a mal pero si a tu dios le importara en algo este niño o cualquier otro en el mundo estas cosas tan tristes no pasarían no crees? Debería cuidarlos y protegerlos en ves de estar matando gente con su asquerosa pandemia que es culpa de tu dios también pues no le da la gana de ayudar a nadie en el mundo
@wiesialutat23493 жыл бұрын
Cannabis CBD oil Medihemp in Österreich ♥️♥️♥️♥️♥️
@kateseymour9653 жыл бұрын
Just To Sad
@wiesialutat23493 жыл бұрын
Cannabis CBD 👍👍👍👍👍❤❤❤❤❤🥰🥰🥰🤗🤗🤗🤗🤗
@shatawnslater57103 жыл бұрын
Omg I’m praying for this sweet lil angel 😥🙏🏽
@elifsoipova84213 жыл бұрын
Olloxgim shifo bersin😢
@timofeykozyrev24473 жыл бұрын
This is not as hard to watch as other seizure videos, but i still feel bad for him! Hope he gets better! (Why was this in my recommended videos!?)
@meditogofilmproduction4 жыл бұрын
That's tonic clonic and partial
@meditogofilmproduction4 жыл бұрын
Oh Lord he is high
@benimary46084 жыл бұрын
Infantile spasms (West Syndrome) included in cdkl5 disorder mam as my son also suffering from same genetic disorder
@wiesialutat23494 жыл бұрын
Cannabis CBD oil bei Epilepsie ❤❤❤❤❤❤💋
@claudiavillatoro34334 жыл бұрын
How in the world you had the courage to record that
@SimoneLeembruggen4 жыл бұрын
Unfortunately we need to. Its how we get him help. This is what we need to show neurologists and seek help round the world. And he has so many. Up to 60 per day. But currently only up to 20. I will never stop trying to help my boy
@user-cf5ge1ob5s4 жыл бұрын
Бедный мальчик мне так его жалко до слез😭
@timofeykozyrev24473 жыл бұрын
I am russian! And yes i feel bad for him too.
@teenrandomgamer17854 жыл бұрын
That didn't even look like one seizure! It looked like he came in and out of multiple clusters! I hope he's all better now. I'm 17 and have Tourette's and epilepsy and just had a seizure in front of my new friends at lunch today... they were super supportive (which is really hard to find in people! Most just stop talking to me) so I understand that struggle. This was a while ago, but I will pray for him to stay well!! ❤️
@SimoneLeembruggen4 жыл бұрын
Thank you. Unfortunately it is the main issue with CdKL5 deficiency disorder. He is doing as well as i can help him to do. It is my lifes focus
@teenrandomgamer17854 жыл бұрын
@@SimoneLeembruggen I'm sorry to hear that and hope he's staying well during this time. Fortunately I am now on a diet schedule and medication that controls my seizures so my most may be one a day and a small one at that. You are so strong and so is he! ❤❤
@user-xu2il7ij8w4 жыл бұрын
ひどい
@LACajuninNC14 жыл бұрын
Not supposed to stop him from seizing by holding arms... He is in bed and safe. Turn him on his side, too... I hope he is better these days
@SimoneLeembruggen4 жыл бұрын
We do this not to try and stop him seizing obviously, but to protect joints from extreme end range motion. What we do for my boy and what you do can be different and thats ok. This is what we do
@LACajuninNC14 жыл бұрын
@@SimoneLeembruggen I understand. Especially now that I see he has other inflictions that cause the need to protect joints. I'm sorry if I offended
@wiesialutat23494 жыл бұрын
Cannabis CBD oil
@amandafranco43004 жыл бұрын
I would go get this poor sweet baby checked ASAP breaks my heart in a million pieces
@JCMDRHProductions4 жыл бұрын
Same here
@irisheyesofbelfast3 жыл бұрын
You're seeing ONE MINUTE of his life. This wasn't posted for advice on what to do for him from a stranger. He's clearly been seen by a doc multiple times and they record it to show his doc. Probably also posted to educate others about this particular type of seizure. Do you really think they would post this without having consulted a physician????
@wiesialutat23494 жыл бұрын
Und Cannabis CBD oil
@wiesialutat23494 жыл бұрын
Kryptopyrrolurie HPU Mitochondrien LDH Untersuchung Urin testen
@wiesialutat23494 жыл бұрын
CBD oil Cannabis
@MyMumHasEpilepsy4 жыл бұрын
😢🥰. Did you find out what type of seizures he has? Poor lamb... and are they under better control now?
@MyMumHasEpilepsy4 жыл бұрын
That must have been really scary, when he first started having those. What type of seizures/epilepsy does he have?
@SimoneLeembruggen4 жыл бұрын
Thank you. Unfortunately it isnt scary after seeing so many. Its normal life. He has a complex intractable seizure disorder due to CDKL5 deficiency disorder
@natashaangel16114 жыл бұрын
How is he feeling now and how old is he there and stuff
@user-xu2il7ij8w4 жыл бұрын
あ
@SimoneLeembruggen4 жыл бұрын
He is 5 now and as good as i can help him to be. We are still fighting and searching and trying
@hazelmaguire84476 жыл бұрын
What country are you in? I would say it was epilepsy. I don’t think placing your precious child on a slippery table all be it in a chair unrestrained is a good idea.
@gonzalosimona6 жыл бұрын
thanks for your concern. to this day he does not move and we dont need to restrain him unless he's in a chair or car. Unfortunately thats the reality of it. we're in Australia. that particular support chair is not slippery on that table either. as most parent, we do the best we can with what we've got. good luck to you