Part 2 Medicine Hack
2:06
2 жыл бұрын
Movement disorder management
1:11
2 жыл бұрын
Putting on AFO's correctly.
1:26
2 жыл бұрын
BEA2020 vid
12:52
3 жыл бұрын
3.seizure current CDKL5
2:15
4 жыл бұрын
2. Big seizure CDKL5
1:54
4 жыл бұрын
1st phase of CDKL5 seizure
3:13
7 жыл бұрын
Raf recent seizure cdkl5
3:25
7 жыл бұрын
CDKL5 seizure
1:48
8 жыл бұрын
CDKL5
1:02
8 жыл бұрын
seizure unknown diagnosis - CDKL5
1:57
Пікірлер
@angeladamron3645
@angeladamron3645 9 күн бұрын
:(
@kimberlygrissom2315
@kimberlygrissom2315 2 ай бұрын
Sad to see this posted
@Duvmasta
@Duvmasta 6 ай бұрын
What caused his condition?
@angelamcknight3435
@angelamcknight3435 7 ай бұрын
So sad poor little boy
@seatherny_y
@seatherny_y 11 ай бұрын
As someone who suffered infintile spasms and was recently diagnosed with epilepsy it is such a sad thing to see this little angel suffer the same I did when I was young.
@meditogofilmproductions
@meditogofilmproductions 11 ай бұрын
After watching his videos it seems like his seizures aren't getting better even with medication but I might be wrong idk
@meditogofilmproductions
@meditogofilmproductions 11 ай бұрын
Poor little guy This sucks so much I hate watching people struggle with diseases and syndromes like this epilepsy syndrome CDKL5
@MuhammadAhmad-gm2uq
@MuhammadAhmad-gm2uq Жыл бұрын
If you recite the under mentioned prayer 400 or 2000 times, all of your child's illnesses will vanish by the mercy of Allah (all glory and praise be to Him). "O Allah, send prayers, peace and blessings upon our Master Muhammad, the medicine of hearts and their treatment, the soundness of bodies and their cure, the light of vision and its illumination, the spirit of all spirits and the secret of their endurance."
@SimoneLeembruggen
@SimoneLeembruggen 2 жыл бұрын
Please like and subscribe
@dariendeal8413
@dariendeal8413 2 жыл бұрын
How old a he
@SimoneLeembruggen
@SimoneLeembruggen 2 жыл бұрын
He is now 7 years old and still inspiring me
@cassandraporter3068
@cassandraporter3068 2 жыл бұрын
Why is they holding his arms down
@user-tl1pt3vh2e
@user-tl1pt3vh2e 2 жыл бұрын
ابنتي تسوي زي كدا هادي تشنجات صرع
@moneyheist8524
@moneyheist8524 2 жыл бұрын
So sad to see 😭😭
@nancyjones6428
@nancyjones6428 2 жыл бұрын
What a beautiful baby, hope she's getting expert care by a pediatric neurologist.
@asiakym
@asiakym 3 жыл бұрын
Bwah-hahahahahaha!!!!!
@harisathya4322
@harisathya4322 3 жыл бұрын
Oh god please save his health please avoid seizures from this little boy 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏
@meditogofilmproductions
@meditogofilmproductions 4 ай бұрын
That won't happen
@shaycarson6459
@shaycarson6459 3 жыл бұрын
That one eyeball😂
@shaycarson6459
@shaycarson6459 3 жыл бұрын
Maybe she’s just being a starfish lol😂😂
@asiakym
@asiakym 3 жыл бұрын
Omg, lmfao!
@nurjahan31
@nurjahan31 3 жыл бұрын
You can’t HOLD A PERSON like that during a seizure.
@binkybunnysway943
@binkybunnysway943 3 жыл бұрын
Oh bless him I'm so sorry. Madness how humans and animals alike suffer from these my little house bunny has them! Keep fighting little man. It must be so frightning for you I can't imagine my child going through this.
@binkybunnysway943
@binkybunnysway943 3 жыл бұрын
Oh bless your heart little one. Lots of love
@francescocastellaneta
@francescocastellaneta 3 жыл бұрын
Hello, I am a doctor specialized in special children, if you need for your beautiful special child contact me by writing to the whats'app number: +393711582355, for you who do not live in Italy I work for free.
@Jack_Rabbit333
@Jack_Rabbit333 3 жыл бұрын
Soooooo sad for him
@mayrahernandez4895
@mayrahernandez4895 3 жыл бұрын
) K
@Jack_Rabbit333
@Jack_Rabbit333 3 жыл бұрын
I'm praying for him I hope it get better darn seizures
@fernviking7909
@fernviking7909 3 жыл бұрын
I hope you have cbd for him now. My mom takes it to recover appetite due to cancer & I use it for pain due to degenerative disc disease. It’s a miracle drug! He’s a beautiful boy & I'm sad he’s so compromised, but cannabis may lessen the seizure activity as well. Big plus!!
@pablomunoz2084
@pablomunoz2084 3 жыл бұрын
Niño hermoso, Dios te guerde y te de la cura.
@carla_c4969
@carla_c4969 3 жыл бұрын
No lo tomes a mal pero si a tu dios le importara en algo este niño o cualquier otro en el mundo estas cosas tan tristes no pasarían no crees? Debería cuidarlos y protegerlos en ves de estar matando gente con su asquerosa pandemia que es culpa de tu dios también pues no le da la gana de ayudar a nadie en el mundo
@wiesialutat2349
@wiesialutat2349 3 жыл бұрын
Cannabis CBD oil Medihemp in Österreich ♥️♥️♥️♥️♥️
@kateseymour965
@kateseymour965 3 жыл бұрын
Just To Sad
@wiesialutat2349
@wiesialutat2349 3 жыл бұрын
Cannabis CBD 👍👍👍👍👍❤❤❤❤❤🥰🥰🥰🤗🤗🤗🤗🤗
@shatawnslater5710
@shatawnslater5710 3 жыл бұрын
Omg I’m praying for this sweet lil angel 😥🙏🏽
@elifsoipova8421
@elifsoipova8421 3 жыл бұрын
Olloxgim shifo bersin😢
@timofeykozyrev2447
@timofeykozyrev2447 3 жыл бұрын
This is not as hard to watch as other seizure videos, but i still feel bad for him! Hope he gets better! (Why was this in my recommended videos!?)
@meditogofilmproduction
@meditogofilmproduction 4 жыл бұрын
That's tonic clonic and partial
@meditogofilmproduction
@meditogofilmproduction 4 жыл бұрын
Oh Lord he is high
@benimary4608
@benimary4608 4 жыл бұрын
Infantile spasms (West Syndrome) included in cdkl5 disorder mam as my son also suffering from same genetic disorder
@wiesialutat2349
@wiesialutat2349 4 жыл бұрын
Cannabis CBD oil bei Epilepsie ❤❤❤❤❤❤💋
@claudiavillatoro3433
@claudiavillatoro3433 4 жыл бұрын
How in the world you had the courage to record that
@SimoneLeembruggen
@SimoneLeembruggen 4 жыл бұрын
Unfortunately we need to. Its how we get him help. This is what we need to show neurologists and seek help round the world. And he has so many. Up to 60 per day. But currently only up to 20. I will never stop trying to help my boy
@user-cf5ge1ob5s
@user-cf5ge1ob5s 4 жыл бұрын
Бедный мальчик мне так его жалко до слез😭
@timofeykozyrev2447
@timofeykozyrev2447 3 жыл бұрын
I am russian! And yes i feel bad for him too.
@teenrandomgamer1785
@teenrandomgamer1785 4 жыл бұрын
That didn't even look like one seizure! It looked like he came in and out of multiple clusters! I hope he's all better now. I'm 17 and have Tourette's and epilepsy and just had a seizure in front of my new friends at lunch today... they were super supportive (which is really hard to find in people! Most just stop talking to me) so I understand that struggle. This was a while ago, but I will pray for him to stay well!! ❤️
@SimoneLeembruggen
@SimoneLeembruggen 4 жыл бұрын
Thank you. Unfortunately it is the main issue with CdKL5 deficiency disorder. He is doing as well as i can help him to do. It is my lifes focus
@teenrandomgamer1785
@teenrandomgamer1785 4 жыл бұрын
@@SimoneLeembruggen I'm sorry to hear that and hope he's staying well during this time. Fortunately I am now on a diet schedule and medication that controls my seizures so my most may be one a day and a small one at that. You are so strong and so is he! ❤❤
@user-xu2il7ij8w
@user-xu2il7ij8w 4 жыл бұрын
ひどい
@LACajuninNC1
@LACajuninNC1 4 жыл бұрын
Not supposed to stop him from seizing by holding arms... He is in bed and safe. Turn him on his side, too... I hope he is better these days
@SimoneLeembruggen
@SimoneLeembruggen 4 жыл бұрын
We do this not to try and stop him seizing obviously, but to protect joints from extreme end range motion. What we do for my boy and what you do can be different and thats ok. This is what we do
@LACajuninNC1
@LACajuninNC1 4 жыл бұрын
@@SimoneLeembruggen I understand. Especially now that I see he has other inflictions that cause the need to protect joints. I'm sorry if I offended
@wiesialutat2349
@wiesialutat2349 4 жыл бұрын
Cannabis CBD oil
@amandafranco4300
@amandafranco4300 4 жыл бұрын
I would go get this poor sweet baby checked ASAP breaks my heart in a million pieces
@JCMDRHProductions
@JCMDRHProductions 4 жыл бұрын
Same here
@irisheyesofbelfast
@irisheyesofbelfast 3 жыл бұрын
You're seeing ONE MINUTE of his life. This wasn't posted for advice on what to do for him from a stranger. He's clearly been seen by a doc multiple times and they record it to show his doc. Probably also posted to educate others about this particular type of seizure. Do you really think they would post this without having consulted a physician????
@wiesialutat2349
@wiesialutat2349 4 жыл бұрын
Und Cannabis CBD oil
@wiesialutat2349
@wiesialutat2349 4 жыл бұрын
Kryptopyrrolurie HPU Mitochondrien LDH Untersuchung Urin testen
@wiesialutat2349
@wiesialutat2349 4 жыл бұрын
CBD oil Cannabis
@MyMumHasEpilepsy
@MyMumHasEpilepsy 4 жыл бұрын
😢🥰. Did you find out what type of seizures he has? Poor lamb... and are they under better control now?
@MyMumHasEpilepsy
@MyMumHasEpilepsy 4 жыл бұрын
That must have been really scary, when he first started having those. What type of seizures/epilepsy does he have?
@SimoneLeembruggen
@SimoneLeembruggen 4 жыл бұрын
Thank you. Unfortunately it isnt scary after seeing so many. Its normal life. He has a complex intractable seizure disorder due to CDKL5 deficiency disorder
@natashaangel1611
@natashaangel1611 4 жыл бұрын
How is he feeling now and how old is he there and stuff
@user-xu2il7ij8w
@user-xu2il7ij8w 4 жыл бұрын
@SimoneLeembruggen
@SimoneLeembruggen 4 жыл бұрын
He is 5 now and as good as i can help him to be. We are still fighting and searching and trying
@hazelmaguire8447
@hazelmaguire8447 6 жыл бұрын
What country are you in? I would say it was epilepsy. I don’t think placing your precious child on a slippery table all be it in a chair unrestrained is a good idea.
@gonzalosimona
@gonzalosimona 6 жыл бұрын
thanks for your concern. to this day he does not move and we dont need to restrain him unless he's in a chair or car. Unfortunately thats the reality of it. we're in Australia. that particular support chair is not slippery on that table either. as most parent, we do the best we can with what we've got. good luck to you
@gonzalosimona
@gonzalosimona 6 жыл бұрын
he is now 3.5 years old