ive just had this ruled out, need research late stage sjogrens now, think im lucky
@znanjenadlanu26669 ай бұрын
I have ocular miastenija gravis? What medicqment to use?
@abdulawalkhokon3098 Жыл бұрын
I am MG patient my problem 10 years
@marcstar Жыл бұрын
my heart goes out to all of us I too suffer with this I am doing ok now but I am still afraid
@abdulawalkhokon3098 Жыл бұрын
hello sir I am MG patient my problem 10 years my better suggestion thank you sir
@insanelyrandom Жыл бұрын
is this an episode of brasseye
@veravero57152 жыл бұрын
Thank you.
@katec29222 жыл бұрын
Such a clear explanation of all aspects of this condition. Thank you
@heatherr11413 жыл бұрын
I need your help! I have just about every symptom of LEMS and I had 2 Dr say I might have MG and did minimal bloodwork for it and results of those were negative! Since they told me that it might be MG I have been studying it and with my symptoms I was led to LEMS. I have week muscles, dry mouth, I was a former smoker of 20 years. I have thyroid and parotid tumors. I also have a lung pain in my upper right lung into my shoulder on and off again! I had an ex ray and it said my lung was clear at that time! I’ve been sick for at least 10 years progressed over time! I also have eye drooping! I got better the bogging of this year after I had Septoplasty terbinoplasty and I was taking prednisone for pain after! I only realized this when is got sick again several months later and the symptoms have almost all come back! They slowly came back! I had been exercising and noticed at the start of me feeling better my VO2 max improved and the start of not feeling good it has been decreasing! I feel that the prednisone treatment may have helped me and then it wore off! Just before this surgery I was sleeping and couldn’t barely get off the chair for a whole year! After my surgery I got so strong I hadn’t felt like since I was a child! I also have constipation and sleep apnea! I sweat till I’m drenched and night sweats horrible and low grade fever a lot! My menstal cycle has been coming like every 23 days and getting closer together over time and it only lasts like 2 days. I am most symptomatic around my period and ovulation time I can’t barely function! Anyway I can’t get anyone to listen to me! I have so many more symptoms I couldn’t put them all here! I have 2 kids and need and want to take care of them and I have brain fog so I can’t even take care of my bills and have to wait for a clear brain moment to do it! I live in a small town and not to mAny specialist Dr around! I have been sent to so many different kinds and f Dr and getting no where. I have so many unanswered questions and need some help! It’s hard with my brain fog to even tell the Dr what is going on with me! I need someone who will guide me and help me get to the bottom of this! Please if there is any thing that you could do to help me my children, family and myself would greatly appreciate it! Thanks so much!
@gcvoon2863 жыл бұрын
Great education on mg, does elderly patient on long term unselective beta blocker carvedilol causing severe myasthenia gravis or crisis?
@manuelagomes5174 жыл бұрын
Como eu queria a traduçaõ desse vidío
@neilbhatt70964 жыл бұрын
Amazing lecture...
@_The_Able_Gardener4 жыл бұрын
The person in the video is Professor Newsom-Davies.
@_The_Able_Gardener4 жыл бұрын
This video could do with a slight update. Not only does it look rather old but you now need to contact Myaware.co.uk who were previously MGA.
@AmanDeep-pj7hr5 жыл бұрын
Hi I am myasthenia gravis patient, I survived 21 years,
@naomiweida44195 жыл бұрын
Thank you needed to understand this for my pathophys class.
@venkataramana36315 жыл бұрын
I have mystania gravis please help me sir
@neilbhatt70964 жыл бұрын
Take Huperzine A
@venkataramana36314 жыл бұрын
@@neilbhatt7096 what is huperzin a
@centexsucks15 жыл бұрын
does anyone know who this doctor is ??
@jaimes15725 жыл бұрын
If I have a positive EMG, drooping eye and muscle weakness but normal labs? Can I still have MG?
@sangeetamalviya71975 жыл бұрын
Muje myasthenia h help me
@MuradKhan444385 жыл бұрын
Agar ap Ke maystenya tek hogye ha to plz help me kise teek hoge
@MuradKhan444385 жыл бұрын
Wattsapp 00971562288438
@sumerakousar4172 жыл бұрын
Thik ye kissi ka b ni hota bs kuchh behtr ho JATA he
@mucnagow25 жыл бұрын
I was diagnosed with this almost a month ago. I'm shocked at how quickly this rolled over me. I'm in rehab as I write this. I have no clue what comes next in my life with this.
@bharatipatel7205 жыл бұрын
Thank you Sir ... I am MG patient since 18 yrs. As I have gone through all the process. I knew all the stages . But you explaine everything so well I realised how well I have been gueided.!!
@SuperPauline20006 жыл бұрын
Spot on
@anabkhan26206 жыл бұрын
No need to read CMDT...hatsoff sir
@tomroncarelli69226 жыл бұрын
Most informative, and well explained, thank you! :)
@tomroncarelli69226 жыл бұрын
Excellent, thank you! :)
@ieltssohoje57266 жыл бұрын
I heard that by removing thymas. MG can be cured for most of the patient. Is it true?
@michelleherd5126 жыл бұрын
Samin the Thymus being removed can help MG patients go into remission but it is not an actual cure for it.
@msdee6935 жыл бұрын
Had mine removed 5 years ago. I'm probably as close to remission as I will get & medication free these days. It's not for everyone - having it removed. For some it makes little to no difference.
@MrZer0005 жыл бұрын
@@msdee693 how long after the operation did it take until you started feeling a remission?
@msdee6935 жыл бұрын
@@MrZer000 Maybe a year? I cleaned up my diet, & started using some decent supplements too. Probiotics & avoid anything chemical, processed & got rid of wheat, which I am allergic to. Chemical free home is a must, too. And remember your skin is your largest organ, so everything you expose your skin to, is absorbed into it.
@michaelroach35537 жыл бұрын
Horrible intro, I'd like the past 1 1/2 years of my life back please, sign me up. Prednisone failed. IVIG failed. CellCept failed. Currently waiting 6 months - Year for Imuran. For me, it started in my right leg primarily. I've needed oxygen, BiPAP, etc. Please don't this Physician's Opinions as fact, research Myasthenia Gravis Foundation of America, MGFA
@hectormacneil85278 жыл бұрын
I've had LEMS for almost five years. I was a smoker for years. I quit about ten years before the LEMS symptoms started. So far, no cancer has been detected. This is the first time I've heard any doctor say that if you were a smoker and you develop LEMS, you will definitely find that you have small cell lung cancer. I agree that it's important to provide patients with a realistic prognosis but such a categorical statement as this leaves a person with no hope. If I could, I'd thank the good doctor for such a clear explanation of this disorder. I learned a a lot that I didn't understand before. Nonetheless, I am so very grateful that it was not this doctor who first explained to me my diagnosis.
@hectormacneil85277 жыл бұрын
Dave: Glad to hear you're still getting along well on that front at least. I was getting PET scans every six months for the first couple of years and then CT scans. I just cleared the five year mark and so far, so good. How do the vitamins work for you? Are the effective? I take vitamin B1 and D3 but at much lower doses than you.Do you take doctor prescribed medication as well? The medication that works for me is 3,4 DAP (Diaminopyrodine). I also take Mestinon and it helps some but not a lot. You may already know this but there is a LEMS Facebook group as well as a Yahoo Group. I follow the Facebook group and find it excellent. Best of luck to you! - Hector
@nateregnier5 жыл бұрын
He did NOT say you will *definitely* have small cell lung cancer. He said there are TWO types... with only one type being related to cancer.
@iranialmeida21964 жыл бұрын
@@nateregnier poderá ser hereditário, como eu que herdei da minha mãe ...
@willemaerts23878 жыл бұрын
This is what it is like when I have a relapse. Was diagnosed in 1991 and am now 62 years old. Have had various relapses in the last few years. Am now on I.V.I.G on a 4 weekly basis, as well as immune suppressants and prednisilone tablets.
@Jules_Diplopia8 жыл бұрын
when I first saw this, it was helpful. 2 years later, I know what twaddle it is. it is far more serious than he suggests.
@michaelroach35537 жыл бұрын
Julie Fisher Yeah, I added a comment as well. I think someone's a little over-confident in the effectiveness of treatment
@Louietcat6 жыл бұрын
I’m not as knowledgeable on the subject - so it was a good level of detail. There are so many levels of the disease. Above the neck is far more serious than what I suspect I have - below the neck. I need the “hope” he provides.
@myastheniagraviswarriortot19368 жыл бұрын
Thank you
@marcebr239 жыл бұрын
TKS for the video!!
@06061963able9 жыл бұрын
Sir, I am Mr S B Mekali 52 years old I have two children es one f email (18 years) & one mail (15years) both are suffering by CMS since by birth. Now they are use Tilstigmin tablet 15mg (Neostigmine) simtameticaly.Please inform, is there any advanced treatment ?
@darseyparsons49069 жыл бұрын
Did this help u n make u smile?
@sherrieluke759 жыл бұрын
This was explained very well. My Mother started her symptoms in August of 2014 - SCLC was her diagnosis. Today she is cancer free thanks to the early diagnosis due to the LEMS symptoms. She is currently undergoing Brain radiation therapy. This is a precautionary treatment that is recommended as SCLC typically travels to the brain first so by doing this radiation therapy to the brain the thought is, if there are any cancer cells there that cannot be yet detected they will be killed. She has been on DAP and it has helped her greatly. She still needs a walker to assist her but she is now able to open her eyes, her speech is much better and she can now get up from a seated position on her own. When she started her Chemo/Radiation therapy back in November she was in a wheelchair, could not hold her head up, keep her eyes open and her speech was very slurred, so it is good to see her be able to go play bridge with her bridge group again and get out and about.
@judithrp9 жыл бұрын
Buen Dia: Estoy tratando de exponer esta situacion de la mejor manera posible. Tengo 49 años, diagnosticada con trastorno bipolar en buen control, con diabetes tipo 2, con historial familiar de Sjogren, en mi caso negativo, historial familiar de hipotiroidismo, yo en estudio y observacion. Con hija de 27 años, diagnosticada a los 2 años con MG con prueba de Tensilón+, EMG+ anticuerpos receptores de acetilcolina+, con pobre respuesta a mestinon, por lo que se le realiza timectomia a los 16, mejorando +++ sintomas de inmediato. Mi hija se embarazo a los 21, con problemas que su ùtero no alimentaba a la bebe. La bebe con diagnostico lisencefalia moderada sin conocer el tipo. A los tres dias de nacida empieza la bebe con dificultad para tomar biberon o pecho, igual que sucedio a mi hija cuando bebè. Solicitamos cita a neuropediatria, la cual nos dieron a tres meses, empeora la bebe, en urgencias no le dan importancia, no la ve neuropediatria, a las tres semanas de nacida nos cambian la cita para dentro de 5 meses, en mi desesperacion empiezo a a darle mestinon en dosis de 15 mg porque fue lo que salvo la vida de mi hija cuando pequeña, sin tomar en cuenta por mi ignorancia y trastorno bipolar que ella tenia menos peso que mi hija al ser diagnosticada. Con una situacion economica terrible, sin voz para seguir luchando por la cita y solo con las citas de urgencias que no resolvieron nada, la niña empieza a mejorar poco a poco con el mestinon, pero al pasar las semanas vuelve a empeorar (sin saberlo yo le habia provocado una sobredosis), y en una enesima visita a urgencias con crisis respiratoria gravisima, llorando le suplico al pediatra que la valore por MG neonatal, pues al nacer no me permitieron hablar con la pediatra. Es entonces a los cuatro meses valorada, considerando la posibilidad de MG y en observacion, con posible diagnostico MG neonatal. Hacemos convenio verbal de no demanda yo a hospital y hospital a mi, pues hubo grave negligencia medica y yo con atenuante por el trastorno bipolar, ademàs del perdon de mi hija y su esposo. Terrible. Mi nieta mejora con la adecuacion de la dosis de mestinon, y en los cuidados hospitalarios la pediatra observa los mismos síntomas en mi, por lo que me sugiere buscar neurologo, lo que hice, siendo dificil todavia nuestra situacion economica. El medico duda, sin embargo yo me hago los examenes de anticuerpos receptores de acetilcolina, resultando positivos en mi, por lo que seguimos haciendole examenes a mi nieta, quien si tiene seguro medico para esa fecha, siendo negativos por segunda vez, a los dos años de edad, mencionando la doctora que sigue con probable diagnostico MG por los sintomas de ptosis palpebral, debilidad en brazos, piernas y cuello, dificultad ahora para comer solidos. ( cabe mencionar que el laboratorio contratado por el hospital es de muy dudosa calidad, yendo yo misma a hablar con el encargado, comprobando que no tenian ese anticuerpo, reportando yo al hospital como sospechoso el resultado de mi nieta), sin que esto signifique que la neuropediatra valide o invalide el diagnostico. En mi pais, México, la seguridad social no cubre MG, por lo que el neurólogo no puede darme mestinon, ni solicitar gratuitos TAC de torax o EMG, para corroborar que tengo MG, por lo que intente hacerme poco a poco los estudios solicitados, poniendo yo una parte del dinero necesario, y negandome ayuda el sistema DIF de mi ciudad, por vivir en una colonia nice. Puedo pagar nuevamente los Anticuerpos receptores de acetilcolina en mi y esta vez el resultado es negativo, pero los sintomas han avanzado, pues ya es frecuente que se me cierren los parpados y dificultad para caminar, comer, tomar mi medicamento, y empeorado por el eventual uso de analgesicos o relajantes para el dolor de una vieja lesion cervical, Mi pregunta es..... Cómo puedo yo estar segura que es MG en mi caso, pues el neurologo es el mismo, en consulta particular y en la seguridad social, y el niega que yo tenga MG, aun con el primer resultado positivo, ofendido por que va contra lo que el sabe, que solo hay un caso familiar de MG reportado en el mundo mundial. Alguien alla afuera tendra interés en estudiar y diagnosticar correctamente nuestro caso? El mestinon me ayuda bastante, pero hay temporadas que no lo hace. Es dificil para mi vivir con una calidad de vida tan deficiente, pero me ayudaria saber si es MG, independientemente de los demas diagnosticos, porque me siento perdida, abandonada en el mar de los egos medicos duranguenses. Hay un médico pediatra que por su cuenta me buscó y me pidió que acudiera con el, de verme en la calle sin poder caminar, se bajo de su auto y me ofrecio ayuda, el conoce de MG y ha visto a mi nieta en consulta posteriormente a sus hospitalizaciones, pero yo quisiera la opinion medica de neurologos en cuanto a la dualidad de los resultados de laboratorio. Agradezco la atencion y disculpen que exponga la situaciòn mèdica de nuestro estado y Pais, que estoy segura es la misma que en varios paises de nuestro continente. Mientras pueda respirar, espero respuesta y ayuda.
@melissanunes66159 жыл бұрын
Awesome thanks
@kamalnepal693110 жыл бұрын
why limb muscle are affected early ?? and why ptosis and diplopia occur late in this disease although ach is less in both types??
@kamalnepal693110 жыл бұрын
nice video...keep on sharing such videos ...
@belindakennedy10 жыл бұрын
what a tit
@andregabriel535110 жыл бұрын
thank you so much!
@andregabriel535110 жыл бұрын
thank you so much!
@ansumanabhisek10 жыл бұрын
awesm..video
@angelharris6910 жыл бұрын
is it true that Romani people might have higher risk of CMS? I have father with similar symptoms as this, especially fatigue, he had to retire at 50, and I have had muscle weakness in legs since childhood that meant I was no good at sports, now I am 45 & am try find out if my disability is caused by head injury (1996) arthritis or if I have been suffering from this. I have always had trouble swallow/spit had some black-outs too.
@nvk100110 жыл бұрын
thank you, i hadnt even heard of this before today