@@ILikedrawing13 It's something known as imposter syndrome. I've personally struggled with it as long as I've been “sick”. I know how hard it can be to struggle with that and the constant second guessing yourself. It's tricky. I still struggle with it now, even though I'm dependent on a feeding tube, and my port for infusions, take over 2 dozen medications, have a Service Dog, unable to live on my own, am in need of a liver transplant, etc. I hope that you learn from me and be more kind to yourself. And most of all, know that *you are valid*. 💚

​@@Chronically.sarahdayton I'm sorry i didn't see this for so long but ty for taking the time to talk to me ❤

@@1313fidel 💚💚💚

Thank you! Sorry, I'm not sure I understand. 😅 What do you mean by profiles?

@@Chronically.sarahdayton profile pictures, sorry I'm not good with english.

@@colorfulphoenix23 no worries! I have dyslexia, so I'm not good at it either lol. Do you mean like the one with the pride flag in the profile picture? I just updated mine. I also just made a community post using that so you can let me know if that's what you mean. Is it that what you mean or do you mean sharing other people’s accounts? It’s hard to explain so I hope you understand what I’m trying to say 😅

@@jessicalingo4346 I completely agree. A lot of people don’t see it that way and tend to misinterpret my view of it. I’m glad someone else designated with this. 💚

@@Chronically.sarahdayton I commented on the fact that service animals are considered medical equipment in some areas but not in others on another post and I was so excited I wasn't the first to say that. I do hope that changes in the future. Unfortunately I can see it being a money trap since insurance companies are a beast with common required medications. So in some ways I'm happy they're not because of that reason but I still very much think the things i mentioned should still be available. I could also see fake sa owners trying to take advantage of this.

The vest doesn't make the dog, the training does. I used a cheap vest from Amazon during a lot of Ollie’s training. It's totally okay to use them! The problem is that people think that getting their pet dog (who doesn't have any training) a harness and “certificate” (they are fake and illegal) means their dog is a service dog and they think that they can take their pet everywhere. I hope that makes sense.

Yeah, it's a huge problem, unfortunately. That behavior is unacceptable, even *if* it was a legitimate service dog (and if it was, that handler needed to leave and get their dog out of that environment and regain control. We all have our bad days and mistakes, but that was just not okay imo). People and their fake “service dogs” make the real Service Dog teams look bad and that's why we have such a bad rep (along with so many other huge issues like safety, access issues, Karens, etc.)

Hi! So, u have a full video about how I set up my feeds if you want to know more about that. Yes, G-J (gastro-jejunal) tubes leak the same as G (gastro) tubes. J tubes are just like g tubes but they have an extension into the small bowel (or jejunum). Granulation is kind of like scar tissue but it keeps getting irritated and the stomach acid leaking sends it in a vicious cycle. It’s super painful because it’s new tissue and it has a lot of nerve endings. When mine is bad, I clean my stoma like 6x a day (depending on how leaky my tube is). Tube pads can help, but when my tube is really leaky, I use gauze because it’s disposable. Plus some tube pads have stitching on the inside, and I got really bad granulation tissue from the friction. That’s why I will use gauze sometimes. I hope that helps!🤍

I have all of that too! I also have dysautiomia, and a few other things, and I really appreciate everyone coming together to support one another!

@starlight_gaxcha7516 💚💚💚

It depends on the person, their symptoms, what medications/treatments they are on to mitigate their symptoms, etc. Not everyone with POTS passes out. It's a choice they should make with their doctor’s recommendation. It's just like any other health issue. Personally, I do not drive, but that's for many reasons and POTS is only one of them. I'm grateful to have someone to help me and drive me where I need to go. But just because I don't drive doesn't mean everyone with POTS can't.

This is totally the behavior of someone who “doesn't care” 💀

Hi! So, I used my sweat and swabs and froze them until I was ready to train. There are some great KZfaq videos that go into depth about it. I have also now trained him to alert hypoglycemia using my saliva. It sounds gross, but that’s the best way I’ve found, or at least that’s what works best for Ollie and I. Thankfully, Ollie naturally picks up a lot of it so scent training was a bit easier once he knew how to alert (using paw or nose, and occasionally “jump” while we’re at home and I’m not paying attention to his alerts). Sorry I can’t give a detailed answer, but there are many videos that can explain it far better than I can. I hope that’s somewhat helpful 💚

@Chronically.sarahdayton thank you so much i appreciate it!!

Thank you! I have a video on my channel of Ollie’s gear tour. That video has chapters and links in the description to everything to make it easier for y’all. That video is linked in the description of this video too. I’ll link it here, but KZfaq has taken the link function sometimes. I hope that helps! Link- kzfaq.info/get/bejne/hMt5dap80bGVgIE.htmlsi=_lGmo7pgWZP_a5VC

Sorry! This was as slow as I could make it to fit everything in. I have a full video of setting up my feeding tube on my channel if you want to see it slowed down a bit more.

Lol ikr. The 165 comments totally prove that. For real tho, if you don't care, just scroll. Click the “not interested” or “don't recommend the channel” if you feel so strongly about it. There is plenty of other content out there. Oh, and maybe don't leave hate comments on disabled people's channels. We have enough going on and we don't need your hate in addition. I might be able to laugh off the hate comments that sound like they're coming from an 8 year old, but some of us might not be in that place. Idk what's going on in your life, but hurting other people (especially people who are already suffering (liver failure +10 other diagnoses in my case)) just to make you feel superior isn't going to help. And it's really gross. Normally I don't respond to hate, but I can tell you're likely too young to know what you're doing. It's also so ironic your handle is “sunshine2502” 💀 Thanks for the laugh though.

​@@Chronically.sarahdayton 😂 my "no one cares" isn't a" hate" comment. Unfortunately it's true. All these"service animal" channels are simply just a bunch of you guys with your cameras out. Simply just waiting for interactions like this. Let's be honest. Also I myself am disabled but would never behave like such a victim. It'll get you no where in this world. I apologize if you don't like facts.

@@sunshine2502 where did you see me filming an interaction? That's not what this video is. I've never posted one of those types of videos on my channel. Under the ADA, Service Dogs are considered “medical equipment”. I'm allowed to stand up for my rights if I'm being discriminated against. Just like someone would with their wheelchair or oxygen tank. I'm allowed to stand up for my rights. Also, this is an educational video. The audio isn't mine (as stated in the pinned comment and description, along with the link to the original). This is a waste of your energy, and frankly mine. There are plenty of other people that you can call out if you want to feel superior, but it won't be on my channel. Thankfully I have the “block” button if you decide to continue to be rude.

Also, why did you delete your previous comment? It was something like “the people you're trying to teach don't care..”. Idk if you noticed, but there are plenty of people who do care and who now have a better understanding of service dogs. You're 1 in over 23k…so…

You care enough to watch and comment this

Hi, thank you for asking my opinion. So, I **personally** don't think that having a Service Dog for anxiety is the best option. I have anxiety as well, and sometimes with all the extra attention, comments, stares, public access issues (where I have to stand my ground and educate), the anticipation, etc. has caused anxiety attacks on its own. And that's not even commenting on training Ollie for PA. That caused a ton of anxiety and I often left the store in tears while he was in training. It was just a lot for me until he was fully trained. Now, having a service dog that works at home is absolutely an option, but they may play a similar role to emotional support animals (that do not have public access rights). Actually, Ollie works a lot more at home than in public (mainly because I rarely leave the house lol). The best advice I can give is that- I would recommend talking to your doctor about it. Psychiatric Service Dogs should only be recommended by your psychiatrist. There are so many other ways to treat anxiety/panic attacks/(anxiety in general)and improve your quality of life. Having a Service Dog may or may not be the best option, and only you and your doctor can decide that. I hope that's helpful. I wish you the best! 💚

@@Chronically.sarahdayton thank u so much! I still have to talk with my doctor about it. They said that maybe a service dog is best but they aren’t sure bc I rarely leave the house and other stuff.

@@Astrryxoxo I hope you find the best treatment that works for you! 💚

@@Chronically.sarahdayton thank you!

Yes, you probably should and I normally did when I had a MICKEY button, but I ran out of syringes and I forgot to wash the ones I had. I mess up sometimes. It was so little air so it wasn't a huge concern of mine. I'd rather have a little air than bacteria from a used syringe.

Sorry, I'm confused. Are you talking about fake SDs in general or me specifically? I can't tell if you agree with what is being said or not.

Probably because they don't care...and they make a profit. Walmart did the same until about a year ago after the SD community spoke up about it. Amazon is probably too large to get it under control at this point. And plus, they make money off of it so they have no reason to put in the hours of work to get these off their platform. Most people don't care that it's illegal and negatively impacts legit Service Dog teams, and the SD community as a whole.

Thank you for the thoughtful comment! 🤍 I feed every day unless I'm doing a “gut rest” for whatever reason. It is my only source of nutrition, so I do need to do this every day. I feed for 19 hours (it's more like 20.5-21 now) a day because that's how long it takes to get my full amount at the rate my pump is set to. That means I am “attached” to my feeding pump (I use a backpack rather than an IV pole when I'm home because my house has levels, so a backpack gives me a bit more freedom. Yes, I do it in one sitting. I start my feeds right before bed and it runs until the next afternoon/evening (depending on when I start it. Sometimes it's 10:00 pm, sometimes it's 2:00 am because of my insomnia). I get a couple hours off to shower or do anything I want or need to do without my tube. The pump has about a 24 hour battery, and I charge it at night or while I'm in bed. Because my pump has a battery, thankfully I don't have to have it plugged into the wall all of the time. Having a feeding tube definitely limits me a little bit, but I'm just thankful I have it as an option. I hope that answers your questions. Thank you for the kind and thoughtful comment! It means a lot to me!💚

I had a little trouble reading your post because I'm dyslexic and there was no punctuation so I'm sorry if I missed something important. It's a me thing. I have panic and anxiety disorder (as well as C-PTSD and depression) as well, and sometimes symptoms like high HR can mimic POTS. There are times when it's hard to tell. I would recommend talking with your primary care doctor about it and see if you can get a referral to a neurologist (as POTS is an autonomic nervous system disease known as dysautonomia) and/or a cardiologist. They should help you to find doctors that are able to diagnose you and get you on treatment that works best for you. You should also look into seeing a GI specialist as well. Hopefully, they will send you down the right path to help you get the care you deserve. 💚

Yes, private businesses can absolutely choose to refuse service to anyone. However, refusing service to someone simply because the person has a service dog is *illegal* , as it is a form of *discrimination* . I don't think that it's fair to expect all SD handlers to provide proof of an illness/disability simply because they might run into issues with their SD’s public access. Rather than putting that burden on *sick and disabled* people, I think that everyone should be educated on basic ADA laws when they are hired. Trust me, I despise people who abuse the ADA laws when it comes to Service Dogs, but the handlers shouldn't be the ones to pay for it. Hopefully, there will be a better system for authenticating Service Dogs (like an ID or certificate) down the line, but this is all we have for now.

My doctor recommended getting mine replaced anywhere from every 3-12 months, depending on what's best for the patient and the type of tube I have (I have a different type of tube now because I had some issues with the MIC-KEY button). Covid really delayed my tube replacements but thankfully everything was okay.

Same I get mine changed every 3 months dang we all relate 🥹

It depends on what your doctor recommends. I have to wear gauze under or I get severe granulation tissue. I no longer have a MIC KEY button but I still wear one layer of gauze and gauze over top to catch anything else that might leak. I'm not sure how wearing gauze under would cause infection if you're changing it at least every 12 hours as recommended. Where was the infection? On the skin? The stoma? I'm confused.

I'm sorry you're suffering. Can I ask why you would need a feeding tube? If you really feel like you need one, please talk to your doctor if you feel it will mitigate your symptoms.

I've done videos on this before, but there's no such thing as a registry/certification for Service Dogs. All of those registrations, certifications, and IDs are fake and scams. They are actually illegal. If you need a Service Dog, you need to talk to your doctor and come to an agreement that a Service Dog would be beneficial and mitigate your disability. From there, you need to be sure your dog meets the requirements to be a Service Dog. I'll comment with the section of the ADA website below along with the videos I've done, but they are easy to find on my channel if you want to do it that way. I hope that helps.

Videos on ADA laws and website kzfaq.infoi2MM1Kn84-A?si=nnSsv0UAONusqC2Y kzfaq.infoMeKxMSq16io?si=gxmR-MmjKppw8lgA

Well, thank you. It means a lot to us handlers. Most people don't respect Service Dog teams like you do, unfortunately. We appreciate your support and kindness! 💚

It's tricky for me bc my illnesses are visible now. You can see my feeding tube and port, my excessive bloating (ascites), jaundice eyes and skin, needing a mobility aid for a lot of situations, etc. Plus, my chronic illnesses are a big part of my life and I wouldn't want to keep that from someone that I would potentially date. The way I'm treated now than when I had an “invisible illness” and I now know that it's a privilege to be able to hide it. To be clear- I don't disagree with your comment. It just sparked this idea and I thought I'd bring it up because it's something that isn't spoken about often.

Mine is from Amazon. You can just search “velcro patch holder display wall” and you should be able to find something similar anywhere from $10-$30. I’ll link it in the description box since we can’t use links in comments anymore. I hope that helps!

Hey! I would definitely recommend asking your doctor to get a port. Eventually, your veins are going to become scarred and it's going to be harder and harder to place an IV. For me, that was about 6 months. I have EDS though and I have very small veins that like to blow. I was being stuck a minimum of 4 times before I got my port. Don't get me wrong, ports come with their own list of risks and negatives. I would highly recommend a port and to avoid a PICC line or Hickman (if possible), as they put you at a higher risk of infection and sepsis. I don't know your full medical history and I'm not a medical professional, so please talk to your doctor and they should give you the best answers to your questions regarding ports and IV hydration. I hope that's helpful!