![Spoken Word Poetry: Wheelchair = Freedom? [CC] | Ehlers-Danlos Syndrome | Disability](/img/o.gif)
2 жыл бұрын
2 жыл бұрын
2 жыл бұрын
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@veronicawanjiru5142 3 күн бұрын
It's aweek ago after the surgery and so far so good I thank God
@khushbushah1779 7 күн бұрын
Can u make a support group plzzz ?
@khushbushah1779 7 күн бұрын
Any1 frm india here ?
@tiffany9000 16 күн бұрын
What did your dr prescribe for this?
@Tanya218 22 күн бұрын
I also went home with a catheter & can confirm it was the worst week of my life. I barely slept and paced around my house & cried pretty much the whole time. It was so much worse than I could have ever expected
@VictoriaBreeden-uo8uw 24 күн бұрын
Diagnosed earlier in 2023 but having a incredibly difficult time finding care, or anyone knowledgeable in my state. I have to cystic facial bumps as well do you have any advice on clearing it...?
@colleeninsko4665 Ай бұрын
I had painful bladder syndrome for over 10 years I am now healed from it using mind body work
@YenzoHlatshwayo-qf3hh Ай бұрын
My period pains are so painfully and l sleep for hours
@vallee3140 Ай бұрын
Anybody here tried Acupuncture? I had it on the NHS at my local Hospital, it works, but I had to stop as I have Peripheral Neuropathy,in my Legs and Feet, and the Acupuncture because its done in the Ankle can make it worse..
@magicbird4242 Ай бұрын
Hiii mam, I was recently diagnosed with Ehler danlos syndrome, I am a doctor by myself, but I want to talk to you. How to connect to you mam?
@rosannasioson7999 Ай бұрын
After my surgery last Aug 2023..untill now l felt pain inside and l do certain things here inside my house.
@calmrestored6031 2 ай бұрын
Omg this is my story too. Thank you so much for putting this information out there. Most general doctors don’t know about this. I was put on antibiotics for years with no infection evident.
@selvapriya3805 2 ай бұрын
Is get pergnant with hirsutism ???
@ritaituen8414 2 ай бұрын
Good eveing after the surgery does endometriosis occur again? how do you feel now? Can you conceived? After laposcopy surgery do you mentrate normal?
@theresebatty3853 2 ай бұрын
Thanks for this information. I’m having mine done in a few days. My question is how long do I stay away from hydropool spa…etc.? Thanks.
@johnotto989 2 ай бұрын
What was the medicine he put you on?
@PreciousPamphile 2 ай бұрын
Thanks for sharing. I wish it was this easy to apply when it came to chronic illness for malnutrition and chronic pain. If you can eat you weak and body shuts down u basically can’t do anything it makes it hard to make goals etc. TPN (nutritikn through the vein) is short term but I did it for over 2 in half years but got 9 DVT (blood clots) because of it! Feeding tubes you say yes yes 19 of those and infection remember I am sick in my stomach bleeding ulcers. Do to stress. Of course show me how to not be stressed lol I try but very difficult because sometimes I stress within myself and don’t realize. Anyways live the video❤ keep them coming
@mjclaudianava5397 2 ай бұрын
Hi, I am in love with a guy who has EDS and mitochondrial disease as an adult. I met him through a dating app. I want to know the chances of this disease being passed down cause he is rejecting my love due to his anxiety
@shirleypitts6927 3 ай бұрын
With EDS its helpful to keep the nervous system very strong and healthy.
@cctv318 3 ай бұрын
one of the first vids i watched years back while researching, now i’m returning before my surgery. thanks so much
@pennyforyourthoughts1 3 ай бұрын
Same here friend! Wishing you all the best and a smooth recovery 💛🌻
@cctv318 3 ай бұрын
@@pennyforyourthoughts1 congrats on making it this far ! good luck, we got this 💪🏾
@ayeshasiddiqui6874 3 ай бұрын
Name of doctor with adress plz
@TheWellnessAbbey 3 ай бұрын
Great, practical tips. Thank you.
@MsKasiulenka 3 ай бұрын
Does anyone know how IC is diagnosed?
@noresult1 3 ай бұрын
To be sure you have to have a cystoscopy
@janelleagcaoili575 3 ай бұрын
Its my 3 rd day of recovery of lapa csn i drink coffee
@missmbako 3 ай бұрын
Thank you so much for this video. It encapsulates everything I have kept in my throat because I have felt "what will change? Who will listen?"
@missmbako 3 ай бұрын
Thanks for this. I wash I had seen this before my surgery but I feel validated in my experiences. I had no guidance whatsoever and I didn't know what was coming.
@ritaituen8414 2 ай бұрын
How do you feel now
@labdhilalwani2819 4 ай бұрын
Can you suggest a good urologist in Mumbai for painful bladder syndrome which helped you
@FreshloCakeFactory-cd2ck 4 ай бұрын
Hi ...i am suffering form this since last 5 years and i don't know how long it will go ...how to get red of it how to manage it and i always have one question and i couldn't found answer...and i am seeking this answer from you...if you can answer me out of your research on interstitial cystitis ( IC) What cause this disease?
@zainabbegum6181 4 ай бұрын
After endometriosis surgery r u taken dinogest tablets
@partharoy6077 4 ай бұрын
I have all symptom hyper mobile eds but genetic say I haven't please help me
@madyali5463 5 ай бұрын
Amazing information
@misa913 5 ай бұрын
Did you do any Cystoscopy?
@MichaelHonahara 5 ай бұрын
Thanks to Doctor.I am so happy to come across the great doctor Isibor KZfaq channel. I am now completely cured from pcos with his pure herbal product.🎉❤
@MichaelHonahara 5 ай бұрын
Thanks to Doctor.I am so happy to come across the great doctor Isibor KZfaq channel. I am now completely cured from pcos with his pure herbal product.😊❤
@missnurse2011 5 ай бұрын
I’m getting the surgery and have hEDS too! How are you feeling now?
@florabraswell-nm1re 5 ай бұрын
Thank you 🙏 ❤
@simangelemilicentkatsande7359 5 ай бұрын
Your voice is soothing 😍
@francescacampanella6055 5 ай бұрын
Thank you for your video. Very explicative on your story. My situation is exactly the same, without endometriosis and fibromialgia, but together with the bladder (it all started 7 years ago) I have blurred vision. Is there any blood teste that could indicate the MCAS syndrome? Also do you mind to share the last medication your reumatologist put you on? I'm asking because I followed anything relatable to IC and EmbeddedUTI but nothing worked.
@BG-lr7zg 5 ай бұрын
Look into Mast Cell dysregulation (could be due to a suppressed immune system that is overreactive). This may play into the issue with the IC pain. Check out Mast Cell 360. Antihistamine and many other things like quercetin, luteolin, bromelain and many other things may help. Also, Anti-inflammatories, could be considered. Things like Boswellia Serata, SPM (pro resolving mediators), Black Cumin seed oil.
@sujalmutha9248 5 ай бұрын
Hey hope you are keeping well I can get your doctor’s details who treated you in mumbai
@nitimainali8997 6 ай бұрын
Hi there ! After having surgery everything will be fine ? actually i m going for surgery soon
@shellysmith3780 6 ай бұрын
Fix your gut, rebalance it with various potent good bacteria not just any old thing you find in the shop. Take boulardii, get rid of candida and take rhodiola. It all comes from the gut
@whatareyoulookingat908 6 ай бұрын
Ty. I'll see if this works for fingers.
@masagolob3215 6 ай бұрын
Thank you so much for these tips and informations! I had no idea about many of those things! I'm going to have the same surgery in less than two weeks and I'm starting to become a little bit nervous. This helped, I like to know what to expect. I also love how organised this video is. Thank you!
@nikkibaxter5550 6 ай бұрын
Hi I am wondering if you had the endometriosis on your bladder? I had a full hysterectomy 12 years back and had the endometriosis on my bladder, that I had several operations to remove it including laser treatment to remove it, now.I am experiencing sharp pains in my mid lower abdomen, in the bladder area, and groin pain, as well.as.other symptoms. It's a nightmare with docs.who.just.want to address one area.one symptom, when I think.they are all connected. Most docs don't listen.
@tanickadouglas3371 7 ай бұрын
Thank you for sharing. I just had my second surgery and my healing is slow and hard. I am glad that there are other people out there that are young through the same thing. This has been very draining both physically and emotionally and I feel like no one around me understands what I am going through.
@lilly1552 7 ай бұрын
My biggest trouble has been dealing with the guilt that comes with being upset/sad when plans change suddenly, and then I am informed it’s due to my partner’s chronic illness. I’ve been getting better, both with being more understanding but also allowing myself to feel emotions :))
@mfg2324 2 ай бұрын
Absolutely. Allowing to feel ones emotions is always important, and being able to express them to loved ones can help so much. But when I feel sad/disappointed/stressed/... due to consequences of their conditions, I can't really let myself express those feelings - or else they will feel guilt and shame and keep their struggles from me in the future to not hurt me. All of which I don't want, I love being there for them and don't want to make them feel even worse! And at the same time, things can be challenging, and expressing that seems helpful to me. Well, I guess it's a shared learning journey. Feel free to let me know some tips or what you've learned along the way :)
@sarahmaria7568 7 ай бұрын
Thanks for Sharing great vid x
@AlyssaVasquez-oe2yd 7 ай бұрын
I got it too but i don't know what caused it but power of prayer
@AlyssaVasquez-oe2yd 7 ай бұрын
I feel u