I'm 59 and male. 16:58 I have small vessel ischemic disease. I feel that frustration. I cannot find the rights words or I forget - leads to frustration. People around me sense it.

Nice! Easy, was getting ready for work & joined in with you!

thank you so much for this!!

You are a Godsend. Thank you so much for these videos. They are such a comfort. It is stress relieving to listen to someone who actually knows what they are talking about.

Really well done. I have LBD, probably in stage 5. Drawing extensively from “cognitive reserve.” Consoled because I have a relationship with God.

❤yes, thank you, thank you thank you from me too!! I pass n to others much of what you say and I know it makes a difference to them too. Can’t express how grateful I am. 👏

What is the difference between bvFTD and FTD for someone who has a VCP gene mutation of Inclusion Body myopathy? And are those that do, have a tendency to be angry and aggressive?

Suggest a Dementia Callender...as things change

Learn all you can about Dementia and adjust each moment and 🙏

List ingredient quantities, so I can copy and follow. Thanks.

Again thank you, thank you, thank you so much. You helped me understand the disease of dementia my mum had. She passed away back in December but I still listen to Dr Tam and learn something new every time.

Thanks for this video. You are straight up and pragmatic. My mum is stage 6. I am greiving. About to go visit her in the hospital. She has had a big behaviour and cognitive change over the last couple of months and ended up in the older adult mental health ward. Luckily they have given her medication and she is ready to be discharged back to her care home in about 4 days. Underneath my grief is love. My grief about her illness is testament to how good a mum she is. Sending love to all people who are experiencing this. Its so hard.

Very good presentation! Thank you for sharing this information.

😂😂😂😂

How come they can be ok then suddenly after an infection like the flu they go straight into the decline

have you heard of gabapentin for dementia and what is all the hallucinations coming from

My husband with FTD was scammed early on and also removed $ from 401K

Thank you for inviting me to talk about "What Matters to Me" and having THE conversation. Ya'll do a great job educating all of us!

I'm unfortunately the only one who will be giving care until the end of life

Still trying to get a diagnosis but have found 'throwing myself under the bus' is giving us several weeks so far of peaceful existence. I strongly suspect vascular dementia as there is a large infarct in the right frontal lobe as per. MRI for a silent stroke. ( Didnt seem silent for me but was found at least 6 months later after he fainted)

As spouses we often don't realise the extent to which we compensate for the gradual decline. We just automatically take over the various areas as our spouses difficulties increase.

why do they put them on meds for hallucinations? Do these work

When completing DBAT do we check the box if the behaviour has been observed at all or only when it is constant?

What about life alerts for the caregiver. I have my own medical problems and my husband would not be able to help me.

What about a baby monitor to listen for your love one.

Thank you so much! My dad was diagnosed in Jan 2024 with stage 5/6 VD. Everything now makes sense and I feel terrible as his caregiver (last 10yrs) for thinking he has been lying, manipulating and antagonizing over the past 5-6 years. As a teacher I believe the saying ‘when you see the child differently you see a different child’. Knowing what I now know I apply this belief to my dad and our relationship has changed for the better 💙

My Loved one has Vascular Dementia. He had a major stroke at age 48. He was diagnosed with Vascular as well as Alzheimer’s at age 79. Could that bad stroke long ago have caused his vascular dementia?

Mi enfermo tiene cirrosis muy avanzada y vivimos en San Marcos California y tiene medical usted sabe como aplicar para esos servicios?

Thank you for the video. My mom has Alzheimer’s dementia and has begun fabricating/misremembering events that she believes happened in the past. Is this normal or common?

How interesting about the cycle of life, the season of birth & death

I am my husbands caregiver. None of the family helps. Now im wondering how to prepare for my future if i end up with dementia. My expectation was that my kids would be there. Not so, now wht?

Transcript?

The only add I have is that it would be helpful to say the stages as you are describing symptoms

Excellent explanation, precise but loving ,part of life for sure ,hard to find peace with it...

Couldn't get through this one.

That was an extremely informative and concise piece of education, well delivered. Thank you so much!!!

Good information, thank you!

Thank you for this straightforward and very useful information.

In a simple search of the seven stages of dementia I feel that this was the best and most direct explanation. I appreciate you didn't waste time with the endless introduction and just hopped right to it and then explain through so great video.

Yes I will

The day before my 80th Birthday.🌈love your videos. Impressed with the knowledge you impart. Also, great glasses!

I am so bummed I missed this session. I was watching the calendar for it and couldn't find it. When in May is the session scheduled for? I can't miss these!

I Also binge watch her videos at night after I go to bed! Thank you!!

Thank you for making me feel not so alone! My husband started changing about 3-4 years ago. Probably around age 65, maybe before. I honestly thought he no longer loved me. Then he lost interest in everything that he always loved. I finally got him to a neurologist in October 2023. He’s diagnosed with the behavioral variant of FTD. it’s easy to feel alone in this journey because people don’t understand it. Thank you for sharing.

Hi, I know this might not be the best place to ask questions but I need some advice. My mother is constantly accusing me of stealing or hiding things from her, some are things we don't actually own. I tried to reason with her but that just made her angrier. Our relationship is really strained right now because of this. Should I just buy whatever she accuses me of? I am really not sure if I should do this because there might be things that I just can't buy anymore. What should I do?

Best explanation ever. Thank you. 😊

Jeremy, you are describing a person moving from stage five into stage six and displaying classic features of dementia from the sleeping patterns to cursing to screaming. Remember to use your tools: PAINAD to rule out pain, HAM-A for anxiety, Cornell Scale for depression-treating these three addresses many of the behaviors you describe. It is the result of extensive brain damage. Good luck and prayers to you and your loved ones. Dr. Cummings

my darling husband is incontinent now. I truly don't mind looking after him. I visit him at the Care Facility before breakfast...shower or wipe him down, dress him...as if we were still living together...I know I couldn't do it the entire day and evening but I make sure, I am there when he does his BM which he no longer can tell himself, he is doing it...I assured him, it is okay that I clean him...because he did feel badly for me...thank goodness, he doesn't make mention and apologize any longer...he just got fitted for a wheel chair...I took him outside for the first time in many months because winter was fierce for so long...now Spring has arrived and we will be outdoors for him to enjoy the fresh air, animals/birds and the sun...Life is peaceful and we have joy...He is so precious to me!!!

Re: Dr. Tam's question I do not believe I will care for my MIL until end of life.