2013 an MRI showed a cyst on my right ovary that was likely an endometrioma. Follow up scan 2 yrs later no change. MRI 2018 endometrioma decreased in size so after that then covid came and follow ups and screening took a back seat. Even in nursing school I don't remember learning about endometriosis. GP did not seem concerned about it either. Fast forward to 2023 I got diagnosed with clear cell ovarian ca. Kicking myself for not being more vigilant .
@Ovarcome23 сағат бұрын
Thank you for sharing your important message 🙏🏼. Sending you love - keep Ovarcoming 🩵
@MunizaGangat6 сағат бұрын
How are you? I was also stage 1a clear cell. 16 cm Endometrioma, 1.5 cm cancer.
@MunizaGangat6 сағат бұрын
@nursequipy I want to add I was also diagnosed last year.
@NurseQuipy4 сағат бұрын
I was diagnosed 3b clear cell June 2023 had complete hysterectomy and bilateral salpingo oophorectomy and omentectomy July 2023 then chemo August to November 2023. All my drs say that there are 2 groups of women with clear cell, those diagnosed early sometimes do poor and then those diagnosed sometimes do better. So far all my scans have been clear and my surgeon thinks I will be part of the good group. Fingers crossed for both of us
@MunizaGangat4 сағат бұрын
@@NurseQuipy so stage 1 is not good? I am Scared now. I had no chemo,
@keyuranil4 күн бұрын
My wife is suffering from BRCA2 +Ve and HRD +Ve High Grade Serous Stage 3c Ovarian Cancer since last one year, currently she is on maintenance doses of Olaparib. Unfortunately my daughter is also BRCA2 +Ve, my question is that can my daughter start Olaparib in minimum doses as a prophylactic?
@Ovarcome23 сағат бұрын
We have sent this question to Dr. Moore - hopefully she will be able to address. We will post it here as we receive her response. Thank you for watching - keep Ovarcoming 💙
@laraineseifer34544 күн бұрын
Do you recommend Parp maintenance for patients that are BRCA neg and HRD proficient? If so wjat is the benefit? Does the risk outweigh the benefit?
@Ovarcome23 сағат бұрын
We have sent this question over to Dr. Moore - we will share the response here as soon as we receive. Thank you for watching - keep Ovarcoming! 🩵
@laraineseifer34544 күн бұрын
Do you recommend Parp maintained for patients who are BRCA neg and HRD proficient. And if so what are the benefits? Is the benefit worth the risk?
@NancyCleveland-d3z6 күн бұрын
Congratulations!! Absolutely inspirational and providing such "hope" for all of us!
@Ovarcome3 күн бұрын
Thank you so much Nancy! 🙏🏼 Keep inspiring, keep Ovarcoming! 💙
@ewabak449219 күн бұрын
Congratulations 🎈
@Ovarcome3 күн бұрын
Thank You! 🙏 💙
@VictoriaBeecher30224 күн бұрын
I’m fortunate that Dr. Grisham is my oncologist. Runsi, thank you for raising the topic of physical appearance and saying it should not be discounted. It often feels it’s not even a consideration.
@Ovarcome22 күн бұрын
Thank you for watching and for your kind words - please share with anyone who may benefit. Keep Ovarcoming! 💙
@jdakat8827 күн бұрын
How can I sign up for this clinical trial?
@Ovarcome22 күн бұрын
You may search our Clinical Trials Finder on our website to check if enrollment is open. Keep Ovarcoming 💙🙏🏼
@DAM1825Ай бұрын
HGS is 70 of cases …keep going
@OvarcomeАй бұрын
Thank you!
@ElizabethPanacekАй бұрын
Is the 9 years the same if I have low grade?
@OvarcomeАй бұрын
Yes, that's what it seemed from Dr. Coleman's remarks. Thank you for watching the live stream - please send us your mailing address at [email protected] so we may send you our special 100th episode souvenir! 🙏🏼🎉
@ElizabethPanacekАй бұрын
I hear NED but is that cured?
@leslieandrus7150Ай бұрын
Amen to 'cured'! I was first told that an ovarian cancer recurrence isn't 'curable' - that it's a matter of when, not if it will recur. I refuse to accept that statement! This talk has been so encouraging!!
@OvarcomeАй бұрын
Thank you Leslie! We agree with you 100% - we need to shift our attitude and be receptive to HOPE and progress. This is how #WeOvarcome! 🩵 Thank you for watching the live stream - please send us your mailing address at [email protected] so we may send you our special 100th episode souvenir! 🙏🏼🎉
@sharonhoffman9888Ай бұрын
Sharon Hoffman. Mirv worked well for me for 8 mos. Now in a P1 trial Rinas-1
@OvarcomeАй бұрын
Thank you for sharing, hope the trial is successful for you 🙏🏼. Thank you for watching the live stream - please send us your mailing address at [email protected] so we may send you our special 100th episode souvenir! 🙏🏼🎉
@leslieandrus7150Ай бұрын
I am so grateful as a survivor dealing with recurrence for this series, Runsi and her behind the scenes team, and all of the experts that are so giving of their time! When first diagnosed with recurrence and upon discovering this resource, it has been so nice to have a massive library of helpful information, rather than getting lost on "Dr. Google". It truly is a priceless resource, and provides me so much hope in terms of advancements in OC research and treatment and more targeted detection and therapies for myself and women in the future as well. The B.E.A.C.H. symptoms and awareness are no doubt saving lives!
@heikrujamkishan6507Ай бұрын
My mom she has cancer now she is in serious cancer because of this Tata hospital don’t look at their go at Mumbai hospital
@keyuranilАй бұрын
Excellent 👍🏿
@OvarcomeАй бұрын
Thank you! 🙏
@bettysingh48812 ай бұрын
Thank you Dr for sharing your knowledge My grand daughter has ovarian cancer She had 3surgeries no help She has a DNA mutation
@leslieandrus71502 ай бұрын
While mucinous ovarian cancer is more rare, there does seem to be a large population amongst us that is caught in either this pre-cancerous or Stage 1. Is there a particular Center that is focused on this subtype? Essentially, how do we get our samples to the right researchers, as survivors?
@wendywestra2 ай бұрын
Thank you. I have just been diagnosed with serous carcinomas and starting my research . I had a full hysterectomy 😮 and a stint from my kidneys to my bladder. The tumor from my right ovaries has left a skinny dry fallopian tube and climbed up towards my right kidney via my bladder. The really amazing thing is I feel really well 10 days after surgery. I feel really positive about my future. A different perspective.
@hphan80223 ай бұрын
Thank you. I appreciate the information.
@Ovarcome2 ай бұрын
Thank you so much for your kind words and for watching our Connect Ovar Coffee series! Keep Ovarcoming! 💙
@faithfielder94933 ай бұрын
I really appreciate the explanation of the graphs in the trial results. Thank you for presenting a huge amount of information in a short time.
@Ovarcome2 ай бұрын
Thank you for watching and for your kind comments - we appreciate you! 💙 Keep Ovarcoming! 🙏🏼
@ritashiber3 ай бұрын
I really got a lot of sensible advice from this thank you so much.
@Ovarcome2 ай бұрын
Thank you so much for watching and for your kind feedback 🙏🏼- keep Ovarcoming! 💙
@suraiyabegum73553 ай бұрын
Dr Priya nice presentation. It is said MRI has better resolution than CT with contrast. Why CT is used for total assessment eg. LN , diaphragmatic deposit ,etc. Can MRI give these involvement?.
@jenniferflores9043 ай бұрын
Where can someone sign up to be a candidate for SURPASS-3 trial (NCT05601752/ (GOG-3084)
@tamarabeck63503 ай бұрын
Thank you for this talk. I’ve been in a clinical trial for 14 months and tomorrow’s ct scan will determine if I stay on it or not. Scanxiety is real even after 7 years at this game. HGSC
@Ovarcome3 ай бұрын
Thank you for sharing Tamara - we are sending you our love and best wishes for the best outcome at the appointment tomorrow - we stay hopeful, we keep Ovarcoming! 🩵
@Lemlaybeuh3 ай бұрын
Very interesting, feeling how the bloating and pain receded within approximately two months made all the difference, I simply go’ogled the latest by Tilly Strankten and her Ovarian Cyst Guide and although it really took about 10 weeks for it to totally shrink and vanish I’ve never felt so light and relaxed.
@ErikaHerzog4 ай бұрын
This was very informative and helpful! Thank you so much, Dr. Grisham!
@Ovarcome3 ай бұрын
Thank you for watching and for you kind feedback 🩵
@margaretiovino60634 ай бұрын
What about Clear Cell ovarian cancer? the Ovarian Cancer world hasn't developed a single treatment that has shown effectiveness for Clear Cell, and they are treated with treatments developed for high grade serous, and those treatments don't work because clear cell has a completely different molecular structure. So gyn onc knowingly treats patients with the wrong treatment with sideeffects but then death.
@a.marievazquez37004 ай бұрын
How about fewer CTs for trial participants if you’re concerned about secondary cancers? Seriously!
@user-wb9qq5ch8g4 ай бұрын
Thank you for this conversation! It is providing incentive for me to reestablish my yoga practice. It was very helpful in my bout with stage one breast cancer 15 years ago and I know it would help as I deal with stage four ovarian cancer at two years out from diagnosis . Issues of anxiety, scanxiety and neuropathy remain! I look forward to seeing the resources that are listed as part of this conversation
@Ovarcome4 ай бұрын
Thank you for watching and for sharing your kind feedback. This link was shared in the video as well just in case you need to return to it at any time, but here is the link to the on-demand yoga videos: www.mdanderson.org/patients-family/diagnosis-treatment/care-centers-clinics/integrative-medicine-center/audio_and_video.html . Keep Ovarcoming! 🩵
@mrsleannejh4 ай бұрын
How do I follow. On phone.
@tamarabeck63504 ай бұрын
Am I the only one who needs a medical dictionary for all of the terms Drs throw at us? I so badly want to understand all of this, but even after 6+ years I’m confused, as if a foreign language is being spoken and I haven’t studied amount to understand.
@MegaMandyland4 ай бұрын
What about recurrence containing NRAS mutation? There a lot of talk about kras mutation, but no nras mutation :(
@arpitapradhan87024 ай бұрын
Uni bhagwan.... amar ato risky o.t chilo annyo dr bolechilen ami o.t te expire kore jete pari.... but dr babu ato sundor o.t korechen....aj ami natun jibon fire pyechi..... onake amar sata koti pranam namaskar
@arpandas50824 ай бұрын
ki hyechilo apnar
@arpitapradhan87024 ай бұрын
Amar ovarian cancer hoyeche.... akhon ami kemo nittchi
@arpandas50824 ай бұрын
amar mayer o...tata tei ot holo...apnar ki stage chilo?
@arpitapradhan87024 ай бұрын
Amar stage 3
@arpandas50824 ай бұрын
oww accha accha....amar mayer stage 4...spleen kete bad dite hyeche..colon ar kichuta bad gachey...de jagannath mishra korechen surgery
@jdakat884 ай бұрын
I was wondering what your thoughts are on the clinical trial AVB -001 through MD Anderson?
@jeanninecorse25215 ай бұрын
Thank you so much for doing this!!!!!
@Ovarcome4 ай бұрын
Thank you for watching and for your kind feedback! Keep inspiring, keep Ovarcoming! 💙
@PerfectKlaus5 ай бұрын
What about TP53-mutated BRCA cancers (HRD positive)
@keyuranil5 ай бұрын
My wife is BRCA2 Pathogenic and HRD positive, my daughter is of 27 also BRCA 2 PATHOGENIC. She ( daughter ) is in Toronto, can she enroll for TAV trial to prevent ovarian cancer?
@ronaldsmith64665 ай бұрын
My mom has ovarian carcinosarcoma with no targetable weakness per her gene testing. Are there any treatment options outside of standard of care chemo?
@user-sn1oe5hr2j5 ай бұрын
I am hrd+ but brca- should i add durvalum with bev and olaparib or just bev and olaparib is good. please ask him
@monicag67155 ай бұрын
I had clear cell 1.6 years ago and only had one surgery. No chemo no full abdominal hysterectomy. I was only offered chemo and a second surgery not immunotherapy.
@monicag67155 ай бұрын
How about stage 1 clear cell ovarian that did NOT do chemo and did NOT have a hysterectomy.
@pallavisreetambraparni69955 ай бұрын
Very informative
@kellybennett29556 ай бұрын
Elahere worked great fo 5 months then stopped and my cancer csme back hard.
@sarahs49166 ай бұрын
Great discussion!!! Thank you both!!
@Ovarcome6 ай бұрын
Thank you for watching and your kind feedback! 🙏🏼 Please share this video with anyone who may benefit. Keep Ovarcoming! 💙
@Mamacat226 ай бұрын
Dr. Sood is the absolute best! He is brilliant but also kind, compassionate and ever so patient.
@Ovarcome6 ай бұрын
Thank you for your kind words for Dr. Sood, we agree 💯 ! Keep Ovarcoming! 🩵
@Opeoluwa.K6 ай бұрын
I am working on my thesis on this, thank you for sharing yuor knowledge!
@Ovarcome6 ай бұрын
Thank you for watching, and for your kind feedback! Good luck on your thesis!
@AtharvaPoetries6 ай бұрын
Granulosa cell tumor stage1a is it curable?
@asmaalam61436 ай бұрын
I was diagnosed with clear cell carcinoma ovarian cancer stage 3b, surgically removed 8 lbs tumor with total hysterectomy in September of 2023. Didn’t go through chemotherapy as my heart didn’t agree with it. I have recovered and doing well so far. This was an excellent interview and when he mentioned the link between acute depression/ stress and the ovarian cancer it hit close to me as I was going through problems and was often depressed prior to the diagnosis. There are other added factors like diet and not having clean bowel movements and bladder can also be the cause for progression of the disease. Having positive outlook, good diet and rest, clean bowel movements, besides good support system has helped post surgery and during recovery. I believe and hope I’ll recover fully without any recurrence. I hope my experience helps anyone out there going through this
@shetlandsheep30816 ай бұрын
Totally agree, I went through horrendous life events, became very stressed and depressed (so much so that it was classed as clinical depression treated with SSRIs, and after a few months was diagnosed with ovarian cancer. Luckily early stage bc of chance - the tumour caused blood clots in legs and lung and the leg pain sent me to GP - of course they might also have killed me but I was lucky). I’m convinced there is a connection. Changed those life factors causing the misery and now have amazing support, and happiness; Wishing you all the best with continued remission!
@asmaalam61436 ай бұрын
I pray and hope for your normal, healthy and content life; and hope you don’t have any mental and physical hardships for the rest of your life. Please don’t let any life stressors get to you as the added pain, sufferings, emotional and financial burden that comes with it is not worth it. I have made conscious change not to let things bother to an extreme. Also eat healthy and clean food and rest well. Take good care of yourself always
@Ovarcome6 ай бұрын
Thank you for your kind feedback and for sharing all the steps you are taking towards Ovarcoming 🩵 . The mind body connection needs to be further delved into and we hope there will many scientific breakthroughs on this. Let's keep hoping. Let's keep Ovarcoming! 🩵
@Ovarcome6 ай бұрын
@@shetlandsheep3081 thank you for sharing! There is certainly a connection and so much more that medical science has not yet uncovered. So important to be vocal about these topics, and have backing from world renowned researchers like Dr. Sood championing it. Thank you for watching! 🙏🏼Keep Ovarcoming! 🩵
@keyuranil6 ай бұрын
Hi, really the discussion was very interesting and very informative. My wife is suffering from Stage 3c high grade Serous Ovarian Cancer. She has just completed last neoadjuvant chemotherapy, after surgery the surgeon told me, what Dr Sood told, that there are some unresectable back scares or spots left on small intestine, if my doctor could have a pen as Dr Sood mentioned, I would be rest assured that there is total removal of all visible tumors , She may get a better chance of Progression Free Survival
@Ovarcome6 ай бұрын
Thank you for your kind feedback - sending your wife our love, best wishes and healing prayers. Keep Ovarcoming!
@navbharat14434 ай бұрын
Hi Anil, may be parp inhibitor, targeted treatment like oral olaparib tablet may help to keep the Cancer away. Have you talked to doctor about it