🦨 lol

This just happend to mom 4 days ago.... she feels so alone ..... if anyone can give me tips on what i can do cuse this breaks my heart. Thank you for your story !!! Your are really strong for dealing with this!

Hey guys… well imma go straight into it … my phone sounds weird lately… it sounds like it’s always Far AWAY , and my gaming headset suddenly sounds off … and i be saying Huh? More often … do you guys think i’m ok?

I had same experience on 21st September 2020 right ear sudden loss of hearing felt sick and room spinning I do understand your condition . I felt I am disabled disappointed in my life and it do ring in my ear continues. I been told I will never regain my hearing . I wear hearing aid which is called looping its difficult . I work in Operating room I do understand your situation .

My husband was already severely deaf in left side and right side he is just going through exactly this now... so hard for him. Sending you big healing hugs... hope things got better for you.

During curledge pragancy how many time walk sit and stand up?continews sneeze affect stitch ?

I am deaf and you will be fine. Smile. ...You may need to learn some sign language. Hearing aids could help you hear better. Hugsss

Thank you, Esli. I had SSNHL six months ago. First I thought it was an ear infection, but I really had no idea. I went to the urgent care clinic where they gave me antibiotics even though there was no sign of infection. They sent me to see an ENT several days later and I got a hearing text that confirmed high frequency loss in both ears (I already had some just because of age) but also significant low frequency loss in the affected ear. Both of those make it hard for me to understand speech, especially in loud place or crowds. I got an appointment with a neurotologist (hearing specialist) who repeated the hearing test (same results) and gave me a steroid shot like you described. I got a second one. No improvement. The doctor said this was my "new normal." I had the same kind of hearing loss two years ago with a lot of distorted hearing and loud tinnitus; it resolved by itself after many months. My neurotologist said that was very rare, and the fact that it came back made it clear it is now permanent. The first time around, my previous ENT had me get an MRI to see if there was damage to my auditory nerve; luckily, there wasn't a tumor. But what about cause? My current hearing doctor thinks it could be Menière's disease but without the vertigo, but really no clear cause. Are you using hearing aids now? I am, and it has improved my speech recognition when there isn't a lot of ambient noise. On top of this, I am a professional classical singer and conductor, and this hearing loss has affected me terribly. With the hearing aids it's a bit better, but I think I will always be unbalanced in sound perception. Have you considered cochlear implants? Does that make sense? Or have you started to learn ASL? I've got the finger-spelling alphabet down, but only a few other signs. Good luck to all of us!

Thank you so much for sharing your story. I don't feel as alone. As I said in another comment.. I still can't accept it. I cried during your full video.. I can relate to all things you said...wow.. all of them. The fact that people can't see it makes things even worse. they don't understand how you feel inside. Im in a moment in my life that I feel that im not myself. I lost a part of me. It's so difficult..

Thank You so much for sharing. You are such a brave person. While I was watching your vlog, my tears did not stop I went back to what I had experienced in Oct 2020 which was a nightmare. I was working with my client all of a sudden I felt my right ear shut off ... I tried all kinds of home remedies I went to an Urgent Care Steroids prescribed. The audiologist said I had profound hearing loss. ENT, the doctor said maybe Virus. Matter of fact I got COVID-19 Oct the same time as I had hearing loss. As of June 2024, I still have terrible noises in my right ear Nonstop and I'm not going to ENT doctors anymore. I bought hearing aids from over-the-counter. It is so hard to work wearing a hearing aid some people can understand but, some people stare at my hearing aids. some people get annoyed when I ask twice. Every day it has been challenging going to work. Now I am immune to my new life. No choice live with that... Bless You!🙏🙏🙏

After curledge full bed rest needed?how much time sit walk and stand up

Gosh I despise autoplay on KZfaq. I wrote a whole comment and when your video ended it deleted what I was in the middle of writing you. I have musical ear syndrome and it is closely linked to my emotions. It is a very short loop that never stops and sounds like a choir of aliens singing underwater. I know several people with tinnitis and they tell me they have learned that intense emotions make the noises intensify. I have adopted many calming routines and distractions and I use white noise to drown it out. Somedays it works better than others. I do better when I am at work paying close attention to difficult tasks. I play KZfaqs going to my hearing aid via bluetooth. It’s a godsend. One good thing that has come from this musical ear affliction is that I have become adept at seeking out and using sound coping methods. Medications can worsen it. I avoid Advil and other painkillers as well as SSRIs as they can bring on days of no relief because they make me stay in a state of self-forgetting. I don’t want to lose more of my hearing. They work by numbing the nervous system to a degree. Not that great for me in controlling sound disturbances in my ear. Topical pain relief seems fine like BioFreeze for muscle strains for instance. Does not mess with my ears. I have taken on many creative process-oriented creative hobbies and try to stay somewhat active which also helps and I am super lazy so I have to be alert to self-care or I have problems. I don’t do hyper aerobics or unenjoyable routines because I hate those. I am naturally very lowkey and if I hate something it stresses me way the heck out. Biking and walking and swimming are my cuppa - more my speed. I also am much more willing to try things I might enjoy. I have been deaf since birth (rubella syndrome baby) and have worn hearing aids in my right ear since 5. I agree that deafness in the hearing world where everyone I love lives is impossible to accept. I have slowly become better able to cope. My teen years were insane. I am so glad I basically had my methods down by the time I had children. I have also learned new things to help like creating our own home signs (not real ASL) to interact with people I’m close to …such as a sign to let me know someone wants to add something in the middle of a conversation so I will know they are talking. It’s because of my kid that I persist. And people who try are also awesome and make my life much more enjoyable and worth the hassle of being deaf. All the love ❤ and thanks so much for posting this video. It means so so much.

How have. things been for you. I may be going through this as I may have an autoimmune disease which might be attacking both ears. Very scary. Are you able to get the implant

I had a stroke my right hearing gone along with balance and eye focusing

This happened me on Friday around 2PM (5/17/24) while driving down the hwy with my wife. Like a light switch, split second, my left ear went dead. Now all the feeling and symptons with anguish that you accurately described in your video. VERY life changing event!! On max 60mg oral steroids (4th day). Mine is extremely severe with the rushing hissing sound and high pitch ringing with occasional solid tones that come and go. My life is completely different in many ways and you can't accurately relate any of this in words to friends and family that can truly convey the experience. My brain is confused with the sounds and the good ear, the right one, is over compensating for the bad left. Anyway, I'm just doing the initial oral prednisone until day 10 when I go back to ENT for followup, BUT I'm going to HBOT facility at the wound care department of a nearby hospital to try the Oxygen therapy (please look into it, it is possible that it could help). Amazing thing is that the ENT specialist didn't know about it. Be your own health advocate and take charge and research all you can. I'm desperate to try to restore any of my hearing in that ear so I'm willing to try anything that could help while the "window" of opportunity exists. Prayers to all who are dealing with this devastating event. God bless you in Jesus name. Amen.

hi esli! How are u doing now adays would love an update....I have hearing loss too and wondering how you are coping.... Have u ever thought of cochlear implant....or not sure if theres a hearing aid option ... also has the tinnitus or noise gotten less overtime... Do u have trouble when you go to louder places like restaurants etc just curious....Would love to hear an update....or any coping techniques. Best wishes to you and your beautiful family!

Thankyou Elsi It is life changing & accepting the loss of hearing is very hard 🙏I always thought these things happened to other people ( was not prepared for it ) we just don’t know what life has around corner ! I try very hard to be strong & always keep going as giving up “is not the answer” Thankyou for sharing 🙏

Any chance you had a Covid vaccine? Research is now showing a link between tinnitus, SSHL and the vaccine. Just one of many devastating side effects of the van. 😢

hey can you update on your hearing loss.please????? im. going through the same thing...wondering if the pressure fullness and ringing EVER went away??? I just started this 5 days a go im really in a black whole, just started my first injection today ...but I don't really have hope after hearing sooooo many bad results... please answer or update us, any improvements or anything changed . thank you!......... hope you've gotten better.

hey can you update on your hearing loss.please????? im. going through the same thing...wondering if the pressure fullness and ringing EVER went away??? I just started this 5 days a go im really in a black whole, just started my first injection today ...but I don't really have hope after hearing sooooo many bad results... please answer or update us, any improvements or anything changed . thank you!......... hope you've gotten better.

ANY FEEDBACK APPRECIATED My 65 year old wife has SSHL, started 36 days ago. Primary care doc put her on Medrol Dosepack for a believed sinus infection. At approx. 2 weeks, ENT started her on oral Prednisone 60mg/day for two weeks. At 3.5 weeks, hearing just slightly improved from total loss to severe, (12% word recognition) so ENT suggested injection that day. She wasn't ready for it. Another week later and the audiology exam showed more improvement, to 52% word recognition. Her speech reception threshold dropped to 50db from 80db. ENT said hearing loss now considered moderate to moderately severe, and that a hearing aid might now probably help, and wanted to do the injection again, but wife balked and asked for another week. We know the results vary, but we also know time is of the essence, and she is scheduled for her 1st injection tomorrow, but she's probably not going to do it out of fear that she'll have permanent side effects, like her ear permanently feeling full, or a return of the white noise or tinnitus, or just anything else that would make things worse. Initially the other effects of the hearing loss were very bad (white noise, ear feeling full) and they've eased to the point where she feels she can live with "the devil she knows vs the one she doesn't." I think she should absolutely get the injection(s), but it's not my body and I don't know what she went through for the first month, I only watched her suffer. I know people's success rate varies greatly, but has anyone gotten worse after the injections and/or had permanent side effects from it?

How are you doing today?

This happened to me but symptoms were the other way around. I had pain in one side of my head then it moved to my right side I had vertigo and tinnitus. Really loud. Couldn't sleep. Then at work I was on a zoom meeting I put headphones on and thought the right side wasn't working. I got home and in the morning it couldn't hear in right ear. Git steroids hearing came came after 6 or so weeks. But I couldn't decipher noises everything was mixed up

They seem to be transplanting every other organ in the body, so why not ears? Is there not a surgery that you can have to at least turn off the annoying ringing in your right ear? Do you call that tinnitus? Strange that you are deaf in that ear and yet you still hear loud sounds in it. How are you able to sleep at night? Ears don't seem to be getting the attention and research they deserve. You are so young and beautiful and yet spite of everything that has happened to you feel a genuine empathy for others who are also afflicted. I am getting my first hearing aids next week and after watching your video I am no longer feeling sorry for myself. It's a good thing now....I should be celebrating and I think I will do just that. You are so brave. Thank you Esli for your video.

Are you going to do an Update video? Please?

Thank you so much for sharing, I'm about 9 months in with total loss in my right ear ( except of course for the unbearable tinnitus which at times can turn into a deafening lack of sound ). I am also blind in my right eye and therefore have no depth perception, I also have fibromyalgia and chronic pain after falling through a scaffold 15 years ago which had already compromised my balance and cognitive abilities. I spent a good many months in denial until that turned to self pity, last week was a particularly bad week for me so I've decided to try and reach out and possibly help and be helped. I've tried to explain to others what it's like with not a ton of success, your description nailed it ( I cried through pretty much the whole thing ). I applaud your bravery and honesty, I'll ask my wife to watch it later. Again thank you for this video, I found it very therapeutic

you may consider hearing aid for ssd (single sided deafness) such as cros hearing aid...another optio n adhear bone conduction hearing aid....or even cochlear implant...consult your ENT specialist and audologist regarding the options...

mam full bed rest needed

I have the same as you. My right ear. You’re so brave to film this. I couldn’t watch it all, because I only found out 2 days ago, and I’m dealing with how it feels. I have the tinnitus, and vertigo. I didn’t have the steroid injection, as I can’t have anything in my ear (long story). I do hope you’re ok now, thank you for letting others know we’re not alone. Take care !

I have SSHL, it's only been 10 weeks. I've had 2 rounds of oral steroids & 1 round of antibiotics. Hearing test came back normal in my left ear & no hearing at all in my right ear. I had really bad vertigo for a week with the onset of the fulness sensation & no hearing in my right ear. Balance was so off that I couldn't drive for a month, now I'm at 95% for my balance. Although when I get tired or at night in the dark, I really have to concentrate so I don't fall. I am seeing an ENT specialist for just ears and received a steroid injection through the ear drum. Dr said he has helped people get hearing back as far as 6 months after the initial onset. The steroid was 1/2cc of Decadron 24ml. He will repeat the injection in 1 month after a hearing test if my hearing improves at all. This cycle will repeat until I have a hearing test that shows no improvement. He said 70% of people that get this stronger steroid injection have hearing improvement that they can then use a hearing aid. If there is no improvement, then a bone conduction hearing device and be surgically implanted or a cochlear implant could be another option. Hopefully this information can help others going through this.

Hi Girl, Please update us how your doing with your hearing loss & tinnitus because I am going through it and it’s extremely hard. 😭

Hi ! How are you now? It happens to me to. Please tell me about the noise!! You still have it??

You do a very good job of explaining the experience as this happened to me on one side a year ago. It is truly traumatic and trauma therapy has taught me to touch the edge and then orient to other things-over and over-keep going. Yes, we can retrain our brain to feel safe and we can work with our perception. Thanks for being so brave to share your story. My friends do not understand and it can be isolating. Sending love and compass to all of us in this experience.

I know 100% what you are going through. I had sudden sensory neural hearing loss in February of 2020. Steroids prescribed by ENT, no change. Lost basically all high frequency hearing. 24/7 high hisssss sound since then. Some days good, some days bad. I still could hear low frequency. A little over a week ago, it happened again to the same ear. After about 3 days, I could no longer hear anything in that ear. Audiologist showed that my low frequency hearing was in profound loss. Saw ENT, put steroid directly into ear, as you said. Had it done yesterday. Also prescribed 60mg oral steroid for 2 weeks with taper. Two more injections to go. Even after 1 day, I notice only slight improvement in hearing. But, it takes time. I am just praying everyday that God gives me strength. Tinnitus is nothing new to me, which is why its not as traumatizing as 4 years ago. However, because I can no longer hear in that ear at all, the tinnitus is more intrusive, and now I cannot hear people talking to me on my right side. I know all too well the anxiety of the constant worry of " what if this happens to my other ear?". If it wasnt for tje fact I have normal hearing in my left ear, I also probably would have jumped off a bridge. It is a truly dark place to be, and people will never understand or sympathize because they dont have to hear what I hear. I have suffered anxiety for a long time now, and I think anxiety is what destroyed my hearing. Stress weakens the immune system. When I had this happen again recently, I had a bad cold the week before. Maybe the viral infection attacked my ear again and caused this. I cant stand noizy places, or big gatherings. I no longer go to the movie theater. I used to be big into cycling, but no longer because it makes my T worse. T has really changed my life and taken away the things I used to enjoy. Its my own personal hell because no one else hear it, except for maybe God..

More power to you. May god bless you in every way possible. This helps a lot of people going through the same find motivation in life. Thank you

Cant you use hearing aids to mask the noise? Or get some noise back?

I understand you. I also have profound hearing loss. I'm 51 and discovered my hearing loss at 43. It was unbeknown to me until my niece said I never heard her speak. I sometimes feel like I'm in a fish tank. The noise level can sometimes be very loud. I get anxious. But, I'm a person of faith. To be honest that keeps me going. Jesus has giving me peace. I will pray for your healing. I know how you feel.

Elsi I have been watching your videos about cerclage experienced. Thank you for encouraging me I am waiting for some analysis and then my gynecologist have to do the cerclage and i am so anxious

Thank you for sharing this - it’s so tough. I had this happen but mine seems to be connected to having colitis. My hearing has improved over time, and I think with steroids that I’m taking for the colitis. Not sure what will happen when I stop those tho. I have tinnitus - I had concussion a couple Of years ago and it’s got worse since then. Another symptom is not being able to bear noise - the hoover, the water in the shower, - they hurt. And it kinda feels like the crackling of an old radio interference if there are loud noises. When it was at its worst, I was having profound hearing loss for hours on end each day. Anyway - I’m wishing you so much love and thank you for sharing this. It helps just to not feel quite so alone xx 💕

Hello! hey I just saw your Sensory Hearing loss Video and cried my eyes out because I am going through the same thing 😭. I didn’t lose complete hearing but the little I did caused constant static or humming tinnitus. This all started for me January 13 2023 (virus 🦠caused it they think but they don’t know 🤷‍♀️)…. OMG I hate that day because it was the start of hell for me with left hearing loss, vertigo, neck pains, headache, hyperacusis, tinnitus, anxiety and depression. Now thank god almost all symptoms have gone away but I still have tinnitus, some hyperacusis, lightheaded but now unfortunately because of the antidepressants side effects I developed Palatous Myoclonus which is spasms of the soft palate causing Eustachian Tube dysfunction issues: ear pressure, clicking of the soft palate when you open your mouth and hard swallow sound….. it sucks I’ve NOT been the same since that F-Day I just pray things get much better so I can look forward to life and finding meaning…. I pray to god he gives us healing, hope, and happiness 🙏🙏🙏 P.S. please update us how it’s going with tinnitus does it become more tolerable were you hardly notice it? Has some hearing come back?

I was unable to edit my previous post, so please forgive the terrible autocorrects. For those of you experiencing vertigo, please Google the Epley maneuver and do it when experiencing a bout of vertigo. It really helped me!

Where you taking any medications at the time this happened? A lot of commonly prescribed medications can be ototoxic and cause irreversible hearing loss, if you were on any antibiotics that could've been the cause.

Hi I’m going thru the same thing. I was wondering if yours got any better?

I had exact same thing happen to me 100%. I cried when u cried. I felt everything u did. When u said u were scared about losing other ear, i freaked out too...😢

I had profound hearing loss in my left hear due to idiopathic sudden sensorineural hearing loss. I woke up one day and felt numbness all around my left ear and an internal pressure. Internal pressure lasted till a week and my hearing was muffled, I thought I was having a cold or flu. After a week, I lost all the hearing on the left side and took three steroid injections into the middle ear. Treatment didn't help me restore my hearing. Still doctors haven't found a reason for my hearing loss! All reports are clear. I don't even understand what causes the hearing nerve to die all of a sudden.

Thank you for sharing your experience of SSHL. This is still a very little known thing and most people have never heard of it. I lost the hearing in my right ear 20 years ago. My experience was that I was in good health, simply watching tv, when suddenly I hear a rushing well up in the right ear, and I feel sick instantly and the need to vomit. I try to get up and get to the toilet, but crumple to the floor, I had such vertigo. I crawl as fast as I can to the bathroom and vomit violently for what seemed like minutes. It was evening and over night, I threw up several more times. The vertigo persisted into the early morning and I decided I needed to call 911. I threw up yet again in the ambulance. At the hospital, (I still have bad feelings about this) the doctor who examined me, essentially shrugged his shoulders and sent me home. Nothing seemed to be wrong with me, in his eyes. So it was only after seeing my own doctor some days later, that I was sent to an ENT, who diagnosed me as having suffered SSHL. I had zero hearing in that ear, and that remains the case these many years later. I was off work for two weeks during which I had to learn how to walk with a missing balance center. Fortunately, I have not had tinnitus or really any other issues from that ear, and I have gradually grown accustomed to living with only one ear. I hope the medical establishment has become better informed about SSNL in the years since I lost my hearing. Stories like your YT video will, I hope, make this issue better known and understood by the public, too.

I had this happen in my left ear in January of 2020. I did high dose oral steroids, shots in my eardrum and then my ENT recommended HBOT. The steroids took me from profound to severe. The HBOT took me down to a moderate loss and helped with the tinnitus...not gone but tolerable. Fast forward....October 2023...i fell off a ladder...3 days late, same thing happened. I'm currently doing HBOT, hoping it helps again. This time around....I got dizziness....so this ENT is questioning if i have Meniere's disease. However, i was just tested for autoimmune with no positive tests. He said there's no test for Menieres, just symptoms and ruling out other things. I had an MRI to check for ear tumor....not that. Mini ear strokes and nerve damage are possible causes too or retroactive viruses. Lyme Disease too. Not having a cause has really messed with me and made me super angry and depressed! I have cried and sat alone in my head for days cause ppl don't understand unless they have it happen. I really feel for you cause i understand. HBOT has helped ppl with tinnitus. It's now approved through the FDA. Some insurances will approve treatment. If you have Meniere's they are in clinical trials for a very promising drug that is showing improvements! Hugs....i totally have been in the depression of it. Avoided all sounds for a awhile cause it hurt and i was afraid it would cause me to lose all hearing. I can't even listen to music in the car and it hurts when watching tv sometimes. I hate that you have this! I don't wish it on anyone....i call it the Joy Killer. Sorry for the random sentences.....my thoughts are all over the place too!

I did two circulage reach 36 weak with one its important to avoid constipation

I’m going through this right now and I’m so distressed

Brave.