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Пікірлер
@julieangol5199 12 күн бұрын
u can get rid of epilepsy when u heal from trauma
@thosepyrpups Ай бұрын
This 🙌
@KatDelC 2 ай бұрын
Thank you for sharing sweetie. Have you been able to reduce any of your anti epilepsy medication since getting VNS?
@Anythingforfreedom 2 ай бұрын
Does it impact your sleep?
@epilepsyawareness2020 2 ай бұрын
It did for the first few weeks after turning it on; but now I don’t notice it. Thank you for your comment!
@Anythingforfreedom 2 ай бұрын
@@epilepsyawareness2020 Thanks for your response, that was my main concern!
@chloeg422 3 ай бұрын
I love you SO MUCH!!
@epilepsyawareness2020 3 ай бұрын
I LOVE YOU TOOOOO
@bevygerritsen1322 3 ай бұрын
How do you train a dog to heel when the owner is in a wheelchair?
@woolfy02 3 ай бұрын
I'm in the process of trying to get it for TRD and, still worried about how its going to be after surgery. Idk if you suffer from depression but, do you feel it helps your mood at all? Is it still painful when the VNS goes off for you? Hope you are doing well and thanks for the video.
@epilepsyawareness2020 3 ай бұрын
Hello! Thank you for commenting. I do not suffer with diagnosed depression; and so I don’t feel that I would have the right answers for you. And I would not want to give you false information. It is still uncomfortable when the device turns on, but it does still have pain at certain times. I do gymnastics and it only hurts when I have strained my neck too much- so I’d say the pain is only related to the location of the device and wires. I hope that all goes well for you and your surgery. Thoughts and prayers for your journey; you’re amazing! Stay strong-you’ve got this😁
@456123ib 4 ай бұрын
Was it for depression or epilepsy?
@epilepsyawareness2020 4 ай бұрын
It was for epilepsy, but I have heard that people use it for depression treatment as well.
@456123ib 4 ай бұрын
@@epilepsyawareness2020 I see. And has it worked for you?
@epilepsyawareness2020 4 ай бұрын
@@456123ib sadly, it has not helped the way we thought it would. I am most likely going to have it taken out when the battery dies. That will be in about 2 years.
@hennysworld5878 4 ай бұрын
Facts💯💯❤️❤️
@hennysworld5878 4 ай бұрын
❤❤❤❤
@theresamaleady7721 4 ай бұрын
I just love your dog he is very protective of you. Good luck
@ChrisTaylor-wh6ei 6 ай бұрын
I’ve had mine switched on 3 weeks ago. I say it makes me sound like Cher ‘Do you believe in life after love’. Thanks for your independent opinion. All the other videos seem to be affiliated and miss out what VNS really feels like. Great video 👍 Thanks 🙏
@flxffy_edits 6 ай бұрын
this was really great to watch for me. it made me feel more comfortable since i’m most likely getting one in the next few months for TLE. thank you so much for making this video because it was really informative for me :) ❤❤ sending love💜 side-note: you’re so pretty!!!:))
@epilepsyawareness2020 6 ай бұрын
How kind of you! Thank you so very much! I’m glad it helped and praying your goes well🤍🤍🤍 sending love your way, fellow friend😁
@Mm0Gang 7 ай бұрын
I have epilepsy and i can do 80% of things well, which im grateful for but have fits and night time, and takes me around 2 days to recover, so i fully understand where ur coming from, defo guna subscribe to enjoy youe epilepsy content
@cieraorion2589 7 ай бұрын
I have a question did you take out the v.n.s.
@epilepsyawareness2020 7 ай бұрын
My VNS unit has not been taken out yet; although I plan to get it removed when the battery dies in about three years. 🤍
@laurenkasper9463 7 ай бұрын
I think they tried to ask nicely and be considerate of you but failed miserably.
@chloeg422 7 ай бұрын
Yes yes yes to everything you said! Thank you for being such a light & spreading awareness on things like this that not many understand ❤
@ruby3200 7 ай бұрын
I just subscribed to you a few weeks ago. I have PoTS and ME/CFS. Just like you said I’m always sick, and I never get a break, no matter how healthy I appear to be. Thanks for spreading awareness for chronic illness. ❤ I also can’t drive because of my illnesses,I don’t even know how!😅
@vannevers 7 ай бұрын
How has it been going? Has it decreased the seizures at all?
@epilepsyawareness2020 7 ай бұрын
Sadly, for me, it has not. We think it has reduced my recovery time after the seizures, but I have not seen a decrease in seizures since I had the device put in. My battery goes dead in about three years, so they will most likely take the device out then. However, I do have friends that have VNS units that it has worked great for them, so it just depends on the person.
@Littlemething2 8 ай бұрын
Oh my gosh i was diagnosed when I was 4 and I now do epilepsy awareness videos for my school march 26
@kennethklug5002 8 ай бұрын
Thank you for posting this I am having my implantdone on Nov 29. I'm still very nervous about it
@happy__human 8 ай бұрын
How long can you run for and at what pace?
@epilepsyawareness2020 8 ай бұрын
I can only run for about five minutes at about 10 mph. I know it’s kind of pathetic 😂 but I don’t workout much
@katinabeverly3903 9 ай бұрын
I always ask for permission first to pet anyone's dog's. But if theres a service dog I don't bother them at all. Because there dog is working. Beautiful eyes. Yes ma'am. I hope that yall have a great day. 🦮 🚶♀️
@mariannepippert94 9 ай бұрын
My daughter is in training with her service dog. I agree with her. ❤
@dmhq-administration 9 ай бұрын
I would politely ask permission to pet them always! 🥰🤗💖
@Lapfamliy 9 ай бұрын
If you pet a dog ask first pls
@kaitlyncarr6417 9 ай бұрын
My four year old knows to ask me or the dog owner "is your dog working?" while we are out and about. It is such an easy rule to follow.
@figmo397 9 ай бұрын
If you want to say something, say something to the owner about what a great or adorable dog they have.
@DJNightcoreHD 10 ай бұрын
I've had mine for about about a year now and it's set to 1.75mA every 1 minute and the wrist magnet is set to 2mA in hopes to lower the amount of meds I'm on. Since, I have a very high pain tolerance I don't notice it very much. It does annoy me when I'm talking on the phone and the person asks me if they're speaking to another person haha! It has made my throat a bit sore-ish and my voice a bit rougher, due to me having to raise and lower how loud I need to speak when talking. Kinda sucks, but overall it has made my life better.
@snakelet_ 11 ай бұрын
I have epilepsy too! I'm almost 14 though, not an adult. Also random question, but what's in the terrarium in the background?<3
@epilepsyawareness2020 11 ай бұрын
Those are my crested geckos🥰 and great to meet another Warrior 😉😝 💜
@asecretcourtofcrowsandcloc4084 11 ай бұрын
Does mMael come with you to the gym? If so any tips on desensitizing your SD to that kind of environment
@epilepsyawareness2020 11 ай бұрын
Mal does come with me to the gym, I’m not sure if you could see her in any of the videos though. For me, Mal was already fully trained when I started going to the gym, so she wasn’t bothered by the chaos. Training in places like Home Depot where there’s loud banging/people can be helpful in desensitizing to that.
@asecretcourtofcrowsandcloc4084 11 ай бұрын
@@epilepsyawareness2020 that makes sense, thanks for the advice Victoria. I hope you’re doing well.
@lucystevenson9822 11 ай бұрын
Hi, love your video! I've had my VNS for 4 years, it's really helped lessen my seizures! Thank you for describing your voice changes, I have them too. All the best, with your VNS!!!!
@chasegrooms4539 11 ай бұрын
Entertainment at its best😂
@imbarrettalso 11 ай бұрын
Thank you for such an honest review. Im 53 and young lady u r much braver than me 😊 God bless you
@epilepsyawareness2020 11 ай бұрын
You are very welcome! I figured others would want to see my realistic experience before having one themselves. Thank you for your kind words, I appreciate your comment. God bless you as well! He is so good🥰
@lathenfrank-mm4ie Жыл бұрын
How you fully disabled but you can talk and stand up that’s not fully
@laurenkasper9463 11 ай бұрын
Careful, your idiocy is showing. Educate yourself. Keep in mind that the disabled community is the only minority you can join at any time. Pick up a book you rank half-wit.
@Gigibeen02 4 ай бұрын
How about you live a life in her shoes and see how you feel
@lathenfrank-mm4ie 4 ай бұрын
@@Gigibeen02 Yea it would be horrible but it’s not fully disabled
@Gigibeen02 4 ай бұрын
@@lathenfrank-mm4ie she’s disabled end of story, meaning that she can’t do things that other people can
@LuvHoneyB Жыл бұрын
You’re amazing
@LuvHoneyB Жыл бұрын
Stay strong and positive and you keep going