great presentation

First of all I am extremely grateful to the charity for providing this information it is invaluable in tackling this disease. However I do feel that as a lay person looking for information much of this video was too scientific and was geared to medical professionals looking to advise perhaps on dietary health. It was for me far too complex and wordy. Please consider that not every one of your viewers will have an in depth knowledge of nutrition.

It would be interesting to know how an Ayurvedic Diet impacts RA and also the Fast 800 diet by the late (RIP) Dr Mosley?

Does anyone take Adderall for fatigue?

And thank you! I have had RA for some 10 years. Always too afraid to take biologics despite the reassurances of my wonderful RA consultant. I think I will resume the biologic conversation at my next appointment. Thank you again. RJ

The name of the support group mentioned by Sheila and Clare? Sounded like “health a lot”

Hello Cathy and everyone here. I am so moved by this video, I do hope Cathy that you have found some help or support. I don’t (yet ) have severe RA but I have it in some joints, plus I have polymyalgia rheumatica and OA as well as several other chronic illnesses. You have expressed so well how I feel. Good luck and hugs to you xx

I just think we have this terrible decease.but we can try and make it better by exercise. Healthy eating. no salts or fatty foods Vitamin D.do are best.to feel somewhat better. better.

Thank you so much.

That's exactly what I thought when I got diagnosed at 29 years old. I am now 65 years old, 1 baby, it was a shock. I had weave my way through so much by myself as the year was 1987, not much advice around and certainly no help groups, until much later. Luckily, I had a positive attitude, but it certainly took my positivity to high limits. The medications are so much better now for RA, but that has been quite the journey.

Thank you Maddy. This was very well said.

For me having RA the worst thing is the fatigue, and my specialist keeps gaslighting me about it. If I sleep at all I wake up absolutley exhausted and have to lie down for a few hours during the day. It sucks and people do not get it, especially the Dr

you had another video that is now private, it was for an awareness campaign please reshare it

Hope things have improve for you Karen. I'm at the beginning of my arthritis journey waiting for my appointment at the hospital x

Sorry that I missed the livestream, but would like to ask a question. I was due to have a biologics nurse appointment in January 2024. I had received notification from the hospital that it was cancelled & I would receive further information, I think. I’m aware of the new “PIFU” (patient informed follow up) through yourselves. As I have other conditions & a serious one since 2022, struggle to keep up with many blood tests & other appointments. I have found myself thinking, do I still need to be on the Biologics injections, will the nurse or hospital contact me if something changes? It can be hard to get hold of specialist nurses at the hospital😭

Clare, I will be sad when you retire. You are such an active and communicative CEO, and I will miss your cheery leadership. I wish you all the best for the future, and offer a big ‘thank you’ for all your work representing the RA community. 💐

Excellent and useful video

I am so sorry you are going through so much. I see this video is 5 years old. I really hope that things have improved for you. You are very brave.

Very helpful and what brave young women

So sorry to hear of your situation I understand iv got spinal nerve damage, but recently got macrcytic aneamia, gastroologist thinks I could have rheumatoid arthritis, more test to do, lots of love to you I relate to the awfull fatigue, 🙏 s for you ♥ ❤❤ love jayne walton on husbands page bill of bristol england❤❤❤❤

Did you mention getting a pet that meets your mobility needs, very good at reducing stress and adding massive plus to mental health 🐕‍🦺🐈‍⬛🐬🐦

I'd rather be dead than have RA. This disease is terrible. It has stripped me of any hope or optimism. Been on Prednisone for over a year. Can't get infusions until done with this latent TB antibiotic and can't run with my boy. I hate this life with everything in me. I hate it.

Just discovered this charity today. My sister has RA. I want to help her in any way I can.

Thank you Kirsty for this🙏

Hamara desh chand per pahunch gya sir per arthritis ka ilaz kar ke bilkul thik ni kar sakte hey Esa kiun ji bari pain. Hoti hey please treatment nikalo

This is really moving. I think it does such a good job of showing the idea that when you live with fatigue, even simple tasks really drain your energy levels. I also think many will relate to the idea that often, you will make it through the working day with pain and fatigue, and sadly it is then the social events that suffer.

Treating arthritis can be tough these days because it's hard to find the right help. But Planet Ayurveda has the best herbal solutions and consultations. What's even better is that if you can't go to their physical location, you can get help online.

I HAVE APS SYDROME & RA

👏

Promo*SM 🔥

To me this just shows RA-lite and doesn’t in any way reflect my experience of this horrid disease. Maybe I’ve just been unlucky.

I know the feeling.....A video which says everything about RA without any words. Thanks for putting this on line. In the words of the song... ''you say it best, when you say nothing at all'' x J x

I feel so inadequate. Every ounce of energy drains my body after the least bit of activity. 😢

😢 so true. Friends and family just don't understand the struggle.

Brilliant video, congratulations.

Rhemutoid arthritis patient get severe fever am getting fever since 1month

🤗🥰

Any solution for ra

Thank you. Exactly what I go through every day & I'm so pleased you've done this video. I hope lots of non-sufferers can see this & appreciate what we all go through. I stii have to do all the daily things that I used to do 25+ years ago before I got RA, but now it takes me a lot longer and more pain than I had before. So, that's why I appreciate your video.

Very useful video.. Thank u

Dr.Bruce Fife recommends swishing coconut oil in the mouth on an empty stomach for 12 minutes each day/ The coconut oil captures bacteria viruses in the mouth that go through the pores in the teeth into the body. The oil is spat out after 12 minutes. Having less of these disease agents entering the body gives a chance for the body not to be overwhelmed by bacteria etc. that cause the rheumatism and gives it a better chance of ridding the body of that which causes rheumatism and arthritis.

I have just been diagnosed with RA and thats about it all the doctor has told me it will progressively get worse? I'm awaiting seeing physiotherapy to see if I have carpol tunnel also as I often drop things and can't make a drink without making a mess

I also have RA and to hear you put fatigue up there is great. All of my Drs seem to ignore this and it infuriates me xx

The looking ok can feel unbearable. Or people saying how well I look! I say that’s the steroids.

😢well what if you have no friends People don't want to hear about your problems and pain

Lots of really useful tips here.

Omg yes!🙌