I have MS and I’m disappointed by the lack of humorous videos about it online. When I look up multiple sclerosis on KZfaq the videos are mostly so seriousss, it’s a drag. Maybe I should make some funny videos and contribute! Loved his jokes.

Thanks for sharing my first infusion is Monday and I'm so scared

Thank you nigel for sharing your story of ocrevus im so scared

This is a great video with very useful information thank you!!

I have MS 9 years I'm glad this is talking about reality for us

I am also Swedish and work in both the USA and the UK. I find myself switching languages ​​in the middle of a conversation. Only occasional words and phrases, but enough to make it embarrassing. It was added after Covid19 (which I survived).

Thank you for sharing

In talking with my MS nurse instead of taking a stimulant laxative after 7 to 10 days without a bm and all the gut cramping and stool like goat pellets or pebbles from the size of raw garbanzo to the size of an egg. With lots of cramping and 30 to 45 minutes to clear the bowl. To taking a hydro-scobic laxative daily and with each glass of miti-lax to drink an additional glass of water. I also keep a daily bm journal as to any medication change may affect my regularly. I recently had a flare that involved a high dose steroids for 2 weeks. This is known to cause Constipation and after 5 days wo movement I need to double my daily mira-lax and water consumption. Avoiding PoP and any added sugar. Only natural hole food and no salt or prosse flour. Having a more regular bm with daily mira-lax is so refreshing. No hours of cramping and pushing any more.

Thank you ❤❤❤

👏🏻

Can the heat give mood swings 😮

Can to much heat make a person faint

I wish you could get some graphics ppl to create a simulated video of what is seen/perceived like I’ve seen done with migraineurs

My first symptom was the Hug. Only has happened once, have been living with other symptoms, tremors, pain, numbess, mood swings etc, and im so scared it'll surprise me one day, and its been 12 years. Worst pain i felt in my life was falling out of a tree at 11, fractured 3 toes and my elbow, then the Hug showed up, absolute worst pain so far.

I'm having one done tomorrow because I had 4 MRIs last year and 2 of them showed optic lesions and 2 of them showed no optic lesions and one of the MRIs showed active optic neuritis. My doctor thought having one of these test would help in this situation with more puzzle pieces since all my MRI readings are all over the place with my optic nerves.

Very helpful, thank you so much!

What do they look for in a spinal fluid test. Is it bacteria or bacteria protiens. What actually is the brain lesions. Are the lesions bacteria biofilms.

ive had this for 3 yrs. have had every scan and test imaginable. gave up. live on heating pads.

Would like to join.

Is there a study?

Every GP: "Oh! That's just anxiety. Let's get you to a $150/session counselor and get you feeling better!" Me: "I've been sick for years, and it's getting worse. I can't walk to the store anymore. I kind of need to be able to walk." GP: "See! You said you have trouble going to the store! It's anxiety."

This is great. Thank you.

Also through in depression and meditation and side-effects impacting and how that impacts the relationship and the acts and activities. Thank you for intelligently having the different parts of how different socially difficult and emotionally difficult as coupled with expectations and egos. .... very good start and thank you for sharing and being apart of the community and team even while we are all on our personal journey. Hearing from you is great , and additional views and advice I find very respectful and consoling thank you. ❤❤

Very helpful

❤😅

My wife's has ms we just found out. I need info so I know how to deal with her the way I should

I was diagnosed at a young age with acute disseminated encephalomyelitis (possible MS) but was never fully understood what was causing the inflammations in my brain

MS. The monster

Very interesting points. I really have gone through almost all of the thoughts.

I also have difficulty reading on the pc and use the select tools to visually identify a single row either before as read or to see where I left-off. Also proper nouns, names of people, things, places, and actions. This isn't consistent but occurs for me under stress or energetic dialog. Thank you for sharing.

Wow explained so well sir... Thank you ❤

I don't find physio has helped get rid of the steady pins and needles in my body. I have never been free from pins and needles since 2012. When I do finger exercises, I find the pain get a worse. I said this a motion disease as well. The faster I move the worse things get. We I operate machinery, my hands go crazy with pins and needles multiplying in my hands. I haven't noticed my leg getting warmer as I walk, but my leg goes to sleep as I walk, and I need a cane for aid.

Hi thanks for sharing. I've been on Ocrevus for a few years. My Ocrevus infusion tomorrow and annual MRI's in 2 weeks. Fair well on your personal journey and good luck.

Mri coming up Tuesday. Standby for them dismissing me. It’s either ms. Or a rare 1 in 8 billion condition where you have a dozen other diseases at the same time lol

I was watching videos last night, preparing for my treatment today because nobody is talking about how they’re doing after the treatment. Whether it was worthy or not.

Thanks for this video

I go in tomorrow for my first treatment. Have had MS for 21 years. I refused any and all treatments. I’ve only done nutritional treatment. Wish me luck. Coffee, coffee and the hospital. I will probably go live here on KZfaq. I don’t do needles.

I’m not allowing myself to worry overly but information like this is useful for me to keep in mind. I’m 25 and I saw a gp last year as I’d had a daily persistent twitch in my thumb that lasted a month and then just stopped, and since then I’ve had a very shaky wrist. The first gp I saw was very thorough and said I should see a neurologist if initial blood tests came back with no obvious cause. But then the gp who gave me back my results (a bit of a low level of iron) completely overlooked why I’d gone in the first place. So I just left it after that and have tried to improve my diet. But I have a history of migraines, slow thinking, fatigue. Since 2016 I’ve had a bad time with my balance and vertigo. I can lose my footing quite easily but I often find it happening when no one is around and I’m just getting on with cooking or something, it very much is the kind of stumbling when you’ve had a few drinks (except I drink like 4 times a year) so I’m the type to wait for someone else to notice - because if they notice then it’s obviously not just me overthinking. I’ve had occasional waves of tingles around my head and then full body tingles. I get some pinched nerve pain on the base of my skull occasionally. But all of this just comes and goes, I keep note in case one day I really feel the need to go back to the gp but it feels silly when you’re so used to feeling these random things. But this kind of info is very valuable, it’s easy to jump to conclusions but it definitely helps going to the gp when you’ve clearly got an informed opinion - great talk :)

Why do British people laugh about EVERYTHING? I suppose it's a defence mechanism

I'm still scared in the case the persons doing the lumbar puncture dose do it properly 😢

I was on Tecfidera for a year after diagnosis, originally I was supposed to go on Ocrevus but Covid happened. But I'm now on Ocrevus. I absolutely hated Tecfidera, it was torture being on it. The flushing just would not stop it was full body, itchy, hot, lasted ages. People constantly asking why i'm sun burnt in winter etc! My stomach was always hurting, I stopped swimming because of the whole body rash. There are much better DMTs out there to be honest.

Thank you for sharing this video :) I've also been using Tecfidera for quite a while now, and although I still experience flushing, I've noticed that if I can distract myself when it occurs, the flushing subsides relatively quickly.

Thank you for the tip about taking Tecfidera with lunch instead, I do find I get the annoying flushing/itching so I will try this. Best wishes 💖

I’ve pretty much stopped trying to explain to others how I’m feeling, as, inevitably, they say they have the same issues. It’s a contest I no longer want to participate in.

Optic neuritis is a real pain in the bum. One minute you can see... The next minute you're blind. It happened to me several years ago. When the sight started to return I couldn't focus on anything and I was colour blind. Things have improved since then. But I still can't focus on anything, and then I'm still colour blind. The colour red is almost impossible to see. Other colours are affected... But not as much as red. Thanks for sharing your story... I hope your sight improves and returns back to almost normal. It's just one of the curve balls that MS throws at you. Just remember that you're in control of the MS. It's not in control of you. I'll admit that it's a long and hard journey. But the people you meet along the way... Most are very special in more ways than you expect. So whatever MS throws at you, you're not alone.

Yes I’d describe it similarly like walking through sand but the sand is up to my hips and I’m trying to push through it, sometimes I have to physically pick up my legs with my arms to move them forward. I know some exercises will help but when I’m so tired I can’t bring myself to do them it’s a vicious circle. I get angry with myself as I can’t do things I want to do

check the dates lol

Help me pls. I’ve had all the symptoms my whole life. Every dr blows me off. I’ll go through times I’m okay. But all of a sudden it comes back and my legs get worse, along with my arms and thinking . I’ve had a text, but nothing is showing up. PLS HELP. I’m 51 and my husband just past from cancer. I need the right meds. So I can “get my feet back on the ground”!

I forget to breath...horrible and dangerous...somebody else as well?

I have been living with MS for 28 years. I was diagnosed when I turned 40. I have 7 lesions on my brain and 3 on my spinal cord. I have experienced blindness in both of my eyes but only one at a time over the years and after having infusions it resolves. My balance and severe fatigue were the first symptoms as well as spasticity in my thighs. I walked using a cane for a couple of years and then gradually had to use a walker. Today I am in a wheelchair but I can stand and take several steps on my own so that makes it easier for me to be able to live on my own, take care of myself. I cook, clean go shopping and I do drive. Everyone who has MS probably shares a lot of common symptoms but each of us definitely are on our own unique journey. There are many many different things that can affect you with MS but some people experience lots of them and some people don’t. The most important thing to remember is: You didn’t do anything to get it Currently there is no cure for it and worrying about it will only make it worse. So, get as much information you can, research the current medications that are available and find a neurologist that you are totally comfortable with and who you can speak frankly about what’s happening and live your life as normal and as best you can. There are many groups and sites available to connect with other people who share our struggles and challenges that can help you navigate through your new “norm”. Take care and God Bless ❤