I I have it

❤

I also have Nooan syndrome to

I hope you are doing well. You have a very bright personality and you are beautiful.. Keep smiling always 😊

Thank you for sharing, it is good to hear from a young adult who faces the challenges Noonan's presently. My grandson age 9 was found to have Noonan's soon after birth due to physical charitarians then genetically confirmed. He has had many surgeries BUT doing great including open heart surgery. Challenges in learning, gaining weight, height but very active, happy and living a great life.

Thank you for sharing! I am a teacher who will share this with my students! You are sooo amazing , strong, and inspiring!

Hi Natalie I just subscribed. glad to find another youtuber with noonan syndrome. I have male turner syndrome or noonan syndrome as well. will you continue the awareness videos?

Natalie, you are beautiful ❤ and so kind. You are a very compassionate person. I can see it by the way you shared your personal journey here with us to help others in similar situations. Thank you for sharing it. Your video brings hope and light for many many families that are looking for ways to help their loved ones. Thank you so much. Once again, you are beautiful ❤️😊

I love this video idea can you please make a part two!!❤❤🫶🫶 ( because I am obsessed with the Twilight Saga)

When you said “it’s going to be ok” at the end, I burst into tears. Thank you! My son is 5 and has MRAS noonan syndrome, just to see how amazing you’re doing brings us so much hope. You’re amazing. And you’re beautiful. X

Thank you for sharing! My 10 month old is going through genetic testing right now and they think it may be noonan syndrome.

Yeah I had read it's a good one. And your presentation is well ❤❤

I have a little over a month until my surgery. Need to find some books to read 👍

I was in a reading slump for many years. After I read "The shadow of the wind" by Carlos Ruiz Zafón in January, I started reading again and I love it. I've read 8 books since January 🙂📚

👍 from South Korea

Thank you for sharing, so inspiring...you are so strong... I wish everyone with this condition get to see this video

I've got a hip replacement surgery coming up in May. I've been thinking about getting some reading in since I'll be out of work for at least 3 months. Use to read quite a bit so hopefully I get back into it.

My daughter was born with noonan syndrome. She had open heart surgery at 2 months old and a stint put in at 2 years old. She was put on a transplant list after the open heart surgery because she went into congestive heart failure. She miraculously pulled through and improved though. She still has health problems but is a very opinionated 15 year old now 😁

Hi Natalie. Great to see that you're doing better now. Thank you for sharing your story. I've subscribed to your channel, and i'm looking forward to more videos, as you back in the swing of it.

Thanks for sharing your story! 😁 I'm so glad to hear you're doing better! Invasive surgeries are a tough cookie to swallow!

By the way I love this video idea!!

I read Wuthering Heights because of Twilight and it ended up becoming my favorite classic!! I love Eyre, too. I’m so thankful for Twilight introducing me to Wuthering Heights because it turned me onto classics and that totally expanded my reading. The reasons why people don’t like WH are completely understandable but the fact that the characters are all unlikeable is part of the point. It’s not a romance like is thought, It’s a story of how revenge and hatred can poison a community through generations. I love the writing and everything about it honestly, including the horrendous characters 😂

I just found your channel! Thank you for being brave enough to share your story with us ❤ I’m looking forward getting watch your videos.

Thank you for sharing your story! Glad to see you are feeling better.

I’m glad things are better now!

It’s good to see you Natalie! 🤗

It's so exciting to see a noonie online! My brother was diagnosed at like 3 months, had JMML (leukaemia often associated with Noonans) and open heart surgery etc etc (he's 19 and thriving now!) We are 99% my mum has it but genetic testing is crap and they weren't remotely thorough so she hasn't had confirmation. We used to go to the noonan conference meets annually in the UK, it's just so nice to be surrounded by those who get it! The amount of Dr's who don't know what it is, is mad, so we loved going and not having to explain random life stuff. Thanks for sharing this, it's so nice to see the community I grew up around in more mainstream settings 😊

I’ve known I’ve had this condition for awile, I’m trying to motivate myself to not listen to all of the highschoolers bulling me for my height. Many people have told me I will not be successful because of that. This has been told to me my entire life.

Natalie, thank you so much for your video. My two and a half years old baby has Noonan Syndrome and she also has needed open heart surgery twice and two keyhole surgeries for the same condition. It is so inspiring seeing you and how well you do. It helps me to see the future from a more positive perspective. Take care! (from Barcelona, Spain)

Thank you for sharing

Do you have learning

Do you have Noonan syndrome

I have autism & learning difficulty

Hi Natalie, I hope you are recovering well from your surgery. Subscribed to your channel when I watched your video on Noonan syndrome. My brother has it and his situation is very similar to yours, also the age is similar, so it was nice to see you sharing your journey. He too had some heart surgeries, so I couldn't help but worry a bit about you too. I know everything is going to be fine, and I send you all my best wishes. Hope you soon will be posting more videos! Greetings from Brazil ☀

My son was diagnosed with noonan syndrome. Actually NSML which is a sister syndrome . Happy to find others going through the same journey. Does anyone have ideas to raise awareness? Is there a noonan society? Id like to do a race or triathlon to raise money and awareness

Thank you so so much for sharing! We found out my 2 1/2year old son has noonans last week and hearing someone who has actually lived with the divergence really helps. You’re incredibly brave and it’s so reassuring to see how amazingly you’re thriving! 💜✨ xx

Thank you for sharing! I will be doing research this summer on cardiac defects associated with Noonan syndrome and I've been catching up on the science behind it but you helped me get a better insight as to what it is like living with it. I hope your surgery went well and that you're doing well!

I got diagnosed with Noonan syndrome when I was 32.

Ahhh it's nice finding someone else who has it. I was born with it too (Mom's side for me) I had to have heart surgery when I was little best wishes to you.

All my best wishes and prayers for you ❤my dear daughter was diagnosed with Noonan. She also has severe scoliosis & still strong as she could be 👍 anyways-ur smile brightened my heart -keep smiling

i love this book currwnrly hosting a spiritual book club and the first book will be this one

Hope all went well and you are having a speedy recovery. My son has a friend 11 yrs old with Noonan syndrome. Thank you so much for sharing your story and journey. ❤️

I hope your surgery went well and you are getting better and better ❤️

Thanks for sharing. My nephew has Noonan's and it's good to learn more about it from you so thank you very much ❤️

I was diagnosed at birth with Noonan Syndrome and now I suspect I am autistic and idk im scared

Good to hear from you ...Lets make a google forum so that everyone can share their story 😁

Hope everything goes fine.

U r so beautiful 😍 🤩 . Thank you for sharing ur experience

The vibe in your vid is so chill, I love it.

I hope everything goes extra well and that you have a smooth recovery.