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@wendy-annoliver436
@wendy-annoliver436 6 күн бұрын
My mother is 66 and she have the pain systems my mom from the Caribbean
@sazzlepop321
@sazzlepop321 12 күн бұрын
When you say 10mg over 2 weeks, do you mean you drop just one pill over the whole 7 days of taking your course of pills? I’m trying to wean and if I don’t take a pill for 8 hours I’m getting high anxiety and irritability :(
@bubbles.stu26
@bubbles.stu26 19 күн бұрын
Seeking help for medical ptsd seems like an oxymoron. I am now seeking help in spiritual modalities. I am so sick of the medical/psychological establishment.
@RachelHarder-rp8io
@RachelHarder-rp8io Ай бұрын
I’m going thru this now. I’ve had multiple swollen cervical lymph nodes for 13 months now. I’m super sick it’s bad. I developed lumps swelling & boney knots in a few places I’m losing weight & super nauseous. Now it’s in my cranial nerves & back. Every doc I see doesn’t help. They dismiss me & do the bare minimum. My hubby’s furious. When I’m finally diagnosed w/cancer I’m gonna get the best damn lawyer money can buy & I have a long list of docs I’m gonna sue the ishht out of then start a war to raise awareness.
@janetladybug5076
@janetladybug5076 2 ай бұрын
Wait till the spider births 500 babies 😮
@frankyfourfingers1382
@frankyfourfingers1382 2 ай бұрын
The Canadian healthcare system is a complete joke. I've had the same issues. You go to a bunch of specialists in Canada, with an obvious problem, and obvious what it is, and receive no help. Then you go to the US, and immediately the US doctor is like" yep, we can fix you right up, no problem". Thanks for sharing your story.
@lindyellinger920
@lindyellinger920 3 ай бұрын
I have CPTSD AND ADHD AND IN ALOT OF PAIN BECAUSE OF MY BACK AND PAIN IN MANY JOINTS I HAVE HAD A FAILED BACK SURGERY I ALSO HAVE SPURS IN MY THORACIC SPIN AND FIBROMYALGIA AND DEGENERATIVE DISK DISEASE WHICH IS FAR ADVANCED FOR MY AGE AND SPINAL STENOSIS AND OSTEOARTHRITIS AND OTHER THINGS I WAS ON PAIN MANAGEMENT BUT NOT NO MORE BEEN TAKEN OFF EVERYTHING THAT HAS HELPED ME I AM TREATED LIKE I AM A DRUG ADDICT AND I AM NOT NEVER HAVE BEEN, ALL MY PEE TEST WERE CONSISTENT I DO NOT TRUST DOCTORS ANYMORE I HAVE BEEN WRONGLY DIAGNOSED MANY YEARS AGO WITH BIPOLAR AND I HAVE NEVER BEEN BIPOLAR I HAVE CPTSD AND ADHD AND THE DOCTOR THAT DIAGNOSED ME AS BIPOLAR COMMITTED SUICIDE!!!!!!BUT YOU CANNOT TELL THE DOCTORS ANYTHING THEY THINK IM A MORON I HAVE WORKED IN THE MEDICAL FIELD FOR ALMOST 30 YEARS I AM NOT STUPID AND I HATE BEING TREATED THAT WAY, AFTER MY DOCTOR TOOK ME OFF MY MEDS I GOT MY MEDICAL RECORDS AND THE LIES THEY PUT IN MY RECORDS IS FRUSTRATING MY RECORDS ARE BEING INVESTIGATED WE WILL SEE WHAT HAPPENS BUT IM NOT VERY HOPEFUL THAT MY MEDICAL RECORDS WILL BE RECTIFIED, WHAT EVER DOCTOR READS THEM IS GOING TO COME TO THE WRONG CONCLUSIONS ABOUT ME WHY WOULD THEY BELIEVE ME I AM A NOBODY AT LEAST THATS HOW THEY TREAT ME, I HAVE NO DOCTOR NOW BEEN UNTREATED FOR 6 YEARS NOW, THANK YOU DOCTORS FOR YOUR EMPATHY AND COMPASSION (NOT)!!!!! I WANT MY LIFE BACK OR AT LEAST I WOULD LIKE A LITTLE PRODUCTIVITY BACK!!!!!!!!!!
@scarredcitizen2023
@scarredcitizen2023 3 ай бұрын
Pancreatitis neglect 😢😢😢
@uk2mama
@uk2mama 4 ай бұрын
Im not thing and 50 and just finding out I might have this. This is what they said Bones/joints: There is suspected greater than 75% stenosis of the celiac axis origin as it courses under the median arcuate ligament insertion,
@KarsonsChannel
@KarsonsChannel 4 ай бұрын
I’m sorry this happened to you. I had a similar situation happen to me
@abdulrehan5895
@abdulrehan5895 5 ай бұрын
I'm an IBS patient the doctor prescribed domperidone and rabeprazole in combination a few days back I met my gastrointestinal he told me I should stop taking domperidone so I stopped taking but my symptoms came back such as stomach pain and nausea. Will you please tell me how long this symptom continues?
@heatherguerrero5842
@heatherguerrero5842 5 ай бұрын
Wow I’m listening to you and it’s hearing my life story.. I’ve suffered from pancreatic attacks since a child however always told it was in my head till I was 37yrs old on my death bed in 2011 3 months in the hospital with 3 blood transfusion, heart attack and surgery.. I did find a good team of doctors in Florida however we moved to Colorado in 2021 and now again I’m being told that they don’t feel that I have a pancreatic issue and it’s in my head again… I had a appointment today with a new GI and she said that all I probably need is a good anti anxiety medication and my vomiting would probably stop… Im not asking for anything I just want a better quality of life. I was a lpn until 2017 when my husband and I decided it was time for me to stop working I’ve lost normal life. I do have a good support system but it’s hard to see the fear in their eyes when I’m vomiting for days and refuse to go to the hospital for care because they treat me like a drug seeker.. I’m at a loss now and I’m thinking I’m done trying to get help from the doctors here in Colorado…. Thank you for speaking out..
@user-ds8fq8cp2f
@user-ds8fq8cp2f 6 ай бұрын
And getting it from the stress of medical people and dealing with their bs pill pushing
@phillipgrandfield9772
@phillipgrandfield9772 7 ай бұрын
I’m so with you on this with zero support system too. I think it’s bad when you go alone too. I’ve made complaints and literally get gaslit and shamed for doing so. It’s truly unbelievable. Im definitely more afraid of doctors and hospitals then just dying tbh. That’s pretty bad imo.
@zelahfines6535
@zelahfines6535 7 ай бұрын
Hi! I watched your medical ptsd video with I resonated with. I can see you havnt posted for awhile, I hope you’re doing ok?
@vi4670
@vi4670 Ай бұрын
I was thinking the same, I really hope she's ok
@angelamarquess-od8yz
@angelamarquess-od8yz 7 ай бұрын
Thank you for your video -- APPARENTLY we're not the only ones going through this traumatic and terrifying treatment -- I've been thinking that I have "upgraded" to C-PTSD from so many decades of malpractice and mistreat😢
@KennethNordin
@KennethNordin 7 ай бұрын
Medical PTSD is something that you describe very vaguely, so they don't understand what you mean, or what you were "exposed" to. Remember that it is a trauma for many of us who need to seek emergency care, that you feel strong fear just before seeing a doctor, being examined and receiving a diagnosis, and hopefully a treatment that will help. PTSD is getting watered down, it doesn't mean much now. However, PTSD is actually a very difficult syndrome to treat, where most people have been exposed to extreme trauma. I can't take away your experiences, but it doesn't have much to do with PTSD, unfortunately. It sounds more like extreme phobia for something you have been exposed to. For example, I have a phobia of healthcare professionals taking my blood pressure, and feel strong discomfort from it. But it's nowhere near "true" PTSD.
@MamaTriedSolo
@MamaTriedSolo 8 ай бұрын
I wish I could hug you. ❤
@auburnandgrey4457
@auburnandgrey4457 9 ай бұрын
My cat has access to better healthcare than people in Ontario
@briangoguen9439
@briangoguen9439 9 ай бұрын
Thank you for this for yrs ive suffered alone to the point i question my own sanity. The brain must be treated aswell as the body Doctors are just learning. Maybe thats why they practice medicine. Too much is still unknown . Thank you for the new direction in my life. ❤
@alix73
@alix73 9 ай бұрын
I know I have this, but was not aware it had a name. Thank you for sharing this.❤
@marcofreyssonnet9673
@marcofreyssonnet9673 9 ай бұрын
Doctors are greedy corrupt incompetent and dishonest just like the politicians.
@AyveeCee
@AyveeCee 10 ай бұрын
I've heard of medical gaslighting but not medical PTSD before. You're a very brave woman and I hope you're doing better now. Sadly, I've had and I'm still going through similar experiences now. I thought I'd finally found a sympathetic GP but unfortunately no. I thought he'd be happy for me today that another doctor had prescribed steroids for me try and the result has been nothing short of miraculous, but quite the contrary. He said he wouldn't have prescribed them to me, he lectured me and reeled off a raft of "dangerous" side effects - high blood pressure, diabetes, osteoporosis, stroke, and heart disease (none of which I have). After living with chronic pain for 40 years I said that at the age of 72, I'll choose the risks he outlined just to be able to experience a few good years where I can enjoy life because I don't have many more years left on this planet. This is the very first time any doctor has advised me of any side effects associated with the various medications I've been prescribed! Whilst they're quite content to prescribe psychotropics, misdiagnose you, judge you and dismiss you they can't be bothered to help you. I take my partner with me to appointments now so he can witness what I have to go through and how stressful it is for me. I think I may make a video about my own experiences in the Australian medical system.
@lisafarrow8467
@lisafarrow8467 10 ай бұрын
Symptoms you describe sound like carcinoid crisis caused by functional Neuroendocrine tumors rare disease same cancer Steve Jobs had. Thank you so much for being brutally honest and open. You provided validation for what I am experiencing.
@lisafarrow8467
@lisafarrow8467 10 ай бұрын
I totally relate to everything you’re saying it took me eight years to get diagnosed with Neuroendocrine cancer. Cleveland clinic actually saw two tumors on my liver years before but forgot to tell me and never did an MRI so by the time I got diagnosed stage four in operable. Your symptoms sound a lot like neuroendocrine cancer which is usually slow growing and takes years to get diagnosed as it is a rare disease most doctors are not familiar with it. Please look into neuroendocrine tumors which can start in pancreas Gastro or lungs and will metastasize to liver first. Mine started in small intestine and spread to lymph nodes and liver my tumors are functional meaning they release hormones and peptides into my system which cause numerous symptoms and conditions one of the main substances released is serotonin. Your symptoms and experience sound so much like mine unfortunately I am still having to fight for care and I have experienced so much medical neglect and negligence
@colegmr
@colegmr 10 ай бұрын
For acid reflux Try drinking vinegar (1-2 oz in a cup of water b4 meals) or taking Betain HCl GERD and many other gi issues are usually caused by low stomach acid not to much acid This fixed my chronic heartburn . I know it sounds scary to take acid but just try it out for 2 weeks after that I felt much better. Also you would need to stop taking antacids as while these give temporary relief long term they are just making the problem worse and will mess your whole body up because without strong stomach acid you cant absorb certain nutrients. Also ginger and artichoke extracts both help a lot with gastric emptying. God luck!
@janncoons7445
@janncoons7445 10 ай бұрын
I've been trying to get help for three years now. I've given up whatever's going on inside my guts will eventually kill me and I will get to go home. I think all the real doctors retired or died
@christinemarquez2475
@christinemarquez2475 10 ай бұрын
Thanks so much for the courage to speak publicly about PTSD and your pancreatic condition. I hope this raises the awareness that is needed .
@tomashley6377
@tomashley6377 10 ай бұрын
There's tens of thousands of us. We suffer in silence. I had something called PANDAS.....which is infections after surgery. Then you get OCD We have low energy and most people, including our families! Don't believe us
@davidsavage6227
@davidsavage6227 10 ай бұрын
TPN helped me too. I spent five weeks in the hospital last year. If you’re on Creon, did your doctors tell you how to take it? I had the same chest discomfort too. Ended us being severe inflammation of my esophagus, stomach and duodenum. Sucralfate helped my chest pain.if you haven’t had problems swallowing, I would recommend paying attention to your ability to swallow and whether food feels like it is getting stuck halfway down.😊
@davidsavage6227
@davidsavage6227 10 ай бұрын
Did you make sure they give you a CT scan with and without contrast? You need both scans. Do you have pseudocysts? Does Creon help? I have found that Creon helps but doesn’t fix it. I hope you’re feeling better and that your healing continues. Also, you may need a new duct with stents and a little barbell to hold things together.
@Ouchimoo
@Ouchimoo 10 ай бұрын
I feel this story in my bones. I live in the US and the medical system here is so fucking broken because of insurance companies. Then when you have bad doctors on top of everything. I think I have good doctors now but the anxiety and anger issues I have from the doctors I had before is pretty unbearable.
@mobee9181
@mobee9181 10 ай бұрын
once doctors decide you have a psychiatric problem, theyll happily watch you die of whatever your actual problem was. My dog had pancreatic insufficiency, but with dogs they dont mess about and say they are mental, they treat it. I've often wished I could find one of those shady vets that stitches up bullet wounds for the mob and have them be my primary care
@brooks8792
@brooks8792 11 ай бұрын
From doctors playing `hot potato` transferring you from specialist to specialist rather than communicate and treat your illness, especially if it has the potential to take your life. Waiting a month until the next referred appointment only to have the doctor say `why are you here?` Understanding that specialist did not do what you needed, but trying to be compliant, and thinking surely the first doctor would refer you only if it made sense. Will never have more than one doctor at the same facility again. Found my strength, went out of state. Locally I am finding new providers, each at a different hospital or medical center. I take my notebook and take notes or you can bring a support person. Sad we must do this to encourage some doctors to behave like professionals and human beings. There are good, even great doctors out there. I learned (more slowly than I should have) to not try to fix the doctors who don't care, but to move on quickly if the communication, interest and respect is not present.
@hummingbird7713
@hummingbird7713 11 ай бұрын
Wow wow I didn’t know this was a thing! I worked in medical field. I got hurt at work. Had to go on workmen’s comp. I found out why there is so much suicide while people r on workmen’s comp. Every time I had a appointment they sent a nurse to go with. When I’d end up back in ER she’d ask doctor “is this normal?” Got to the point the doctor wouldn’t let her come into the room with me. He said she is just bulking you. If it wasn’t for him idk what would have happen to me. I just can’t get passed how I was treated.makes my healing very hard.
@BassingGalBarbara
@BassingGalBarbara 11 ай бұрын
Thank you so much for sharing your story ❤ it definitely resonates with me in so many ways. We are definitely in need of healthcare reform. Praying for you and hope you are doing well.
@cieyennegale8294
@cieyennegale8294 11 ай бұрын
Just discovered your channel~ & So appreciate your sharing your experiences... Can totally relate & to your situation, betrayals of trust & hope & many of your trials & I too believe many of which are totally preventable & need not escalate or increase as we know that if we had the kind of moral conscience & integrity we require of our health care providers many of our health & financial issues & woes would likely NOT even exist...as many are both preventable & avoidable... & Going it solo isn't easy either...to endure the many seriously cascading & compounding health issues, tribulations moral support, isolation, rhetoric, narcissistic gaslighting, mocking, minimization & ostracization & I could go on...but you know~ I certainly resonate w/your experiences & insights... The decline in quality of our healthcare system & lack of moral integrity, human empathy & safe, effective, accessible, well-informed, accountable & top-notch, respectable healthcare/Dr.s & medical staff in the past 10-20 yrs has been both alarmingly dangerous, notably significant & unwarranted...not to mention 'criminal' & the rude, condescending, disrespectful mocking, gaslighting & disbelief are a CRIME unto their own & should be pursued as punished as such ~but, for the 👉 'same lack & void of integrity in our court & justice systems' & 'BAR association lawyers' that seem to be just as shameless & unethical {putting it 'mildly'...} Your voice & videos are important & give light, inspiration & encouragement to the TRUTH & others' health nightmare plights struggling w/many of the same types of complex health issues & a lack of sound quality healthcare, basic acknowledgement & belief or offer the kind of help, interest, diligence & healthcare we are deserving & many of us are in dire need of~not to mention, one would 'naturally expect'~!! Than~Q~ once again~!! Keep the Faith, your thoughts & prayers 'On-Higher Positive Healing Realms' & wishing you Showers of Blessings, timely Healing & Better🌄Days Ahead~!! 🎆🕊️✨💜✨🕊️👉🕊️✨⚖️✨🕊️🎆👈🎆😉 ☺️
@MysteryGrey
@MysteryGrey 11 ай бұрын
I have so many stories of dr.'s traumatizing me. I think they see my neuro-divergence in me somehow and they really hate it and hate me for it. So many times, so many different/seperate/independent dr.'s-why are they so hateful? Something about me, people hate, especially dr.'s. My heart rate goes down to 33 at night visible when they were testing me for sleep apnea...no problem, for them anyway. I wake up often gasping for air. I had the chronic appendicitis for years....they put in my record it was psychosomatic. On and on....I dread going to my gaslighting N.P. If I say something, I get treated worse. I stopped going to ANY dr. and took no meds for 3 years because I don't trust them. Now I kinda have to go to specialist because I have too much blood and way too much iron...I am frigging magnetic! I have no support, as well. I wish you and all of us luck and blessings dealing with these scary things.
@nitinrao2891
@nitinrao2891 11 ай бұрын
So sorry to hear about your struggles. I am facing the almost the same issues as you after taking 30mg domeperidone. Be strong and meditate. You’ll make through it. You can come down to India to Appolo hospitals Greams road Chennai. The doctors there some of the finest in the world. Hope this helps.
@jtzoltan
@jtzoltan 11 ай бұрын
Hey thanks for sharing your experiences and perspective; so sorry you were treated this way and had to bear the consequences of how corrupted the allopathic medical system has become... have you had any luck speaking with Integrative Medicine practioners? To me they seem to be the mix of the best of both worlds of mainstream medicine and naturopath practice. I hope you've found a group(s) of others who faced similar trials as you that you can commiserate with... I can't quite speak from experience but it seems to me that the upside to experiencing injustice is that it can lead to a meaningful purpose and bonding with others to organize your efforts for change. We need it, the depths of the problems here go back a century at least and has grown in severity that many people are getting gravely hurt by it... it needs people like you telling what you lived through. I really think more and more people are listening. Best of luck to you
@badgermacleod5588
@badgermacleod5588 Жыл бұрын
Nope, done talk to doc's about anything that's personal. They will weaponize it against you.
@LadyPashta
@LadyPashta Жыл бұрын
I saw that you have EDS, so it's no wonder you have medical PTSD. EDS affects our entire body, so it affects everyone in different ways. It doesn't show up in most tests or on the outside of our bodies and we look "fine" so it's overlooked and people get dismissed often. It's not "fine" to have pain 24/7 and all these weird things happening inside our bodies. I also have EDS, if you didn't guess already. :) Mine is the Hypermobile type, though. My type doesn't have verified genes found for this type yet, so my diagnosis came from the physical exam and checklist. I was diagnosed with hEDS by three different doctors so I'm sure it's a correct diagnosis. I think I have medical PTSD because I get crazy blood pressure readings in doctor's offices now, tachycardia, etc. Doctors were not helping me, saying, "you're too young to be in this much pain" or "the MRIs look fine, just a bit of arthritis" while I'm dying in physical pain and NOT exaggerating it, not depressed... The "opioid crisis" destroyed my ability to have a normal life and, take care of my family (2 kids and husband) because they stopped increasing my meds when it was needed every now and then. (Tolerance to the meds makes it necessary occasionally, there is no ceiling for opioids.) So I've been undertreated for a while now. My current doctor finally just increased my dose, I really hope this will work for a long time to come. Anyway, I don't think that your looking up information on your conditions is a terrible thing, but like anything, it can be overdone. I guess that's why you took a break. So long as it's done in moderation, you'll be fine. I hope you can make some videos about EDS, that would help a lot of people! I hope you are doing well. Thanks for the informative videos, I'll check out some more later and I subscribed. :)
@LadyPashta
@LadyPashta Жыл бұрын
I hope you are feeling better now.
@HelloThereIAmAlice
@HelloThereIAmAlice Жыл бұрын
I would LOVE to find more videos on this topic, please tell me the titles of videos like this
@hootieq
@hootieq Жыл бұрын
I have had a total of 15 surgeries 4 those were back surgeries two of those back surgeries happening in a span of one year in between two of those back surgeries I had a major complication for my back literally had a gaping hole in it due to infections at the time I was 17 so technically still A minor meaning doctors didn’t listen to me they listened to my mother and my mother didn’t listen to me either the other 11 surgeries were kind of minor with one of them being more major but it happened when I was six months old so I don’t remember it basically it was what’s called a Nissan Fundoplication to help with active reflux that I was having I also was failure to thrive at the time so they also implanted a Mickey button a type of feeding tube attached your stomach which I still have to this day because due to my skin condition I just don’t eat enough but anyway back to the story the other 10 are very very simple nine of those were ear tubes such an easy procedure only took 30 minutes to do and a hernia repair took about an hour for that one super fast recovery too but my back surgeries that’s a whole Nother story my first one happened when I was 12 I have scoliosis it was really severe at the time so they added this special rods called magic rods basically you place a magnet machine to your back and the rods grow inside of you it makes it where you don’t have to have as many surgeries because before you had to get new rods every six months and because of my skin condition we were afraid about that so this was the perfect solution but the surgery and recovery itself was a pain it hurt so much and I was basically lied to in eager to get me to agree to have the surgery which causes me to have trust issues in my doctors now the second one happened about three years later in 2020 when I was 15 years old that’s because I stopped growing and the rods also stoped moving The surgery was expected we knew it was coming doesn’t make it any more worse though especially because it happened in the middle of a pandemic the next back surgery happened in 2022 so last year because all of a sudden my rods decided to try and stab their way through my skin what fun so as you may assume that surgery was pretty sudden they took out the right top half of my rod and that helped for about three months until I got a giant hole in my back guess what it was infected I was absolutely over doctors at that point because of the antibiotics I had been taking to help with the infection last time gave me a severe allergic reaction and the exact same thing happened again another allergic reaction and then the surgery during this whole experience nobody asked me what I wanted nobody explain things in a way I would understand as a 17-year-old my mom was answering the questions for me even though I wanted to I had no bodily autonomy I felt like I was just some experiment now I absolutely hate doctors anything that smells like a hospital makes me really anxious hospital gowns even make me anxious the feeling of that fabric even now as an 18-year-old I still don’t have finally autonomy over medical procedures doctors appointments anything because of how I reacted during the recovery of one of the surgeries
@moichou7939
@moichou7939 Жыл бұрын
I wonder if I could have it ... I was diagnosed with a genetic disease affecting my heart, lungs, spine, eyes and joints when I was like ... one year old. I had to undergo many tests and medical procedures during the three first years of my life. (And also I was a premy) I've been told when I was a toddler I had a skin biopsy done, and all the medical staff would hold me still, holding my arms and legs while I was crying. (I don't remember it.) I would have around 12 medical appointments every year. I have memories of when I was like 5 or 6 years old, doctors would always be impressed by how calm I was, saying things like "She's so mature, she's been through worse anyway, she's brave." Which quickly lead them to treat me like I was older than my actual age. The wouldn't reassure me anymore and were just so cold-hearted. I think I was calm and steady because I was actually dissociating from my body. I went through ten surgeries when I was under 16 years old. For six of them, I was unter twelve. For two of them, I was a toddler. As far as I can remember, I was always left alone in the operating room. Imagine this : you're a kid, lying on the operating table, undressed, wearing just one of these paper pyjamas, your parents are away, you're all alone, sensing the tension in the cold air, shivering (the operating room is always cold.) There's a strong scent of antisceptic. Medical staff just paces around you without even talking with you or telling you what is happening, the barely look at you, and suddenly, someone pushes a plastic mask on your nose and sticks a needle inside your arm. I regularly have nightmares about hospital or operating room. A few weeks ago, my dad had a surgery and it kind of triggered me I guess, because I've been experiencing nightmares again since he came back home. In these nightmares, I feel so vulnerable and overwhelmed, just like when I was a kid. Every time I have to go through anorther surgery, I have a panic attack right before. Everytime I smell the antisceptic, I feel my belly tightening in a cramp. Also, when I was 15, I was at the eyes doctor and they had to perform a special procedure by puting a device right on my open eye, and I could help but close my eyelid and startle everytime they would try to touch my eyeball. So the doctor called for help and people were holding my eyelids open, holding my head still with their hands and also holding my arms. I think it kind of brought the "skin biopsy memory" back, because I had a full-blown panic attack and sensory overload. Today, I should be used to it, considering all the medical appts and procedure I have. But I feel anxious and nervous everytime, and still experiencing nightmares. Yet I feel so bad and ashamed for this ... I mean ... some people have it so much worse ! When I compare to what you've been through, I feel like a cry-baby. While I'm whining, people are fighting against cancer. Some people can't affort a decent treatment for their illness. Some people don't have access to safe hospitals !
@mikemonroe5195
@mikemonroe5195 Жыл бұрын
65 year old male. Just got the diagnosis after eight years of searching for a answer
@hereternalsummer8224
@hereternalsummer8224 Жыл бұрын
So happy you found answers. I hope you can get the right treatment.
@alexchambers-sq3kr
@alexchambers-sq3kr Жыл бұрын
The symptoms you described sound like serotonin syndrome, which is a potential life threatening drug reaction. I experienced this before with another drug.
@bambambi5918
@bambambi5918 Жыл бұрын
Yeah i don't trust doctors too. This doctor experimented with me and my mother for years...she was literally about to die and he kept gaslighting her
@ShekinahGwaii
@ShekinahGwaii Жыл бұрын
Wow thanks so much for posting this. Have had unbelievable horrible experiences and feel like -- not felt like, actually WAS- dying in front of people who said they cared for me but never knew what to do or tried doing anything. For years my sx pointed to head tumor and I came within a month of my saggital vein being occluded 100% and everyone still had amazing expectations of my abilities. On my deathbed, multiple organ infections, dehydrated and malnourished, my own family chastised me for not going to the media by myself without help.. in my wheelchair.. so many opportunities for a scan, so many NPs accusing me of making up my seizures, acted as tho I was seeking drugs, YELLED in my face to stop using marijuana (when that has kept me alive thru the hypermobile joint syndrome and necrotizing tissues that I could feel and smell)... called psychosomatic by nurses and hearing them pass that on to next shift... (confirmed by one who got to know me) these things are compounded and the weaker we get, seems the more levels there are. Like not able to get out of late fees when I'm bedbound and getting food and water and heat etc. from people taking care of me, but nobody can do ALL my responsibilities and their own. It's a mess and the farther away I am from it the more peace I experience. I know I'll die in the woods when it's my turn, never in any medical or adjacent anything. Even tho they ultimately and thankfully saved my life, even accidentally, it made me tri-palegic, a hard course correction for an adrenaline junkie! The UW Montlake surgical center, #1 hospital in WA, is under investigation by the DoH for the three weeks of hell I experienced, including getting stabbed with a needle in the dark by staff in front of my sleeping dad, and I only hope to enlighten medical staff to the patient perspective.
@hereternalsummer8224
@hereternalsummer8224 Жыл бұрын
That sounds truly terrible. Are you in the United States?
@ShekinahGwaii
@ShekinahGwaii Жыл бұрын
@@hereternalsummer8224 yes